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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Six (6) Years of Living Well with Metastatic Breast Cancer!

Topic: Six (6) Years of Living Well with Metastatic Breast Cancer!

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Jul 13, 2017 05:47PM - edited Jul 13, 2017 06:03PM by Tina2

Tina2 wrote:

It's the sixth anniversary of my first treatment for breast cancer that had advanced to my lungs. The stunning diagnosis arrived shortly after my spouse and I had retired, anticipating a long life of leisure and travel stretching out before us.

Renegade cells lurking in my body for decades had other plans.

I've been on Faslodex all this time, thanks to a wise oncologist who stays on top of what's happening in the field. One-hundred and forty five injections later, I'm not only still here but also doing well. Yes, I have aches and pains and problems, but they pale in comparison to those endured by many others here.

My spouse is ceaselessly supportive. I have good friends. I am busy and active in my community---supporting and advocating for arts and humanities organizations, children's education and human rights. I enjoy expanding my horizons through reading, theatre and travel.

I know I am the proverbial Lucky Duck.

So, while I may whine and moan here and there, at heart I am grateful beyond words for my good fortune.


Tina2 (AKA The Human Pincushion)



Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
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Jul 13, 2017 05:57PM exbrnxgrl wrote:

Just a quick and heartfelt congrats. I'm at my dad's for a few weeks and he has no internet service ūüė¨. Here's to many, many more!

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole)
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Jul 13, 2017 06:00PM AnimalCrackers wrote:

Woo Hoo Tina2!  When I first joined this forum 2.5 years ago I was desperate to find stage iv stories of longevity to help calm my fears.  Although I am no longer desperate for those stories (acceptance and understanding settles in and the panic dissipates over time),  I still love to hear them and am inspired by them.  I hope more people chime in with reports of many good years living with this disease and still going strong!  It's a nice boost to the day!

Thanks for sharing!

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis (2014). Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial 5/18/17 LSZ102 (oral SERD) and Kisqali (Ribociclib). Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/5/2016 Femara (letrozole) Targeted Therapy 1/5/2016 Ibrance (palbociclib) Hormonal Therapy 5/18/2017 Targeted Therapy 5/18/2017
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Jul 13, 2017 06:15PM - edited Jul 13, 2017 06:15PM by pajim

Tina, you should be proud to be the Lucky Duck. Quack quack! Congratulations on six years! Here's to many many more.

Pam

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/27/2013 Femara (letrozole) Hormonal Therapy 4/22/2013 Faslodex (fulvestrant) Targeted Therapy 2/25/2016 Ibrance (palbociclib) Targeted Therapy 2/27/2017 Afinitor (everolimus) Hormonal Therapy 2/27/2017 Aromasin (exemestane) Chemotherapy 6/19/2017 Xeloda (capecitabine)
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Jul 13, 2017 06:21PM ShetlandPony wrote:

Tina2, thank you so much for sharing! Wishing you many, many more years. (And a new pill form of Faslodex.)

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn. Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast, liver, retroperitoneal nodes. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda
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Jul 13, 2017 06:41PM melmcbee wrote:

Thank you for sharing this Tina. It inspires me and gives me peace. Praying for many more years.

Melanie. mentor smooth round high profile gel 700 rt 550 lt with fat grafting 5/30/2013 Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/8/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/8/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/22/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/8/2013 Breast, Lymph nodes Surgery 5/29/2013 Reconstruction (left); Reconstruction (right) Surgery 12/3/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Targeted Therapy 5/15/2017 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jul 13, 2017 06:58PM AnimalCrackers wrote:

Hey Shetlandpony - as you know I am on a trial with a pill form SERD and it is going very well so far!  I believe there is another trial also with a different pill form SERD but I don't know how that one is going.  Hopefully the pill option will coming to a theater near you soon!

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis (2014). Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial 5/18/17 LSZ102 (oral SERD) and Kisqali (Ribociclib). Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/5/2016 Femara (letrozole) Targeted Therapy 1/5/2016 Ibrance (palbociclib) Hormonal Therapy 5/18/2017 Targeted Therapy 5/18/2017
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Jul 13, 2017 10:18PM illimae wrote:

Congrats Tina! I love hearing good news.

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 13, 2017 10:24PM Stllivin wrote:

Congratulations! So happy for you! Wishing you many, many more!

Stllivin Dx 12/20/1997, IDC, Left, 2cm, metastasized to bone/lungs, 7/11 nodes, ER+/PR+, HER2-
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Jul 13, 2017 10:31PM Stefajoy wrote:

Tina, I am right behind you. My first treatment was the first week of August, six years ago. My de novo mets came in the form of a spot on a bone. I did very well on faslodex for almost 4 years. The difference is i went and had multiple reconstructions that were very hard on my body and, imho, Is why it came back again. Spent two two years on Ibrance and now doing well on Xeloda. Tina, I think you are going to be around a very very long long time.

Six year sister, Stefanie

Dx 7/29/2011, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Radiation Therapy Chemotherapy TAC Targeted Therapy Ibrance (palbociclib) Surgery Mastectomy; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole)
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Jul 13, 2017 10:39PM Kandy wrote:

Definitely doing the happy dance for you!!!! I'm praying for this lucky streak to never end for you. Enjoy every moment.

Dx 1/20/2009, IDC, 1cm, Stage IIIA, Grade 3, 4/9 nodes, ER+/PR+, HER2- Surgery 2/26/2009 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/9/2009 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Navelbine (vinorelbine) Radiation Therapy 10/7/2009 Breast, Lymph nodes Hormonal Therapy 1/4/2010 Arimidex (anastrozole) Dx 10/31/2013, IDC, Stage IV, Grade 3, ER+/PR+, HER2- Radiation Therapy 11/18/2013 3DCRT: Bone Hormonal Therapy 12/3/2013 Faslodex (fulvestrant)
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Jul 13, 2017 10:41PM Stllivin wrote:

Congratulations! So happy for you! Wishing you many, many more!

Stllivin Dx 12/20/1997, IDC, Left, 2cm, metastasized to bone/lungs, 7/11 nodes, ER+/PR+, HER2-
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Jul 13, 2017 11:17PM sharmal wrote:

Congratulations Tina, I am very happy for you. I wish many more healthy years for you to Inspire and guide people here. God bless you.

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Jul 14, 2017 04:31AM Heidihill wrote:

Congratulations and keep trucking. As older sister (in line with Stefajoys meaning), I can say it is looking very good for you. 

Dx 8/2007, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/24/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 14, 2017 07:50AM Bright55 wrote:

wonderful your news has given me and club mbc a big boost

Huggs Bright

Dx 2011, DCIS, Right, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 2016, Right, 2cm, Stage IV, metastasized to lungs, ER+/PR+, HER2- Hormonal Therapy Femara (letrozole) Surgery Mastectomy: Right
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Jul 14, 2017 08:01AM 50sgirl wrote:

Tina, WOOHOO! Six years on faslodex? WOW! WOW, WOW! You are not only a human pincushion, you are one of those Exceptional Responders that we all strive to be. I am joining Kandy in the happy dance for you. I look forward to seeing your updated posts year after year after year.....!

I love reading posts that report such good news. It gives me renewed hope. Thank you.

Big, big hugs from, Lynne

Dx 6/5/2015, IDC, Left, 3cm, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/25/2015 Arimidex (anastrozole) Dx 8/9/2016, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib)
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Jul 14, 2017 08:45AM DivineMrsM wrote:

Tina, congras on being an exceptional responder! Very happy for you.


found lump 12/22/10~er+/pr+/her2- stage iv bone mets~chemo~lumpectomy~ radiation~arimidex~
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Jul 14, 2017 09:05AM Bigbhome wrote:

Yay Tina!! So happy for you! Keep it up!

Hugs and prayers

Claudia

Dx 5/2012, IBC, Left, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- Radiation Therapy 4/17/2017 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib) Targeted Therapy Ibrance (palbociclib)
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Jul 15, 2017 12:29AM Sadiesservant wrote:

Fabulous reason yo celebrate Tina! Thank you for sharing as the good news stories, particularly those involving the lungs, are still very important to me! Looking forward to celebrating your 12th anniversary.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)
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Jul 17, 2017 05:17AM stagefree wrote:

dearest Tina,

All congrats to you and here's to many more!!! You are such a valuable soul to be around with, I a feel blessed to have met you, though through a crappy way.

Love & hugs

Ebru

Dx 4/9/2012, IDC, Stage IV, Grade 1, mets, ER+/PR-, HER2- Chemotherapy 4/11/2012 Xeloda (capecitabine) Hormonal Therapy 8/24/2012 Hormonal Therapy 6/8/2016 Arimidex (anastrozole), Zoladex (goserelin) Chemotherapy 6/8/2016 Cytoxan (cyclophosphamide), Xeloda (capecitabine)
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Jul 17, 2017 06:41AM susan_02143 wrote:

:: quack quack::

Really happy that your rear end is still willing to back up to that needle. Congratulations!

*susan*

anotherplan.blogspot.com... and its back. May 3, 2010 mets found. Five years NED on Faslodex * 4/2015 progression to bone * 6/11/2015 Femara/Ibrance * 12/27/2015 Xeloda * 2/24/2016 Xgeva * another progression, another drug Taxol 2/14/2017 Dx 6/8/2005, IDC, 3cm, Stage IIB, Grade 1, 0/3 nodes, ER+/PR+, HER2-

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