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Sep 7, 2017 08:19AM
Zar super interesting thread, what a dream this would be.
I could give you these facts, I don't understand it all very well. Dani had F1 done just a few weeks ago.(2nd time in 2 1/2 yrs. first time from the illiac and this time from the liver biopsy). It says she has a high TM, so can you explain to me what could that mean? I get that it's not good, but what else would we need to know?
Also, it says she has about 19 mutations – some have clinical trials, some don't. Also, interestingly they mention a lot of tx that she was on and it had not helped her, but it still says that it's recommended to her type of mutation, but it did not. Will all that, Onco still is at loss, what gives??
Re: I got to a navigator that works with F1, he sent me a whole study of what trials are good for her mutations, etc…
Re: 15.3 has been rising, slowly but surely. And the way the scans came back, it showed some progression of new lesions, some lesions got larger. Some are stable. Her BT's are not gr8 this time either. Another BT that I think they could see how things are going is the LDH, that has been going up a lot, so I could see that things are not so good.
With all that, they insist she should continue on the trial of DS8201a, I really don't think it's doing much for her.
She also had Guardant360 done about 1 yr ago, this Onco does not think much of it. It's done with a blood test, and she did not respect it much. Interestingly, she had a few mutations on that one, but it did not show the same on F1 that was done now. Maybe one or two.