We are 211,400 members in 82 forums discussing 151,463 topics.

Help with Abbreviations

Topic: Would like your feedback: Patient - Doctor Relationships

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Sep 6, 2017 12:42PM

Moderators wrote:

Dear Members,

We are preparing some new content about patient-doctor relationships for those who are living with metastatic breast cancer.

We would love to hear from you! We welcome your feedback on the following questions:

  • What communication challenges do you experience in the doctor's office, if any? Do you always feel like your concerns are being heard?
  • Are there any issues you wish your doctor would address but has not?
  • Are there issues you are afraid to bring up with your doctor?

Thank you for sharing your experiences!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Page 1 of 2 (37 results)

Posts 1 - 30 (37 total)

Log in to post a reply

Sep 6, 2017 06:36PM dlb823 wrote:

I would say if anyone answers "Yes" to any of the above questions, they need to find a new doctor. We are stressed enough dealing with our bc or mbc, and there is no reason in the world why a doctor's office should be adding communication challenges or other stresses to our lives. We all deserve docs we trust and with whom we can speak openly about our concerns, including questioning treatment recommendations. Unless you live in the boonies with extremely limited options, I can't imagine having any of the above issues and not looking for an onc who is more approachable/relatable and/or an office staff that is detail minded and efficient, which includes a way to reach them when necessary, and a timely response time. Settling for anything less is crazy when our lives and comfort depends on them.

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
Log in to post a reply

Sep 7, 2017 03:02PM Bigbhome wrote:

My original mo, had a great bedside manner, however, I started feeling like things were being missed, plus I wanted to be closer to home. My new Mo, (2yrs, 4mos) , has been a godsend! He is very detail oriented and extremely up to date with the latest and greatest of treatments. He also does research. He seems to have a passion for finding a cure. Not just for bc, but for mbc also. His staff are great! I have an issue with one, but have found away around her so I can't complain. His PN is retiring for health reasons. I hope she will be well, but I feel like I am losing a good friend. I talk to her about things I am uncomfortable talking to Mo about. Constipation issues, sexual issues, things like that. I know I can discuss these things with Mo, but it is nice to talk to a female about female issues. Oh well...my Mo is always 2 steps ahead with treatment ideas. He has several lined up, depending on where it progresses to.

As much as I loved former Mo, we were together 11 years, I could not imagine going back to her or anyone like her! I want, and need that expertise!



Log in to post a reply

Sep 8, 2017 04:39AM - edited Sep 8, 2017 04:45AM by stagefree

As much as the main job of the doctor is to keep us alive,

. Oncology is the most challanging field in medicine, offering no cure yet

. Doctors know you will die from day 1, not be cured

. The therapy options are basic, worldwide, one following the other till the patient dies

. Doctors push for a distance, a challange for any human, otherwise cannot live doing this profession

. It is the PATIENT's job to be her self advocate at critic times, as the doctor is not her family, just doing her/his job. The doctor has a life of their own and hundreds of other patients to think about professionally.

. Doctors hate dr google

. Do what your doctor says or stop going there

:)

All that being said, I have a MO, who made a lethal mistake right at the start. Normal, she is only human. She is top notch MO in my country, we can talk everything openly, decide on things together and the treatment has been as successful as it can ever be .. all this achieved after I found out and accepted the bullet points I stated above.

Ebr

Dx 4/9/2012, IDC, Stage IV, Grade 1, mets, ER+/PR-, HER2- Chemotherapy 4/11/2012 Xeloda (capecitabine) Hormonal Therapy 8/24/2012 Hormonal Therapy 6/8/2016 Arimidex (anastrozole), Zoladex (goserelin) Chemotherapy 6/8/2016 Cytoxan (cyclophosphamide), Xeloda (capecitabine)
Log in to post a reply

Sep 9, 2017 02:23PM Waitingforspring wrote:

hi I've had my mo and my rad onc for 5years now and the are wonderful. All my concerns are met and I can call at any time. My docs are all in the city I live in and don't have to travel to another location. If by any chance I need extra help they can consult with Boston without me going there. I have a wonderful with my primary care physician. She is there for me at any time. I have been very fortunate in that area

Cheryl Chemotherapy Xeloda (capecitabine)
Log in to post a reply

Sep 18, 2017 09:24AM Laurie09 wrote:

I have the most wonderful MO. She is caring, compassionate, always interested in my questions and very available to me and communicative. On top of that she's super smart and on top of the newest treatment options available.

I never feel like my concerns aren't heard or aren't being met.

Laurie Dx 2/20/2009, IDC, 3cm, Stage IIIA, Grade 2, 7/12 nodes, ER+/PR-, HER2- Chemotherapy 3/12/2009 AC + T (Taxol) Surgery 8/28/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction, Tissue expander placement Radiation Therapy 10/5/2009 Hormonal Therapy 11/5/2009 Dx 5/2015, IDC, Stage IV
Log in to post a reply

Sep 18, 2017 03:57PM pajim wrote:

My oncologist and I have been together for almost 10 years now. I didn't choose him, he was chosen for me, but the person who chose him did so for some very good reasons. Not to mention they knew how to match us up.

One's relationship with one's onc is a personal one. If you need touchy-feely, they should provide it. If you're a 'just-the-facts ma'am' person they should be able to do that too. Our relationship has evolved into a lets-ignore-the-cancer-if-we-can. Because of the way I act I sometimes feel that he takes me for granted. That I'm always going to be the easy part of his day. Some things (mostly awkward symptoms) I'm much more comfortable bringing up with the NP or the nurse. If I don't want it to be that way, it's my job to change it.

That said, I love and trust my onc. I have his cell phone number, his e-mail address, and his trust. When I feel there's a problem he believes me and works to get to the bottom of it. When the chips are down, he's there. He has the science at his fingertips and is willing to discuss all sorts of treatment ideas. He also says "if you get into trouble, stop taking the meds and then call me". And he doesn't mean call the office.

Your specific question about the doctors' offices. It depends on what kind of office you go to. I go to a large cancer center. They have systems of care. The best thing a patient can do for herself is to learn what those systems are and how they work. Then you'll know how to align your expectations. You'll also be able to figure out how to cut through the systems/red tape. [As a for instance, I finally figured out that they can't order your Lupron shot until you check in for the shot appointment. Not the onc appointment. So now I know why I'm sitting in the waiting room for 30 minutes and can be patient about it.]

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/27/2013 Femara (letrozole) Hormonal Therapy 4/22/2013 Faslodex (fulvestrant) Targeted Therapy 2/25/2016 Ibrance (palbociclib) Chemotherapy 6/19/2017 Xeloda (capecitabine) Targeted Therapy 8/15/2018 Verzenio Hormonal Therapy 8/15/2018 Faslodex (fulvestrant)
Log in to post a reply

Sep 20, 2017 03:07PM QueenElizabethTheFaux wrote:

ALL of my Drs....from various GP's, to ER Drs, Specialists & all of the Drs on my "Accredited Breast Cancer Team" (except a Radiation Oncologist,) ...have been a disgrace to their professions.

Every one of my 4 surgeries & long list of other various procedures has been screwed up (to varying degrees.) I'm getting ready to "dump" every one of them & go to a much better facility. It's a longer drive, however it's at a well-respected "Teaching Hospital."

Looking forward to getting a better Pain treatment plan (since I am, & have been, in excruciating Pain for many, many years...thanks to continued misdiagnosis' of the source of my pain. One that a PET Scan could have easily cleared up, had I been given one after they were available to the patients beginning appx. F17 years ago. (I repeatedly asked for one but was supposedly always denied...evenafter the Breast Cancer diagnosis, 2 years ago.)

Also, I was just told I'm Terminal, may have up to 1 year left & have likely had the bone mets for at least 22 yrs.) Can't wait to obtaining honest Drs. (My old Chemo Dr just informed me, & my mother, that he lied to me last year. He deliberately Over-Medicated me w/Taxotere...w/o my knowledge or consent...& I almost died. His actions are considered to be Felony, in my State. It's also "Medical Malpractice" in Civil Cases.

My death will not be in vain. I'm working on my own Wrongful Death & Medical Malpractice lawsuits...w/my own evidence collection against each party involved. . My family has promised me they'll pursue charges...& extensive amounts of financial compensation....against every single Doctor & RN (yes, there were some) who have collectively destroyed my life. I'd like for my case to be SO massive that it changes the way cancer patients are treated...in that Facility & (hopefully) on a global scale too.

Btw...These actions are not new to us. My family has been thru this before, regarding my Dad's Wrongful Death Lawsuit (via a botched Angioplasty & the incompetent Doctor who killed him.) The problems was that we did not pursue the case further...by slapping Leins on the Drs. homes & freezing all of his financial assets. We also did not call for a State Investigation into the matter. (Live & learn.)


"Courage is being scared to death... and saddling up anyway." John Wayne Dx 9/17/2015, IDC, Right, 2cm, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 12/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Dx 12/22/2015, DCIS, Right, <1cm, Stage 0, 7/8 nodes, HER2- Dx 12/22/2015, ILC, Right, 6cm+, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 1/5/2016 Mastectomy: Left, Right Chemotherapy 2/9/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 6/28/2016 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 5/23/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/27/2017, DCIS/ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 2, 7/8 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 External: Bone
Log in to post a reply

Sep 20, 2017 03:21PM Moderators wrote:

Wow, so many powerful and intense stories. We appreciate your frankness here.

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Sep 21, 2017 09:23AM MARIONSGIRL wrote:

I am very happy with my Medical and Radiation Oncologists. I was assigned to my Medical Oncologist by my PCP two years ago. I have been with my PCP for about 20 years and she is awesome! I was assigned to a different Radiation Oncologist who I liked a lot after just one visit but due to location I asked to change to someone else. I'm happy with my decision too. My Medical Oncologist was located at a satellite location and he and his staff are awesome..Almost a year ago, he was transferred to the main campus and I don't know the staff and don't feel a connection to them. It was not his idea to move. When he was in the old location, communication wasn't a problem. Since he moved, he said I could email him or call and ask to speak to him and not a nurse. We had a great rapport. Just recently he said I had to stop the emails due to policy and privacy rules. The main location is a very serious place and very different from the satellite location. I'm FB friends with the staff at the old place, not with my Doctors as I know and was told that is not appropriate. I have sent questions through the patient portal and always get a phone call from the nurse. My MO told me he has 3,000 patients so I understand how busy he is. Plus he has 3 young children and a wife that he needs to make time for. So cancer affects everyone. I expect I will be seeing my MO for ten years. I was recently released from my breast surgeon and she is a sweetheart! Told me to call her by her first name and gives hugs!! I see my RO next month and expect to be released from him too.

Dx 7/2015, LCIS/DCIS/IDC, Left, Stage IIB, 1/3 nodes, ER+ Surgery 8/16/2015 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/15/2016 Hormonal Therapy 6/20/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Nov 7, 2017 03:32PM amarantha wrote:

I am in France, very grateful to be taken care of my the generous health system, and I owe my life to France, however between me and the oncologist the current just doesn't pass. She's young, stilted, uncommunicative, seems always disapproving, we almost always get into some stupid fight. I don't think I can just ask to see a different doctor, it doesn't work like that.

begin 5 wks rads + weekly Cisplatin, eventual mastectomy, right side. IBC recurrence with mets -bone, skin, lymph nodes (controlled by Halaven) (IBC originally in left breast, heavily treated and removed 2104)
Log in to post a reply

Nov 7, 2017 08:22PM Sadiesservant wrote:

I feel very fortunate as I have a great relationship with my MO. He’s an absolute prince who gave me his email address as he felt I was too busy to have to go through the regular channels to reach him. He has even responded to my questions while at conferences and while on vacation!

Having said that, there are times when it is a bit challenging as a patient. I have come away from our appointments feeling a bit uncertain. I think the problem is that he knows where he wants to go with things but I might be a couple of steps behind in terms of processing. But he will always take the time to answer any questions I have.

The one subject that I feel I cannot discuss openly is prognosis. He shuts down when I go there directly. I know there are no crystal balls and medical professionals don’t want to look foolish if their predictions are off base but at the same time I feel a need to be able to plan to some extent, particularly when it comes to work. I’m still working full time which is beneficial but I also want to have time to enjoy the time I have left. It’s a constant struggle for me. But I may be expecting too much in the world of uncertainty that my world has become. For now, I have just become more devious in how I ask.

😉


Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Hormonal Therapy 1/18/2018 Faslodex (fulvestrant)
Log in to post a reply

Nov 8, 2017 05:23AM Leapfrog wrote:

I'm very happy with the MO I have now but firstly I have to mention the MO I started out with. The first mistake was that her husband was my breast surgeon. I was in a blur of pain and bewilderment after the operation and was prepared to follow his advice regarding an oncologist. At my post-op appointment he said, "I'll book you in with Prof ........ (I won't mention the name) and she'll look after you from now on". Soon after that we discovered that the oncologist is his wife. He didn't declare an interest in referring me to her....bad ethics at the very least. She's highly thought of in my city so I went with it though. However, I found her approach to be very aggressive and confronting but I thought that if she was good I'd cope with her bedside manner. What I didn't like was that, although I have extensive bone mets just everywhere, she brushed aside my pain and actually gave me paracetamol for it! Obviously I might as well have been drinking the water minus the tabs for all the good they did. She didn't mention Ibrance to us, although I'm highly ER+PR+HER2- and told me she would put me on Letrozole for life and said I should live for a few years on that and, if that stopped working she would try something else. Fortunately my husband is a gynaecologist and had read in an American medical journal about Ibrance. It wasn't yet available in Australia except under trial conditions so he asked her about it. Her answer was that I wouldn't be suitable for the trial that was being held at ***** Hospital and when we wanted to ask questions about it she became annoyed and brushed the questions aside. We weren't happy with that that, obviously and we also weren't happy that I hadn't been assigned a breast breast care nurse, something that all Australian breast cancer patients should be registered for. My husband took it upon himself to call Pfizer and ask to speak to someone who could advise him on any trials being held in Perth. The manager of a trial being held in Australia and SE Asia immediately called him back and said that yes, there was a trial being held in Perth but it wasn't the hospital the MO had mentioned. As one of Perth's top oncologists she would definitely been aware of that trial. But that wasn't our last shock! At my next appointment she told us that she was going to the US the following week and could buy Ibrance for us for $10,000 for one cycle of the drug, that she would give me Ibrance for 3 months and then do a bone scan to see if it was making any difference. Meanwhile I would stay on Letrozole, having regular bone scans and, WHEN they showed progression, she would give me Ibrance for another 3 months. I'm sure that everyone here who is on Ibrance knows that is not how it's used and we were very skeptical to say the least. Firstly there was her husband referring to his wife without a declaration of interest and now it was clear that his wife had steered me away from a trial on which I could receive the drug for free, not knowing how to use it and offering to buy it for us at what was very obviously, after we did some research, was at a marked up price!!

My husband called the manager at Pfizer back and asked who to contact regarding the trial and by that evening I was told by the consultant oncologist running the trial that I'd been accepted! Since then I've been completely happy with my treatment in every way. Questions are listened to and answered, I'm taken seriously and he explains every step to me. Recently I started having pain spikes so I went to see him to discuss that and his advice has addressed the problem as well as I can expect considering the load of cancer in my spine and ribs and the fact that I don't handle analgesic medicine well.

I never talk to him about prognosis. He tells me I'm doing well and he's happy with me and that's enough for me. I don't ever think of myself coming to the end of my life. I live for now and don't think about the future.

What I am extremely glad about is that my husband read that medical journal and knew about Ibrance before we saw the first MO!!

Find your joy Dx 10/15/2016, ILC/IDC, Both breasts, 6cm+, Stage IV, metastasized to bone, Grade 3, 29/29 nodes, ER+/PR+, HER2- (IHC) Surgery 11/1/2016 Mastectomy: Left, Right Hormonal Therapy 12/10/2016 Femara (letrozole) Targeted Therapy 1/15/2017 Ibrance (palbociclib)
Log in to post a reply

Jan 31, 2018 04:05PM marynp wrote:

I was originally dx’d with stage 2b while living in the Atlanta area. My mo there was okay, not incredible, just okay. I should probably make note here of the fact that I am a nurse practitioner, myself, so the criteria upon which I base my opinions may be slightly different than some patients. That said, my cancer recurred after more than 10 years, metastasized to nearly every bone in my body and I have pretty much constantly had a pleural effusion since dx, but no confirmed lung Mets. I have lived in central Ohio during all my metastatic life. I have seen three different mo’s and have not really liked any of them,but the worst experience was actually at the most major, prestigious breast center in Columbus. The mo came off as very fake, but worst of all, her nurse was horrible. When I asked her to fill out LTD forms for me she said, “and why is it you can’t work.???? Just because you have some pain and fatigue is not a reason!” I kid you not, she literally said that. If I complained of hot flashes she said, “Dr. ————(my mo) says no one has worse hot flashes than me. I am the worst she has ever seen!” To top it off, often I would wait 3 hours in the exam room to see the doc and then the mo, herself would downplay metastatic cancer, as if just another chronic condition, like hypertension. Yes, it’s true, it is no big deal at all, until it is YOU. It took me 90 mins round trip of drive time to see her and deal with those attitudes, so I switched to another doc, slightly closer. That mo made me feel like she was in a major rush and wanted to be done with me as fast as possible. (And I don’t talk a lot) That was also a long commute, so finally I went to my local, small town oncologist and he is okay but very,very stingy with pain meds and I have been in tears twice today with pain. I hate taking them myself, but don’t want to be looked at with suspicion if I need them! I know when I worked oncology as an RN, about 20 years ago, we truly cared and we realized that bone Mets patients needed pain control and that there was likely nothing going on in our personal lives nearly as bad as what our patients were dealing with. It seems like a lot has changed. I don’t mean to be such a whiner, but today is one of those days that I literally just feel like throwing in the towel.

Log in to post a reply

Jan 31, 2018 07:09PM QueenElizabethTheFaux wrote:

Dear Mary(NP)

Bless your heart. You’ve been thru he**. Now, I don’t know enough about your LTD policy to offer advice, but I’d like for you to know how to win your SS Disability Case, for which I’m certain you will qualify. This is how it’s done:

1.) You must stop working full-time completely. (If you’re not financially ready, begin saving $$ now.)

2.) The day you stop full-time employment, print out the SSDI forms from the US Government’s website & complete them. (Be sure to note that your Doctors are not cooperating in providing you with Pain Rx relief.)

Mary, I’m a medically retired Police Officer/Detective so I know how to direct you in this situation. No pain Rx relief for a dying cancer patient is a considered to be a crime in my State (Ks) & the Statute # can be found online. If it’s a crime in your state too, contact the Govenor’s Office for directions on how to begin filing Criminal Charges against your doctor(s) & that RN...who is also complicit in hindering your medical case.

3.) Get copies of ALL of your medical records related to this case. (Including the ones from Atlanta.) Make a copy of each one, to attach it to your SSDI paperwork.

4.) Find a proper breast cancer Dr, or Pain Mgmt. Dr...even if you must drive all over your state...& get examined. (Show him or her all of your medical records, too.) Have that Dr write a letter, or note, to the SSDI Judge explaining that he believes you are no longer able to work full time...or at all, if necessary. Keep the Original & attach a copy to your SSDI papers.

5.) Mail everything to their address & make sure you have the Post Office get a signed receipt of the delivery.

6.) For SSDI cases “won” the recipient won’t be paid for the 1st 6 months of non-employment. But you will be paid monthly afterwards.

7.) SSDI employees may need to meet w/you &/or have you examined by their Drs. Do meet w/them. Be on time for your appts.

8.) Finally, DO file criminal charges against your Drs (& RN.) Request the State to go to the Drs Office & examine their treatment of all pain patients. Make a formal request to have the Drs & RN’s licenses revoked. Hire an attorney to sue all medical personnel involved in your shabby treatment. Slap Liens on their homes, cars & investment properties. Freeze all of their bank assets & any Retirement Account assets, while your at it. (Your attorney can do most of this work for you.)

9.) Finally, when you’ve Won, know that you’ve just helped thousands of women & men in cancer pain...& other pain...who suffer silently. Be proud of your contribution to their lives...& yours.

Much love,

QueenElizabethTheFaux

PS. Sorry for any misspelling or incorrect grammar. I wrote it all fairly quickly : )


"Courage is being scared to death... and saddling up anyway." John Wayne Dx 9/17/2015, IDC, Right, 2cm, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 12/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Dx 12/22/2015, DCIS, Right, <1cm, Stage 0, 7/8 nodes, HER2- Dx 12/22/2015, ILC, Right, 6cm+, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 1/5/2016 Mastectomy: Left, Right Chemotherapy 2/9/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 6/28/2016 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 5/23/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/27/2017, DCIS/ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 2, 7/8 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 External: Bone
Log in to post a reply

Feb 3, 2018 10:33AM Gumdoctor wrote:

i am new to my stage IV diagnosis on 20 DEC 17. I have the same MO as from bilateral stage III diagnosis of 09 JUL 14. But it seems our relationship has changed going from III to IV.

One night last week, I could not sleep, as usual, and decided to write an email to the MO. I wrote a LONG email describing my perceived lack of support from him and his clinical team. I gave 3 huge examples of things that happened regarding significant communication failures between them and me to justify my feelings of no support, and actually feeling abandoned by them.

I got a call the next day from one of his staff and she pledged their team's support...and we talked about the importance and POWER of good communication. I need stability and comfort and support now more than ever. I do not want to have to change to a different MO now. I will if they cannot provide the support I need but I want to believe they are good enough to work through this with me.

BOTTOM LINE: Professionally, assertively communicate your needs to your oncology support team. If they can grow with you and meet your needs, great. You have your great support team and you help them learn and grow to help other patients too. If they cannot meet your needs, it is, unfortunately, time to find a different team.

Life is very short in the best of circumstances. Our circumstances are not the best. We have limits on what time we have left and owe it to ourselves and our families to make rhe time we have left as great as possible.

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 3, 2018 05:07PM Moderators wrote:

Gumdoctor -- Welcome to Breastcancer.org, and thank you so much for posting! We look forward to seeing you around the boards and hearing more from you soon.

To you all - we are so appreciative of your willingness to share here. It really means so much!

--The Mods


To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Feb 3, 2018 05:32PM jo6359 wrote:

I disagree with you. From what I've read the majority of breast cancer patients do not die from breast cancer. They die from other things not related to breast cancer. Breast cancer is scary. I know I'm living it. But I also know many people who had breast cancer 20 ,30 ,40 years ago who are still alive and well .

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 3, 2018 06:53PM QueenElizabethTheFaux wrote:

jo6359 is correct...most Metastatic Breast Cancer Patients do not die from breast cancer. (For example, in my case...w/very widespread bone mets only...1/3 of us die from pneumonia. Also, my Radiation Oncologist believes I’ve had it somewhere between 17 to 22 years, based on the huge extent of the bone mets. Currently, I’ve just begun losing the use of my right leg & left arm. My Radiation Oncologist already saved my vision & also stopped the cancer cells from eating larger hole in the clivus (sp) plate in my skull. He may be able to fix my 2 limbs. Fingers crossed!) Many Metastatic Patients go on to live very long lives, thanks to the hard working scientists making SO many better drugs to treat it & better radiation techniques!

"Courage is being scared to death... and saddling up anyway." John Wayne Dx 9/17/2015, IDC, Right, 2cm, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 12/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Dx 12/22/2015, DCIS, Right, <1cm, Stage 0, 7/8 nodes, HER2- Dx 12/22/2015, ILC, Right, 6cm+, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 1/5/2016 Mastectomy: Left, Right Chemotherapy 2/9/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 6/28/2016 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 5/23/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/27/2017, DCIS/ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 2, 7/8 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 External: Bone
Log in to post a reply

Feb 3, 2018 07:17PM jo6359 wrote:

QueenElizabeththeFaux; Wishing you the very best. It is so scary when you don't have a medical team you can trust. Kudos to the scientists and researchers who diligently work on finding new treatments.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 3, 2018 07:22PM Gumdoctor wrote:

i like your optimism all. Very encouraging.

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 5, 2018 12:02AM - edited Feb 5, 2018 12:03AM by jo6359

This Post was deleted by jo6359.
Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 7, 2018 01:14PM Gumdoctor wrote:

I would like to respond further to the origi al questikns posted by the moderators:

For 3.5 years, I have received treatment at one of the NCCN facilities. I really like my MO and his team who I originally started with for bilat stage III BC (started there Oct 2014). All his team members have changed out and I do not have the same connection with him or his team.

I communicated this concern once verbally and got zero response. They did not hear me. Communication further degraded and i finally wrote an email. I carefully described 3 huge examples of communication breakdown and wrote out my bottom line: I DO NOT FEEL SUPPORTED BY MY ONCOLOGY TEAM.

Of course, i received a phone call the next day. Unfortunately his "nurse coodinator" started out being defensive. I did not feed into that. I listened to her explanation(s) then responded and encouraged our focus to be on better communication. She agreed and pledged their support. My next appt is next wk so looking to see if things will improve.

The specific communication issues were:

1. MO reluctantly agreed to refer me for a biopsy but insurance co called and told me the MO office told them i would have to get the referral from my PCM because it had nithing to do with oncology.

2. I agreed to be in a stage IV study. I met with a new person, Research Coordinator, the same appt as being told i was stage IV. While it was too much to take in all at the same time...i agreed tk be in the study.

I spoke with same Research Coordinator twice on the phone then met with him again at next MO appt. MO stated he was not a part of that study so i would be transferred to one of his colleagues, patted me on the sboulder then walked out of the room.

I had already met this "colleague" and knew never wanted to talk to her again, let alone have ber actually overseeing my care. I made it abundantly clear to his "nurse coordinator" i never wanted to see this colleague again and was told i would never have to see them again.

And yet at this appt, they briefly told me i was going to be transferred to her for the duration of the study.

I became very frustrated and extremely disappointed in them and declined being in the study. I felt thoroughly abamdoned vy my MO and his team. I was hurt and i was livid.

There are other examples of communication breakdown but you can understand the vist of my experience with my higly respected MO at this higly respected, world-class facility.

My long email outlined my perception of not being supported with these two examples and a third one to justify why i felt the way i did. I also asked some clinical questions i need answers to. I hope to receive these answers at our next visit next wk.


I felt compelled to write the long email in advance of my next appt because:

1. I needed them to know what i need from them.

2. 15 minute followup appts are not long enough to go over all my issues. If i prepare them with info before the next appt, i should be more successful in getting what i need from them during that 15 min appt.

3. I, and all patients, need to stand up for myself. I, and all patients, need to be my own best advocate. No one else will stand up for me as well i will stand up for myself.

I hope this input is helpful in giving the moderators material to work with.

I have another big issue to being up but will do it in amother post.


Warmly,

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 7, 2018 01:28PM jo6359 wrote:

V-sorry you are going through these issues with your oncology team. You are so right. We have to advocate for ourselves and others. Hopefully your next appointment you will see much better communication amongst your team. Best of luck to you

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 7, 2018 06:46PM pajim wrote:

V - I agree with you that whilst it would be nice if the oncology teams knew what we needed, it's also our job to tell them what we need. Often as women we're accustomed to making all the accomodations ourselves.

I hope your next appointment goes much better.

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/27/2013 Femara (letrozole) Hormonal Therapy 4/22/2013 Faslodex (fulvestrant) Targeted Therapy 2/25/2016 Ibrance (palbociclib) Chemotherapy 6/19/2017 Xeloda (capecitabine) Targeted Therapy 8/15/2018 Verzenio Hormonal Therapy 8/15/2018 Faslodex (fulvestrant)
Log in to post a reply

Feb 7, 2018 07:25PM Gumdoctor wrote:

So very nice to find others who understand what I am experiencing. Thank you for the support.

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 8, 2018 07:58AM - edited Feb 8, 2018 07:59AM by Gumdoctor

Good Morning All,

Here is another issue with Dr/Patient Relationships...

As mentioned in an earlier post, I like my MO. His whole team and I, however, have some things to work through re communication.

I noticed right away, from the initial appointment and beyond, they do nothing to educate the patient. They have never once given me a brochure, recommended a website or even provided verbal information on my condition, even since I converted to Stage IV. They have been quite good about answering my questions only.

I have substantial formal education with 3 college degrees. One of them is from the same institution from which I receive all my treatment. I believe I am capable of finding all the information I need and want on my own. I believe I am capable of preparing my question list ahead of each appoinment. But what if I am not?

But here is the bigger issue I have with this information void: What happens to the patient(s) who do not know how to find information or know the "right" questions to ask? What happens to me if I really don't know how to maneuver through this as well as I think I do? What will happen to me and other patients as a result of this information void?

I believe advocating for ourselves is a key component to obtaining the highest quality of care possible for any condition. But with MBC, the stakes are even higher...


As mentioned in my previous post, I hope this input supports the Mods as they prepare new content materials to help all of us.


If I had to choose only ONE recommendation to help fill this information void for others:

Educate yourself thoroughly and start by reading the NCCN Guidelines for Patients with MBC.

Link: https://www.nccn.org/patients/guidelines/stage_iv_...


Warmly,

V


Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 8, 2018 12:57PM QueenElizabethTheFaux wrote:

Thank you (to V & to all of the women on this thread.) I’ll read the info on your link today. (Fyi to V...I don’t have the education level you possess & appreciate your intent to further educate s many of us Stage IV Patients.)

QueenElizabethTheFaux

PS. Many of the Drs. I had before & after being “upgraded” from Stage 3 to 4 also provided me with ZERO info or resources too, unless I specifically requested answers. Most of their nurses were great, tho. (And I thank God my mom is a nurse w/almost 60 years of hospital, on-the-floor experience. She’s taken great care of me after my 4 surgeries + chemo/radiation & still is a practicing, part-time RN at age 79, bcuz she loves her job : ) Hate this cancer but feel SO blessed to have her as my Mom.

"Courage is being scared to death... and saddling up anyway." John Wayne Dx 9/17/2015, IDC, Right, 2cm, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 12/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Dx 12/22/2015, DCIS, Right, <1cm, Stage 0, 7/8 nodes, HER2- Dx 12/22/2015, ILC, Right, 6cm+, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 1/5/2016 Mastectomy: Left, Right Chemotherapy 2/9/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 6/28/2016 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 9/12/2016 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 5/23/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/27/2017, DCIS/ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 2, 7/8 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 External: Bone
Log in to post a reply

Feb 8, 2018 01:05PM - edited Feb 8, 2018 01:06PM by jo6359

I apologize for posting previously on this page. I didnt realize is was for Stage IV and Metastatic cancer only.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Feb 8, 2018 01:13PM Gumdoctor wrote:

Queen Elizabeth (love your name btw),

Thank you for the reply. Yes I have been very blessed with a great education and am still paying for it, literally 31 yrs after graduation...

In no way does a great education give me any dibs on knowing any more than anyone else here. I come here with a sincere, loving and open heart in the hopes of finding information, knowledge and support. And as all of you here are already doing, I hope I can also help and support others through my/our struggle with this monster disease who has invaded our lives and the lives of everyone we are connected to.

I don't know yet if I have officially treated my last patient or not...but I know the void I face in leaving patient care will be very hard to fill. It has provided me a sense of belonging and a more-important-than-me purpose in life. I am looking at what I will still be able to do to fill part of that huge void in the near or not so near future...

Anything I offer here is only in the hope that it can help someone, somehow. I do not claim to be an expert but am very willing and committed to helping others however I can.

Sending my best wishes to you, and everyone here, for a very good day and night. Until we can visit again,

Warmly,

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 17, 2018 07:02AM Gumdoctor wrote:

Update on communication issue with MO:

After sending a long email to MO about communication failures, I had my next appt with him this week. I did not know what to expect but brought a printout of the clinical questions from my email.

He was very neutral and said, "You found my weakness...long emails...". He read my clinical questions from my printout. Fortunately he took his time and went through each question and showed me all my scans one by one. My questions centered around the accuracy of the scans and why they did not agree with each other.

We are closer to where I want us to be as a treatment and support team. But we still have a long way to go. Had I not spoken up in my email, I would still feel abandoned by them and not know where to go with all my frustration and disappointment.

At least I know they are aware of what I need. Either we will be able to evolve into a well-functioning team or I will need to move on to a different MO. Time will tell.


Warmly,

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)

Page 1 of 2 (37 results)