We are 204,677 members in 81 forums discussing 148,321 topics.

Help with Abbreviations

All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Just diagnosed with Stage IV

Topic: Just diagnosed with Stage IV

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Jan 12, 2018 05:41AM

jods520 wrote:

I am new to this forum but realize it could be a good place to connect with others with a similar diagnosis. I was just diagnosed with breast cancer December 18th, and had to also have a bone biopsy of my left hip as something showed up on my Petscan. I found out today it was positive, so they know it has traveled. I am so sad but really trying to stay optimistic.

My dr. is going to start me on Tamoxifen (I am ER positive) and Ribocyclib, an oral chemo next week.

Does anyone here with any experience taking these two drugs?

Thank you,

Jody
Dx 12/18/2017, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2- (FISH) Targeted Therapy 1/15/2018 Kisqali
Log in to post a reply

Page 1 of 1 (8 results)

Posts 1 - 8 (8 total)

Log in to post a reply

Jan 12, 2018 01:01PM ABeautifulSunset wrote:

Jody, I have not had either of those drugs, but I started out Stage 4 , also with one bone met to my hip. I’ve had some ups and downs, but 6 1/2 years later I’m still doing well, am otherwise heathy, watching my children become adults, traveling and loving life, even tho I still have cancer.

Hope that helps you stay optimistic.

Stefanie

“Sunsets are proof that endings can be beautiful too.” Dx 7/29/2011, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Afinitor (everolimus) Chemotherapy Xeloda (capecitabine) Chemotherapy Xeloda (capecitabine) Chemotherapy TAC Targeted Therapy Ibrance (palbociclib) Surgery Mastectomy; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole)
Log in to post a reply

Jan 12, 2018 03:55PM Zillsnot4me wrote:

It takes some time to adjust. I'll be hitting my five year mark in a few months. I have young children and manage to keep up with homework and practices and games. I am more likely to go to bed when they do.

I took ibrance and arimidex and did well. It's a similar regime to yours. Traveled internationally. Fatigue was the biggest side effect. Had to give in and nap sometimes.

Just remember the first round or two are the hardest as your body and mind adjust. Then you will level out. Don't be afraid to tell your nurse or MO about your side effects. There's lots of drugs out there to help.

Also check out support groups, counseling, yoga classes, Livestrong programs in your area for support. I'm amazed how much is available. I'm still close with the girls I met at Livestrong.

Good luck.

Liver 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/29/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/23/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/6/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/7/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Hormonal Therapy 4/24/2017 Faslodex (fulvestrant) Chemotherapy 11/16/2017 Xeloda (capecitabine)
Log in to post a reply

Jan 13, 2018 09:30AM pajim wrote:

Jody, welcome! Welcome to the club no one wants to join. The first few weeks are hard -- be gentle on yourself. Once you get used to the treatment you'll lead almost a normal life.

Join the Ibrance thread. Ribciclib is a sister drug to palbociclib (which is Ibrance). Lots of ladies are taking the same drugs and can offer advice.

Some women sail through the CDK 4/6 inhibitors, some don't. Do not assume you'll have a hard time. I didn't. And if you do get tired, rearrange your life so you can take a nap.

I've been at this almost five years now. I still work full-time and do almost all the things I ever did. When I was first diagnosed my onc told me 'not to give away my stuff". In other words, think long-term.

Good luck! Life will get better.

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/26/2013 Femara (letrozole) Hormonal Therapy 4/21/2013 Faslodex (fulvestrant) Targeted Therapy 2/24/2016 Ibrance (palbociclib) Chemotherapy 6/18/2017 Xeloda (capecitabine)
Log in to post a reply

Jan 14, 2018 04:44AM jods520 wrote:

Thank you, ladies. Your responses made me feel better. I think I am just still in shock that this is stage 4 outright, and as of Thursday, the treatment plan that I thought I was going into has changed completely. I also think the "not knowing what to expect" aspect of this all is nerve wracking. 

I start fighting this fight on Monday! 

Dx 12/18/2017, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2- (FISH) Targeted Therapy 1/15/2018 Kisqali
Log in to post a reply

Feb 5, 2018 12:17PM Gumdoctor wrote:

i found out 2 days after you did.

And I am in at least as much shock as you are.

I haven't figured out how to make my history show up on my signature...but I was 1st diagnosed as bilateral stage IIIa and bilat node-positive. I was getting accustomed to the idea that I would be a cancer survivor instead of a cancer patient the rest of my life. But on 20 DEC 17, I found I was wrong...mets to spine, pelvis, sacrum and possibly mandible. Mandible needs further testing to confirm...

I have started with an 8 wk mindfulness class and a new psycholohist to help me put this all in perspective.

From reading many, many posts from our "mets sisters," I see have alot to learn and alot to do before I can even think about giving up. Things are not at all as they seem at first glance.

Let's commit to learning as much as we can, doing as much as we can and living as much as we can.

Fondly,

V

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 5, 2018 07:11PM Heidihill wrote:

Gumdoctor, you are learning fast. I love that you are being proactive with that mindfulness class. I think it will make a big difference. I am now over 10 years out and am grateful for having lived in the present for so long.

Dx 8/2007, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/25/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 6, 2018 05:42AM Gumdoctor wrote:

Heidihill,

Thank you so much for your encouragement.

And a million congratulations on your 10 yrs!!! Wow!!! HOW INSPIRING YOU ARE :)

V


Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Log in to post a reply

Feb 8, 2018 07:17AM jods520 wrote:

Gumdoctor, you are so right! We have so much to learn, and we are all in this together! I just finished my first cycle and feeling pretty ok so far. I have felt tired the past few days and just very scared of getting sick because the flu is going around so badly, but so far, so good. I am just taking it day by day really, and trying to live life.

Heidihill- you are so inspiring, a bog congrats on hitting 10 years! I love to hear that, and it gives me hope.

- J

Dx 12/18/2017, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2- (FISH) Targeted Therapy 1/15/2018 Kisqali

Page 1 of 1 (8 results)