Hello Ladies,(and men)
it was 10 years ago this month that my mets were officially diagnosed. So I guess this is my 10th year living with METS. (dx stage IIIc orginally).
Wow, I honestly didn't think I would live this long.
I have been through many treatments. Herceptin for 10 years, AC/T, Taxotere, Taxol (2x), Tykerb, Prejeta, Xeloda , TDM1
also, Femara, Arimidex, Aromasin, Falsodex and Tamoxifen.
I have never been NED(except after my stage III dx) , However, my mets are very slow growing, Grade 2 I think. So I know that may be one of the factors for me being an exceptional outlier? I seem to get about 2-2 1/2 years out of a combination.
I have been through 3 oncologists, and now 2 clinical trial oncologists.
Yes, I too, like Jen have beaten the odds, although differently.
All 10 years haven't been easy, and I do feel the effects ( hip replacement, rads, pain, nephropathy, fatigue, weight gain), but I am still here.
In two weeks I start a new clinical trial (already into the prep). It is Herceptin + ALX148 (Immunotherapy). It is Phase I. and local. Which is a huge blessing. I am excited but nervous.
For those of you early in your journey in cancerland, I recommend that you push. Push hard for the least toxic treatment. Research, get second opinions. Get all aches and pains checked out. Stay super active as much as possible. Live each day to the fullest. Kick fear to the curb as much as you can. Ask for help, and if you are depressed or have anxiety, don't hide it. Reach for help.
Onward and Upward. And enjoy Every sandwich!!
Enjoy Every Sandwich.
12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH)
1/19/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap
2/1/2005 AC + T (Taxol)
5/1/2005 Breast, Lymph nodes
6/1/2005 Herceptin (trastuzumab)
1/1/2006 Femara (letrozole)
6/2/2008 Aromasin (exemestane)
7/1/2008 Herceptin (trastuzumab)
6/15/2013 Arimidex (anastrozole)
9/5/2015 Perjeta (pertuzumab)
Log in to post a reply