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Topic: Checking in and update from another "old timer"

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: May 8, 2018 08:27AM - edited May 8, 2018 02:01PM by Fitztwins

Fitztwins wrote:

Hello Ladies,(and men)

it was 10 years ago this month that my mets were officially diagnosed. So I guess this is my 10th year living with METS. (dx stage IIIc orginally).

Wow, I honestly didn't think I would live this long.

I have been through many treatments. Herceptin for 10 years, AC/T, Taxotere, Taxol (2x), Tykerb, Prejeta, Xeloda , TDM1

also, Femara, Arimidex, Aromasin, Falsodex and Tamoxifen.

I have never been NED(except after my stage III dx) , However, my mets are very slow growing, Grade 2 I think. So I know that may be one of the factors for me being an exceptional outlier? I seem to get about 2-2 1/2 years out of a combination.

I have been through 3 oncologists, and now 2 clinical trial oncologists.

Yes, I too, like Jen have beaten the odds, although differently.

All 10 years haven't been easy, and I do feel the effects ( hip replacement, rads, pain, nephropathy, fatigue, weight gain), but I am still here.

In two weeks I start a new clinical trial (already into the prep). It is Herceptin + ALX148 (Immunotherapy). It is Phase I. and local. Which is a huge blessing. I am excited but nervous.

For those of you early in your journey in cancerland, I recommend that you push. Push hard for the least toxic treatment. Research, get second opinions. Get all aches and pains checked out. Stay super active as much as possible. Live each day to the fullest. Kick fear to the curb as much as you can. Ask for help, and if you are depressed or have anxiety, don't hide it. Reach for help.

Onward and Upward. And enjoy Every sandwich!!


Janis

Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH) Surgery 1/19/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 2/1/2005 AC + T (Taxol) Radiation Therapy 5/1/2005 Breast, Lymph nodes Targeted Therapy 6/1/2005 Herceptin (trastuzumab) Hormonal Therapy 1/1/2006 Femara (letrozole) Hormonal Therapy 6/2/2008 Aromasin (exemestane) Targeted Therapy 7/1/2008 Herceptin (trastuzumab) Hormonal Therapy 6/15/2013 Arimidex (anastrozole) Targeted Therapy 9/5/2015 Perjeta (pertuzumab)
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May 8, 2018 08:35AM Moderators wrote:

Fitztwins,

Congrats on your 10 years -- you are such an inspiration! Thank you for posting to remind us all that a diagnosis isn't the end and that many more fulfilling years are ahead for many who are diagnosed.

We look forward to hearing about your experiences with the clinical trial and are sending best wishes for great results!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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May 8, 2018 08:43AM 50sgirl wrote:

Janis, WOW ten years! WOOHOO! That is fantastic. I don't know how long it will take for researchers to learn why some people are exceptional responders, but for now, all I want to do is celebrate your milestone. You are a member of that of the elite group of exceptional responders that we all strive to join. You have been an important contributor to these boards, and I have missed your posts, but it is good to know that you are doing well and living your life. I hope the clinical trial gets you to that elusive state of NED and that the next ten years are easier for you than the last ten have been. Thank you for brightening my day by sharing your goodnews. WOOHOO!

Hugs and prayers from, Lynne


Dx 6/5/2015, IDC, Left, 3cm, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2015 Arimidex (anastrozole) Dx 8/9/2016, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/30/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/1/2018 Xeloda (capecitabine)
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May 8, 2018 09:14AM Cure-ious wrote:

Janis- Incredible! Congratulations!! You inspire us all, while also telling it like it is!! Everybody gets just the one shot at this life, and we have been assigned to be the trapeze artists, working without a net!! So happy to hear you've able to keep mind and body together through trials and tribulations and success. A decade is an incredible accomplishment and I hope your celebrations go on and on...

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
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May 8, 2018 09:36AM JeninMichigan wrote:

Janis

You always amaze me.  In spite of the obstacles you persist on living your life to the fullest.  Being the most active and involved mom to those two boys.    We have essentially walked this path parallel to each other but our cancer behaves differently.  Your 10 years have been much more difficult than mine.   This just reinforces there is no cookie cutter approach to cancer.  We need research to identify how to treat us as individuals.   I hope and pray that this trial is exactly what works for you on a long term basis with minimal side effects.    Thank you for being brave to sign up for hopefully your benefit and for others.   

Cheers to you!!! 

Jen

Dx 2/22/2008, IDC, 2cm, Stage IV, Grade 3, 4/9 nodes, mets, ER+/PR-, HER2+
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May 8, 2018 09:53AM PattyPeppermint wrote:

Janis. Awesome advice. Glad to see you post.


To God be the glory! Live, laugh, love... Life is way too short. Dx 6/2013, Stage IV, ER+/PR+, HER2- Hormonal Therapy 6/29/2013 Femara (letrozole) Radiation Therapy 7/5/2013 Bone Hormonal Therapy 8/1/2015 Faslodex (fulvestrant) Targeted Therapy 8/1/2015 Ibrance (palbociclib) Chemotherapy 7/1/2016 Xeloda (capecitabine)
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May 8, 2018 10:12AM SandiBeach57 wrote:

Fitztwins, I remember you when I joined the boards as Stage IV. Everytime I ate a sandwich I thought of you!

Thanks for checking in. We need your positive and honest news.



DCIS in 2006 and again in 2007 (ER+PR+) Bil Mx, radiation, tamoxifen; 2016 Stage IV IDC (ER+PR-HER2-) widespread mets to liver, tumor cells in lung arterioles and T12 Met. Oct 2016 AC, Jan 2017 Ibrance 100/Letrozole. NEAD Oct 2017.
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May 8, 2018 11:12AM Tina2 wrote:

Janis,

So glad you popped up! I've missed your trademark spunk, wisdom and verve. Glad to see you're in fine fettle.

Thank you for sharing your good news and advice.

Tina

Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
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May 8, 2018 11:27AM Bad_At_Usernames wrote:

Janis, I needed to see this. I’m not one of these people who can jump on H/P and get and stay NED. I’m not one of the 1-3% potentially cured. I haven’t even gotten as much time out of treatments as you have. But there are more options these days and I haven’t yet had any big explosions of cancer.

This gives me so much hope that I can just keep stringing treatments together, investigating new ones, keeping myself healthy otherwise...and before I know it, ten years have gone by.

I’m fighting back tears of hope right now. Thank you!!!

"...to survive this disease, you had to be an eternal optimist and very aggressive..." -Vince DeVita Dx 12/23/2013, IDC, 6cm+, Stage IIIC, Grade 3, ER+/PR+, HER2+ Chemotherapy 1/15/2014 AC + T (Taxol) Targeted Therapy 3/16/2014 Perjeta (pertuzumab) Targeted Therapy 3/16/2014 Herceptin (trastuzumab) Surgery 7/10/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 8/28/2014 Breast, Lymph nodes Targeted Therapy 9/22/2014 Kadcyla (T-DM1, ado-trastuzumab) Hormonal Therapy 11/17/2014 Zoladex (goserelin) Hormonal Therapy 1/31/2015 Femara (letrozole) Dx 1/7/2016, IDC, Stage IV, metastasized to brain Targeted Therapy 1/14/2016 Verzenio Radiation Therapy 7/27/2016 External: Brain Targeted Therapy 11/15/2016 Tykerb (lapatinib) Dx 3/23/2017, IDC, Stage IV, metastasized to liver Chemotherapy 3/28/2017 Xeloda (capecitabine) Chemotherapy 8/29/2017 Taxotere (docetaxel) Radiation Therapy 2/27/2018 External: Brain
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May 8, 2018 11:53AM Meja wrote:

Hi Janis

Thank you for sharing your story and congratulations; this is great news and provides hope for someone like me (diagnosed with MBC a month ago). We need more research to understand why some are 'exceptional responders'. I am also HER2 positive, when I first learned this (at the time of the first diagnosis), I was scared reading about the more aggressive profile of HER2 positive BC. However, now as an MBC patient, the targeted products available carry hope that progression may be halted (at least for some time). I’m Danish and just received my second round of Herceptin and Perjeta today (in combination with oralChemotherapy), coming home and reading your post and great advice is really, really helpful and motivating. Thank you so much for posting. Also your participation in clinical trials is admirable; it is exciting and promising that studies with immunotherapy are being conducted within the field of MBC.

Meja.

Dx 12/10/2015, IDC, Right, 3cm, Stage IIB, Grade 1, 2/15 nodes, ER+, HER2+ Dx 1/11/2016, Paget's, Right, <1cm, Stage IIB, Grade 1, 2/15 nodes, ER-, HER2+ Surgery 1/11/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 4/6/2018, Stage IV, metastasized to bone, ER+, HER2+ Targeted Therapy Perjeta (pertuzumab) Chemotherapy Navelbine (vinorelbine) Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxol (paclitaxel) Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Lymph nodes, Chest wall
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May 8, 2018 02:08PM jackboo09 wrote:

Hi Janis

I am so grateful to you for both posting this just now and for your support when I was first dx 14 months ago.

What a terrific spirit you have and such tenacity.

Best wishes for the trial. I hope you will be able to post about your experience.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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May 8, 2018 03:23PM sandilee wrote:

It's so great to hear from you again! You are one of the people who inspired me when I was first diagnosed, and you still are an inspiration!

I don't post very much either, but I do read the board a lot and try to post if I have anything positive to contribute. It's been 7 years for me with bone mets and three with liver, and I hope to be around to celebrate 10 years as you have. But as we both know, it's not an easy road, this staying alive! 😆

But it has certainly been worth the effort. Good luck with your trial, and thanks for all you are doing.

- 4/2015- Mets to liver. 6/2011-Mets to spine, ribs, and skull, 6/2011 radiation, Xgeva and Faslodex 7/2011 Dx 11/2007, IDC, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR-, HER2- Hormonal Therapy 1/10/2008 Aromasin (exemestane) Dx 6/2011, IDC, mets Radiation Therapy 6/30/2011 Bone Hormonal Therapy 7/15/2011 Faslodex (fulvestrant) Hormonal Therapy 4/10/2015 Femara (letrozole) Targeted Therapy 4/20/2015 Ibrance (palbociclib) Chemotherapy 8/4/2015 Xeloda (capecitabine) Hormonal Therapy 3/11/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/13/2016 Doxil (doxorubicin) Chemotherapy 4/4/2018 Navelbine (vinorelbine) Targeted Therapy 6/6/2018 Verzenio Hormonal Therapy 6/6/2018 Faslodex (fulvestrant)
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May 8, 2018 04:17PM josgirl wrote:

Janis

Ihave always gained a sense of strength and push thru it ness when reading your posts. Enjoy every sandwich always stayed in my mind thru the fear of metastasis and resulting diagnosis. Appreciate all your pragmatism and thanks for the update and hope!

Josee

"Nothing can dim the light that shines from within." - Maya Angelou Dx 6/20/2013, IDC, 2cm, Stage IIB, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 7/16/2013 Lumpectomy: Left Surgery 7/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary Chemotherapy 9/11/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/24/2013 Breast Hormonal Therapy 12/13/2013 Dx 9/2016, Stage IV, metastasized to brain Surgery 9/10/2016 Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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May 8, 2018 05:43PM exbrnxgrl wrote:

Janis,

So very good to hear from you ! Congratulations on this epic anniversary. How old are your boys now?

Wishing you the best!

Caryn

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole)
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May 9, 2018 03:03AM Heidihill wrote:

Great to hear from you, Oldtimer! Best of luck on the clinical trial and hope it keeps you around another 10 years or more. It IS possible!!

Dx 8/2007, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/25/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 9, 2018 03:45AM DivineMrsM wrote:

Fitztwins, it is always wonderful to see your posts and hear what you have to say! I know that you take large breaks from posting as you are at the task of living your life. I think of you often and am glad to read your update. Congratulations on ten years of moving forward after an mbc diagnosis! And you have been at the whole bc thing for several years prior to the mets dx. So my goodness. Your story is one of perseverence, hanging in there and taking things one day, one step at a time. We all benefit from your experiences, insight and advice. Even with the continued ups and downs of mbc, you come across as very level headed as well as determined to live a full life in spite of mbc. You are truly inspirational!

Yes, hoping for all good things with the upcoming clinical trial! Best wishes!


found lump 12/22/10~er+/pr+/her2- stage iv bone mets~chemo~lumpectomy~radiation~arimidex~ "The world breaks everyone and afterward many are strong at the broken places."
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May 9, 2018 07:50AM - edited May 9, 2018 07:50AM by Fitztwins

Thank you all for your kind words. I recognize so many of you.

My boys are 17! just went to their first prom. They still keep me on my toes. They play Hockey and Basketball. Hard to believe they were 4 when I was first diagnosed and still in preschool. One more year of High School!!

Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH) Surgery 1/19/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 2/1/2005 AC + T (Taxol) Radiation Therapy 5/1/2005 Breast, Lymph nodes Targeted Therapy 6/1/2005 Herceptin (trastuzumab) Hormonal Therapy 1/1/2006 Femara (letrozole) Hormonal Therapy 6/2/2008 Aromasin (exemestane) Targeted Therapy 7/1/2008 Herceptin (trastuzumab) Hormonal Therapy 6/15/2013 Arimidex (anastrozole) Targeted Therapy 9/5/2015 Perjeta (pertuzumab)
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May 9, 2018 08:32AM PattyPeppermint wrote:

very handsome boys.

To God be the glory! Live, laugh, love... Life is way too short. Dx 6/2013, Stage IV, ER+/PR+, HER2- Hormonal Therapy 6/29/2013 Femara (letrozole) Radiation Therapy 7/5/2013 Bone Hormonal Therapy 8/1/2015 Faslodex (fulvestrant) Targeted Therapy 8/1/2015 Ibrance (palbociclib) Chemotherapy 7/1/2016 Xeloda (capecitabine)
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May 9, 2018 12:28PM ABeautifulSunset wrote:

Fitz, 10 years (and beyond!) is wonderful to see. The more of us who get to that milestone, the more hope for the rest of us.

Isn’t it fabulous you got to be your boys mother? This was my concern as well when I was diagnosed almost 7 years ago. Now I have one in his third year of college and about to be 21, and another who also has just one more year of high school (prom next week). Sometimes I can’t believe I am stillhere.

Thank you for your message. We can live with cancer ,even in constant treatment, and not NED...and yet we can still LIVE.

Cute boys, btw.

Sunset

“Sunsets are proof that endings can be beautiful too.” Dx 7/29/2011, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Afinitor (everolimus) Chemotherapy Xeloda (capecitabine) Chemotherapy Xeloda (capecitabine) Chemotherapy TAC Targeted Therapy Ibrance (palbociclib) Surgery Mastectomy; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole)
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May 9, 2018 04:59PM holmes13 wrote:

fitztwins this is awesome news!! Really inspirational. Good luck with the trial.

Dx 2/2/2018, Left, 1cm, Stage IV, metastasized to bone/lungs, 7/10 nodes, ER+/PR-, HER2- Targeted Therapy 2/25/2018 Ibrance (palbociclib) Hormonal Therapy 2/25/2018 Faslodex (fulvestrant)
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May 9, 2018 05:02PM KarPC wrote:

Thanks for providing us with your positive news. You are an inspiration!

~Kari

​Diagnosed with 1 small liver met (9mm) 2/2018. Received liver ablation 3/2018. ~Kar Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/10/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 10/1/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/8/2018, IDC, <1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 2/17/2018 Femara (letrozole), Zoladex (goserelin) Targeted Therapy 2/17/2018 Ibrance (palbociclib)
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May 9, 2018 05:52PM RuthieL wrote:

Thanks for the sound advice and encouraging words. I wish you the best on your newest journey!

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May 9, 2018 06:09PM Maire67 wrote:

Fitztwins. Thanks for the positive story. You are a warrior. Wow what handsome sons. . I remember your name from back in 2005 when I was 3b. Good to see you. Mair

Dx 6/2005, ILC, Right, 5cm, Stage IV, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy
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May 9, 2018 06:16PM AnimalCrackers wrote:

thanks for checking in with such a positive and inspiring post. I’m just about to hit my 4 year cancerversary. I was diagnosed stage IV in June of 2014 and I was so scared. I didn’t think I’d still be here 4 years later. But here I am and here you are 10 years under your belt. I am bolstered by stories like yours. Keep popping in from time to time. Maybe you’ll see me celebrating 10 yrs and you’ll be at 16.

Btw your sons are quite dashing!

Cathy, Diagnosed de novo bone mets June 2014 at age 52. Progression to Liver 2017. Progression to bone mets Sept. 2018. Bisphoshonate (Zometa) infusions every 3 months. Participated in 2 clinical trials, including an AKT1 inhibitor. Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/4/2016 Femara (letrozole) Targeted Therapy 1/4/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/17/2017 Targeted Therapy 5/17/2017 Kisqali Targeted Therapy 12/18/2017 Hormonal Therapy 12/18/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/19/2018 External: Bone Dx 8/20/2018, IDC, Stage IV, metastasized to bone Surgery Chemotherapy Taxol (paclitaxel)
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May 9, 2018 09:36PM jobur wrote:

Fitz~   A week or so ago I was enjoying this delicious sandwich, and of course I thought of you! Checked up on you and saw it had been a long time since you posted. SO happy to see this and know you are still here! 10 years is amazing, lots of ups and downs I'm sure, but so glad you are here to see those young men of yours off to their 1st prom. Love it!

"What do you know, and what do you just believe?" Linda Hogan "Power" Surgery 7/1/2014 Lumpectomy: Left Dx 8/1/2014, IDC, 1cm, Stage IV, Grade 2, 4/7 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 8/4/2014 Arimidex (anastrozole) Hormonal Therapy 4/30/2015 Faslodex (fulvestrant) Targeted Therapy 8/17/2015 Ibrance (palbociclib)
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May 10, 2018 01:38PM pajim wrote:

Janis, CONGRATULATIONS!!!! And here's to many more. Can I be you when I grow up?

Gorgeous boys btw.

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/26/2013 Femara (letrozole) Hormonal Therapy 4/21/2013 Faslodex (fulvestrant) Targeted Therapy 2/24/2016 Ibrance (palbociclib) Chemotherapy 6/18/2017 Xeloda (capecitabine) Targeted Therapy 8/14/2018 Verzenio Hormonal Therapy 8/14/2018 Faslodex (fulvestrant)
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May 10, 2018 08:47PM JFL wrote:

Janis, great to see your post! You were someone I saw around these boards and remember from when I first joined the club back in 2014. I was pregnant and son is now 3 and a half years old . . . amazing to think yours were 4 and are now 17. Your experience really does give us hope.

Chart your own course. Dx at 30. Dx with mets at 38 while pregnant. Extensive liver and bone involvement. Currently on Doxil and XGeva. Recently had Y90 liver radioembolization. ER+/PR+, HER2 equivocal (IHC)/negative (FISH) as of 8/2017 liver biopsy. Dx 9/2006, IDC, Stage IIB, Grade 3, ER+/PR+, HER2- (FISH) Surgery 9/22/2006 Mastectomy: Left, Right Chemotherapy 11/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Surgery 12/26/2014 Prophylactic ovary removal Hormonal Therapy 12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy 6/18/2015 Ibrance (palbociclib) Chemotherapy 3/10/2016 Xeloda (capecitabine) Hormonal Therapy 5/13/2017 Aromasin (exemestane) Targeted Therapy 5/13/2017 Afinitor (everolimus) Chemotherapy 8/18/2017 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/23/2018 Doxil (doxorubicin) Radiation Therapy 4/9/2018 Liver
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May 10, 2018 10:46PM Groovywilma wrote:

Thanks for the update! It is always inspiring to hear from the "old-timers". When I was new here, I told myself that I wanted to be one of those old-timers one day and share my experiences too! So glad you are enjoying life and enjoying your handsome sons. You're right, it's not easy, but you're still here! And I hope you will be here for many many more years to come!

Dx 1/3/2011, IDC, 2cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 7/25/2013 Faslodex (fulvestrant) Hormonal Therapy 9/2/2015 Femara (letrozole) Targeted Therapy 9/2/2015 Ibrance (palbociclib) Chemotherapy 12/18/2015 Xeloda (capecitabine) Chemotherapy 4/7/2016 Gemzar (gemcitabine) Chemotherapy 3/31/2017 Navelbine (vinorelbine) Chemotherapy 4/21/2017 Taxol (paclitaxel) Chemotherapy 10/4/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole)
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May 11, 2018 08:28AM Cure-ious wrote:

Oh, Janis, I just looked up ALX148- it is anti-CD47!! How exciting!! I didn't realize it was already in clinical trials, although I've read it synergizes with treatments for HER2 positive cancers in the preclinical work from Stanford.The way this drug was designed will prevent the loss of red blood cells, which was a problem with initial treatments. Please keep us posted how you do in the trial, and if you hear anything else about how the trial is going.

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
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May 12, 2018 12:46PM KSkier wrote:

So nice to hear from you and congratulations! You were the first person I identified with when I first came to the boards since we both had young children. I can't believe those boys are nearly done with High School! I am glad you shared a photo. I think of you every time I consider whether it's time to leave my job, since I so distinctly remember the self reflection and research that you went through when making that choice. Alas, as the the one holding the health insurance it still doesn't quite seem financially feasible for me yet. But, like you, I have been concentrating on the task of living life these past ten years. So glad we're here! Keep it up! KS

Dx 8/15/2008, IBC, 6cm+, Stage IV, mets, ER-/PR-, HER2-
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May 18, 2018 09:03PM cookiegal wrote:

I remember your profile picture with the boys when they were young!

Trendy sandwich places are all the rage now in NYC!

Wishing you the best.

You deserve a cookie!

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