We are 214,034 members in 82 forums discussing 152,590 topics.

Help with Abbreviations

Topic: Getting through the actual faslodex injection

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Jun 9, 2018 08:44AM

Keepmewell1 wrote:

I received my stage 4 diagnosis a week ago and it has been a whirlwind since. I'm still processing. I had my first injection and I don't want to sound like a baby but the thought of having another one is making me sick. It's not the pain exactly that's bothering me... it's the torture of standing there while the injection takes Place. It seems interminable and after the first one, it was hard to make myself go through the next. Does anyone have tips on how to distract yourself during the injection

Log in to post a reply

Page 1 of 1 (14 results)

Posts 1 - 14 (14 total)

Log in to post a reply

Jun 9, 2018 11:02AM Tina2 wrote:

You will find ways. Some people count silently. Some focus on their breathing. Mine is to lean on a countertop and converse with the nurse, making small talk.

Tina

Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
Log in to post a reply

Jun 9, 2018 05:23PM pajim wrote:

I used to chat up the nurses as well. You could also count to 30 or 40 or 60.

Believe me, you do not want the shots to go any faster. The slower the better. I can understand that the idea of the needle in your butt that long is disconcerting.

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/27/2013 Femara (letrozole) Hormonal Therapy 4/22/2013 Faslodex (fulvestrant) Targeted Therapy 2/25/2016 Ibrance (palbociclib) Chemotherapy 6/19/2017 Xeloda (capecitabine) Targeted Therapy 8/15/2018 Verzenio Hormonal Therapy 8/15/2018 Faslodex (fulvestrant)
Log in to post a reply

Jun 9, 2018 05:38PM Celebrate_Life wrote:

Make sure the falodex is warm. I put it in my armpit to warm it up. That really helped. I also chatted with the nurse to keep my mind occupied. Talking about my day, what I am looking forward to, family, etc. After two years, it became a normal part of the visit. You can do this!

Dx 8/6/2008, ILC, Left, Stage IV, metastasized to bone, 23/26 nodes, ER+/PR+, HER2- Dx 2016, Stage IV, metastasized to liver Targeted Therapy Avastin (bevacizumab) Targeted Therapy Afinitor (everolimus) Surgery Lymph node removal: Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Aromasin (exemestane) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Doxil (doxorubicin)
Log in to post a reply

Jun 9, 2018 10:24PM Moderators wrote:

Medicating Books on "tape", reading, magazines, meditation, sleep, music? Could any of these with headphones distract? You've got this!

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Jun 22, 2018 05:01PM Keepmewell1 wrote:

Thank you to everyone who responded. I had my second shot yesterday and it went much better. My husband had videos of my grandson for me to watch. I think I was in shock the first time because the doctor just said I was getting a shot so I thought it would be wuick

Log in to post a reply

Jun 28, 2018 08:31PM jillts wrote:

Oh gosh, faslodex shots didn’t bother me for some reason but am a TOTAL needlephobe so I understand. During any kind of shot (or port access) I always bite the inside of my cheek or pinch my belly to where it hurts a little and I can sort of focus on that instead. Weird but we have our little tricks!

Diagnosed 2/12 Dx 2/1/2012, IDC, Right, 5cm, Stage IIB, Grade 2, 16/26 nodes, ER+/PR+, HER2- Chemotherapy 2/14/2012 AC + T (Taxotere) Dx 2/2014, IDC, 2cm, Stage IIIC, Grade 2, 15/20 nodes, ER+/PR+, HER2- Chemotherapy 3/31/2014 Taxol (paclitaxel), Xeloda (capecitabine) Surgery 10/27/2014 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 11/30/2014 Arimidex (anastrozole) Radiation Therapy 12/7/2014 Breast, Lymph nodes Dx 3/16/2016, Stage IV, metastasized to bone Targeted Therapy 5/18/2016 Ibrance (palbociclib) Targeted Therapy 10/31/2016 Afinitor (everolimus) Hormonal Therapy 10/31/2016 Aromasin (exemestane) Chemotherapy 2/28/2017 Xeloda (capecitabine) Chemotherapy 7/1/2018 Halaven (eribulin)
Log in to post a reply

Jul 10, 2018 08:44AM Raine-Wells wrote:

I will be starting Faslodex on Monday. Is the shot a bummer (get it?) or side effects after? Speaking of which, what do I have to look forward to. I am going on vacation the day after my second shot

Dx 12/12/2014, IDC, 6cm+, Stage IV, Grade 3, mets, ER+/PR+, HER2- Hormonal Therapy 1/1/2015 Arimidex (anastrozole) Targeted Therapy 6/30/2015 Ibrance (palbociclib)
Log in to post a reply

Jul 10, 2018 09:35AM holmes13 wrote:

when taking the shots remember to take the weight off the leg being injected. Also some women take claritin two days before,the day of and two days after. They say that it helps reduce side affects. Walking afterwards also helps.

I understand how you feel about the shots. I cried the first time. I don't think it was the pain. It is overwhelming thinking that I have to do this every month in order to live. But what helps me is knowing that I have this great drug helping me see my daughter graduate and my grandchildren grow. Take one day at a time.
when

Dx 2/2/2018, Left, 1cm, Stage IV, metastasized to bone/lungs, 7/10 nodes, ER+/PR-, HER2- Targeted Therapy 2/26/2018 Ibrance (palbociclib) Hormonal Therapy 2/26/2018 Faslodex (fulvestrant)
Log in to post a reply

Jul 10, 2018 01:16PM Lynne wrote:

I did those awful shots for a year and a half, before they stopped working. It was my first treatment at stage 4. They would warm it before hand. I too would lean on the opposite leg of the shot and would talk to the nurse, or count in my head. Afterwards, I would get bruising, and was unable to sleep on my sides (where I always sleep) for a couple of weeks, then of course it would be time to get the shots again, and start all over. I'm glad they worked for so long, but they really do have to figure out a way to thin out the medicine, or something. I'd rather have an IV.

Good luck!

Lynne

Mets in spine, lungs, and liver. Carpe Diem-Live for Today Dx 5/26/2005, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 6/6/2005 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 6/6/2005 Lymph node removal: Sentinel Radiation Therapy 6/30/2005 Whole-breast: Breast Surgery 12/14/2005 Prophylactic ovary removal Hormonal Therapy 12/20/2005 Arimidex (anastrozole) Hormonal Therapy 12/18/2006 Femara (letrozole) Hormonal Therapy 3/20/2007 Aromasin (exemestane) Hormonal Therapy 12/19/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jul 10, 2018 02:05PM Raine-Wells wrote:

do warm compresses help? I will be flying the day after my 2nd shots

Dx 12/12/2014, IDC, 6cm+, Stage IV, Grade 3, mets, ER+/PR+, HER2- Hormonal Therapy 1/1/2015 Arimidex (anastrozole) Targeted Therapy 6/30/2015 Ibrance (palbociclib)
Log in to post a reply

Jul 10, 2018 04:16PM peculiargirl wrote:

Be sure to take a walk right after you get the shots - that will help alleviate the pain. And be sure to hydrate before and after getting them. I chat with the nurses.

Kathy

Dx 7/23/2015, ILC, Left, 5cm, Stage IIIC, 10/11 nodes, ER+/PR+ Surgery 8/13/2015 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 10/15/2015 AC + T (Taxol) Radiation Therapy 4/5/2016 Breast Hormonal Therapy 6/1/2016 Arimidex (anastrozole) Dx 3/23/2018, Stage IV, metastasized to bone
Log in to post a reply

Jul 11, 2018 05:15PM Keepmewell1 wrote:

My doctor told me not to do anything like warm compresses etc. for 48 hours after to make sure the medicine is fully absorbed. I've had itching afterward and discovered that you should remove the bandages as soon as possible and cortisone cream helps. I'm not sure where you are going on vacation but I would bring a comfy pillow to sit on. Other than that, I haven't really had any side effects. Enjoy your trip!

Log in to post a reply

Jul 12, 2018 08:49AM terri-c wrote:

I've been getting these shots for 4 years now. They still hurt, but believe it or not, you get used to it. I take motrin an hour before my injections and I chew gum while I'm getting my shots, helps me breathe through them. I also take the weight off the leg getting stabbed. Once they are done, I massage the shot areas, and walk around. I take a pain pill treatment night so that I can sleep, because it is hard to get comfortable. Side effects last about a week for me, mostly bone and joint pain.

Faslodex shots suck, but they have been working for me. Small price to pay?

Dx 7/7/2011, IDC, <1cm, Stage I, Grade 1, 0/9 nodes, ER+/PR+, HER2- Dx 4/7/2014, IDC, Right, <1cm, Stage IV, metastasized to bone/liver/lungs/other, Grade 2, 0/9 nodes, mets, ER+/PR+
Log in to post a reply

Jul 12, 2018 10:55PM Chemokaze wrote:

Thanks everyone - I get my first shots tomorrow

10/2018: NEAD; 7/2018: Onward to Verzenio, Zometa, Faslodex, & CyberKnife to single met to L4 spine. Dx 9/1996, IDC, Left, Stage IB, Grade 3, 0/21 nodes, ER+/PR+ Dx 5/2016, IDC, Right, Stage IIIC, Grade 2, 14/21 nodes, ER+/PR+, HER2- Dx 6/2018, Stage IV, metastasized to bone

Page 1 of 1 (14 results)