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Topic: Ten years-whooopeeee!

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Aug 6, 2018 10:50AM

Celebrate_Life wrote:

Ten years ago today, I found my lump. I knew it was breast cancer due to cyclic headaches and a hormonal positive menigioma (benign brain cancer) which was removed in May 2008. It would be September before all the tests, scans, and biopsies would be completed to confirm the cancer as stage iv with extensive mets to the bones.

I am alive! My quality of life has been fantastic! Yes, I have a new normal, but life is good. My mental, physical, and spiritual team are all helping me through this journey. I am truly blessed and I will continue to celebrate life each day making it the best day I can make it.

I don't know what the future holds as I have a 5 cm tumor in my liver, my TM are over 3000 and my chemo is not really working. But, I can say, don't give up hope. Set milestones. My next one is in two weeks to see my grandchild go to kindergarten. I didn't think I would live to see him born! I have learned that my life is about relationships and I have tried to enjoy and love the people I am with.

I want to give hope to everyone. Life with stage iv can be fulfilling. Be strong, believe, find courage and hope, have faith, trust in the unknown, look for joy, love unconditionally, and be at peace.

And Celebrate Life!! You got this, one day, or one hour, or even one minute at a time. You got this!

Therese

Dx 8/6/2008, ILC, Left, Stage IV, metastasized to bone, 23/26 nodes, ER+/PR+, HER2- Dx 2016, Stage IV, metastasized to liver Targeted Therapy Avastin (bevacizumab) Targeted Therapy Afinitor (everolimus) Surgery Lymph node removal: Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Aromasin (exemestane) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Doxil (doxorubicin)
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Aug 6, 2018 11:00AM - edited Aug 6, 2018 11:01AM by Amica

Good for you Celebrate Life! Congratulations on 10 years!! Your courage, attitude, and wisdom are inspiring. You are a brave and awesome woman---I salute you!

With love and respect,

Amica

1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Aug 6, 2018 11:02AM Teddy88 wrote:

Dearest Celebrate_Life / Beautiful Therese:

I am so HONORED to read and relish in your beautiful message. THANK YOU for making my day, my week and my month. You are an answered prayer.

Sending you much, much love and continued joy,

Belle xxoo

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Aug 6, 2018 11:17AM Snickersmom wrote:

Thank you for your beautiful message! And congratulations on hitting 10 years! what a great milestone! You are right - plan, plan, plan and set milestones and goals.

You go, girl!!

Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/3/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/12/2017 Arimidex (anastrozole)
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Aug 6, 2018 12:36PM Raven4 wrote:

Thank you for the encouragement. This is so devasting and scarry with mets to lymph nodes in medatiunum, lungs and a 5 cm liver tumor that grew on the Taxol several smaller ones.

The onc. switched me over after 7 rounds of Taxol to the Epirubicin and Cyclophosphamid.

So happy for you!! You go girl :)

Raven Dx 12/13/2013, IDC, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (FISH) Surgery 12/29/2013 Lymph node removal: Left; Mastectomy: Left Hormonal Therapy 2/6/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/17/2018, IDC, Left, 3cm, Stage IV, metastasized to bone/liver/lungs, Grade 2, 0/6 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 5/30/2018 Taxol (paclitaxel) Chemotherapy 8/1/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin) Chemotherapy 9/13/2018 Navelbine (vinorelbine), Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 6, 2018 05:44PM KatyK wrote:

Ten years - so happy for you! Yes you gave me hope with your post. I was diagnosed stage IV last summer after my initial breast cancer of ten years ago. I have lung and bone mets. Yes I try to live life to it’s fullest - maybe too busy at times cause I don’t want to miss anything. I’m able to be quite active, trips, and fun times with friends and family. It can be a lonely place to be even with wonderful support system I have because the only people who really get it are also living it. I get wonderful support and encouragement from the other women on this site. And I remember my granddaughter going to kindergarten like it was yesterday and this year she will be in sixth grade and my grandson will be in third grade. Grandchildren are a joy! I want to see mine grown up!
She believed she could, so she did. Dx 7/2017, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Aug 6, 2018 07:59PM illimae wrote:

That is fantastic news, I wish you all the best!

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 6, 2018 08:57PM DebAL wrote:

Wow Therese, I celebrate you and your milestone! Warmed my heart and I love that you are enjoying life and treasuring each day. You are an inspiration. Thank you so much for sharing

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Aug 6, 2018 09:10PM Tina2 wrote:

Brava, Therese! Carpe diem!

Tina

Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
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Aug 6, 2018 09:17PM Legomaster225 wrote:

Beautiful Therese! Congrats on the milestone!



Diagnosed at 50. Currently 52. Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Surgery 6/21/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Radiation Therapy 8/21/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/16/2017 Hormonal Therapy 9/8/2018 Aromasin (exemestane)
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Aug 6, 2018 10:44PM oxygen18 wrote:

Celebratelife, this is wonderful and inspiring news, thanks for sharing, best wishes.

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Aug 7, 2018 06:35AM susan_02143 wrote:

Marvelous! Thank you for sharing.

anotherplan.blogspot.com... and its back. May 3, 2010 mets found. Five years NED on Faslodex * 4/2015 progression to bone * 6/11/2015 Femara/Ibrance * 12/27/2015 Xeloda * 2/24/2016 Xgeva * another progression, another drug Taxol 2/14/2017 Dx 6/8/2005, IDC, 3cm, Stage IIB, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Aug 7, 2018 07:31AM DivineMrsM wrote:

CelebrateLife, congratulations! What an inspiring story of living life in all its fullness despite dealing with mbc! Your experience gives us all hope. Many blessings to you!


found lump 12/22/10~er+/pr+/her2- stage iv bone mets~chemo~lumpectomy~radiation~arimidex~ "The world breaks everyone and afterward many are strong at the broken places."
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Aug 7, 2018 07:56AM Moderators wrote:

Therese, thank you for sharing, its always so inspiring! And happy anniversary!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Aug 7, 2018 08:29AM MuddlingThrough wrote:

Thank you for your post, Therese. Congratulations!

Diagnosed stage 4, de novo. It was quite a shock. Dx 1/4/2018, IDC, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 3/28/2018 Femara (letrozole) Targeted Therapy 3/28/2018 Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Aug 7, 2018 09:31AM marylark wrote:

Congratulations Therese. You are an inspiration! .I'm going through a rough patch right now and your experience gives me hope.

Mary

Dx 5/1/2015, IDC, Right, 5cm, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 5/13/2015 Taxol (paclitaxel) Chemotherapy 8/12/2015 AC Dx 4/2017, Stage IV, metastasized to bone Radiation Therapy External: Bone Chemotherapy Taxol (paclitaxel) Targeted Therapy Afinitor (everolimus) Hormonal Therapy Aromasin (exemestane) Chemotherapy Xeloda (capecitabine) Radiation Therapy Whole-breast: Breast, Lymph nodes Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole)
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Aug 7, 2018 11:00AM jensgotthis wrote:

so very happy for you

Dx 12/3/2015, IDC: Tubular, Left, 2cm, Stage IV, metastasized to bone, Grade 1, 0/12 nodes, ER+/PR+, HER2- Chemotherapy 1/4/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/1/2016 External: Bone Hormonal Therapy 5/23/2016 Surgery 5/24/2016 Lymph node removal: Left; Mastectomy: Left Targeted Therapy 9/13/2016 Ibrance (palbociclib) Hormonal Therapy 9/13/2016 Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy
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Aug 7, 2018 11:44AM jobur wrote:

Therese~  All I can think of to say to 10 years is WOW! Thank you for sharing your experience with this beautiful and spot on post. This is the attitude we should all strive toward, mbc or not. You have definitely got this.            ~Jo

"What do you know, and what do you just believe?" Linda Hogan "Power" Surgery 6/30/2014 Lumpectomy: Left Dx 8/1/2014, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 4/7 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 8/3/2014 Arimidex (anastrozole) Hormonal Therapy 4/29/2015 Faslodex (fulvestrant) Targeted Therapy 8/16/2015 Ibrance (palbociclib) Dx 11/20/2018, IDC, 1cm, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Hormonal Therapy 12/4/2018 Aromasin (exemestane) Targeted Therapy 1/1/2019 Afinitor (everolimus)
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Aug 7, 2018 01:16PM Kjones13 wrote:

congrats!! Thank you for sharing! Such an inspiring post! Keep on keepin on!

James 1:2-4 Dx 9/14/2012, IDC, 6cm+, Stage IV, Grade 3, 11/11 nodes, mets, ER+/PR-, HER2+ Surgery 10/8/2012 Lymph node removal: Right, Sentinel Targeted Therapy 10/16/2012 Herceptin (trastuzumab) Targeted Therapy 10/16/2012 Perjeta (pertuzumab) Chemotherapy 10/16/2012 Taxol (paclitaxel) Hormonal Therapy 2/28/2013 Surgery 10/23/2013 Mastectomy: Right
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Aug 7, 2018 11:59PM ABeautifulSunset wrote:

whoopeee !!! Yesssss

“Sunsets are proof that endings can be beautiful too.” Dx 7/29/2011, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Afinitor (everolimus) Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Breast, Chest wall, Bone Chemotherapy TAC Targeted Therapy Ibrance (palbociclib) Surgery Mastectomy; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole)
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Aug 8, 2018 03:09PM JFL wrote:

Huge milestone! Amazing

Chart your own course. Dx at 30. Dx with mets at 38 while pregnant - extensive liver & bone involvement. Currently on Halaven & XGeva. ER+/PR+, HER2 equivocal (IHC)/negative (FISH) as of 8/2017 liver biopsy. Dx 9/2006, IDC, Stage IIB, Grade 3, ER+/PR+, HER2- (FISH) Surgery 9/22/2006 Mastectomy: Left, Right Chemotherapy 11/6/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Surgery 12/26/2014 Prophylactic ovary removal Hormonal Therapy 12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy 6/18/2015 Ibrance (palbociclib) Chemotherapy 3/10/2016 Xeloda (capecitabine) Hormonal Therapy 5/14/2017 Aromasin (exemestane) Targeted Therapy 5/14/2017 Afinitor (everolimus) Chemotherapy 8/18/2017 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/23/2018 Doxil (doxorubicin) Radiation Therapy 4/9/2018 Liver Chemotherapy 12/28/2018 Halaven (eribulin)
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Aug 28, 2018 03:22AM RonnieKay wrote:

Happy Dancing for you!!!! Continue Celebrating Life to its fullest :-) XOX

Dx 6/1/2009, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 6/22/2009 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 8/9/2009 Breast Hormonal Therapy 1/5/2010 Femara (letrozole) Dx 6/9/2011, IDC, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 6/29/2011 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 6/27/2012 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 12/21/2012, IDC, 6cm+, Stage IV, 0/0 nodes, mets, ER+/PR+, HER2+
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Aug 28, 2018 11:54AM AmyJM wrote:

Therese - 10 years! Congratulations! Joining in the happy dancing here! You are so right about taking it one day (or hour, or minute) at a time. I'm so happy for you!

Love and hugs, Amy

Dx 9/4/2003, IDC, 4cm, Stage IIB, Grade 2, 2/17 nodes, ER+/PR+, HER2- Surgery 10/21/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right) Chemotherapy 11/19/2003 AC + T (Taxol) Hormonal Therapy 4/30/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/2/2013, Stage IV, ER+/PR-, HER2- Hormonal Therapy 5/2/2013 Arimidex (anastrozole) Targeted Therapy 8/18/2016 Ibrance (palbociclib) Hormonal Therapy 8/18/2016 Faslodex (fulvestrant)
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Aug 28, 2018 12:48PM SandiBeach57 wrote:

I want to post in 10 years, too. You never know with all the new treatments..

2006 and 2007 DCIS ER+PR+, Oct 2016 Stage IV widespread liver mets, ER+PR-HER2-. Oct 2016 AC. Jan 2017 Letrozole/Ibrance
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Aug 29, 2018 04:00PM Fitztwins wrote:

10 years is quite a milestone with Mets. I too was diagnosed in 2008. I am amazed.

Your joy in contagious.


Janis

10 year survivor.

Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH) Surgery 1/19/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 2/1/2005 AC + T (Taxol) Radiation Therapy 5/1/2005 Breast, Lymph nodes Targeted Therapy 6/1/2005 Herceptin (trastuzumab) Hormonal Therapy 1/1/2006 Femara (letrozole) Hormonal Therapy 6/2/2008 Aromasin (exemestane) Targeted Therapy 7/1/2008 Herceptin (trastuzumab) Hormonal Therapy 6/15/2013 Arimidex (anastrozole) Targeted Therapy 9/5/2015 Perjeta (pertuzumab)
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Aug 29, 2018 04:25PM Amica wrote:

Janis

I am happy for you! What an accomplishment!

love & respect,

Amica



1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Nov 9, 2018 06:31PM - edited Nov 9, 2018 09:43PM by Live

Congratulations!!! That's amazing. Thank you for giving me and others hope. I was just dx this week.

Have you ever had plural effusions?

Robin

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Dec 12, 2018 11:25PM dorimak wrote:

Congratulations! So encouraging and I'm sure with less treatments back then they weren't nearly as optimistic. You go girl and look forward to seeing your continued major milestones!

Dx 10/2001, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/2005, IDC, Right, 2cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 1/2016, IDC, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 4/1/2016 Femara (letrozole) Hormonal Therapy 4/1/2018 Faslodex (fulvestrant) Targeted Therapy 11/1/2018 Afinitor (everolimus) Hormonal Therapy 11/1/2018 Aromasin (exemestane) Dx 1/2019, Stage IV, metastasized to brain/lungs/other, Grade 2, ER+/PR+, HER2- Radiation Therapy External: Brain Surgery Mastectomy: Right Radiation Therapy Chemotherapy AC Surgery Lumpectomy: Right

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