Topic: How many MBC stage 4 to liver, lungs and bone are alive 5 yrs ++

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Sep 3, 2018 05:02AM

Posted on: Sep 3, 2018 05:02AM

Raven4 wrote:

Hi,

I am really curious to hear from womwn that have been living with MBC stage 4 with mets to liver, lungs, lymph and liver for 5 years or longer.

Raven

Raven Dx 12/13/2013, IDC, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Surgery 12/30/2013 Lymph node removal: Left; Mastectomy: Left Hormonal Therapy 2/6/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/17/2018, IDC, Left, 3cm, Stage IV, metastasized to bone/liver/lungs, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Chemotherapy 5/30/2018 Taxol (paclitaxel) Chemotherapy 8/1/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin) Chemotherapy 9/13/2018 Navelbine (vinorelbine), Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 3, 2018 07:07AM carpe_diem wrote:

I've been in treatment for 7.5 years with lung mets, added bone mets 4 years ago and then liver mets 3.5 years. So I haven't had all of them for more than 5 years, but I've been metastatic over 8 years, counting from pleural effusion that was not properly diagnosed. I don't think my treatment list is up to date, but I'm currently on Halaven but probably switching soon.

Lung mets from the start. Solitary met, right shoulder blade 12/1/14. Dx 3/11/2011, IDC: Mucinous, Left, 5cm, Stage IV, Grade 2, 2/4 nodes, mets, ER+/PR+, HER2-, Hormonal Therapy 3/12/2011 Arimidex (anastrozole) Surgery 11/27/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 1/28/2013 Breast, Lymph nodes Surgery 5/13/2013 Reconstruction (left) Hormonal Therapy 12/19/2014 Faslodex (fulvestrant) Chemotherapy 4/17/2015 Xeloda (capecitabine) Chemotherapy 5/13/2016 Abraxane (albumin-bound or nab-paclitaxel)
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Sep 3, 2018 03:58PM Raven4 wrote:

Wow you made my day.

Raven Hug

Raven Dx 12/13/2013, IDC, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Surgery 12/30/2013 Lymph node removal: Left; Mastectomy: Left Hormonal Therapy 2/6/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/17/2018, IDC, Left, 3cm, Stage IV, metastasized to bone/liver/lungs, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Chemotherapy 5/30/2018 Taxol (paclitaxel) Chemotherapy 8/1/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin) Chemotherapy 9/13/2018 Navelbine (vinorelbine), Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 3, 2018 08:10PM Grannax2 wrote:

Raven, I'm 18 years out from bone mets. I consider that cure. As you know, I have lung , chest and liver now. I'm 20 months out from DX of MBC. Lung and chest responded beautifully to IF almost gone in fact. Liver responded to y90 for over a year, now a new liver met. If I get to have another y90, it could give me another year, if I respond to AA the longest I've heard of is lulubee with 18 months.

I don't know, no one knows if I'll make it to five years. I know they're are some who have, even one with liver mets.💞

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Sep 20, 2018 08:21AM - edited Sep 20, 2018 08:22AM by Lovestosing

Hi Raven4


I have had liver and lung mets for 3.5 years and prob bone mets too although they originally thought it was just degeneration due to wear and tear of ageing. I'm doing well, still working 4 days a week in a demanding job which involves a lot of travel and I sing in a gospel choir. I'm on weekly Taxol at the moment which has kept me stable so far this year. I'm hoping for 5++++++++ years and I hope you have this too!

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Sep 20, 2018 09:23AM Birchbark26 wrote:

you made my day! Nerdy

Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)
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Sep 20, 2018 09:25AM Birchbark26 wrote:

wonderful to read this. You have calmed my fears

Dx 7/16/2018, IDC, Right, Stage IV, metastasized to bone/liver/other, ER-/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy AC + T (Taxol) Targeted Therapy Perjeta (pertuzumab)
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Sep 20, 2018 10:51AM mandymoo wrote:

I was diagnosed with bone mets, lung mets, innumerable liver mets and 3 brain mets in November 2012 and I am still around with quite a good quality of life. I went on to Xeloda in November 2012 and within 15 months, I was NED in the Brain, Liver and Lungs, except I still had some progression in the bones. I was on Xeloda for 44 months when I again had progression in the lungs. I then went on to Afinitor Aromasin combo for another 18 months as this treatment worked will on my lung mets, except my bone mets were still slowly progressing. Early this year I went back on to Xeloda as my lung mets again returned as well as some abdominal ascites. Xeloda worked for about 6 months and I am now on Fulvestrant as my lung mets have returned again. Progression is slow thank goodness and I will find out in another month whether the treatment is effective. I will go on an immunotherapy trial next and I am hoping that will be after Christmas as I have too many things to do before Christmas.

"Don't give in to the disease" Dr Phil McGraw Dx 12/13/2006, IBC, 3cm, Stage IIIB, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 12/28/2006 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 5/20/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 11/17/2012, IBC, Right, 3cm, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, 11/22 nodes, ER+/PR+, HER2- Chemotherapy 11/27/2012 Xeloda (capecitabine)
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Sep 20, 2018 04:41PM Raven4 wrote:

So wonderful to hear your success stories. I am on Xeloda now finishing first week. I am having chest pain that i´m not happy about and lower back pain.

Anyone one else experience this? wow how was your energy level on Xeloda that long?


Raven

Raven Dx 12/13/2013, IDC, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Surgery 12/30/2013 Lymph node removal: Left; Mastectomy: Left Hormonal Therapy 2/6/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/17/2018, IDC, Left, 3cm, Stage IV, metastasized to bone/liver/lungs, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Chemotherapy 5/30/2018 Taxol (paclitaxel) Chemotherapy 8/1/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin) Chemotherapy 9/13/2018 Navelbine (vinorelbine), Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 22, 2018 12:11AM Raven4 wrote:

Mandymoo- you were on Xeloda for 44months without any breaks.???? I just finished my first week on and 7/7 . I have all kinds of SE pain in lower back extreme fatigue, no appetite andunable to to do things I was doing before I started like walk. I spen alot of time restjust fall asleep and use heating pad andibufenwith codineto ease the pain. I have been pain free for months. But I will do anything it takes to get your success. my god that´s amazing.! I have lung, liver and bone mets.

Do you take any pain meds.

Raven

Raven Dx 12/13/2013, IDC, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Surgery 12/30/2013 Lymph node removal: Left; Mastectomy: Left Hormonal Therapy 2/6/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/17/2018, IDC, Left, 3cm, Stage IV, metastasized to bone/liver/lungs, Grade 2, 0/6 nodes, ER+/PR+, HER2-, Chemotherapy 5/30/2018 Taxol (paclitaxel) Chemotherapy 8/1/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin) Chemotherapy 9/13/2018 Navelbine (vinorelbine), Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 22, 2018 01:52AM Grannax2 wrote:

Mandymoo. You are our hero. You got 18 more. on AA? My MO says if I progress that will be my next TX. I've only heard of one other person who got that long out of AA. Also that you're six years out with your DX.

I'm 20 months out with Ibrance since DX of MBC to lung, chest and liver.

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