Sep 3, 2018 07:07AM carpe_diem wrote:

I've been in treatment for 7.5 years with lung mets, added bone mets 4 years ago and then liver mets 3.5 years. So I haven't had all of them for more than 5 years, but I've been metastatic over 8 years, counting from pleural effusion that was not properly diagnosed. I don't think my treatment list is up to date, but I'm currently on Halaven but probably switching soon.

Sep 3, 2018 08:10PM Grannax2 wrote:

Raven, I'm 18 years out from bone mets. I consider that cure. As you know, I have lung , chest and liver now. I'm 20 months out from DX of MBC. Lung and chest responded beautifully to IF almost gone in fact. Liver responded to y90 for over a year, now a new liver met. If I get to have another y90, it could give me another year, if I respond to AA the longest I've heard of is lulubee with 18 months.

I don't know, no one knows if I'll make it to five years. I know they're are some who have, even one with liver mets.💞

Sep 20, 2018 09:23AM Birchbark26 wrote:

you made my day!

Sep 20, 2018 10:51AM mandymoo wrote:

I was diagnosed with bone mets, lung mets, innumerable liver mets and 3 brain mets in November 2012 and I am still around with quite a good quality of life. I went on to Xeloda in November 2012 and within 15 months, I was NED in the Brain, Liver and Lungs, except I still had some progression in the bones. I was on Xeloda for 44 months when I again had progression in the lungs. I then went on to Afinitor Aromasin combo for another 18 months as this treatment worked will on my lung mets, except my bone mets were still slowly progressing. Early this year I went back on to Xeloda as my lung mets again returned as well as some abdominal ascites. Xeloda worked for about 6 months and I am now on Fulvestrant as my lung mets have returned again. Progression is slow thank goodness and I will find out in another month whether the treatment is effective. I will go on an immunotherapy trial next and I am hoping that will be after Christmas as I have too many things to do before Christmas.

Sep 22, 2018 12:11AM Raven4 wrote:

Mandymoo- you were on Xeloda for 44months without any breaks.???? I just finished my first week on and 7/7 . I have all kinds of SE pain in lower back extreme fatigue, no appetite andunable to to do things I was doing before I started like walk. I spen alot of time restjust fall asleep and use heating pad andibufenwith codineto ease the pain. I have been pain free for months. But I will do anything it takes to get your success. my god that´s amazing.! I have lung, liver and bone mets.

Do you take any pain meds.

Raven