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Topic: Bone Marrow mets

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Sep 18, 2018 11:39AM

azs40 wrote:

Hi everyone.

I was on carbo/gemzar and then just carbo, but my white blood cells and platelets haven't been cooperating. They're both too low to receive treatment. Onc sent me to hematologist. Long story short - there may be cancer cells in my bone marrow. Tiny biopsy tomorrow.

I'm really hoping for a reprieve. I know i haven't had the biopsy yet but I tend to jump ahead.

I came on here and saw that some of you have had marrow mets and are still here. Can you tell me your experience? How do they treat it? With more chemo? Is there success with treatment?

I'm scared witless and could use some support.

Thanks.

A


azs40 Dx 8/2008, IDC, Left, 1cm, Stage IIIA, Grade 2, 4/28 nodes, ER+/PR+, HER2- Dx 11/2017, Stage IV, ER+/PR-, HER2-
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Sep 18, 2018 10:37PM - edited Sep 18, 2018 10:38PM by grrifff

I was diagnosed with marrow mets in March, had biopsy. Put on Taxol but it didn't work, moved to A/C chemo which is working well. White blood cells and platelets can be affected by the chemo itself not necessarily mets. Now done with chemo they've been steadily rising. I think a lot of ladies here may have experienced the same on chemo. Sending positive energy-Jill

Dx 5/23/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 3, 21/23 nodes, ER+/PR+, HER2- Surgery 6/5/2017 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Hormonal Therapy 8/7/2017 Femara (letrozole), Zoladex (goserelin) Chemotherapy 4/3/2018 Taxol (paclitaxel) Chemotherapy 6/29/2018 AC Hormonal Therapy 9/28/2018 Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy 10/27/2018 Ibrance (palbociclib)
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Sep 18, 2018 11:16PM ScienceGirl wrote:

Hello,

I have bone marrow mets confirmed by biopsy in November of 2016. My white cells and platelets seem to hang in there pretty well, it's the red cells that are most effected. I've been taking Xeloda and Tamoxifen since NOV2016, a low dose of 1000mg twice a day one week on one week off. In the spring of this year I started having more serious anemia that required red cells transfusion about every 8 weeks or so. My tumor marker has been stable (CA2729 hanging around 280-320). My onc and I decided to try two weeks on and one week off with the Xeloda keeping the same low dose (which has given me only the mildest of side effects). So coming up on 2 years on the Xeloda, if I can stay on it and just get transfusion once in awhile, I'm fine with that. I also have been on Xgeva which I am convinced has kept my cancer just in the bones and marrow and not spread to any other organs

Bottom line is that the bone marrow mets can be managed and I'm a big fan of Xeloda. Good luck with biopsy and hoping that this is a little bump in the road of a very long journey.

Kim

Kim Dx 11/17/2010, 2cm, Stage IB, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/30/2010 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right Chemotherapy 1/13/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2011 Breast Hormonal Therapy 4/1/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/21/2014, ILC/IDC, Stage IV, metastasized to bone, mets, ER+/PR-, HER2- Hormonal Therapy 6/1/2014 Arimidex (anastrozole) Radiation Therapy 6/6/2014 Hormonal Therapy 12/1/2015 Aromasin (exemestane) Hormonal Therapy 3/18/2016 Faslodex (fulvestrant) Targeted Therapy 3/18/2016 Ibrance (palbociclib) Hormonal Therapy 10/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 11/18/2016 Xeloda (capecitabine)
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Sep 19, 2018 09:17AM azs40 wrote:

Thank you Kim for your reply...it gives me hope. I immediately went to bone marrow transplant.

-A


azs40 Dx 8/2008, IDC, Left, 1cm, Stage IIIA, Grade 2, 4/28 nodes, ER+/PR+, HER2- Dx 11/2017, Stage IV, ER+/PR-, HER2-

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