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Topic: Kisqali (ribociclib) treatment with Faslodex injections.

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Sep 18, 2018 07:40PM

aurora14 wrote:

I was recently diagnosed with MBC in the spine and pelvic area. I received a "loading" of 3 Faslodex injections to be continued monthly and an infusion of zometa. Next to start soon is the Kisqali or ribociclib tablets. Has anyone experienced this treatment and was hair loss a side effect? Any comments appreciated.



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Sep 19, 2018 12:07AM Kanga_Roo wrote:

Hi Aurora, Ive been on Kisqualis 8mths now and still have my hair, although it has thinned slightly. Initially it made me nauseous and fatigued, so my onc lowered my dose to two tablets. I feel fine, and my initial cancer has more than halved. Hope you get good results too.

Jackie


Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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Sep 19, 2018 05:14AM pajim wrote:

You may lose some hair. I figured I lost about a quarter of it when I started Faslodex. Then a bit more the year I took palbociclib along with Fas.

It wasn't enough for anyone but me to notice, but when I moved to Xeloda my hair definitely got thicker.

There's a thread for Ibrance and Faslodex. That's basically the same as what you're taking. They'll have some tips for you.

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/26/2013 Femara (letrozole) Hormonal Therapy 4/21/2013 Faslodex (fulvestrant) Targeted Therapy 2/24/2016 Ibrance (palbociclib) Chemotherapy 6/18/2017 Xeloda (capecitabine) Targeted Therapy 8/14/2018 Verzenio Hormonal Therapy 8/14/2018 Faslodex (fulvestrant)
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Sep 21, 2018 01:53AM - edited Sep 21, 2018 01:54AM by JoE777

Aurora, thanks for the post. I was about to start a thread. I was beginning to think no one else was on kisqali. I'm taking letrozole with 400 mg of kisqali and monthly zometo infusions. I've lost half my hair but it has slowed after 5 months. I had enough for 3 people so no one notices unless I complain. I took letrozole 2012 and exemistane 2013 and lost my hair so I can't blame it all on Kisqali. Took two cycles of kisqali 600mg then reduced to 400 mg because of low white count. My tumors in the sacrum/iliac and small mets in lungs are significantly reduced and no new activity so ugly SE are preferred to unchecked cancer. It got me out of a wheelchair and back to a slow walk.

Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/4/2012 Lumpectomy: Left; Lymph node removal: Sentinel Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole) Chemotherapy Other Radiation Therapy External: Bone Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 6, 2018 07:30PM - edited Oct 6, 2018 07:50PM by aurora14

Thank you all for your quick replies to my inquiry . I have been on the Kisqali (ribociclib) for almost a week now. Along with the Falsodex injections monthly and the zomeda infusion every 3 months so far. Thursday I had the shots and infusion so along with the ribociclib daily , I am feeling a bit lousy but I am hoping it will pass in a couple more days and I will get back to "less" lousy. I wonder if the side effects of the ribociclib get worse the longer you take it or if the body settles down to another "normal". I have to say though, that although I have only been on it almost a week, I feel the effects are easier to deal with than chemotherapy for sure. Less intrusive on normal activity during the day. The 15th I get a bone scan to see if anything has changed. I was happy to hear that with just the Falsodex the tumor marker went down substantially much to my relief.

Hope you all are hanging in there, facing each of the daily challenges as best you can and not let this get you too side tracked from enjoying the days now and the days ahead.

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Oct 7, 2018 04:10AM JoE777 wrote:

Aurora, will you take Aromatase Inhibitors also or does falsodex take their place? My SEs improved once I was reduced to 400 mg a day. My hair is still thinning. Hope it stops. More worrisome is the back pain and general flu like symptoms that come and go.

Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/4/2012 Lumpectomy: Left; Lymph node removal: Sentinel Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole) Chemotherapy Other Radiation Therapy External: Bone Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes

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