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Topic: Share your genetic testing story with us on video (in US)?!

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Feb 6, 2019 04:59PM

Moderators wrote:

We are seeking individuals living with metastatic breast cancer (and preferably living in the mid-Atlantic US region) who wish to share their story in a video series about the importance of genetic testing and counseling We're also looking specifically to feature Ashkenazi Jewish and African American families to raise awareness of their at risk status. Please PM the Mods if you are interested!

The videos will feature patients and a genetic counselor or related subject matter expert who can speak about the importance and process of genetic counseling and testing.

Filming will be done at your home sometime this Spring (April, May, June).

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Feb 7, 2019 01:50PM Moderators wrote:

Bump.

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Mar 11, 2019 11:57AM Moderators wrote:

Bump.

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Mar 20, 2019 10:19PM EMAW wrote:

Mày be able to offer help. Had testing in late November with positive results in December.

(Am positive for Chek2 & have persuad3d most family members to get tested

Dx 11/17/2010, IDC, Left, 2cm, Stage IV, metastasized to brain/liver/lungs, mets, ER+/PR-, HER2+ Chemotherapy 12/12/2010 Taxol (paclitaxel) Targeted Therapy 12/12/2010 Herceptin (trastuzumab) Hormonal Therapy 1/16/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 2/16/2014 Faslodex (fulvestrant) Hormonal Therapy 5/13/2014 Arimidex (anastrozole) Chemotherapy 7/21/2014 Taxotere (docetaxel) Targeted Therapy 7/21/2014 Perjeta (pertuzumab) Dx 7/21/2017, IDC: Tubular, Left, 2cm, Stage IV, metastasized to brain/liver/lungs, ER+/PR-, HER2+ Surgery 8/8/2017 Radiation Therapy 10/25/2017 External: Brain Chemotherapy 4/15/2018 Doxil (doxorubicin) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy
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Feb 6, 2020 02:31AM arolsson wrote:

Hi Moderators

Im not a candidate for your filming being over here in Sweden but it may interest you to know that PAM50 will be introduced as standard here soon. I just decided to privately fund the FoundationOne test (about 2000 dollars here) which will require the approval of my oncologist and a pathologist. There is Am hoping it will make it easier to sign on to new studies many of which require this test for consideration.

Dx 8/2017, IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, 5/5 nodes, ER-/PR-, HER2+ Surgery Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy Halaven (eribulin)

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