Log in to post a reply
Mar 23, 2019 08:14PM
Mar 23, 2019 08:15PM
Great topic. Thank you BCO for not being afraid to talk about mbc.
Myths and Misconceptions about mbc:
If she looks good, she is good. Nope. Many of us suffer from the invisible disability of fatigue. I would venture to say every available treatment causes us some level of fatigue. We struggle to keep up. It may look like we are doing the bare minimum when we are really giving it our all. We may hide our pain, our grief, our tiredness, our baldness, our worry, our financial difficulties brought on by not just medical costs but by having to pay for help, over-the-counter meds, lost work time, etc.
A person with mbc should not be given this job/place on the team/part in the play because she could keel over at any moment and will let us down. This is cancer discrimination. We're not dead yet! Let us live. Don't assume you know something you don't.
If she has mbc, she must have done something wrong -- like not get a mammogram, not follow her treatment, not live a healthy lifestyle. Sorry to pop your bubble of security, but people can do everything "right" and still get mbc. Yup, that means you are vulnerable too. So support mbc research and you could be helping us and yourself.
She will love these cute pink products, let's get her some. Gag me. It's not a party, it's not cute or sexy, it's not a special club, it's not a marketing opportunity. It is a terrible disease. Go donate that money to mbc research. Please.
We should encourage her by telling her to fight, that she has a great attitude, that she can beat this. These ideas can make us feel pressured. Many of us do not want to feel we are in a battle. We should be allowed our full emotions. And we do not want it implied that if we can't beat it, we have failed.
Treatment for mbc is like treatment for early-stage bc. Nope. This is a marathon, not a sprint. For many, for a while at least, the treatments are less heavy, because we have to do them long-term.
2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD