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Topic: Jane McLelland protocol / COC protocol for STAGE IV members ONLY

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Apr 11, 2019 11:07AM

Hjertemor wrote:

Hi 😊

Just wondering if anybody in here is doing the Jane McLelland (COC) protocol?

If yes: For how long and did it have any effect?

I’m seriously considering it but need to hear from other MBC’s whether to do it or don’t.


Thanks in advance and hi from Denmark

Dx 5/22/2018, IDC, Left, 2cm, Stage IIIA, Grade 3, ER+, HER2- Chemotherapy 6/29/2018 Dx 11/23/2018, Stage IV, metastasized to bone/liver, ER+, HER2- Surgery Targeted Therapy Kisqali Hormonal Therapy Surgery
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Apr 11, 2019 01:22PM LoveFromPhilly wrote:

Hi Hjertemor,

I have not heard of this until now. I think we all understand that cancer is not a "one size fits all." and there are so many factors that lead into one person's remission or stabilization from another. Some people are extraordinary responders and some people are outliers.

I wish there was a perfect answer to how to cure ourselves of cancer, especially Stage 4. If there is one, I think the world would be jumping up and down for joy. Unfortunately, there are many people that think they have the right answer for how to "cure" cancer and then they use this as a marketing scheme to monetize their own agenda. I keep seeing it time and time again. And it sadly gives so many people false hope, causes unnecessary spending and misleading promises.

It is possible that this woman's protocol may offer people one or two more months alive? I honestly have no idea. But for me, I do no want to spend my time stressing out about if I am taking all the right supplements at all the right times just to add on a couple extra months. I want to live and be happy and as stress-free as possible.

Just one gals take on it all.

These folks, including the Chris Beats Cancer guy, just plain outright annoy the heck outta me!!

Hugs to you and hope you are doing/feeling as well as can be!

Philly

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Apr 11, 2019 04:30PM exbrnxgrl wrote:

BCO tends to fall more on the side of conventional treatment, but you might want to ask about this topic on the Alternative Forum. Best of luck.

https://community.breastcancer.org/forum/121

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Apr 18, 2019 08:58PM dlb823 wrote:

There’s a an active Facebook page for Jane McClellans’s protocol, which patients use along with conventional treatment to block multiple pathways. I don’t know much about it yet, although I did just purchase Jane’s book, How To Starve Cancer. Feel free to PM me if you need a link to that Facebook page. It’s not a do it yourself program. You need to be tested and monitored to figure out which off label drugs might be beneficial for you.

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Jul 14, 2019 07:50PM Caitpow88 wrote:

hi!

Did you ever start this protocol?? How are you doing??

Dx 10/2018, IDC, Right, 2cm, Stage IIIA, Grade 3, 4/14 nodes, ER+/PR-, HER2- Surgery 10/15/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 11/5/2018 AC + T (Taxol)
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Jul 14, 2019 08:45PM - edited Jul 15, 2019 08:46PM by Frisky

Hjertermor, I'm very happy you started this topic....

Everyone....May I recommend that before you comment, you read the book? or have at least some minimal understanding of what that woman accomplished and how she is revolutionizing cancer care in England?

offering your uneducated opinions will not help anyone...and this thread is about people that are aware and are or might be following her protocol, which include typical treatment and other medications to attack the cancer on all sides at the same time.

You know, how we all progress sooner or later? Well, she's figured out what medications block the various pathways cancer uses to mutate and spread. She attacks the cancer on every pathway at the same time, because the medications she uses are not as toxic as chemotherapy and are actually effective. There's tons of accepted science beyond her protocol, and for us to diminish her accomplishment is utter madness. But it's a free country, so go ahead and keep on saying whatever comes to mind....don't be surprised, however, if you are ignored...

Contrary to the majority of women on BCO, she's alive 12 years after being diagnosed stage four, after having been heavily treated and given up on by your traditional genius type oncologists.

There are tons of other topics on this board dedicated to conventional treatments, if you don't believe in anything else, save your energy and post where your opinions will be welcomed, and please get ready for the inevitable progression...or get some therapy and try to wake up out of your dissassosiative state...sooner or later you cancer will progress in your other vital organs while doing your conventional therapies. This is unfortunately an inevitable scientific fact you can surely count on.

Just saying....

some of us are trying to stay alive....is that okay with you??

“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/15/2015 Femara (letrozole) Targeted Therapy 3/10/2017 Ibrance (palbociclib) Hormonal Therapy 3/10/2017 Faslodex (fulvestrant) Surgery 4/5/2017 Radiation Therapy 4/10/2017 External: Bone Hormonal Therapy 1/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/10/2018 Afinitor (everolimus) Chemotherapy 6/2/2018 Xeloda (capecitabine)
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Jul 15, 2019 04:19PM Anotherone wrote:

I have written to them and I am going to start ot if they take me on so good to get in touch with others that do.

Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/17/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy External: Chest wall Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement
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Jul 15, 2019 05:54PM santabarbarian wrote:

I have read the book. I added a few of the OTC things that were recommended. I am considering a course of docycycline and mebendazole if I can get them. I think the whole concept makes a ton of sense. Most of the recommended supplements are very low risk.

pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Jul 15, 2019 08:44PM Frisky wrote:

I’m about to follow in your footsteps Santabarbarian.....nothing to lose and much to gain. She makes a lot of sense and the fact that she’s alive today and can explain her protocol is enough proof for me.

“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/15/2015 Femara (letrozole) Targeted Therapy 3/10/2017 Ibrance (palbociclib) Hormonal Therapy 3/10/2017 Faslodex (fulvestrant) Surgery 4/5/2017 Radiation Therapy 4/10/2017 External: Bone Hormonal Therapy 1/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/10/2018 Afinitor (everolimus) Chemotherapy 6/2/2018 Xeloda (capecitabine)
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Jul 17, 2019 09:14PM NicoleRod wrote:

I read the reviews on amazon for this book. I was sad to see a couple of people said that it is NOT an easy read by any means. I struggle with reading comprehension so I am afraid I would fall into that category so I was hoping to hear about some of the things in the book on here. I am glad someone here though did mention that you need to be monitored on this protocol that you cannot do it yourself I didn't know that.

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Jul 17, 2019 11:36PM santabarbarian wrote:

Nicole the idea at the core of the book is simple. Three pathways allow a cancer stem cell to eat. Cut off some part of all three pathways, and the cell can't eat. The pathways themselves are complicated to explain but the concept is easy. Some supplements and drugs disrupt more than one pathway so they make sense to try as they have more than one possible effect. Her core recommendation would be to eat a low glycemic diet & take many of the following multi-action supplements (among others):

- metformin : active against all 3 pathways a stem cell can use to get fuel

-doxycycline : antibiotic that also disrupts all thee pathways

-berberine: : also active against all three pathways

-DHEA (not for hormone driven cancer)

-a statin that is fat soluble , like propranolol

-EGCG (from green tea)

-quercetin

-2 DG "2 deoxy D Glucose"

-aspirin (baby)

- loratadine (claritin) or hydroxychloroquine

- dipyridamole

-NSAIDs (take w Statin)

-luteolin


then to do intermittend high dose C for killing the weakened stem cells.

This is not a complete list but it gives you a flavor of what is recommended.


pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Jul 18, 2019 01:10AM AliceBastable wrote:

I had seen Metformin mentioned before, so I asked my MO about it last week. She said there is no connection to recurrence prevention - and she is always up-to-date on the newest studies.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Jul 18, 2019 01:46AM santabarbarian wrote:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5772929/

lots of ways metformin is good against cancer

pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Jul 18, 2019 07:03AM BevJen wrote:

I also asked my MO about it, and her response was that they are "studying" it right now with respect to breast cancer. I, too, have seen numerous articles about its interaction with cancer cells. I think the "studying" thing is specifically breast cancer. I also asked my internist about it (and she prescribed it for me). I am pre-diabetic anyway (and have been for many years) so for me, it could have a dual effect.

Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 8/1/2019 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Chemotherapy TAC Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap
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Jul 18, 2019 08:22AM NicoleRod wrote:

wow santa...thanks for that. And thanks for mentioning the one thing that isn't for hormone driven cancer since that is what I have.

Some of those other things I have to look up what they are...Statin...DHEA...NSAID..etc.

I take Claritan D just about every day and have for years so that won't be new for me. :)

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Jul 18, 2019 10:16AM santabarbarian wrote:

My MO, who is Mr. Double Blind Clinical Trial, felt the current evidence on Metformin was very good -- and he did not hesitate to prescribe it when I asked him about it. I have normal blood sugar. My fasting glucose was about 99 before metformin, and now it's about 90. I take 1000 mg (500 x 2, am/pm).

Jane McLelland is also a big fan of brief fasting or intermittent fasting (where you confine your eating to a smaller window of time, like 11 am to 7 pm) and do not eat outside that window. That also lowers glucose in the body and stresses cancer cells while resting and restoring other systems like digestion. Proper gut flora and good digestion are important to immune system. I have been eating between 11 am and 8 pm. I am dropping a bit of weight doing this even though I eat well during that window of time. Fasting benefits the immune system because when you break a brief fast by eating good nutritious foods, the immune system will naturally rev up and re-start itself strongly.

The sort of confusing part is the varied ways that the various drugs and supplements can work to attack the cancer. For example, metformin lowers glucose -- so the main activity for which it is prescribed ALSO helps re cancer. But metformin has other "sidebar" effects in the body which mess up the cancer's use of glutamine and its use of fatty acids, too. So it can disrupt the chain of things that happen for all three food sources available to cancer stem cells. For each food source there are 5 or 6 elements to that particular food pathway (a chain reaction of steps), each of which can be disrupted, and she discusses different supplements and drugs that disrupt each step along that pathway.

Similarly Fenben's de-worming effects are NOT the *relevant* effects for its use against cancer. Instead it has side bar effects that disturb the cancer cell's replication, growth, nutrition, etc.

Last McClelland is focused on killing the cancer stem cells moreso than cancer cells.... CSCs are the cause of metastases. CSCs are much less vulnerable to being killed from chemo than regular tumor cells. Her approach is finding ways to block or damage all the possible ways the CSC can get its nutrition so it will wind up dead, or so weak that a high dose of IV vitamin C can wipe it out.


pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Jul 18, 2019 05:14PM - edited Jul 18, 2019 05:16PM by NicoleRod

Santa...wow.. you worded all that in such a way that I was actually able to understand it all. I feel like since I am only on my 3rd bottle of Ibrance (and since my foundation one said my cancer is sensitive to Ibrance) my MO won't consider adding in anything like Metformin...but I am going to ask after I pass the 3 month mark and have my first scan. She didn't want me to do the IV Vitamin C and I am going along with that for now simply because I do want to see what the Ibrance will do without any interference (not that it would interfere) but so I don't have to wonder if it might. I do definitely think that natural methods (the ones Jane writes about) and the methods of chemo / ibrance etc... can both be used and can both work to help get rid of the cancer. Just my opinion as of now.

I do eat relatively healthy and really have for a long time however, after being diagnosed with Stage IV I cut down on sugar, processed meat (NO PORK what so ever any more) but I was a huge fan of Wine, Cheese and Salami's like eating that every single weekend for over a year the weekends were my cheats, .. all that is gone.. during the week I ate lots of veggies and chicken etc. . I have had a glass or 2 of wine since being diagnosed and I will maybe have that once a month. However, yea...no more salami's, no pork, very very little if any cheese and cut back on sweets. I never was a soda drinker and have always drank about 40 oz of water a day now I increased that to about 50 - 58 oz a day.

So I am still gonna ask for the metformin and I will probably do the IV Vitamin C with in the next 6 months to year. I constantly (now) worry if what I am doing is good, is enough, is bad...it gets overwhelming sometimes. I am always open to suggestions or info about what to do and what not to do.

Thank you so much for all the info I am so grateful for your easy to read explanations. :)

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Jul 18, 2019 07:20PM - edited Jul 18, 2019 08:18PM by Frisky

Santa, would you kindly share what, how much, and for how long you're going to take the off label medications based on your case?

I want to prepare myself and add them soon but I'm not sure what the exact protocol is that she recommended.


“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/15/2015 Femara (letrozole) Targeted Therapy 3/10/2017 Ibrance (palbociclib) Hormonal Therapy 3/10/2017 Faslodex (fulvestrant) Surgery 4/5/2017 Radiation Therapy 4/10/2017 External: Bone Hormonal Therapy 1/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/10/2018 Afinitor (everolimus) Chemotherapy 6/2/2018 Xeloda (capecitabine)
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Jul 18, 2019 08:21PM sbaaronson wrote:

I have a call tomorrow with Care Oncology, they are practicing this protocol to hit the cancer metabolically, since we are all doing what the current science provides, hitting it biologically. I started Metformin about 2 months ago after I asked my Oncologist to prescribe it. I am also on the Annatto E protocol, my understanding is the Danish government is backing this study. The product is manufactured by Designs for Health, I take 300mg 3x per day. They will sell it to you at wholesale cost if you reach out to them and let them know why you need it. Below find the link to Care Oncology. I will likely try it, although I have to admit, I am not a fan of antibiotics, especially since we all need our microbiome working well.

https://careoncology.com/the-coc-protocol-in-breast-cancer/


Dx 8/15/2010, IDC, Right, 4cm, Stage IIA, Grade 3, 1/13 nodes, ER+/PR+, HER2- Dx 8/11/2018, IDC, Right, Stage IV, metastasized to bone/lungs, Grade 3, ER+/PR+ Targeted Therapy
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Jul 18, 2019 08:58PM - edited Jul 18, 2019 09:25PM by NicoleRod

saberonson thanks for the link... do they set people up with doctors in the area where the patients live or are they located somewhere specifically in the US?

saberonson thanks for the link... do they set people up with doctors in the area where the patients live or are they located somewhere specifically in the US? Also, I see it says for ER positive BC so that also includes people that are HER2- and on hormone therapy that protocol is good for?

I feel like this protocol combined with our therapies we are on (in my case Ibrance, letrozole, faslodex, xgeva), in others cases Chemo etc... this could really be a 1 -2 punch to cancer.

To me I only see one problem..finding a MO that will agree to me doing that protocol with my treatment :( So that would probably mean I have to do it on my own privately... does anyone agree with me or have any input about that? Also if that is the case will the Care Oncology let us do the protocol if our MO are not signed on/in agreement?

Santa I meant to ask you, when you do the intermittent fasting (not eating before 11am) can you drink water and can you drink water after 8pm?

Please forgive me if I sound stupid here I am just learning all this. I need all the help I can get.

Nicole

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Jul 18, 2019 09:22PM - edited Jul 18, 2019 09:22PM by Frisky

Sba....if you don't mind, can you share how much care oncology is charging you for figuring out and prescribing the off labels medications you specifically need.?? This is very exciting. So happy you’re sharing your experience

“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/15/2015 Femara (letrozole) Targeted Therapy 3/10/2017 Ibrance (palbociclib) Hormonal Therapy 3/10/2017 Faslodex (fulvestrant) Surgery 4/5/2017 Radiation Therapy 4/10/2017 External: Bone Hormonal Therapy 1/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/10/2018 Afinitor (everolimus) Chemotherapy 6/2/2018 Xeloda (capecitabine)
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Jul 18, 2019 09:40PM BevJen wrote:

Frisky,

If you go to the link, and read through it, it does give the prices, both for the initial consult and the monthly cost for their proprietary drug that combines the different drugs together. It also provides info about going forward. Also, one of the drugs in the protocol is related to FZ -- it's the similar drug that begins with an "M." I had read this before and then filed it on the back burner in my head, but I'll be interested to hear how the phone call goes.

Nicole, I, too, am concerned about getting buy in from an MO. Care Oncology says that you need to get some sort of a report or letter from your MO for them. How do your convince a double blind study believer that something like this could be worth a shot? That's the question of the hour.

Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 8/1/2019 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Chemotherapy TAC Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap
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Jul 18, 2019 09:47PM - edited Jul 18, 2019 09:48PM by Frisky

I don't understand why they expect traditional oncologists to support what they consider quackery and worst yet competition? Are they out of their minds? Don't they know cancer care is all and only about money?

Do they really think our doctors give a hoot if we live or die? I have already asked my MO, and he said: ABSOLUTELY NOT

“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/15/2015 Femara (letrozole) Targeted Therapy 3/10/2017 Ibrance (palbociclib) Hormonal Therapy 3/10/2017 Faslodex (fulvestrant) Surgery 4/5/2017 Radiation Therapy 4/10/2017 External: Bone Hormonal Therapy 1/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/10/2018 Afinitor (everolimus) Chemotherapy 6/2/2018 Xeloda (capecitabine)
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Jul 18, 2019 09:49PM santabarbarian wrote:

How I dealt with my MO was to tell him that *my life* was the very life he was trying to save .....and that *I* wanted to try everything that could help and wouldn't be likely to hurt, and that I needed his honest opinions to make my best decisions, but also his support knowing that with good information I could decide the best approach for me.


pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Jul 18, 2019 09:59PM - edited Jul 18, 2019 10:02PM by NicoleRod

Frisky..yup this was exactly my concern...my MO said NO to IV Vitamin C how am I possibly gonna convince her to say yes to this?!?!

Bev- as you know I am about to start being treated where you go...so if works for you...let me know..I will choose the same doctor as you ! :)

So now my question would be how can anyone even follow Care Oncology protocol or Jane's?? How are these people getting doctors to even prescribe this stuff that Jane and & Care write about??


Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Jul 18, 2019 11:11PM santabarbarian wrote:

Only a few drugs are prescription. They make it easier as they have so much efficacy. But most of that list above is OTC meds and supplements.

pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Jul 19, 2019 03:14AM Daywalker wrote:

In Israel they are about to start a phase 3 trial with a drug that attacks pancreatic cancer metabolically, so clearly the scientists are realising that there is another way to target these suckers... And that gives me hope for this protocol!

Stage 4 mets to liver, NEAD since April 2017. After Dosetaxol have been on herceptin and Aromasin indefinitely Dx 2/1/2017, IDC, Left, 3cm, Grade 2, 9/19 nodes, ER+/PR-, HER2+ Surgery 2/10/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left) Chemotherapy 3/13/2017 Taxotere (docetaxel)
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Jul 19, 2019 12:00PM - edited Jul 19, 2019 12:02PM by Frisky

hi Folks,

I have reviewed the care oncology rules and regulations, including the costs, and find it fairly reasonable. After the initial setup, it's just a consultation and adjustment of medications if necessary every three months...they do it all. Figure out what and how much medications, if they would conflict with the traditional therapies we’re undergoing etc etc..

I will probably start after my pet in 10 days....

“Things are not always what they seem; the first appearance deceives many; the intelligence of a few perceives what has been carefully hidden.” Phaedrus Dx 3/9/2015, ILC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Hormonal Therapy 3/15/2015 Femara (letrozole) Targeted Therapy 3/10/2017 Ibrance (palbociclib) Hormonal Therapy 3/10/2017 Faslodex (fulvestrant) Surgery 4/5/2017 Radiation Therapy 4/10/2017 External: Bone Hormonal Therapy 1/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/10/2018 Afinitor (everolimus) Chemotherapy 6/2/2018 Xeloda (capecitabine)
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Jul 19, 2019 04:39PM Hopeful82014 wrote:

Nicole - in answer to your question about consuming water when fasting, the answer is that yes, you can. In fact, you probably should. Some people (myself included) consume tea (or coffee) as well. I drink mine black although some feel that adding cream, but not sugar, is o.k.

Dx IDC
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Jul 19, 2019 06:59PM NicoleRod wrote:

Thanks Hopfull

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Jul 19, 2019 09:17PM santabarbarian wrote:

Better to use no cream, as cream has fat and calories and will diminish the "fast" element. But there is another way to do 5 day "fasting mimicking with small amounts of food for people who thing no food is too hardcore. you keep protein low and eat mostly veggies, broths, etc.

pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes

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