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Mar 1, 2020 03:06PM
Pajim, Thank you for your kind words, they really do mean a lot. I'm guessing most of the people on this forum have been through much worse (you included), but this has definitely overturned my canoe on everyone's favorite river. You are so right about not being in the hospital. My mo is a sweetie and I don't think she was exactly threatening me, but she did mention while telling me to only eat clear broth that this is usually treated in the hospital. Needless to say I am being a very good girl regarding food intake.
IntoTheWoods, Thanks for your sympathy as well. It's not been fun, but could sure be a lot worse. Great to hear you are in such good hands, with a true team of pharmacist, internist, and mo (who actually talk to each!) working together on your behalf. I think it was well worth questioning them going straight to insulin, but seems like a very good answer.
Cure-ious, Thank you for your thoughtful and interesting post. I hope this will help those who are struggling with blood sugar rises. I find this interesting too, because without knowing there was such a thing, this describes my eating habits most days. (Not the keto part, just the fasting.)
an273, Dang, I knew I was going to miss someone! Belated welcome to the Piqray thread. If you get through this first cycle or two without major se's, I think you will find this drug a relatively easy tx. Is this your 1st time on Fas? Hope Piqray will be both easy & effective for you!
Brenniejoyce, A big welcome to you too! I'm sorry that Ibrance failed you and left you with pneumonitis besides. What did you take with it? Hoping Piqray will treat you better! Sounds like this is your first time on Faslodex, so do be aware it can have it's own se's even without Piqray. But it has been a wonderful drug for so many of us.
baywitch(Kathy), njgirl13, Bebecita Are you lurking? Still on Piqray? Hope you are doing well.
The unaimed arrow never misses. (From a Maui rules T shirt) What do you know, and what do you just believe?" Linda Hogan "Power"
6/30/2014 Lumpectomy; Lumpectomy (Left)
8/1/2014, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 4/7 nodes, mets, ER+/PR+, HER2-
8/4/2014 Arimidex (anastrozole)
4/30/2015 Faslodex (fulvestrant)
8/16/2015 Ibrance (palbociclib)
11/20/2018, IDC, 1cm, Stage IV, metastasized to liver, ER+/PR-, HER2-
12/4/2018 Aromasin (exemestane)
1/1/2019 Afinitor (everolimus)
7/15/2019 Faslodex (fulvestrant)
7/16/2019 Piqray (alpelisib)
3/14/2021 Xeloda (capecitabine)