Jul 30, 2019 02:49PM 3-16-2011 wrote:

I am taking Verzinio which is notorious for GI SE. It does get better after the first 30 days. Also, I can almost eliminate all problems if I eat several small meals and avoid dairy. I do struggle with fatigue and would love to hear if others have found a good answer for this SE.

Thanks to all

Mary

Jul 31, 2019 01:24PM vlnrph wrote:

As described in the managing diarrhea post, I use a special weapon against this well known side effect of Verzenio. For me, the suggested OTC Imodium=generic name loperamide worked too well: everything stopped up and then there were terrible abdominal cramps, etc as it wore off. I did go for a dose reduction also.

By taking two FiberCon tablets or the much less expensive calcium polycarbophil daily, I get absorption of excess fluid which remains in the gastrointestinal tract so the stool bulks up without creating constipation. Curiously, this productis stocked with laxative agents. Look near the Metamucil canisters.

As far as fatigue, I pace myself by not over scheduling, allowing time to lie down as needed and doing a water exercise 2-3 class times each week. Like Jen above, I feel better when hydrated. We have had to hire out jobs around the house which I would have attempted previously and have the funds for that by taking advantage of the Social Security disability allowance for those with metastatic disease. I am collecting the amount I would be getting if I were at full retirement age!

Jul 31, 2019 07:20PM movingsoccermom wrote:

Since I started Faslodex and Ibrance at the same time, not sure which drug to blame for light headedness, but that has been my biggest challenge. Another member carries potato chips for the salt when needed--I chose salted peanuts and always have a water bottle in tow. I take Ibrance with dinner and have had no other issues besides the fatigue, and neither exercise nor water have helped. :(

Aug 5, 2019 09:25PM kanga_roo wrote:

Tips:Kisqali/Letrozol combo

Everyone is put on highest dose initially. If sideFX are really bad you can always go on a lower dose.

Always take after food.

If you have sideFX, take medication in the evening and sleep the worst of it off over night

If you suffer nausea, take nausea prevention half hour before you take your medication

Drink plenty of water to ensure you stay hydrated.

Exercise 15 minutes per day, even if it is a gentle walk to the end of your street and back, or a couple of laps of the mall.

Femara reduces hormone production and results in an increase of ageing sideFX. Treat yourself kindly - moisturise your skin, avoid harsh sunlight, take some Panadol for the aches and pain etc, etc

Try not to obsess over your treatment. Let it do it's job whilst you get on with your life.

Get the OK from your Oncologist before doing the following:

Femara may increase your sugar levels and you may put on weight. Look to improve your diet where possible. I have had great results on Keto.

Supplement your Vit D to aid in utilising calcium to strengthen bones. Get 15 minutes of sunshine per day where possible.

Magnesium citrate helps with cramps and aches, and can also alleviate constipation.

Sleeping pills can help if you are having problems settling down at night.

Don't ignore depression or anxiety - plenty of medication and ideas to alleviate these symptoms.

Jackie

Aug 6, 2019 08:53AM moderators wrote:

Thanks again, and the more feedback, the better!