Posted on:
Jul 30, 2019 12:59PM
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Jul 31, 2019 11:03AM
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Philadelphia
Joined:
Sep 2007
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25,341
Latest activity:
Aug 18, 2022
Posted on:
Jul 30, 2019 12:59PM
- edited
Jul 31, 2019 11:03AM
by
moderators
moderators
wrote:
Tips for Taking a CDK 4/6 inhibitor such as Abemaciclib (Verzenio), Palbociclib (Ibrance), Ribociclib (Kisqali)—Before and During Treatment:
Please share your advice for preparing to start treatment, dealing with side effects, testing during treatment, etc.
Thank you!!
p.s. this is to help us in a new content piece we are writing.
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lafsunshine
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Jul 2020
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Aug 15, 2022
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Jul 2, 2020 02:47PM
lafsunshine
wrote:
Hi Sadiesservant,
Thanks for sharing your experience-it gives me hope! My original breast cancer was in Jan 2018- IDC,Stage 1, grade 2, 1.5cm, 0/2 nodes, ER+ HER 2-, ocno type score 18. Treatment was lumpectomy, radiation and Arimidex. Now it has metastasized to the liver-go figure. Still trying to wrap my head around my new Dx. It’s great to hear you have positive results with faslodex!
7/2021- Keytruda + Abraxane
Dx
1/2018, IDC, Left, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+, HER2-
Dx
7/2020, IDC, Stage IV, metastasized to bone/liver/other, ER+/PR-, HER2-
Radiation Therapy
Whole breast: Breast
Targeted Therapy
Ibrance (palbociclib)
Hormonal Therapy
Arimidex (anastrozole)
Surgery
Lumpectomy; Lumpectomy (Left); Lymph node removal
Hormonal Therapy
Faslodex (fulvestrant)
A
Aussieguy
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May 2021
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5
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Jun 8, 2021
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May 31, 2021 10:37AM
Aussieguy
wrote:
Hi, this is my first post to this thread. I'm a male with Stage 4 breast cancer, with mets in the bone (spine, ribs, hip) and lungs - the mets were diagnosed in January 2019. I was treated with radiation on the spinal tumours on diagnosis. I've been on Letrozole and Kisqali for a little over two years now. I've found the combination easy to take, and have had few side effects, none serious. A bit of fatigue, some stiffness. The most demanding thing has been having to take Zoladex to accompany these two - in men, it has the effect of chemical castration, which is pretty depressing (men produce oestrogen via testosterone, so the idea is to reduce testosterone production - the idea is to simulate the situation of a postmenopausal woman). I also take a bone-strengthening injection as the treatment makes me susceptible to osteoporosis. Fortunately in Australia the cost of Kisqali is mostly borne by the government, so I pay a small amount each month for my prescription. In the last 5 months my disease has been progressing, and I have had to have radiotherapy for a growing lung tumour which threatened to cause a partial lung collapse. But the progression appears to be slow, and I'm still feeling really well. I have had a very positive experience with the Letrozole/Kisqali combination, and have managed to avoid chemo in all this time. I'd love to hear from other men if there are any on this thread - we are a rare breed in the breast cancer world.
S
spookiesmom
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May 31, 2021 11:25AM
spookiesmom
wrote:
search for TravelTex, he is in Au and is stage 4.
B
buttonsmachine
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Dec 2017
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Aug 9, 2021
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May 31, 2021 03:51PM
buttonsmachine
wrote:
Hi Aussieguy, I'm sorry you've found yourself among us, but welcome. As Spookie mentioned TravelText is one of our men who has been around here for a long time, and he is a wealth of information. Best wishes to you!
Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC.
Dx
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Surgery
10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel
Chemotherapy
11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Radiation Therapy
2/1/2017 Whole breast
Hormonal Therapy
4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
Surgery
11/1/2017 Lymph node removal; Mastectomy: Right
Chemotherapy
12/1/2017 AC
Surgery
4/1/2018 Lymph node removal; Mastectomy: Right
Radiation Therapy
5/1/2018 External: Lymph nodes, Chest wall
Chemotherapy
7/1/2018 Xeloda (capecitabine)
Hormonal Therapy
7/30/2018 Zoladex (goserelin)
Hormonal Therapy
2/1/2019 Aromasin (exemestane)
Hormonal Therapy
9/30/2019 Faslodex (fulvestrant)
Dx
8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2-
Targeted Therapy
8/30/2020 Ibrance (palbociclib)
Dx
1/2021, IDC, Stage IV, metastasized to liver/lungs
Chemotherapy
1/15/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
N
nola70115
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May 2014
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85
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Aug 8, 2022
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Jun 5, 2021 01:26PM
nola70115
wrote:
Aussieguy, welcome, and I’m sorry you’re here. It does seem especially unfair when breast cancer strikes men. I mean, what the hell? Is nobody safe from this thing
Age 40 at first diagnosis, 47 now. I've got an autistic teenager and a toddler to live for. See my 2014 blog at snarkforthecure.wordpress.com.
Dx
4/15/2014, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Surgery
5/15/2014 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left); Reconstruction (Right)
Chemotherapy
6/20/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
9/1/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
2/8/2021, IDC, Left, <1cm, Grade 2, ER+/PR+, HER2-
Dx
2/22/2021, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2-