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Topic: Verzenio Users-When Did You Scan?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

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Posted on: Oct 31, 2019 12:24PM

DivineMrsM wrote:

Brief history: mets to bones; chemo, lumpectomy, rads, then Arimidex from 2011 to 2019.

March 2019, progression to vertebrae. Started Aromasin and Ibrance. Scan at 4 months showed progression to another vertebrae.

So now I’ve been on Verzenio and Aromasin for almost two months. At what point should I scan? I hate to scan too soon because I’d like to give the Verzenio the chance to prove itself. Would you dare go six months? I have an onc appt next week for sort of no apparent reason other than to see how I’m doing on Verzenio (nausea, fatigue, controllable diarrhea). She’ll discuss scans then so I’m wondering what others experience has been.

found lump 12/22/10~er+/pr+/her2- stage iv bone mets------------- Chemo~lumpectomy~radiation~arimidex------------- March2019/Ibrance-Aromasin---------- Sept2019/Verzenio-Aromasin
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Oct 31, 2019 03:05PM SchnauzerMom wrote:

Began Verzenio in July,2018, after a scan had shown progression. I had a scan this past January which showed some improvement. Tumor markers (which have been reliable for me) went up last month. If markers stay up or rise in early November, then I'll have a scan. Hate them!! Don't have many options left after Verzenio,so I want to stay on it, poopy pants and all.

mets to liver, bones Dx 11/21/1987, ILC, <1cm, Stage I, ER+/PR+, HER2- Dx 12/11/1989, ILC, Stage IIIA, mets, ER+/PR+, HER2- Chemotherapy 1/10/1990 CMF Dx 7/31/2012, ILC, Stage IV, mets, ER+/PR+ Hormonal Therapy 7/31/2012 Faslodex (fulvestrant) Hormonal Therapy 7/31/2012 Femara (letrozole) Targeted Therapy 1/15/2013 Avastin (bevacizumab) Chemotherapy 1/15/2013 Taxol (paclitaxel) Chemotherapy 11/10/2013 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 4/2/2014 Navelbine (vinorelbine) Hormonal Therapy 7/22/2014 Aromasin (exemestane) Targeted Therapy 7/22/2014 Afinitor (everolimus) Chemotherapy 11/12/2014 Doxil (doxorubicin) Chemotherapy 7/12/2016 Xeloda (capecitabine) Chemotherapy 12/2/2016 Halaven (eribulin) Hormonal Therapy 6/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 7/18/2018 Verzenio
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Oct 31, 2019 05:13PM DivineMrsM wrote:

Thanks, SM. So you did go about six months before scanning. I will ask the onc if I can do that. Don’t want to do it after three as that’d be December, not a time to deal with any of it if I can help it.


found lump 12/22/10~er+/pr+/her2- stage iv bone mets------------- Chemo~lumpectomy~radiation~arimidex------------- March2019/Ibrance-Aromasin---------- Sept2019/Verzenio-Aromasin
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Oct 31, 2019 09:51PM SchnauzerMom wrote:

Divine Mrs.M, that's what I would want to do, too. I think you can make a good case for giving Verzenio time to work before having a scan.

mets to liver, bones Dx 11/21/1987, ILC, <1cm, Stage I, ER+/PR+, HER2- Dx 12/11/1989, ILC, Stage IIIA, mets, ER+/PR+, HER2- Chemotherapy 1/10/1990 CMF Dx 7/31/2012, ILC, Stage IV, mets, ER+/PR+ Hormonal Therapy 7/31/2012 Faslodex (fulvestrant) Hormonal Therapy 7/31/2012 Femara (letrozole) Targeted Therapy 1/15/2013 Avastin (bevacizumab) Chemotherapy 1/15/2013 Taxol (paclitaxel) Chemotherapy 11/10/2013 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 4/2/2014 Navelbine (vinorelbine) Hormonal Therapy 7/22/2014 Aromasin (exemestane) Targeted Therapy 7/22/2014 Afinitor (everolimus) Chemotherapy 11/12/2014 Doxil (doxorubicin) Chemotherapy 7/12/2016 Xeloda (capecitabine) Chemotherapy 12/2/2016 Halaven (eribulin) Hormonal Therapy 6/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 7/18/2018 Verzenio
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Oct 31, 2019 11:18PM AmyQ wrote:

Divine Mrs M...

I had a scan after 9 months on Verzenio, by my choice. My oncologist wanted me to have a scan at 6 months, which was the beginning of summer, but I prefer to bury my head in the sand, enjoy my summer and all the trips we had scheduled so I delayed the scan until late September, after my last trip, son's wedding etc. Unfortunately Verzenio did zip. All it did was allow more progression in my bones and a small spot in my liver. I wasn't really surprised as my TM's were going up as was my night sweats and pain.

I do hope it's much better for you.

A

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Nov 7, 2019 06:12PM - edited Nov 7, 2019 06:14PM by DivineMrsM

Thanks, everyone, for sharing your experience.

Follow up: saw the onc today and she is ok for me to go six months from beginning Verzenio to getting a scan since currently I'm dealing with bone only mets. I was happy with that and now dont have to go back till Feb/March of next year.


found lump 12/22/10~er+/pr+/her2- stage iv bone mets------------- Chemo~lumpectomy~radiation~arimidex------------- March2019/Ibrance-Aromasin---------- Sept2019/Verzenio-Aromasin
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Nov 8, 2019 03:41AM - edited Nov 8, 2019 04:47AM by Daniel86

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Nov 8, 2019 04:47AM - edited Nov 8, 2019 04:47AM by Daniel86

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Nov 8, 2019 10:18AM - edited Nov 8, 2019 10:18AM by Daniel86

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Nov 8, 2019 10:19AM - edited Nov 8, 2019 10:59AM by Daniel86

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Nov 8, 2019 12:12PM Moderators wrote:

Hey folks -- popping in here quick to post a test to figure out what's going on with Daniel's post deletions. Please disregard this post!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Nov 8, 2019 01:10PM DivineMrsM wrote:

Mods, Daniel ended up PMing me, so I think thats why the deleted posts,


found lump 12/22/10~er+/pr+/her2- stage iv bone mets------------- Chemo~lumpectomy~radiation~arimidex------------- March2019/Ibrance-Aromasin---------- Sept2019/Verzenio-Aromasin

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