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Topic: Mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Apr 12, 2020 03:24PM - edited Apr 12, 2020 11:49PM by ipenelope

ipenelope wrote:

Hello ladies. I sadly find myself joining this group within 18 months of initial bc diagnosis. Im 44 years old.

I had a wedge resection and lobectomy about a month ago and my oncologist is talking about oral chemo and immunotherapy together to treat this. My borders at surgery were clear thankfully. Gotta say with the Covid stuff going on and my recovery symptoms I'm going crazy lol.

Anyway, have any of you ladies done both chemo and immunotherapy after surgical removal and could you please share your experience?? I meet with my oncologist tomorrow for finalizing plan as she was waiting for tumor marker testing.

Any help would be greatly appreciated!!

I hope everyone is staying safe during this trying time!!

~Katie💗

Katie💗 Diagnosed stage IIB at 42, diagnosed stage 4 mets to left lung age 44 Dx 9/12/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (IHC) Surgery 11/15/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/20/2018 AC + T (Taxol) Surgery 6/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy 6/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/21/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 2/24/2020, IDC, Left, 1cm, Stage IV, metastasized to lungs, ER-/PR-, HER2- Surgery 3/18/2020 Chemotherapy 4/20/2020 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/12/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 8/24/2021 Xeloda (capecitabine)

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Posts 91 - 109 (109 total)

Jan 8, 2021 08:45PM annadou wrote:

Hi everyone

Hope you are all doing well

This tumor is situated in the fight upper lobe area but not in lung in the mediastinum. It’s next to the big vessels so inoperable and not a good position for cyberknife so I’m told but may be considered further down the line.It’s er & or + her-

Rx Ibrance and Falsodex Any input on treatment welcome

Best wishes to all

Anna



Anna Dx 3/13/2009, IDC, Left, <1cm, Stage IIB, Grade 2, 4/21 nodes, ER+/PR+, HER2- (SPOT) Dx 12/7/2020, IDC, Right, Stage IV, metastasized to other, ER+/PR+, HER2-

Feb 2, 2021 04:42AM Bright55 wrote:

hi all

New year greetings everyone for continued good health and stable status

I have mets to lungs for five years with only slight changes to pleural nodules which ment a change in hormonal therapy

Finally after five years of not being approved, the Australian gov drug approval for second line targeted therapy has ment that I could start the targeted Kisquali/ribociclib(no cost )with Faslodex ( payAU $2100 for three cycles..then free)

now after four months recent Ct shows stable and no evidence of progression to other sites

All the best

Bright in hope

Dx 2011, DCIS, Right, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 2016, Right, 2cm, Stage IV, metastasized to lungs, ER+/PR+, HER2- Hormonal Therapy 7/10/2016 Femara (letrozole) Targeted Therapy 11/3/2019 Afinitor (everolimus) Hormonal Therapy 10/9/2020 Faslodex (fulvestrant) Targeted Therapy 10/9/2020 Kisqali Hormonal Therapy Liquid tamoxifen (Soltamox) Surgery Mastectomy: Right Hormonal Therapy Aromasin (exemestane)

Feb 5, 2021 07:35AM - edited Feb 5, 2021 07:36AM by DebAL

morning. I apologize for posting here but I'm hoping for few quick responses. A friend and coworker just received her DX IDC, node neg, but positive lung nodules. She reached out to me for support. Why am I frozen in my responses to her? I guess because this is unchartered territory for me and I'm afraid of saying the wrong thing, offering wrong advice but I want to be supportive. Please let me know if there are any specifics she should ask in her appt today. Of course her husband is going with her but with covid her sister nurse cannot go with her which would definitely help. She is meeting with oncologist today and second opinion at Ohio state next week. Appreciate any words of hope I can send her way. When she is ready I will suggest she join here. Thank you all.



Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery

Feb 5, 2021 11:01AM moth wrote:

DebAl

Are the lung nodules confirmed mets? If not she'll need a biopsy

Are.the lung mets localised to an area or all over the lung field?

Can she get referral to RO for sabr or traditional rads. How many nodules are there and can she be potentially treated as oligometastatic


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone

Feb 5, 2021 01:12PM DebAL wrote:

hi moth, thanks for replying. Confirmed mets. Not sure if they are localized. There are 2. I don't want to hijack this thread so may PM you once or twice should she ask me something I can't answer. Shes seeing MO now. Hope you are doing well

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery

Feb 6, 2021 09:11PM KarPC wrote:

Bright - Wonderful news and amazing how you've kept your Lung nodules stable for so long! ~Kar

​May 2021 lung nodule flipped from ER+ to triple negative. Liver tumor may still be ER+ Dx 4/2016, IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/14 nodes, ER+/PR-, HER2- Surgery 5/17/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 6/10/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 10/1/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/1/2018, IDC, <1cm, Stage IV, metastasized to liver/lungs, Grade 3, ER+/PR-, HER2- Radiation Therapy 2/2/2018 External: Liver Targeted Therapy 2/16/2018 Ibrance (palbociclib) Hormonal Therapy 2/17/2018 Faslodex (fulvestrant), Femara (letrozole), Zoladex (goserelin) Chemotherapy 2/19/2020 Xeloda (capecitabine) Targeted Therapy 10/14/2020 Afinitor (everolimus) Targeted Therapy 6/1/2021 Piqray (alpelisib)

Feb 8, 2021 11:17AM tangandchris wrote:

I have a question about lung nodules.

I have been told that I have numerous nodules in my lower left lobe mostly. My treatment consists of Kisqali and Faslodex.

Can these nodules cause back rib cage pain? Wheezing? If symptoms become an issue is there more targeted treatment?

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2-

Feb 8, 2021 01:31PM GR4C1E wrote:

tangandchris,

I'm new here (again) and I just started treatment for lung mets. My nodules are lower right lung. I can confirm that my symptoms included lower back pain, wheezing and rib pain. I also had/have a pleural effusion on the right caused by the nodules so I also had radiating shoulder pain, but since I started Abraxane the back pain and shoulder pain subsided. I'm only 3 treatments into chemo right now and this is my off week. (3 on, 1 off) Still wheezing a bit, some days more and some days less and I still have achy ribs on the right side.

I don't know about targeted treatment, but I get relief from aerobic exercise, like running or dancing. Anything to increase or deepen respiration for me helps a lot. A thoracic surgeon, after a thoracentesis, said: "deep breaths help healing" so I have taken that to heart. My health app on my android phone has timed breathing/relaxation exercises and I use them daily.

Today is a rough day on the breathing spectrum for me, but it's better than it was three weeks ago and worse than it was last week. I have rales (crackles) on the right side that are annoying and last week I had some shortness of breath occasionally but no rales which is a huge improvement from where I started. It feels like three steps forward and one step back, so I'll take it!

I wish you good luck,

GR4C1E


Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/25/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/23/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/16/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/7/2021 Taxotere (docetaxel)

Feb 8, 2021 01:32PM moth wrote:

tangandchris - so my no med specialist answer to both questions is no. I don't think it should be causing wheezing. Wheezing is usually an upper respiratory tract symptom, and not associated with anything happening low down... low down occlusions tend to cause shortness of breath. I also don't see why you should have rib pain unless you're coughing. I coughed a lot when my met was acting up and during rads treatment and I had an incredible sore chest but we think it was literally muscle ache. I would report both of these symptoms to your MO.

I had radiation to my met in Dec (still too early to tell if it worked). So yes, in some cases localized treatments such as traditional radiation or SABR might be used for a lung lesion. You would need a consult with radiation oncology to see if it's an option.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone

Feb 8, 2021 04:22PM tangandchris wrote:

Thanks for both responses. I have an appointment in early March so I will discuss this too. I'm not really coughing, but the wheezing is enough that DH can hear me.

I haven't been told much about the nodules. They are there, but I have other metastatic areas too. I assume unless I'm having direct symptoms of lung issues we leave it alone.

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2-

Feb 8, 2021 10:47PM ipenelope wrote:

tangandchris,

My left sided, upper and lower lobe, tumors did cause me to have back pain. Wheezing is caused by reduction of the bronchioles and other airways throughout the lungs. If your lesions at pressing against your bronchioles or other airways within the lungs or will cause Wheezing. Sorry I know there are yeshiva terms for the airways within the lungs but chemo brain isn't letting me think of them.

Best of luck!!🥊🥊

Katie💗


Katie💗 Diagnosed stage IIB at 42, diagnosed stage 4 mets to left lung age 44 Dx 9/12/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (IHC) Surgery 11/15/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/20/2018 AC + T (Taxol) Surgery 6/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy 6/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/21/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 2/24/2020, IDC, Left, 1cm, Stage IV, metastasized to lungs, ER-/PR-, HER2- Surgery 3/18/2020 Chemotherapy 4/20/2020 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/12/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 8/24/2021 Xeloda (capecitabine)

Feb 11, 2021 02:39PM - edited Feb 11, 2021 02:43PM by Moderators

Hi Everyone Medicating,

We have two active Lung Mets threads. Unfortunately we don't have the technical capability to merge them. Sad

We'd like to suggest that we either lock this one, and refer everyone over to the other thread (mets to lung), as it already has 70 pages. If we do this, we Mods could copy and paste the last 10 posts (as an example) as a post over to the other one, or you could copy and paste your last message over to the other thread.

Or, we could keep both open.

We'll go with what you all want who are active here.

Thanks!

To send a Private Message to the Mods: community.breastcancer.org/mem...

Feb 11, 2021 03:37PM moth wrote:

I'd say lock this one and keep everyone on the longer one 😊

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone

Feb 11, 2021 05:36PM Moderators wrote:

Thanks, Moth! Anyone else?

To send a Private Message to the Mods: community.breastcancer.org/mem...

Feb 11, 2021 06:35PM Bright55 wrote:

yes to keeping original

and move last of theses posts as suggested

Bright

Dx 2011, DCIS, Right, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 2016, Right, 2cm, Stage IV, metastasized to lungs, ER+/PR+, HER2- Hormonal Therapy 7/10/2016 Femara (letrozole) Targeted Therapy 11/3/2019 Afinitor (everolimus) Hormonal Therapy 10/9/2020 Faslodex (fulvestrant) Targeted Therapy 10/9/2020 Kisqali Hormonal Therapy Liquid tamoxifen (Soltamox) Surgery Mastectomy: Right Hormonal Therapy Aromasin (exemestane)

Feb 11, 2021 06:50PM Sadiesservant wrote:

I also vote for keeping the original.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)

Feb 11, 2021 11:40PM tangandchris wrote:

I vote yes too

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2-

Feb 12, 2021 12:53AM lilyfrombeppu wrote:

Yes, let's keep the original.

Dx 5/2/2019, DCIS/IDC, Right, 3cm, Stage IV, metastasized to lungs, ER+/PR+, HER2+ Targeted Therapy 7/3/2019 Verzenio Hormonal Therapy Femara (letrozole)

Feb 13, 2021 02:15PM Moderators wrote:

Hi all -- in the purpose of keeping this topic to the original thread, please go there to post: https://community.breastcancer.org/forum/8/topics/...

This thread will now be locked.

Thank you for your input!

To send a Private Message to the Mods: community.breastcancer.org/mem...

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