Breast Cancer Topic: DES Daughters with advanced breast cancer

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Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Dec 4, 2020 08:24AM

Joined: Mar 2018 Posts: 111 Latest activity: Dec 28, 2020

arolsson wrote:

Hi everyone, wondering if there are others out there who were exposed to diethylstilbestrol in utero. I follow the research on DES as a non-interited endocrine disruptor including the reasons why DES can increase the risk for breast cancer.

Dx 8/2017, IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, 5/5 nodes, ER-/PR-, HER2+ Surgery Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy Halaven (eribulin)

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Posts 1 - 4 (4 total)

jhl Joined: Dec 2019 Posts: 63 Latest activity: Jan 23, 2021

Dec 4, 2020 01:02PM jhl wrote:

I am a DES daughter.

movingsocce… Joined: Apr 2015 Posts: 210 Latest activity: Jan 23, 2021

Dec 30, 2020 07:54PM movingsoccermom wrote:

Me also.

      
          Dx
          3/3/2015, IDC, Right, 2cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
        
          Surgery
          4/1/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel
        
          Radiation Therapy
          5/27/2015 Whole-breast: Breast, Lymph nodes
        
          Dx
          5/7/2019, IDC, Right, 2cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2- (IHC)
        
          Targeted Therapy
          Ibrance (palbociclib)
        
          Hormonal Therapy
          Faslodex (fulvestrant)

santabarbar… Joined: Aug 2018 Posts: 2,919 Latest activity: Jan 23, 2021

Dec 31, 2020 05:20AM santabarbarian wrote:

me too.

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/13/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes

santabarbar… Joined: Aug 2018 Posts: 2,919 Latest activity: Jan 23, 2021

Dec 31, 2020 04:19PM santabarbarian wrote:

Not to be a downer but there *are* second generation effects of DES. There are websites that revolve around DES that go into the effects on grandchildren.

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Topic: DES Daughters with advanced breast cancer