Topic: Zoom Meet-up for those with an MBC diagnosis

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

moderators wrote:

TWO Zoom Virtual Meet-ups for those with a metastatic breast cancer diagnosis.


Every Monday, 2-3 pm, ET

Register in advance for this meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Monday meetup


Every Wednesday, 4-5 pm, ET

Register in advance for this meeting

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Wednesday meetup

Hope to see you at one of the meetups.

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Jun 7, 2021 11:03AM kbl wrote:

I will be there. I hope we can get more to participate today!!

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jun 7, 2021 01:27PM moderators wrote:

We too Medicating. Looking forward to seeing you soon.


To send a PM to the Mods: community.breastcancer.org/my/...
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Jun 8, 2021 05:37PM thebar1957 wrote:

Thanks for the meeting today. I enjoyed meeting with everyone at the Zoom meeting.

Surgery 8/16/2013 Mastectomy: Left; Prophylactic mastectomy: Right
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Jul 9, 2021 08:21AM woodlands wrote:

I will be there.

Dx 1/12/2020, LCIS/DCIS, Left, 3cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2- Chemotherapy 2/11/2020 Hormonal Therapy 2/28/2020 Femara (letrozole) Targeted Therapy 9/3/2020 Ibrance (palbociclib) Targeted Therapy 9/9/2020 Verzenio
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Aug 15, 2021 10:22PM a-friend wrote:

Hey all,
I have been out of pocket for a bit and need to get back on track. I was tested for COVID and the Flu, and luckily COVID was negative, but the Flu tested positive. Everything is on the up swing!! Does anyone know of meetings online or in person that are held in Katy, Houston, etc.? Just curious

Linda Amendt Dx 6/2021, Left, Stage IV, metastasized to brain/lungs/other, Grade 3, ER- Dx 6/17/2021, Left, 1cm, Stage IV, metastasized to brain/lungs/other, Grade 1, PR- Radiation Therapy 7/13/2021
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Aug 15, 2021 10:42PM exbrnxgrl wrote:

a-friend,

BCO has no formal in person groups but the Zoom call can be accessed by anyone, anywhere. It is not specific to a geographical area. Some folks have met up informally and I know we have quite a few members in the Houston area. Register via the link in the op and you’ll receive an email with the Zoom call info. I have yet to make the Zoom call but I always have good intentions 😊.

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Aug 15, 2021 11:39PM illimae wrote:

a friend, I met you on the zoom call and via FaceTime. As far as I know, there are know location specific meet ups. I used to go to an MD Anderson MBC group but it hasn’t gone back to in-person. I have a few friends I meet for lunch from a young with stage IV Facebook group but for BCO, the zoom is where it’s at. I hope to see you all there tomorrow.

Also, I hope things are well and you were able to get the radiation stuff all worked out.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 16, 2021 09:54AM a-friend wrote:

Illimae, yes I remember touching base with you and appreciate your help. The radiation on the brain and the eye is complete so now just waiting for the next step. My oncologist said it will be around the first of October before they test and see if the tumors have shrunk or no longer there. Just seems like a long time to wait, if maybe other gremlins have popped there heads up. I have a new appointment with MDA on the 26th of this month. Good to hear from yo

Linda Amendt Dx 6/2021, Left, Stage IV, metastasized to brain/lungs/other, Grade 3, ER- Dx 6/17/2021, Left, 1cm, Stage IV, metastasized to brain/lungs/other, Grade 1, PR- Radiation Therapy 7/13/2021
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Aug 16, 2021 01:49PM illimae wrote:

a friend, radiation works best over time. I usually have a follow up brain MRI a month or so after radiation but best results are usually 3-6 months out.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 1, 2021 05:11PM aprilgirl1 wrote:

Hi - I enjoyed joining the Zoom this week! I will be out of town on vacation on 9/13, have petscan/ct scan on 9/16 and fulvestrant injection the next Monday at 10:45am so most likely can't join on 9/20 :( If I get my injection early I can try to join on my mobile. Hope everyone enjoys the upcoming holiday weekend and I hope to zoom with you soon!

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2-

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