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Topic: Zoom Meet-up for those with an MBC diagnosis

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

moderators wrote:

TWO Zoom Virtual Meet-ups for those with a metastatic breast cancer diagnosis.


Every Monday, 2-3 pm, ET

Register in advance for this meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Monday meetup


Every Wednesday, 4-5 pm, ET

Register in advance for this meeting

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Wednesday meetup

Hope to see you at one of the meetups.

To send a PM to the Mods: community.breastcancer.org/my/...
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Mar 7, 2022 08:23PM moderators wrote:

fredntan, we're so sorry to hear this! We hope he is safe and that you hear from him soon, so you at least know he is ok (or that you hear from his docs who can confirm!). We hope your daughter is feeling well, as well!

To send a PM to the Mods: community.breastcancer.org/my/...
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Mar 7, 2022 08:59PM fredntan wrote:

thank you.

MBC bone mets, afinitor,aromasin,xgeva Dx 8/3/2011, IDC, 2cm, Stage IIIA, Grade 2, 13/17 nodes, ER+/PR+, HER2- Surgery 9/9/2011 Lymph node removal; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Right) Radiation Therapy 3/29/2012 Breast, Lymph nodes Surgery 10/8/2012 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Surgery 4/3/2013 Reconstruction (Left): Nipple reconstruction; Reconstruction (Right): Nipple reconstruction Dx 10/2013, Stage IV, mets, HER2- Chemotherapy 11/20/2013 Abraxane (albumin-bound or nab-paclitaxel), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Hormonal Therapy
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Mar 8, 2022 06:39AM kbl wrote:

fredntan, I’m so sorry. I hope you hear from him soon and that your daughter gets over Covid quickly

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Mar 8, 2022 12:31PM fredntan wrote:

my husband came home last night about 10. I assumed he was drunk...so I didn't try to talk to him. It usually doesn't help. He came downstairs about a hr ago....about 1030 am here. Got his coffee..

Went back upstairs. He says the pain in gone? Thinks he passed the stone? I reminded him about the urology appt I had made for him at 3:30 for today. He said he maybe should go???

I know he is upset I have told my sister and the one daughter how he is acting

I have frankly been thinking of divorce for many years...I think it is time now. We live together. But not really?

MBC bone mets, afinitor,aromasin,xgeva Dx 8/3/2011, IDC, 2cm, Stage IIIA, Grade 2, 13/17 nodes, ER+/PR+, HER2- Surgery 9/9/2011 Lymph node removal; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Right) Radiation Therapy 3/29/2012 Breast, Lymph nodes Surgery 10/8/2012 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Surgery 4/3/2013 Reconstruction (Left): Nipple reconstruction; Reconstruction (Right): Nipple reconstruction Dx 10/2013, Stage IV, mets, HER2- Chemotherapy 11/20/2013 Abraxane (albumin-bound or nab-paclitaxel), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Hormonal Therapy
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Mar 8, 2022 01:48PM exbrnxgrl wrote:

Fredntan,

My heart hurts for you. I am not big on giving advice since we are all in different circumstances but I will tell you my personal experience. I was married for 23 years to a man who was a narcissist and an alcoholic but was quite functional so outwardly everything looked great. However 23 years of this plus the accompanying lying and verbal abuse finally took it’s toll. Shortly after my 50th birthday I decided I couldn’t live the rest of my lifelike this and divorced him. My only regret? I wish I had done it sooner. This was before my bc dx but I know he would have made it more difficult. He also would have made it all about himself. Again, no advice just a personal anecdote to illustrate that it is possible to thrive even after ending a long term marriage. Take good care


Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Mar 8, 2022 06:37PM fredntan wrote:

thank you

I sent you a pm exbrnxgrl.

When this current crisis passes.....I need to move on. I have stayed with my husband mainly because of the health insurance. I thought I needed someone with me? But he won't even take out trash. He just isn't there for me?

I went to lunch today with a friend. Made me feel much better. I have reached out to try and find a therapist for myself again.


I know I'm not the only one with a verbally abusive alcoholic spouse? I am keeping the 17 cursing texts he sent me.


MBC bone mets, afinitor,aromasin,xgeva Dx 8/3/2011, IDC, 2cm, Stage IIIA, Grade 2, 13/17 nodes, ER+/PR+, HER2- Surgery 9/9/2011 Lymph node removal; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Right) Radiation Therapy 3/29/2012 Breast, Lymph nodes Surgery 10/8/2012 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Surgery 4/3/2013 Reconstruction (Left): Nipple reconstruction; Reconstruction (Right): Nipple reconstruction Dx 10/2013, Stage IV, mets, HER2- Chemotherapy 11/20/2013 Abraxane (albumin-bound or nab-paclitaxel), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Hormonal Therapy
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Mar 9, 2022 10:00AM exbrnxgrl wrote:

fredntan,

I didn’t get a pm. This may be due to the site problems. Will send you a test pm

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Mar 14, 2022 03:45PM illimae wrote:

As mentioned in zoom today, here’s my Instagram info below. I have two accounts, the top is a place for all my mountain life/cooking photos and the bottom is my real life posts and updates on cancer, travel, hobbies. They’re public, feel free to check out any, all or none 🙂 (I’m not very active on Facebook, it’s not a happy place in general)


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 14, 2022 03:59PM kbl wrote:

Thank you, Mae

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Mar 28, 2022 01:29PM illimae wrote:

I’ll be missing today’s zoom since were on the road but I’ll see you all next Monday. It’s a nice drive though and the Texas Bluebonnets are beautiful.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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