Topic: Zoom Meet-up for those with an MBC diagnosis

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

moderators wrote:

TWO Zoom Virtual Meet-ups for those with a metastatic breast cancer diagnosis.


Every Monday, 2-3 pm, ET

Register in advance for this meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Monday meetup


Every Wednesday, 4-5 pm, ET

Register in advance for this meeting

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Wednesday meetup

Hope to see you at one of the meetups.

To send a PM to the Mods: community.breastcancer.org/my/...
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May 13, 2022 07:22PM kbl wrote:

I mostly do Mondays but pop in Wednesday when I can’t make Monday. There are a few I’ve seen also from the Monday group on Wednesday

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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May 15, 2022 06:31PM nkb wrote:

I plan to try to join some Mondays- I seem to forget- I go to the lab on Mondays also.

heading out on trip tomorrow - so will be in a few weeks.


Dx 12/2011, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 34/40 nodes, ER+/PR+, HER2- Surgery 2/4/2012 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 2/28/2012 AC + T (Taxol) Radiation Therapy 9/11/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, ILC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 6/1/2017 Faslodex (fulvestrant) Targeted Therapy 6/1/2017 Ibrance (palbociclib) Targeted Therapy 3/13/2019 Afinitor (everolimus) Hormonal Therapy 3/13/2019 Aromasin (exemestane) Chemotherapy 3/10/2020 Xeloda (capecitabine)
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May 15, 2022 10:36PM moderators wrote:

hope to see as many of you as possible tomorrow. Great, GREAT, group of people!

To send a PM to the Mods: community.breastcancer.org/my/...
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May 16, 2022 01:25AM sadiesservant wrote:

I’m going to try to join from my MacBook tomorrow. Let’s see if the technology gods smile on me. For some reason I have never been able to get Zoom to work for me on my iPad. Go figure…

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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May 16, 2022 01:59PM li77 wrote:

Do you mind if I join you all one of these weeks? I'm a newbie, diagnosed de novo in late January/early February of this year. I posted a bit and then had a vertebral fracture that took me out for a while. I'm back to some semblance of normal, so it would be nice to join and stop being a lurker ;)

Lauren


Lauren, De Novo Stage IV diagnosis at 44, January 2022. Mets to spine, ribs, iliac bones. Former attorney, current smart ass, mom to an awesome 10-year-old. F this shit. Hormonal Therapy 2/9/2022 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/14/2022 Other part Targeted Therapy 4/25/2022 Ibrance (palbociclib) Hormonal Therapy 4/25/2022 Femara (letrozole) Dx IDC, Left, 4cm, Stage IV, Grade 2, ER+/PR+, HER2-
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May 16, 2022 06:32PM illimae wrote:

Welcome Lauren, join us anytime!

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 16, 2022 08:03PM kbl wrote:

I second Illimae. Welcome.

For those on today’s meeting, here is a picture of my rider on my life insurance that we talked about. I know we haven’t gotten to the discussion, but if you want to ask questions, please post here or private message or email me at the address that you receive in today’s notes.

I hope this helps with my term life insurance rider for those with Stage IV.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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May 17, 2022 07:12AM kbl wrote:

I also forgot to let everyone know that I donated three boxes of unopened Ibrance to Sirum.org. It cost me $10 to ship

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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May 23, 2022 09:40AM - edited May 23, 2022 09:41AM by cowgal

Mods - Any progress being made to get a meeting time that will work better for those of us that still work or is that a dead end for now?

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May 25, 2022 04:59PM illimae wrote:

I assume we’re not zooming on the holiday, so here’s a quick update.

I’m out of the hospital and managing the pain triggered by the lumbar puncture. The results of that were thankfully clear “no malignant cells identified/benign”. 😁

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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