Topic: Zoom Meet-up for those with an MBC diagnosis

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

Posted on: Jun 7, 2021 10:00AM - edited Dec 3, 2021 04:23PM by moderators

moderators wrote:

TWO Zoom Virtual Meet-ups for those with a metastatic breast cancer diagnosis.


Every Monday, 2-3 pm, ET

Register in advance for this meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Monday meetup


Every Wednesday, 4-5 pm, ET

Register in advance for this meeting

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Wednesday meetup

Hope to see you at one of the meetups.

To send a PM to the Mods: community.breastcancer.org/my/...
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May 25, 2022 05:17PM cowgal wrote:

illimae - I did not know that you were in the hospital. Glad to hear you are out and that you got good news on your lumbar.

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May 25, 2022 08:00PM going2beatthis wrote:

Illimae, missed you on Monday. So glad to hear that the results of your lumbar puncture " were thankfully clear "no malignant cells identified/benign" ". That is fantastic. Hope the pain subsides quickly.

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Jun 8, 2022 01:31PM - edited Jun 8, 2022 01:32PM by kbl

A while back I had made a video for Lobular Breast Cancer Alliance's Here All Year program. They did a Moonshot vide to send to the Biden administration. I was so surprised to see myself in that video. Here is the link if you're interested.

https://m.youtube.com/watch?v=xNoXveXGC2g&noapp=1

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jun 13, 2022 10:11AM illimae wrote:

I’ll do my best to make it today but I’ve got a shed (future mountain top beach bar!) being delivered and installed today and their ETA is inconveniently around 1pm my time.

Sending a big, happy hello to all in case I don’t see you all later 😁


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 13, 2022 07:49PM kbl wrote:

Aw, we missed you.

I was a blubbering mess today, but I want you all to know you helped. I felt much better after and talked to my daughter. She totally gets I need breaks from my grandson. Now it’s up to me to make it happen. If I continue on, I will only have myself to blame. I’m just not physically capable of keeping up the pace of playing so much. My body is screaming at me. Thank you, again. I appreciate you all.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jun 13, 2022 09:22PM going2beatthis wrote:

Mae,

We missed you. Hope you are feeling a lot better and are able to eat again.

How is the new bar? Time to stock it and enjoy!

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Jul 1, 2022 03:26PM moderators wrote:

Hi, everyone!

We wanted to remind you all that we will not be meeting this upcoming Monday, July 4th due to the holiday. Wehope you all enjoy your weekends!

- The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Aug 8, 2022 09:00PM janenj wrote:

Hello all,

I hadn't realized till todays Zoom meet up that there was a forum specifically for this group - yay! Glad I found it. I'm to generally active in the forums but this now will be great to use to give updates, say hello etc. Thank you to those who were on todays meet up - you really helped me a lot!


Jane

Dx 6/4/2008, IDC, Left, 2cm, Stage IIB, metastasized to other, 3/17 nodes, ER+/PR+, HER2- Surgery 7/2/2008 Dx 5/27/2021, IDC, nodes, Stage IV, metastasized to other, ER+/PR+, HER2- Hormonal Therapy 6/2/2021 Faslodex (fulvestrant) Targeted Therapy 7/2/2021 Kisqali Chemotherapy 4/1/2022 Other Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast, Lymph nodes Chemotherapy AC + T (Taxol)
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Aug 9, 2022 07:07AM - edited Aug 9, 2022 07:07AM by kbl

Jane, it was so good to see you. I'm sorry you're struggling. I hope you feel better soon.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

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