Topic: Zoom Meet-up for those with an MBC diagnosis

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 7, 2021 07:00AM - edited Dec 3, 2021 01:23PM by moderators

Posted on: Jun 7, 2021 07:00AM - edited Dec 3, 2021 01:23PM by moderators

moderators wrote:

TWO Zoom Virtual Meet-ups for those with a metastatic breast cancer diagnosis.


Every Monday, 2-3 pm, ET

Register in advance for this meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Monday meetup


Every Wednesday, 4-5 pm, ET

Register in advance for this meeting

After registering, you will receive a confirmation email containing information about joining the meeting.

MBC Wednesday meetup

Hope to see you at one of the meetups.

To send a PM to the Mods: community.breastcancer.org/my/...
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May 25, 2022 02:17PM cowgal wrote:

illimae - I did not know that you were in the hospital. Glad to hear you are out and that you got good news on your lumbar.

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May 25, 2022 05:00PM going2beatthis wrote:

Illimae, missed you on Monday. So glad to hear that the results of your lumbar puncture " were thankfully clear "no malignant cells identified/benign" ". That is fantastic. Hope the pain subsides quickly.

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Jun 8, 2022 10:31AM - edited Jun 8, 2022 10:32AM by kbl

A while back I had made a video for Lobular Breast Cancer Alliance's Here All Year program. They did a Moonshot vide to send to the Biden administration. I was so surprised to see myself in that video. Here is the link if you're interested.

https://m.youtube.com/watch?v=xNoXveXGC2g&noapp=1

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other
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Jun 13, 2022 07:11AM illimae wrote:

I’ll do my best to make it today but I’ve got a shed (future mountain top beach bar!) being delivered and installed today and their ETA is inconveniently around 1pm my time.

Sending a big, happy hello to all in case I don’t see you all later 😁


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/22/2019 External Local Metastases 5/22/2019 Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 13, 2022 04:49PM kbl wrote:

Aw, we missed you.

I was a blubbering mess today, but I want you all to know you helped. I felt much better after and talked to my daughter. She totally gets I need breaks from my grandson. Now it’s up to me to make it happen. If I continue on, I will only have myself to blame. I’m just not physically capable of keeping up the pace of playing so much. My body is screaming at me. Thank you, again. I appreciate you all.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other
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Jun 13, 2022 06:22PM going2beatthis wrote:

Mae,

We missed you. Hope you are feeling a lot better and are able to eat again.

How is the new bar? Time to stock it and enjoy!

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13 hours ago moderators wrote:

Hi, everyone!

We wanted to remind you all that we will not be meeting this upcoming Monday, July 4th due to the holiday. Wehope you all enjoy your weekends!

- The Mods

To send a PM to the Mods: community.breastcancer.org/my/...

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