We are 187,562 members in 81 forums discussing 141,007 topics.

Help with Abbreviations

All TopicsForum: HER2+ (Positive) Breast Cancer → Topic: Herceptin & Nails-When will they improve?

Topic: Herceptin & Nails-When will they improve?

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jun 8, 2009 01:19PM

BMac wrote:

I finished one year of Herceptin on January 8th/09 and my nails are still a mess.  I have to keep them really short or they split in the middle.  I was also on Taxotere (which I finished March/08) and that really did a number on my nails as well but that can't be the culprit.

So I asked my Onc in May, "When will my nails get better?"  Her response?  It's not the Herceptin.  There are other things that can cause problems with your nails, like your thyroid.  Aye Karumba!  There's nothing wrong with my thyroid!  It's the ongoing effects of the bleeping Herceptin!

So dear ladies who out there has been finished Herceptin and experienced an improvement in your nails?  How long after finishing Herceptin did this occur.  I can't wait to have normal nails again.  Not that I ever kept them long but this is ridiculous.

On a more positive note, my energy has greatly improved since going off Herceptin and I'm able to enjoy life much more.

Barbara Dx 10/23/2007, IDC, 2cm, Stage IIIC, Grade 3, 1/13 nodes, ER-/PR-, HER2+
Log in to post a reply

Page 1 of 1 (18 results)

Posts 1 - 18 (18 total)

Log in to post a reply

Jun 9, 2009 06:24AM juliejfsrj wrote:

I finished my year of herceptin in January also.  I did not do any chemo.  My nails did the same as yours, they would split in the middle and peel down.  Reaching into my purse would cause my fingertips to bleed.  I started taking biotin about three weeks ago, and am slowly seeing improvement.  Nails are now almost brittle rather than paper thin.  My nails look pinker and thicker.  They are short still, but feel stronger.  Only my thumb nails are still in terrible shape.

julies
Log in to post a reply

Jun 9, 2009 08:35AM BMac wrote:

Yeah!  My thumbs too.  They have huge ridges in them.

Barbara Dx 10/23/2007, IDC, 2cm, Stage IIIC, Grade 3, 1/13 nodes, ER-/PR-, HER2+
Log in to post a reply

Jun 9, 2009 12:38PM lisa39 wrote:

Hey BMac -- how are you?  We haven't chatted in ages.

Re: nail.. my thumbs are ridged too - and the other nails are thin and peeling.  Get this -the other day, I was getting a basket out of the trunk and it dropped on to my toe.  I was wearing an open-toed sandal and it didn't hurt.. .but when I checked it later, a chunk of the toenail was gone!  I finished Herceptin on May 7th btw.

Lisa Dx 11/29/2007, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2+
Log in to post a reply

Jun 9, 2009 12:47PM BRAVEHEART28 wrote:

HEY LADIES!!  HAVE 2 MORE HERCEPTIN'S TO GO.  ONC TOLD ME SOMETIMES THE TAXOTERE CAN SCREW AROUND WITH MY NAILS.  THE HERCEPTIN DOES'NT DO IT.  I HAVE RIDGES AND A BUMP IN MY BIG TOE.  HOPE IT DOESN'T FALL OFF. THAT WOUDL REALLY BE A BUMMER.  IS THE HERCEPTIN DRAGGING ME DOWN.   SOME WEEKS I HAVE NO ENERGY WHATSOEVER.  OTHERS I FEEL REALLY GOOD.  ALSO HAD CHEMO 6X AND 35 RADS.  HAVE BEEN THROUGH A LOT.  LET ME KNOW HOW YOUR NAILS ARE

Log in to post a reply

Jun 9, 2009 01:14PM GointoCarolina wrote:

juliejfsrj,what kind of biotin are you taking and how much? I have the big ridges in my thumbs too,almost like a dent.Jackie

DX8/2008 IDC,Stage 1,Grade 3,0/3 nodes,ER/PR-,HER2+ Uni Left Mast 9/05/08 chemo & herceptin... Proph Right Mast with TEs March 2010,April 2010 TEs removed due to pain
Log in to post a reply

Jun 10, 2009 12:31AM smithlme wrote:

I saw this thread and had to respond. I didn't have Herceptin because my first cancer was triple negative and I had AC and Taxol. But...I, too, have tissue paper nails that split and have ridges. It will be 2 years in August since I ended chemo. My oncologist told me it was a side effect from chemo...

Linda

Dx 3/31/08, DCIS, ER+/PR- BRCA2+...I am NOT a survivor...I am a 2X breast cancer A$$ kicker! Dx 3/28/2007, IDC, 2cm, Stage II, Grade 3, 0/9 nodes, ER-/PR-, HER2-
Log in to post a reply

Jun 10, 2009 10:49PM juliejfsrj wrote:

Pandazankar,

I take Nature's Bounty Biotin 1000mcg.  I think it helps.  My thumbs are also dented in and ridged.   

julies
Log in to post a reply

Jun 10, 2009 11:04PM swimangel72 wrote:

I finished Herceptin at the end of April this year and my finger nails have improved - but still they split and peel. I finished Navelbine last year so I'm not blaming it on that - Herceptin is known for causing problems with nails. I asked my onc and he said give it a few more months and the nails will get better. He agreed that the Herceptin hurts our nails - he explained that our nails are an extension of the nervous system. The same thing that causes heart problems with Herceptin also causes the nail problems. I never heard that before - that nails are part of the nervous system - I certainly didn't learn that in Biology 101 - but it was one of the few times that my onc actually got talkative, so I tend to believe him.

3/3/08 Right-side mastectomy with immediate muscle-sparing free tram; 3/9/08 Developed abdominal MRSA staph infection and hernia;Completed 4 months Navelbine and 1 year Herceptin; Arimidex - 3 more years! Diagnosed at age 53 Dx 2/5/2008, IDC, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2+
Log in to post a reply

Jun 11, 2009 10:51AM BMac wrote:

Hi Lisa, so good to "talk" to you again.  I haven't been online in awhile.  Our internet was down for about a month and I got myself unhooked from constatly being online.  I'm actually beginning to live life again.

Congratulations on finishing Herceptin.  I know I feel much more energetic since finishing.  I still tire easily but at least I'm able to do things.  I started working out again near the end of January and joined an exercise program at Wellspring in April.

Barbara

Barbara Dx 10/23/2007, IDC, 2cm, Stage IIIC, Grade 3, 1/13 nodes, ER-/PR-, HER2+
Log in to post a reply

Jun 14, 2009 10:20PM pffida wrote:

I finished Herceptin a year ago and my nails have finally approached normal.  I just got rid of the last split in my thumb.  Be patient -- its just a long wait. 

Log in to post a reply

Jun 15, 2009 10:17AM BMac wrote:

Thanks pffida.  It gives me some hope.

Barbara Dx 10/23/2007, IDC, 2cm, Stage IIIC, Grade 3, 1/13 nodes, ER-/PR-, HER2+
Log in to post a reply

Jun 18, 2009 08:30PM CristlC wrote:

I lost all my toenails while on Taxol and Herceptin.  All but my big toes are growing back in but they aren't good strong nails.  My big toes are awful.  My fingernails separated from the nail bed but didn't come off.  However, they are ridged and discolored but the part that separated from the bed is at least growing out.  They are weak though as well.  I guess the Herceptin is keeping them from healing.  My Onc said it is all from the Taxol.  My new issue on the nails is that they have white spots and flake like they are dry but I keep cuticle oil, lotion, etc. on them.  Who knows.  I am glad to hear there is hope that they will all be normal one day again.  It is hard with it being summer and not wearing sandals.  I will be taking the Herceptin until Nov09 and finished chemo Jan09.

Pathology from Bi-Lateral showed IDC (.4cm) in same breast as DCIS and nodes negative Dx 6/25/2008, IDC, <1cm, Stage I, 0/0 nodes, ER+/PR+, HER2+
Log in to post a reply

Jun 19, 2009 06:58AM juliejfsrj wrote:

Having finished herceptin 5 months ago, I finally feel my nails are thicker and pinker, feel smoother and have shape.  They still break if I even reach into my purse, but they don't keep splitting and flaking.  Yay!

julies
Log in to post a reply

Jul 4, 2009 01:47AM sheila888 wrote:

My nails were messed up just the way you are descriping it, since I was on chemo and Herceptin at the beginning of July 2005, I think chemo did the worst damage. It took at least 2 years to recover completely, I used to cover them with bandaids. They are no longer chipped but my nails never returned to normal. I say thats the least of our problems. We survived worse things. I am happy that Herceptin was approved at 2005 for early stage BC.

I am pleased to say that I found this site where I can share my experiencec with all of you.

Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/13/2015 Mastectomy: Left; Prophylactic mastectomy: Right Surgery
Log in to post a reply

Oct 26, 2010 10:35PM sheila888 wrote:

Smile
Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/13/2015 Mastectomy: Left; Prophylactic mastectomy: Right Surgery
Log in to post a reply

Dec 27, 2016 07:39AM jenco60 wrote:

I finished Herceptin over 5 months ago. My nails are coming back but still splitting and my hair is growing VERY SLOW. I am so tired of the side effects of these drugs. My back hurts, my legs are cramping, when I catch a cold it is like pneumonia. I only had a small lump and I feel like I am being over medicated. I read an article today from Moffitt Cancer that said many of the doctors are now allowing patients to take breaks. I had 6 full chemo treatments, 22 radiation treatments and now Herceptin. I think it is a lot of chemicals for a single lump 1.5 CM.

I pray the treatment for this horrible decease gets easier on women in the future. Not having hair is humiliating at times. I live in FL. it is too hot to wear wigs. I am tired of people calling me sir.

Log in to post a reply

Dec 27, 2016 09:27AM daria7r wrote:

Your oncologist is wrong. Many people on Herceptin have had the same problem. Search online for "Fingernail Disorders During Breast Cancer Chemotherapy" for some pics. The advice seems to be that new tissue will grow back on stopping the treatment, but it pushes out from the root of the nail bed outwards, so it's going to take a long time.

Log in to post a reply

May 6, 2017 08:11AM - edited May 6, 2017 08:17AM by Why2015

Yes, totally agree! My nails are still a mess 5 months since being on Herceptin for a year. Also had 12 weeks of Taxol to start with the Herceptin. Radiation destroyed my breast. I have lymphedema and fluid retention in the breast, and I was terribly burned and blistered from the radiation. And now I only wonder what kind of damage was done to my heart and lungs as a result of this intense treatment? I still have neuropathy and burning in both of my feet near the toes and in my fingertips. My joints ache from tamoxifen, and I feel like a fat old lady ☹️. I often question is the treatment worth the compromised quality of life? Sorry to others that are more positive about this. I have just found the whole situation to be physically and emotionally draining. In addition, I've had to work throughout most of this time, and I'm doing it all on my own! Good luck to everyone out there!!

Surgery Lumpectomy; Lymph node removal: Right

Page 1 of 1 (18 results)