Log in to post a reply
Aug 17, 2017 09:23PM
Aug 17, 2017 09:34PM
My BS said the survival rate was the same for MX or LX/rads, but the risk for local recurrence or a new cancer is greater with lx because, obviously, there is breast tissue remaining.
I had an lx first, but had close margins and was going to need an lx redo, then rads.I believe about 25% ??? of lx's need to be redone, sometimes more than once, because of the margins, so even with lx multiple surgeries are sometimes required. During chemo, while reading this forum, I learned that since I knew I was node negative and the tumor was not near my chest wall, I would not need rads if I did an mx. I repeat - I read about that here on this forum - my BS did not discuss this option with me - that's what I have an issue with.
My MO (an Egyptian man),said he could understand getting a uni mx, but why did I want a double. He asked, "What does your husband think of this", lol. I responded that my husband thinks they are my breasts and I can do what I want with them.
My cardiologist was slightly concerned that the rads were going to be close to my heart, but didn't say I shouldn't do them. I felt Herceptin was going to be hard enough on my heart, so I was happy to skip rads.
But that's my personal decision, I'm not saying someone else shouldn't do rads. I'm saying doctors should explain the options better. My doctor - many doctors - never explain that with an mx there is a potential to skip rads.
Hap, I understand that lx with rads is the standard of care, so that's why doctors don't bother to explain there are other options, but why is it the standard of care? That is my point. Who has decided that saving a breast is that important? Someone like my MO who wanted to know about how my husband felt about my breast? Patients should decide what is important to them, doctors should just be giving all the facts.
My breasts were old and saggy, I didn't love them. They were not worth saving, especially if it meant I had to be radiated to keep them. Chemo was enough poison for me. I would have liked to have skipped that too.
"I live knowing it will be ok when I'm not."
3/2014, IDC, 2cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
4/3/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel
5/8/2014 Herceptin (trastuzumab)
5/8/2014 Carboplatin (Paraplatin), Taxotere (docetaxel)
9/29/2014 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
11/5/2014 Arimidex (anastrozole)