Join Us

We are 217,585 members in 84 forums discussing 160,640 topics.

Help with Abbreviations

Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
Log in to post a reply

Page 1196 of 1,301 (39,013 results)

Posts 35851 - 35880 (39,013 total)

Log in to post a reply

Jul 25, 2018 09:48AM Ingerp wrote:

Oy Jstarling--so sorry to hear that. I'd be pretty bummed if I had to delay. Just keep in mind that this too shall pass. . .

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/17/2018 Taxol (paclitaxel) Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Radiation Therapy 8/19/2018 Whole-breast: Breast
Log in to post a reply

Jul 25, 2018 08:58PM SpecialK wrote:

jstarling- has your MO discussed a platelet infusion with you? It might be enough to raise your count enough to receive chemo. Are you getting Neulasta

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 25, 2018 09:27PM Jstarling wrote:

Special, platelets have been low for three of the five chemo treatments but have always come back With an extra week. Dr said she would consider transfusion if it delayed chemo more than a week. I have been taking 5 Xerxio shots after each treatment to stimulate the platelets and white blood cells. This afternoon she sent me a happy email with the good news that the Echocardiogram showed that I can resume Herceptin with next (and last!) chemo.

Dx 1/2018, DCIS/ILC, Left, 1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 2/12/2018 Lumpectomy: Left; Lymph node removal Surgery 3/2/2018 Lumpectomy Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jul 25, 2018 09:58PM SpecialK wrote:

jstarling - Zarxio will stimulate neutrophils (immature white cells), but does not help with platelets. If your WBC continue to be low I wonder if it didn’t work well for you.None of the granulocyte stimulating drugs have an effect on platelets, it is not their function. There are currently no meds that help platelets - and they are the most mercurial and fragile of the blood cells, they are very short-lived, only about 5 days. Glad to hear that the echo is good and that you’re coming to the end of chemo. Hopefully Herceptin without accompanying chemo will be easier on your counts.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 26, 2018 07:48AM shelabela wrote:

jstarling , that's great you can get that last herceptin in. There is just something about finishing if you can that feels so good. Hope your platelets bounce back

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/19/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery Mastectomy: Left, Right; Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Jul 26, 2018 02:49PM LaughingGull wrote:

Checking in ladies!

I will get my laparoscopic oophorectomy tomorrow. This will be outpatient surgery. Wondering when it will be reasonable to start normal life after the surgery. And particularly when I will be able to start working out. Any guidance much appreciated.

Way to go, jstarling!

Shelabela hoping you are recovering nicely

Best to all,

LaughingGull

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 26, 2018 05:09PM Photogirl81 wrote:

hi ladies,

Quick question, as I was catching up with posts, this kinda caught my eye:

SpecialK: you said that AI-s are more benefitial with ovarian suppression than Tamoxifen. I have never heard about it. I am 36, and get a monthly shot called Lucrin (stops my ovaries). I guess it is similar to Lupron or Zoladex, just here in Europe. And I am given Tamoxifen with it. Is this not the best I can do? Please let me know your opinions ladies. My first MO gave me this treatment, and after he was "forced" to retire, a different MO carried on with this. Never mentioned anything about AIs. Thanks

Dx 12/20/2016, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 2/1/2017 Lumpectomy: Left Chemotherapy 2/27/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Breast Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jul 26, 2018 05:28PM - edited Jul 26, 2018 05:30PM by SpecialK

photo - I would discuss switching on several fronts.

Refer to the SOFT and TEXT trial results that indicate superiority of aromatase inhibitors, particularly for younger premenopausal patients.

http://www.ibcsg.org/NEWS/Pages/PRESSRELEASETEXTandSOFTtrialsSABCS2017.aspx

This article discusses in section 4 resistance to Tamoxifen among Her2+ and ER+ patients, due to crosstalk between each aspect.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2746389/

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 26, 2018 06:54PM - edited Jul 26, 2018 06:55PM by ColleenS80

Hey ladies,

Elaine thanks for letting me know! I may have questions. :)

Thanks to all for support about upcoming surgery. However I saw my surgeon yesterday to drain a seroma, and she was scaling back her aggression about mastectomy and I think having second thoughts about whether it was really necessary. I hate when they speak before they really think! I love her but it's frustrating to be mentally thrown back and forth. She and my oncologist are speaking on Tuesday and then I have an appointment with surgeon, so I guess it's still up in the air until I see her Tuesday.

Laughing, I'll be interested to hear how your procedure goes as I will probably be doing it sometime in the next few years. Best of luck that it goes great!

Photo-I would suggest asking as well. I'm getting ready to start hormone suppressing shots and an AI- my onc said she wanted this because it's a better choice than tamoxifen.

Hope you're all having a lovely evening! <3


Dx 1/12/2018, IDC, Right, 1cm, Stage IIA, Grade 1, 2/13 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 2/8/2018 AC + T (Taxol) Targeted Therapy 4/5/2018 Herceptin (trastuzumab) Surgery 7/12/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Hormonal Therapy 8/9/2018 Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy 8/13/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jul 26, 2018 11:27PM deni1661 wrote:

Jstarling, so sorry about the delay. That has to be frustrating. Hope everything returns to normal soon so you can finish up. Hang in there

Shelabela, hope your recovery is going well.

Colleen, I feel terrible for you on this back and forth deal with the mastectomy. I assumed the MO and surgeon would have discussed the details before telling you their recommendation. Try not think about it too much (easier said than done). Sending hugs

Laughing, sending prayers for a successful surgery tomorrow and quick recovery

Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/7/2016 Arimidex (anastrozole) Targeted Therapy 9/7/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap Hormonal Therapy 5/18/2017 Femara (letrozole) Surgery 11/30/2017 Reconstruction (left): Fat grafting, Nipple reconstruction
Log in to post a reply

Jul 27, 2018 08:12AM shelabela wrote:

Good Morning! Things are going good here! Recovering great. Pain in very minimal now. Breast area is still swollen but I was told about 2 month wait for them to settle.

Here is a picture of my leg 3 days after the lipo.

Colleen. How frustrating! As if this isn't stressful enough. Hugs

Laughing, thinking of you today!


Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/19/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery Mastectomy: Left, Right; Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Jul 27, 2018 11:08AM SpecialK wrote:

shelabela - try some topical Arnica gel on your bruising - it has helped me.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 27, 2018 06:42PM shelabela wrote:

specialk, thanks will look into some

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/19/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery Mastectomy: Left, Right; Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Jul 27, 2018 06:48PM SpecialK wrote:

shelabela - I used this, they have it in my regular grocery store.

http://www.arnicare.com/google/?gclid=EAIaIQobChMIg5Wgya3A3AIVm4SzCh3JbAc2EAAYASAAEgLNevD_BwE

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 27, 2018 09:10PM deni1661 wrote:

shelabela, wow that bruising looks painful. glad to hear you are in less pain and recovery is going well!

Dx 7/25/2016, IDC, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 9/6/2016 Perjeta (pertuzumab) Hormonal Therapy 9/7/2016 Arimidex (anastrozole) Targeted Therapy 9/7/2016 Herceptin (trastuzumab) Surgery 4/27/2017 Lymph node removal: Sentinel; Mastectomy: Left Surgery 5/9/2017 Reconstruction (left): Stacked DIEP flap Hormonal Therapy 5/18/2017 Femara (letrozole) Surgery 11/30/2017 Reconstruction (left): Fat grafting, Nipple reconstruction
Log in to post a reply

Jul 28, 2018 03:20AM - edited Jul 28, 2018 05:38PM by coachvicky

This Post was deleted by coachvicky.
Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/10/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/20/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/19/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/21/2017 Prophylactic ovary removal Hormonal Therapy 4/3/2017 Arimidex (anastrozole) Surgery 10/18/2017 Targeted Therapy Surgery
Log in to post a reply

Jul 28, 2018 09:20AM hapa wrote:

shelabela - thanks for posting that pic. I'm not ruling out fat grafting based on your bruising, but it is nice to know what I'd be getting in to. Hope it all heals up and you're happy with your new boobs!

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/27/2018 Herceptin (trastuzumab) Targeted Therapy 3/27/2018 Perjeta (pertuzumab) Chemotherapy 3/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/20/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
Log in to post a reply

Jul 28, 2018 09:50AM - edited Jul 28, 2018 10:55AM by SpecialK

Just wanted to say, I have fat grafted 5 times, but have not used the legs as a donor area. The first graft was purely aesthetic and was the largest volume fat harvest using the abdomen. The next three were done over the 18 months when I had lost the implant on the left and the grafts were done to improve the skin integrity and used the hip area. The last one was done at my most recent exchange/downsize in 2016 to soften and correct some scarred areas, and again used the abdomen. I did not have bruising like shelabela's photo - this is an individual response that depends on the patient, the donor area used, and the technique.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 28, 2018 10:57AM shelabela wrote:

specialk, yes I bruise very easy. Sorry didn't mean to scare anyone. And they did say legs bruise more then most areas.

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/19/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery Mastectomy: Left, Right; Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Jul 28, 2018 05:00PM SpecialK wrote:

shelabela - I think its good that you posted and had a photo- all possibilities should be presented so everyone knows how this goes - no worries!

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 28, 2018 05:20PM hapa wrote:

shelabela - I agree with SpecialK! Thanks again for the photo!

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/27/2018 Herceptin (trastuzumab) Targeted Therapy 3/27/2018 Perjeta (pertuzumab) Chemotherapy 3/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/20/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
Log in to post a reply

Jul 28, 2018 06:34PM Blownaway wrote:

Finally met my new MO (new insurance/all new doctors). He seems to be a real straight shooter. He told me that with optimal treatment, 12 out of 100 women will have a recurrence and that since I was not able to complete chemo or herceptin and have stopped taking my Tamoxifen, my chance ofrecurrence would be much highe. He also said that there would be no cure for me if I do have a recurrence. I asked him given my problems with side effects, what would he have me do if I was his sister. He said he would beat me over the head and make me take the pills for 10 years, not 5. Once my dexascan results are in he will decide which one to have me take. Has anyone had better luck with an AI?

Dx 3/31/2014, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/12/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 6/2/2014 Lumpectomy: Left Chemotherapy 7/2/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/2/2014 Herceptin (trastuzumab) Radiation Therapy 10/6/2014 3DCRT: Breast Hormonal Therapy 1/9/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast
Log in to post a reply

Jul 28, 2018 07:04PM - edited Jul 28, 2018 07:04PM by ElaineTherese

Well, Blownaway, I don't know if I'm a poster child for the AIs. But, after 3.5 years on generic Aromasin, I don't get hot flashes anymore. My bone health has gotten worse -- I went from borderline osteopenia to full-blown osteoporosis. I'm now on Prolia. Hope you find an AI that works for you!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
Log in to post a reply

Jul 28, 2018 08:23PM SpecialK wrote:

blownaway - my MO started me on Femara and I just took the generic offered by my pharmacy. At the six month point I developed a trigger on the thumb of my dominant hand, so I switched to Arimidex. Trigger went away, but at 18 months I developed a trigger on the left hand, one toe and the ankle of that same side. I also bumped my opposite side knee on a trailer hitch and despite no injury it swelled and turned hot and red. Had a cortisone injection, and switched back to Femara but this time the generic had very few additives and I was able to stay on until they stopped manufacturing it - about three years. I now take another generic and haven’t had new triggers so far. I would suggest that if you experience issues look for the formulation with the least additives, or see if your MO can write your prescription for the brand name. If that doesn’t work I know you can get brand name Arimidex direct for $30 a month with no insurance claim. Many of us have to experiment with finding a generic or brand name out of the three AI drugs that is the best fit - no rhyme or reason to which is best. Like ET above, I was osteopenic prior to diagnosis and suffered bone loss, corrected with Prolia - no problems. I had brutal hot flashes before diagnosis, no better or worse on the meds.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 29, 2018 08:44AM - edited Jul 29, 2018 08:46AM by coachvicky

Blowaway,

I think I like your new MO.

I bet he will work with you for success with an AI.

I am on Arimidex, the brand name not generic. I tried 2 generics and did have side effects. Like SpecialK I have trigger fingers and with exercise they are not a problem. I completed PT to learn how to do the exercises. I have one hot flash a day schedule for when I wake up, LOL.

The best thing about Arimidex is that it gets my off my ass to workout. I believe women who workout handle Arimidex. There is a BCO forum called something like "Doing Well on AIs." Like TripleP, it is positive and supportive.

Like Elaine, I take Prolia with no side effects. I get it in a numb spot on my left arm. I take my own band aids b/c the ones at my center hurt when pulled off. That is the worse. My point? You can so this.

I have become very fond of your postings. I see your picture and see a beautiful woman. I would like you to be around for as long as you can. Please, consider an AI and get on it.

With love, Vicky


Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/10/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/20/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/19/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/21/2017 Prophylactic ovary removal Hormonal Therapy 4/3/2017 Arimidex (anastrozole) Surgery 10/18/2017 Targeted Therapy Surgery
Log in to post a reply

Jul 29, 2018 09:28AM LaughingGull wrote:

Hi ladies,

Happy Sunday to my dear positive sisters.

Shelabela, ouch! I wish you a speedy recovery. Thanks for posting. Hang in there.

I had mastectomy in April and I still have the expander....reconstruction was delayed because of radiation. I will get a silicone implant only because I have not enough fat for the fat grafting procedure. I am still happy I chose mastectomy over lumpectomy. Had I picked lumpectomy I would have needed additional surgery and probably a mastectomy anyway because they found more cancer than expected. I also realized I cannot care less about my missing boob. I have small breasts and as long as I look more or less normal when clothed -and I do even with the expander, using padded bras- I am happy.

Colleen, I had my oophorectomy on Friday. Thank God for laparoscopic surgery, it was a walk in the park compared with real abdominal surgery. I am in a bit of pain, but just like my normal ovulation pain. I am on tylenol only. Yesterday I was out and about all day. Today I will go out for a long walk too. My primary care physician told me that since I am in chemopause since I started chemo I probably wont notice anything new from losing my ovaries. Hope she is right.

Blownaway, you got clear advice from your MO. Thanks SpecialK and Coach for the info on AI. I am reading all that with great interest because I will get started on AI soon.

Question for those on AI: I finished radiation like ten days ago, and had oophorectomy on Friday. My MO says he will wait a month and a half to start me on AI, because of the radiation. But I had no radiation side effects at all (other than browned skin) and my cancer was highly driven by hormones (95% for both ER and PR); so I would rather start AI sooner rather than later. Did you get a delay like this, and does this make sense?

Peace and love to all,

LaughingGull

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 29, 2018 10:06AM SpecialK wrote:

laughing gull - I did not have radiation and had adjuvent chemo, my MO wanted a month between last chemo and the start of Femara, was just on Herceptin at that point. Many docs like to give you a breather between major aspects of active treatment but I’m not aware of any specific reason so it might be worth it to ask if you can start earlier if that is what you wish, although the delay may be due to your recent ooph - your MO may want to shake loose any healing or SEissues there first.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 29, 2018 10:14AM coachvicky wrote:

i started Arimidex in April of the year I finished Herceptin in August.

I think i read in the "Doing Well on AIs" forum that an MO started her patients on an AI every other day for a month to ease them in and check SEs.

Vicky


Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/10/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/20/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/19/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/21/2017 Prophylactic ovary removal Hormonal Therapy 4/3/2017 Arimidex (anastrozole) Surgery 10/18/2017 Targeted Therapy Surgery
Log in to post a reply

Jul 29, 2018 10:24AM LaughingGull wrote:

Thank you SpecialK and Vicky.

Vicky, I see from your timeline that you started Arimidex a month and a half after the oophorectomy. Were you strongly hormone positive? I like the idea of starting on AI every other day. I am keeping an eye on the "Doing well on AI" forum as I am determined to do well on them too.

I didnt have a complete response to chemo (far from it) and I am terrified of my hormones driving cancer growth. I will see the MO in two weeks so I will request more detail.


ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
Log in to post a reply

Jul 29, 2018 12:16PM ElaineTherese wrote:

LaughingGull,

My cancer was also 95%ER+/95%PR+, and I started my AI about a month after surgery but before I started radiation. I do think that my MO wanted to give my body the chance to heal before I started on a new drug regimen.

Interestingly, my new MO believes that my cancer was more driven by the overexpression of the HER2+ protein than it was by hormones, even though my cancer had plenty of receptors for ER. Who knows? Good luck!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes

Page 1196 of 1,301 (39,013 results)