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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 06:30AM - edited Dec 10, 2012 07:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Oct 18, 2019 07:40AM coachvicky wrote:

rlmessy

Welcome to this group of strong women.

Keep some distance between your port surgery and your first chemo. The port needs time to heal and adjust.

And remember ... this is your life and you are in charge. You will live with the decisions long after treatment so don't let anyone talk you into anything you are not sure about or uncomfortable with.

Best wishes.

Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Targeted Therapy Surgery
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Oct 18, 2019 12:49PM MissouriCatLady wrote:

Something I read from Lillie Shockney today, maybe this will be helpful to someone:


Lillie Shockney : The voice of experience

* Once you've been diagnosed with breast cancer, your life is forever changed. It is up to you if it changes for the better.

* When I look down, I don't see that my breasts are gone, I see that the cancer is gone.

* My husband told me that the mission of the surgeon is to perform transformation surgery. My mastectomy transformed me from a victim into a survivor, so I'm exchanging my breasts for another chance at life -- a very fair trade.

* On the anniversary of your diagnosis or surgery or however you have chosen to mark the event of having been diagnosed with breast cancer, make it a point of celebrating. Consider it a new birthday. Your life has started anew. Acknowledge it, be thankful for it, experience the joy in it.

* This is not the time to keep your emotions bottled up. Share your feelings, no matter how scary they may seem, with your spouse, other family members or your best friend. Your immune system will benefit and thank you later for it.

diagnosed at 55, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrozole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP done 1/8/20, complete response to neoadjuvant therapy
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Oct 18, 2019 01:49PM - edited Oct 18, 2019 01:50PM by Cowgirl13

Bird, your oncologist's protocol on tumor markers is the same as my oncologist's protocol. I am fine with this, but bare in mind that I do not have children, grandchildren, as well as being 73 now. Makes it much easier to be ok with this. I'm 10 years out this year.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/18/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Oct 18, 2019 03:42PM rlmessy wrote:

Hey...coachvicky,

Funny you should post that. I was dx'd on 10/9 with initial biopsy report. I immediately stuck a date in my head of 11/9 to begin whatever treatment was going to be recommended. I am working right now with 1 of 2 groups in my area and have all the diagnostic work ups scheduled. But, I want a second opinion and to meet with the 2nd group who is well known and there treatment center is 15 mins from my home and hubby's work. That appt is 10/29. I scheduled port placement on 11/1 and anticipated starting the recommended chemo the week of 11/4, hopefully toward the end of the week to give about 7 days for port healing.

Long story...but 1st group calls me today because nurse saw port date and is not happy with it. Wants me to do port 10/25, chemo class 10/28 and start the "harsh" (nurses word) chemo 10/30.

I think that timeline is crazy. I am not a fan of shoving a tube into my artery then turning around a few days later and flushing it with chemo. That sounds like asking for trouble.

How long did you wait after port?

My DX appears below but I am also a caregiver to my awesome Mom, a 13 year (2006) BC Survivor, IIIa IDC, ER/PR+, HER2+, R MX, Lymphedema R Arm Dx 10/10/2019, IDC: Papillary, Right, 2cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 12/18/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 2/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Oct 18, 2019 04:11PM AngieB92 wrote:

MissouriCatLady - thank you for sharing!

rlmessy - I had my port put in on Sept 12 and my first chemo (the exact treatment you’re on plus Perjeta) on September 17 without any problems. I’ve had two treatments so far and wouldn’t describe my experience with it as harsh. It’s very doable. The worst side effect for me is losing my taste buds for a week and a half

Dx 8/8/2019, IDC, Left, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 9/16/2019 Perjeta (pertuzumab) Targeted Therapy 9/16/2019 Herceptin (trastuzumab) Surgery 3/3/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 4/9/2020 Kadcyla (T-DM1, ado-trastuzumab)
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Oct 18, 2019 04:31PM Bird-of-light wrote:

cowgirl,

I am 48.I guess I just wish there were a true marker so we could catch things earlier after mastectomy.

Dx 4/13/2016, IDC, Left, <1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 6/8/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/14/2016 Taxol (paclitaxel) Targeted Therapy 7/14/2016 Herceptin (trastuzumab)
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Oct 18, 2019 07:11PM Taco1946 wrote:

CoachVicky just posted on another thread and I would second - you need at least a week between port placement and starting chemo.

Don't let yourself be bullied into making decisions or doing things faster than you are comfortable with. If your physicians don't respect your decisions, find other ones.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/28/2016 Balloon-catheter: Breast Chemotherapy 2/2/2017 Taxol (paclitaxel) Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Hormonal Therapy 12/3/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Oct 18, 2019 10:18PM Jkeet wrote:

rlmessy, I had my port put in July 31st and had my first chemo Aug 1st. The hardest part was sleeping because the port hurts for a week or two. Healing from port and chemo at the same time was rough. I wanted to get treatment started as soon as possible though and didn’t want them using my veins. If you can I would wait but if not you can still get through it.

Dx 6/27/2019, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 7/31/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/1/2019 Herceptin (trastuzumab) Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Surgery 1/24/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 3/5/2020 Whole-breast: Breast Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Oct 19, 2019 09:31AM coachvicky wrote:

rlmessy,

My timeline was Tuesday, 12 July 2016 BMX; Wednesday, 10 August 2016 Port Surgery; Monday, 22 August first chemo (TCH). I only agreed to chemo after my Oncologist answered a question that my husband asked (What happens if she chooses not to take chemo?) My Oncologist responded, "She will die." I don't know if that was true but it scared the you-know-what out of me. I really thought that since I had a BMX with no lymph involvement, I could skip chemo, LOL.

I asked to start chemo on Monday, 22 August not only to give my port time to heal and time for me to adjust (both by the advice from my Surgeon) but that 3 week start date provided us no conflicts with holidays vacations that we celebrate.

MissouriCL, Great post.

Taco, Yes. There are always other MDs.

Have a wonderful weekend.

Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Targeted Therapy Surgery
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Oct 19, 2019 01:23PM Cowgirl13 wrote:

I had about a week between port surgery and chemo. Since I was one of the few people who had a big time issue of pain after port surgery there is no way I could have had chemo any sooner. But remember, my experience was atypical. I'm sure you will not have this kind of reaction. I had planned that after port insertion that I would have a week's time to just relax, have fun and just have a general good time before starting chemo. No way. It was as if I had been kicked by a horse. But Please Remember, this was only my experience.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/18/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Oct 19, 2019 02:41PM hapa wrote:

I started chemo the day after my port was placed. I didn't have a lot of pain with my port surgery (or any other surgery for that matter, not sure how I got off so easy), but I did have a terrible skin reaction to whatever adhesive was on the dressing they put on me after surgery. Waiting a bit to heal first would have been nice, but I was already 3 months post dx before they figured out I needed chemo and hadn't had surgery yet, so I thought it was best to get the show on the road. If I were you, I'd accept the accelerated schedule and just reschedule the start of chemo if you don't feel ready by the 29th. Good luck.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Oct 19, 2019 03:30PM SpecialK wrote:

bird - you look cute in that pic - or at least as cute as possible considering the circumstances...

On the subject of finding mets as soon as possible, and the methods to do so, there is no universal methodology. For some, tumor markers such as CA15-3, CA27/29, CEA, etc. are reliable for early signs of mets. For others, they can have extensive mets and normal markers, so the science is not there for all of us to count on these particular markers for proof. Hopefully the newer CTC (circulating tumor cell) markers will be more accurate and available soon. Whether or not oncologists use the existing markers, and on which patients, is indicative of their particular philosophy and experience. I do get regular markers drawn, and have been sensitive to them in terms of registering change when inflammation has happened. Whether or not this would hold true if I had mets is currently unknown - so these markers could display a false negative, and have already shown a false positive for me as an individual. As far as finding mets early, I tend not subscribe to the idea that it does not matter when you find them - outcome is the same. The treatment guidelines predicated this concept are based on old studies that pre-date a significant number of treatments that have become available, and also studies that look at how mets occur and when that happens have been done more recently. This information may lead to a better understanding of how and when to look for mets. The very fact that some stage IV patients are living a lot longer than ever before is proof enough to me that the benefits of early detection doesn't just apply to early stage breast cancer. Some think that reducing the tumor burden surgically or with radiation at the outset and then treating systemically with chemo and/or anti-hormonals will extend the length of time to remain alive - I have seen it for myself. Others think that reducing the tumor burden can actually accelerate the aggressiveness, and starting off with aggressive treatment causes you to run out of effective treatment options sooner - and they are also correct. Therein lies the conundrum. My personal, and totally anecdotal, viewpoint - I have two friends who treated aggressively out of the gate with surgery and chemo - one stage IV de novo, while the other had "progression" several years later but our shared oncologist thinks she actually had undiscovered mets at the time of diagnosis. Both are doing well and are working, traveling, and living life and it has been almost 8 years for one, 9 for the other. My dad and brother were both diagnosed with stage IV de novo cancers of differing kinds - my 82 year old dad did two separate rounds of chemo - six months apart - and he lived six times longer than my 55 year old brother who did no treatment at all. Unfortunately, how to pursue information about progression for early stagers, and what to do with that info when you have it, is a complex issue.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Oct 19, 2019 08:18PM Adhoney wrote:

MissouriCatLady: I really like the post you shared from Lillian Shockley.

Rlmessy: welcome to the club that you never wanted to join. These groups have been so helpful, I can’t imagine how lonely it would be without them. Our spouses & Family are supportive, but nobody REALLY understands unless they’re going through it.

I was on the same meds as you except I also got Perjeta. I tolerated it well except I had extreme fatigue & my taste buds were out of whack for at least a week after chemo. I found crystal light singles, especially lemonade, very helpful. Lemon & lime flavors tasted the best to me.

I got my port placed on 3/6/19 & had my first chemo 7 days later. My port was really tender for about 3 days, but felt much better by the time chemo started. I was ready to get chemo started so I liked the timeline.

Anyone know of a Kadcyla thread on here? I’m on K every 3 weeks along with daily Anastrozole and they are causing me so much muscle & joint aching, it’s just really rough. I’m hoping that once K is finished in May that maybe the aching will improve. Anyone have any experience with this?

Angie


Dx’d w/ IDC at age 46. Completed 6 rounds of TCHP prior to surgery. Saved my hair by cold capping! R mastectomy w/DIEPflap reconstruction on July 25, 2019. Began Kadcyla on 8/12/2019 for 14 doses every 3 wks. Dx 2/22/2019, IDC: Mucinous, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2+ (IHC) Dx 3/25/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Targeted Therapy 8/12/2019 Kadcyla (T-DM1, ado-trastuzumab) Hormonal Therapy 9/3/2019 Arimidex (anastrozole) Surgery 11/14/2019 Reconstruction (right): Fat grafting, Nipple reconstruction
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Oct 20, 2019 10:51AM Kimmh012 wrote:

side effect Questions: last Chemo of Taxotere and H/P was Sept 18th, Then H/P Oct 15th until Sept 2020 ... every since Sept, no matter what I try to eat, I start sweating really bad and I get a stomach pain with nausea. Usually only lasts a few minutes. This is very annoying.

Also, I have a "stitch" on my left side of waist. When I move wrong, I get a strong debilitating zap.

I have told my MO and BS, they did blood work that show kidney function is fine. So I see my Ortho on Tuesday thinking it's my Myleopathy (pinched spinal cord) just concerned because it started right after I had the Taxotere.

Any and all ideas and opinions welcome.

~ALWAYS AN ADVENTURE~ Dx 3/22/2019, IDC, Left, 2cm, Stage IIA, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/3/2019 Lumpectomy: Left; Lymph node removal: Sentinel Dx 5/1/2019, DCIS, Left, 1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/1/2019 Lumpectomy: Left Chemotherapy 5/13/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 6/24/2019 AC Chemotherapy 9/17/2019 Taxotere (docetaxel) Targeted Therapy 9/18/2019 Herceptin (trastuzumab) Surgery 11/6/2019 Lumpectomy Radiation Therapy 1/13/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/1/2020 Arimidex (anastrozole) Hormonal Therapy 4/28/2020 Aromasin (exemestane)
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Oct 20, 2019 12:35PM BAMR wrote:

I had surgery Oct. 10 and the pathologist is redoing the Her2 test. Haven't heard back yet. Did any of you find out you were Her2 positive after being Her2 negative from your original biopsy months ago? I would hate to find that out after I've finished 5 months of chemo and had the port taken out. I'm scheduled for radiation in 3 weeks. BS tells me not to worry.

Dx 4/4/2019, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 4/12/2019, ILC, Left, ER+/PR+, HER2- Chemotherapy 4/26/2019 AC + T (Taxol) Surgery 10/10/2019 Lumpectomy: Left, Right; Lymph node removal: Left, Right, Sentinel Radiation Therapy 11/18/2019 Whole-breast: Breast
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Oct 20, 2019 03:31PM countca04 wrote:

I've just started on Kadclya on Oct 1, next treatment this week.

I have been feeling extremely tired and some bone pain. First week was feeling nauseous and very very tired. It gets better through the weeks after treatment which is also every 3 weeks.

I'm also on Letrozole, and I know that also causes bone pain.


Wondering if I should go away south to warmer climate this winter....at least twice try to get away for two and half weeks between treatments....dont know if it helps?


Dx 11/5/2018, IDC, Right, 1cm, Stage IIIA, Grade 3, ER+/PR+, HER2+ (IHC) Chemotherapy 12/17/2018 AC + T (Taxol) Surgery 6/6/2019 Lymph node removal: Sentinel; Mastectomy: Right Radiation Therapy 7/23/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 21, 2019 11:44AM 1207262 wrote:

My mother has seen a couple doctors. One surgeon staged her (clinically) as IB and another at a more reputable hospital gave her a clinical stage IIA.

What I don't understand is that all three surgeons said that clinically there is no lymph node involvement and the tumor is sized at 1.2 cm or less.

Two oncologists at the top two breast cancer hospitals in Philadelphia suggested a less extreme regimen and adjuvant treatment because of the prediction of no lymph node involvement and a relatively small tumor.

One breast surgeon staged her IB at a local treatment center, then at a major hospital the second breast surgeon agreed on the clinical staging, and the third at a different major hospital said IIA. The oncologists have mentioned nothing on staging.

Should we just disregard this because clinical stagings are just estimates? I just don't understand why they are making these "estimates" and what their bases are for them. Everything I have extensively read up on for both the old format of staging and the latest prognastic staging both would be IA. The local breast surgeon even mentioned, which we were angry he even said this without asking, that my mother's five-year survival rate was 85%. This made absolutely no sense to me as he was the one who estimated IB and was the most confident in his approximation that there was no lymph node involvement.

All of these stagings were done BEFORE the FISH test came back, too! Which makes it MORE confusing! It is a grade three tumor, but even still, based on everything I've read it doesn't make sense.

A ≤1.2 cm tumor, no lymph node involvement, ER+/PR+ >90% for each, and they guess IB and IIA before even HER2+ was a consideration?

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Oct 21, 2019 11:51AM - edited Oct 21, 2019 11:57AM by ElaineTherese

You're right; clinical staging is just an estimate. So, I wouldn't worry about it. The important thing is the treatment options. Your Mom would probably be fine with Taxol + Herceptin, though if you wanted to go super-aggressive your Mom could do Taxotere + Carboplatin + Herceptin + Perjeta or Adriamycin + Cytoxin and Taxol + Herceptin + Perjeta.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Oct 21, 2019 01:12PM Lulu44 wrote:

Hi guys. I’ve been following along but haven’t said much. I’m on cycle 5 day 4 of TCHP. Just wanted to say thank you for all of the sharing & information

Dx 6/28/2019, IDC, Left, 2cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/16/2019 Herceptin (trastuzumab) Chemotherapy 7/16/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/16/2019 Perjeta (pertuzumab) Surgery 12/16/2019 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 1/1/2020 Kadcyla (T-DM1, ado-trastuzumab) Surgery 1/21/2020 Prophylactic ovary removal Radiation Therapy 1/27/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/6/2020 Aromasin (exemestane)
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Oct 21, 2019 02:33PM hapa wrote:

Staging is just a label, whereas your cancer is your cancer, no matter what label you slap on it. I think your mom should take whichever treatment plan she is more comfortable with. All this stuff is kind of a roll of the dice at the end of the day, no matter how much research you do.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Oct 21, 2019 03:16PM rljes wrote:

BMAR - I had 3 test for HeR2, all coming back inconclusive. finally after my BMX discovered I was Her2+

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy
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Oct 22, 2019 07:09AM MACTAZ wrote:

lulu44, sorry you are here but welcome to our group. It Has been so helpful to me, 14 months after diagnosis

Neo-adjunct therapy-TCHP (6 infusions ), Single MX right with TE, reconstruction-reduction and lift of left, implant and nipple reconstruction (3 surgeries), adjunct therapy H&P (11 infusions), hormone therapy. Dx 8/14/2018, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR+, HER2+ Dx 8/14/2018, IDC, Right, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (DUAL) Dx 9/19/2018, DCIS, Right, <1cm, Stage 0, Grade 3
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Oct 22, 2019 10:44PM neeli wrote:

Hi All,

If anyone has any feedback about my situation please let me know. I am shattered from my pathology report today.

Pathological report after MX says 0.7cm tumor was residual along with 3 sentinel lymph nodes (3mm,2mm,3mm) testing positive. A 2.4 cm DCIS was also removed during MX. The tumor has mix of invasive ductal carcinoma and invasive micro papillary carcinoma. ( My initial biopsy before chemo reported only invasive ductal carcinoma + 2 lymph nodes). BS wants to remove all axillary lymph nodes next.

As of now i have 3 cancers - IDC, invasive papillary carcinoma, DCIS. 3 positive lymph nodes, her2+ve, ER+ve, PR +ve. Can i even be hopeful?

Dx 4/24/2019, DCIS/IDC, Right, Grade 3, 3/10 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 6/5/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Targeted Therapy 6/5/2019 Perjeta (pertuzumab) Surgery 10/17/2019 Mastectomy: Right Targeted Therapy 11/7/2019 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 12/5/2019 Whole-breast: Breast, Chest wall
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Oct 23, 2019 05:50AM Suburbs wrote:

Neeli, when you feel shattered, you have come to a good place to be put back together. The plan for next steps will come together and you can stay on the road to recovery. Towards the end of chemo, I had a bad finding and became unglued. This support group and Prozac ( has shame in using all available curatives). Please hang in there and post as much as you need. Sending hugs and lihht

Dx 1/9/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 1/31/2017 Herceptin (trastuzumab) Chemotherapy 2/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 6/20/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/21/2017 Arimidex (anastrozole) Targeted Therapy 2/1/2018 Nerlynx
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Oct 23, 2019 06:55AM MissouriCatLady wrote:

Hugs, Neeli. There are a lot of good treatments for hormone positive cancer that work well!!! Herceptin is one of them!

diagnosed at 55, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrozole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP done 1/8/20, complete response to neoadjuvant therapy
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Oct 23, 2019 07:52AM rlmessy wrote:

Hey Neeli,

I am new to the group too. I have 3 types of cancer from biopsy pathology report. Main is Invasive Micropappilary Carcinoma or IMPC, then there are traces of LCIS and DCIS. ER/PR+ and HER2+. Whew it's a mouthful. I am just dx'd in the last 2 weeks.

I am scared for sure but hopeful. My mom had IDC with ER/PR+ and HER2+ 13 years ago and she is still her rocking my world. There are medicines that can help us live long and healthy lives. I am counting on that.

One thing from your description...you used both terms micropappilary and papillary. If my research is correct these are not the same types of cancer and the terms should not be used interchangeably.

Try to stay hopeful, you are not alone.


My DX appears below but I am also a caregiver to my awesome Mom, a 13 year (2006) BC Survivor, IIIa IDC, ER/PR+, HER2+, R MX, Lymphedema R Arm Dx 10/10/2019, IDC: Papillary, Right, 2cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 12/18/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 2/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Oct 23, 2019 12:19PM neeli wrote:

rlmessy - i meant Invasive Micropappilary Carcinoma. So far i thought i had IDC. I had not heard of IMPC before and little bit of googling says its kind of rare cancer.

Dx 4/24/2019, DCIS/IDC, Right, Grade 3, 3/10 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 6/5/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Targeted Therapy 6/5/2019 Perjeta (pertuzumab) Surgery 10/17/2019 Mastectomy: Right Targeted Therapy 11/7/2019 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 12/5/2019 Whole-breast: Breast, Chest wall
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Oct 23, 2019 12:35PM hapa wrote:

neeli - last I read, IMPC doesn't have a significant affect on prognosis separate of other factors like nodal or skin involvement. I don't know how big your tumor was to start with, but residual cancer after neoadjuvant chemo is not uncommon in triple positives. I had either 2.1cm or 5mm of residual tumor depending on which biopsy report you read (I had path confirmed elsewhere, long story), plus three positive lymph nodes but apparently the LN had only scattered cells. Will you be needing rads? If so, I'd skip the ALND but that's just me. I had ALND and wish I had refused it (though it was done while I was still on the table) because I still needed radiation anyway.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Oct 23, 2019 03:26PM - edited Oct 23, 2019 03:39PM by neeli

hapa - I will definitely check with my MO about skipping ALND since i will be doing radiation anyway.

why dont axillary lymph nodes show up on MRI if they are cancerous?

Dx 4/24/2019, DCIS/IDC, Right, Grade 3, 3/10 nodes, ER+/PR+, HER2+ (IHC) Chemotherapy 6/5/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Targeted Therapy 6/5/2019 Perjeta (pertuzumab) Surgery 10/17/2019 Mastectomy: Right Targeted Therapy 11/7/2019 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 12/5/2019 Whole-breast: Breast, Chest wall
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Oct 23, 2019 04:34PM - edited Oct 23, 2019 04:41PM by Ilaina

hi. Texting for my mom. She was just diagnosed with triple positive cancer. She had one positive node. Went to oncologist and the only further tested he prescribed was a lung xray.

I had her2+ 10 yrs ago with no node involvement and they scanned my whole body before chemo. How do they check for Mets if the don’t check rest of the body

Have things changed that much. ? I am looking to cange doctors after he stated that taxotere didn't cause permanent hair loss. That was just a bunch of greedy people who are suing company. Really!


We live in northern Delaware. If anyone knows a good oncologist please PM.

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