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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 05:30AM - edited Dec 10, 2012 06:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 17, 2020 05:47PM MsMurphy wrote:

Thank you so much Elaine and Yeslama for the quick and very good responses. I have my chemo bag packed and ready as I had a suspicion that was an error.

One more question for my triple positive sisters. Do any of you have endometriosis? I have taken my BC continously for about 10-15 years as no periods equal relatively little pain compared to the chronic daily pain I had before. I haven't been told to stop it yet but I'm nervous about being on it and scared of going off it. Last thing I need is pain on top of whatever side effects I have from the chemo. I plan to grill my onco tomorrow on this but was curious how others may have dealt with it.

Love to you all.

Dx 8/27/2020, DCIS/IDC, Left, 1cm, Stage IB, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 9/23/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 12/17/2020 Herceptin (trastuzumab) Chemotherapy 12/17/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Hormonal Therapy
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Dec 17, 2020 06:00PM YesIamaDragon wrote:

I suspect you won't have to worry about periods for a while (at least not with TCHP! not sure about THP). But absolutely ask your oncologist about them.

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Dec 17, 2020 08:23PM pbtriplepositive wrote:

Thank you YeslamaDragon and Morrigan_2575.

MsMurphy- best for your first infusion tomorrow. I should be starting mine in a couple of weeks. If you have any tips for the chemo bag, would be appreciated. I haven’t had my chemo intro meeting yet so feel very unaware. We seem to have similar Dx. Did your MO discuss TH as an option for you vs TCH. Both were recommended for me and I’m leaning towards TCH

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Dec 17, 2020 09:00PM MsMurphy wrote:

Hi pbtrible! I do feel like I'm going into chemo a bit blindly too despite meeting the oncologist twice. It's so overwhelming to grasp it all.The originally plan was for me to do just TH weekly for a month and then herceptin for a year but by the time they finally removed the tumor (mastectomy followed by lumpectomy as it was missed the first time around), it was larger than initially thought so my oncologist changed me to TCH for 6 cycles. Fingers crossed everything goes well and I'll keep you updated.

Dx 8/27/2020, DCIS/IDC, Left, 1cm, Stage IB, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 9/23/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 12/17/2020 Herceptin (trastuzumab) Chemotherapy 12/17/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Hormonal Therapy
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Dec 18, 2020 10:08AM Nsbrown54 wrote:

I’m 8+ weeks post chemo (TCHP), 1 month post op mastectomy and started letrozole 10 days ago. I’m having one of those days where I’m not feeling very good. I’m able to function, but am deal with a variety of nagging side effects, so it’s nothing serious. I don’t start HP until after the first of the year. Is this my new normal?


Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Dec 18, 2020 06:19PM YesIamaDragon wrote:

Do I understand that your infusions stopped completely after 6 cycles of TCHP?

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Dec 18, 2020 06:46PM Nsbrown54 wrote:

Yes. No more treatments until January when I start herceptin and perjeta. They wanted me to feel better before surgery, so I had 5 weeks Is that not normal?

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Dec 19, 2020 04:32AM Iamloved wrote:

Nsbrown54...I finished my 6 round of tch (MO took the prejeta out after 3 rounds) on October 29. I asked my MO if we could hold off the herceptin until after my surgery and she was ok with it. I have my first infusion on Dec 21 which will be almost 8 weeks since my last one. I have seen studies that show 6 rounds of herceptin is as beneficial as 1 year. I plan to take the studies to my appointment on Monday.

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Dec 19, 2020 06:22AM YesIamaDragon wrote:

Interesting. I continued my every 3 week HP infusions until after my surgical pathology came back and showed I didn't have PCR< then the Perjata was dropped (I still don't entirely understand why?) and I continued getting Herceptin every 3 weeks until radiation was done, then started Kadcyla. So I never had a break in infusions.

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Dec 19, 2020 06:48AM - edited Dec 22, 2020 02:12PM by SpecialK

nsbrown - the convergence of post-chemo and surgery, and the start of anti-hormonal therapy, are surely contributing to you not feeling as good as you would like, or having days when fatigue gets in front of you, but time should help. Some people take a little while to adjust to anti-hormonal therapy, and it also takes some time for anesthetic to work its way out of your system, generally a week for every hour under anesthesia. Recovery from chemo, as evidenced by the return of your CBC values to normal, can takes a few months at a minimum. Do you know what your hemoglobin level is? If it is low - which is normal at this point - it can contribute to fatigue. On the targeted therapy front, most do continue with targeted therapy on schedule without any delays, but your docs are doing what is right for your individual situation.

iamloved - are you sure it was not a 6 month course rather than a 6 round course? The really short FINHER study was only 9 weeks, but I don't think you will find a US MO who would shorten to that voluntarily, but it is potentially decent news for anyone who has to discontinue for cardio-toxity reasons.

https://www.onclive.com/view/shorter-trastuzumab-duration-matches-12month-standard-for-early-her2-breast-cancer

https://pubmed.ncbi.nlm.nih.gov/27875516/


BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Dec 19, 2020 08:23AM - edited Dec 19, 2020 08:26AM by morrigan_2575

@YesIamaDragon - I didn't get a break either I finished TCHP 5/20, had HP 6/10, surgery on 6/19 started Kadcyla on 7/6.

I started Tamoxifen and Radiation in August. It's been pretty much go go go. My MO had me doing Kadcyla, Rads and Hormone Therapy all at the same time. I see other Docs holding off Kadcyla and Hormone Treatment until after Radiation.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/4/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/4/2020 Herceptin (trastuzumab) Targeted Therapy 2/4/2020 Perjeta (pertuzumab) Surgery 6/18/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Targeted Therapy 7/5/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/9/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Dec 19, 2020 08:26AM Nsbrown54 wrote:

Thank you for the response SpecialK. My hemoglobin, potassium and magnesium are all low, but have been improving. I seem to forget the obvious, that my blood counts contribute to my fatigue. I assumed it was the letrozole. During chemo, especially the last 3 treatments, I required extra fluids, extra magnesium and potassium, and a blood transfusion

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Dec 19, 2020 02:49PM Taco1946 wrote:

pbtripplepositive - sorry I didn't see your post until today. I did just TH. Four years ago it was treatment of choice for small tumors and no lymph node involvement. I'd be happy to text more if that's what you decided to do. You are a LOT younger than I am and THC is a more aggressive treatment plan which may be why one of your MO recommended it.

No one in my center iced. I had painful neuropathy starting about infusion 6 and stopped after 8 with MO's support. She said if I had lymph node involvement she would have pushed me harder to continue the full 12 weeks of Taxol. Early on, my biggest problem was regulating the constipation/diaherra cycle but actually got that under control too.



Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/28/2016 Balloon-catheter: Breast Chemotherapy 2/2/2017 Taxol (paclitaxel) Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Hormonal Therapy 12/3/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Dec 21, 2020 02:26PM AnnaTheBrave wrote:

Onco decided I should stick with HP instead of switching to Kadcyla because there’s “no demonstrated benefit” in people with my characteristics (technical pCR with residual DCIS)—I know this is how science works, but it annoys me so much. No demonstrated benefit bc they haven’t done the trial...but one could certainly ASSUME a benefit based on the Katharine trial! I know, I know, that’s not how this works, but it’s so frustrating (and sometimes scary) to hear news of these amazing new therapies that are still in the nascent stages of research and from which I will not be able to benefit. I mean, it’s also wonderful for the future of the field and for future women...but I just want ALL THE DRUGS RIGHT NOW!

Dx 6/18/20, age 37, IDC, Right, Stage Ib, Grade 2, triple positive, TCHP regimen begun 7/23/2020, mom to a 5yo girl and 1yo boy
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Dec 21, 2020 03:52PM hapa wrote:

Anna - if you had PCR then your risk of recurrence is so low that Kadcyla isn't going to do much, if anything at all. IIRC your risk of recurrence is maybe 5%. You can't get it down to zero.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Dec 21, 2020 05:49PM ElaineTherese wrote:

Anna,

I missed out on Nerlynx because it came out too late for me. I didn't mind; many on Nerlynx get diarrhea (though it can be controlled). By the time Nerlynx rolled around, I was OK with being done with active treatment and was more focused on getting through hormonal therapy.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Dec 22, 2020 02:20PM SpecialK wrote:

anna - I get wanting all that is available! I was treated too early for Perjeta, but would have qualified for it with a 2.6cm tumor and two positive nodes. I obviously also missed out on Nerlynx and Kadcyla, and will never know if I would have achieved pCR since I was treated adjuvently. I have to go on faith that what I did get did the job, although I did not have rads because I had ALND. Some oncologists and RO's would have pushed rads on top of ALND, but neither my MO or BS endorsed that - I will always wonder though. I did participate in a Her2+ recurrence prevention vaccine trial in an effort to add another arrow to the quiver, and found out at the 5 year point post-trial that I did get the vaccine. The good news, I am still here and as far as I know I am NED. Remember that there are no absolutes in this game and, while it is sometimes hard, go with the percentages and the knowledge that there are indeed downsides to treatment that may not be necessary or provide quantified benefit. More is not always better.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Dec 23, 2020 06:05PM Redcanoe wrote:

I received some disappointing news this morning. Had a lumpectomy on the 15th, no neoadjuvant chemo. Final pathology is 25 mm and 2/5 positive lymph nodes and lymphovascular invasion. At least the margins were clear. Next up is chemo which I am assuming will be more aggressive with the positive nodes. I was really hoping for negative nodes. Only one node looked indeterminate on MRI which was biopsied by core needle and came back benign before surgery. One node was 14mm and the other was 10mm. They would have done neoadjuvant chemo if that core needle biopsy had been positive and I suspect that was one of the nodes that was ultimately positive.

No one has mentioned stage to me but it looks like anatomically stage IIB and prognostic stage IB. Not sure if it matters but people keep asking me. I think I'm just going to say I'm stage II. Honestly, im looking forward to starting chemo so I can kill the loose cells that could be in either my vascular or lymphatic system right now :(

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/14/2020 Lumpectomy: Right Chemotherapy 1/11/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/11/2021 Herceptin (trastuzumab)
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Dec 23, 2020 07:34PM ElaineTherese wrote:

Redcanoe,

Chemo will probably be the same, regardless of the nodes. If your lump were smaller, you might have gotten away with Taxol/Herceptin/Perjeta. Otherwise, you'll get either Taxotere/Carboplatin/Herceptin/Perjeta or Adriamycin/Cytoxan + Taxol/Herceptin/Perjeta.

One of my nodes tested positive before chemo; it did buy me a PET scan but nothing else. ((Hugs)) It's hard to hear the pathology was a bit worse than expected.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Dec 23, 2020 08:34PM hopeful2020 wrote:

Redcanoe - you are similar to me. I had 1/4 positive node and 1/4 with ITC along with lumpectomy and margins clear. The tumor size was larger in the post pathology than MRI but it was almost 6 weeks between the MRI and surgery so not sure if it grew or imaging was not accurate.

Today was my second chemo. My suggestion is write down everything from what you eat, symptoms, what meds you took, what things you tried on a day-day basis. It really helps to see a pattern. Diet will play a large role. I am hoping to navigate my second round based on what I learnt first time around, will see.

Good luck. You will start feeling better soon!

Dx 9/17/2020, IDC, Left, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/30/2020 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 12/1/2020 Perjeta (pertuzumab) Targeted Therapy 12/2/2020 Herceptin (trastuzumab) Chemotherapy 12/2/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Dec 25, 2020 08:13AM ajminn3 wrote:

Redcanoe- sorry to hear you got disappointing news, especially during the holidays. I had a similar beginning as you this time last year. My post mastectomy pathology showed a positive node when initially no imaging showed nodes positive...it was such a bummer to get news that the pathology was not as originally thought...but a little worse. I made it through chemo, rads, and now am onto the final rounds of targeted treatment + OS/AI. Hopefully soon you can get a plan in place and get started on treatment. Sending you hugs and strength

Dx 12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2 Dx 1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Dec 25, 2020 09:17AM - edited Dec 26, 2020 06:52AM by YesIamaDragon

I am so sorry, RedCanoe. The setbacks in the disease are so hard! And you had to travel so far from home as well.

I can assure, while chemo sucks, it really is temporary! Some lucky folks sail through even TCHP without missing any work other than their infusion days. For me it was very rough, but I made it through and my hair is growing back and I am learning I kinda like short hair, after many years with long hair. And I think pretty much everyone here will tell you the same thing. Hang in there, it is ok to cry and be angry and disappointed and all the feelings.

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Dec 25, 2020 08:16PM Redcanoe wrote:

thanks for all your replies. I'm really trying not to let the worry get to me. I go back to Edmonton in early January to meet my oncologist and am likely doing my first round of chemo alone :(

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/14/2020 Lumpectomy: Right Chemotherapy 1/11/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/11/2021 Herceptin (trastuzumab)
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Dec 31, 2020 02:55PM xYoungandScared wrote:

Hi everyone. I haven't been here in 2 years, I believe. I was diagnosed HER2 triple positive in June 2018. Since, I've overcome 6 rounds of TCHP, 2 surgeries, radiation, a false scare of recurrence when a lymphnode lit up during an MRI, and a bunch of check ups in between. I'm 28 years old, and I got through all of that treatment with one goal in mind: return to life as it was before cancer.

Boy, I was in for a rude awakening. Here I am now, and I'm struggling with my mental health and PTSD. Because it's the holiday's, the mental health experts/psychologists I've reached out to are unavailable. I feel so down and hopeless sometimes. The crying is hard to overcome.

What are some ways, in addition to therapy, that helped you cope with anxiety, depression and/or PTSD as a result of your diagnosis, treatment and outcome. I feel like I entered another battle I wasn't prepared to fight for.

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Dec 31, 2020 03:28PM YesIamaDragon wrote:

Oh I am so sorry you are struggling!

For me what has helped (not always, but a lot) is making a commitment to exercise SOME everyday, outside if possible. During the last part of TCHP that was sometimes just laps around the kitchen, but I made a point to get up and do it. And now I am doing a Zoom exercise class with other cancer survivors, and it really helps feeling like I am part of a group, and seeing other people (even at work now we have a lot of people working from home and those of us who still go in are behind closed doors).

Have you reached out to your cancer center to see if they have any video supports available, either video therapy appointments or video support groups or exercise groups?

I was diagnosed in June 2019, so a year behind you, but I started Kadcyla after radiation and just had my last infusion today! I do wonder though, how I will do now that I just take a bunch of pills every day and don't have an every-3-week treatment plan for the first time in a year and a half. This rollercoaster of cancer leaves a lot of us with PTSD.

Hang in there, please!

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Dec 31, 2020 03:54PM Redcanoe wrote:

youngandscared- I'm sorry you are struggling. I am starting chemo in a week so I am way behind you. This whole process is traumatizing and I have been grieving that there will likely not be a return to life as normal. It is hard to accept. I'm not as young as you but I am only 34. At our ages, most people are taking for granted that they will live a long life and now that has been taken from us. Be kind to yourself. Maybe you need to have a good cry.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/14/2020 Lumpectomy: Right Chemotherapy 1/11/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/11/2021 Herceptin (trastuzumab)
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Jan 2, 2021 09:41AM LaughingGull wrote:

Hi xyoungandscared,

Sorry you are struggling. I can see how you are traumatized by going through all of this at such a young age. I was diagnosed at 47 and I feel pretty traumatized myself. Is your prognosis good? Is there a reason for you to be overly worried, other than the general trauma of going through diagnosis and treatment? (In my case my cancer, did not respond well to treatment, and it was locally advanced with a few ominous signs for recurrence, and I know that this is my main source of worry, sadness and consternation)

Things that have helped me: I got antianxiety meds the first weeks after diagnosis; antidepressants (effexor) the year I was going through treatment; I got a consultation with an oncologic psychiatrist, to discuss how to wean off antidepressants and why, and fr general advice -this was excellent. At the advice of this psychiatrist, I joined a meditation group for cancer patients, this is guided meditation with the goal of learning to live with uncertainty, and this has helped me tremendously. I also work out very often, and I do it outdoors (jogging) at least a couple of times a week, rain or shine. For the last month, I have been living in an attic with ceiling windows, and I find being able to see the sky, the clouds, the rain and wind all day, while at home, very soothing.

You are doing the right thing by reaching out. As you can see, you aren't alone. As others have said, this IS traumatizing. I second checking out support groups at your cancer center. And you can vent away here. Fell free to reach out by PM.

Heart

LaughingGull

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Jan 2, 2021 04:31PM AngelsGal57 wrote:

Hi everyone. Angelsgal here. I have been on this particular group for quite awhile and wanted to share some very encouraging news.

Back in Sept I found out that the 2nd round of Kadcyla I began in March, (just as covid 19 hit) did not work and my B C had spread in cellular form all over. In lungs, spine, back and my jaw. This was devastating news as we were doing the second round of Kadcyla to get rid of what little cancer remained.

My Dr felt I was an excellent canidate to try a new treatment that had just been approved and I would be the first patient at my hospital to go on it.

I began Enhertu in Oct and we have followed my progress with weekly blood tests. I just finished my 4th infussion and my cancer marker test in 2 weeks went from 34 on the 15th of Dec. to 17 on Dec 22. And overall my white blood cell counts have not shifted over the 3 months and are as strong as ever.

I am blessed to be a test case for this brand new treatment that will give hope to us all.

I see very little about this treatment except on FB they have posted an ad.

Angelsgal

Dx 3/20/2017, Right, 4cm, Stage IIA, metastasized to bone/lungs, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 10/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 11/14/2017 Whole-breast: Breast Hormonal Therapy 7/4/2018 Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Other
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Jan 2, 2021 04:37PM morrigan_2575 wrote:

congrats! Great to hear the new treatment is working!

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/4/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/4/2020 Herceptin (trastuzumab) Targeted Therapy 2/4/2020 Perjeta (pertuzumab) Surgery 6/18/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Targeted Therapy 7/5/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/9/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 2, 2021 04:46PM ElaineTherese wrote:

Great news, Angels Gal. Enhertu. I will try to remember that! Wish they gave new drugs catchier names.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes

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