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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Jan 2, 2021 10:22PM AngelsGal57 wrote:

ElaineTherese

I tried to post a link but it is too large. There seems to be several new treatments coming out and that is so hopeful.

I wish I had others to talk to about their experience with this treatment. I am blazing a trail for others I guess.

Angelsgal

Dx 3/20/2017, Right, 4cm, Stage IIA, metastasized to bone/lungs, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 10/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 11/14/2017 Whole-breast: Breast Hormonal Therapy 7/4/2018 Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Other
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Jan 2, 2021 10:40PM Redcanoe wrote:

That is great to hear! There seems to be a lot of promising research coming out!

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/15/2020 Lumpectomy: Right Chemotherapy 1/12/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/12/2021 Herceptin (trastuzumab)
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Jan 3, 2021 10:55AM morrigan_2575 wrote:

@Angelsgal - there's probably a support group on Facebook. I've seen a few people in my Kadcyla support group that have dropped to go to Enhertu. If not you could always create one and see who joins.

Best of luck!

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 3, 2021 02:54PM SpecialK wrote:

Enhertu is indeed new, but my understanding is that it is only currently for use in unresectable or stage IV. Like all of the previous Her2+ meds though it will likely only be a matter of time before it is approved for early stage, although unresectable covers some ground that can be interpreted a number of ways.

angelsgal - if you use the search function on this site and just type in Enhertu, you will see posts from others who are using it now, there are a number of members who are. I am so glad that this drug is working for you!

youngandscared - Sorry that you are struggling, and I certainly understand it. I participated in a study shortly after I finished chemo that was done by the USF School of Nursing and Moffitt Cancer Center, and used mindfulness and meditation to help with stress. Mindfulness was taught and we were monitored with saliva and blood testing looking at the stress hormone cortisol. The study was looking at the methods outlined in Jon Kabat-Zinn's book Full Catastrophe Living and his methods for controlling worry and living in the moment. I have found what I learned to be the single most important tool for me in learning how to live with quality after having had this diagnosis. This may be a resource that could be helpful to you too - I hope you can find something that is helpful. Here is a link to the author's website, and also to the study.

https://hscweb3.hsc.usf.edu/nursingnews/meditation-based-intervention-reduces-anxiety-fear-and-fatigue-among-breast-cancer-survivors-usf-nursing-study-reports/

https://www.mindfulnesscds.com/

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Jan 3, 2021 05:30PM AngelsGal57 wrote:

question about hair issues. I lost all my hair when I had initial chemo in 2017 and it took 3 months to start growing back.

With Enhertu infusions I have had substantial hair thinning which is something new. Will I eventually lose all my hair as I finish last 2 treatments? I have been taking 10,000 mcg of Biotin and am thinking of taking it twice a day instead of just at night.

Need some help here.

Angelsgal57

Dx 3/20/2017, Right, 4cm, Stage IIA, metastasized to bone/lungs, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 10/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 11/14/2017 Whole-breast: Breast Hormonal Therapy 7/4/2018 Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Other
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Jan 3, 2021 05:39PM - edited Jan 3, 2021 05:39PM by AngieB92

AngelsGal - such wonderful news about your response to Enhertu!! I think this is the wave of the future along with other meds coming up.

I wish I had an answer about the hair thinning. Let us know what you find out

Dx 8/8/2019, IDC, Left, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 9/17/2019 Perjeta (pertuzumab) Targeted Therapy 9/17/2019 Herceptin (trastuzumab) Surgery 3/3/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 4/10/2020 Kadcyla (T-DM1, ado-trastuzumab)
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Jan 4, 2021 03:02PM xYoungandScared wrote:

I want to thank everyone for their responses, and time. I never received notifications that anyone had responded, so I was sad for a bit thinking I was more alone than I initially thought. But I'm so happy to hear that I'm not.

Thank you everyone, and happy new year to you all. I'm still struggling, but not as much as I was when I wrote here.

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Jan 7, 2021 02:10PM Nsbrown54 wrote:

Once we’ve completed TCHP and started HP treatment, are we still immune compromised? Just wondering if it’s safe to go to grocery store (wearing a mask of course)? Other than doctor offices and oncology cente, I haven’t been anywhere else since I started treatment.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Jan 7, 2021 02:33PM SpecialK wrote:

nsbrown - that is very individual, and dependent on a number of factors. How chemo affects blood values is different for everyone - some poeple don't have much of an effect at all, other have a lot. Did you receive Neulasta injections during chemo? If so, those should have offered a level of protection for you. Targeted therapy can depress, or continue to depress, WBC levels post-chemo, but often I think it is a case of a dip from no longer receiving WBC boosters, and the slower rebound of blood values for some patients. Does your MO continue to do a CBC before each infusion of H&P? If not, that may be a good snapshot into making decisions about how much public exposure you and your MO think is tolerable.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Jan 7, 2021 02:51PM Nsbrown54 wrote:

Hi SpecialK - I’m just received the Kanjinti and magnesium, no steroids or Neulasta.They’ll do blood work my next treatment, but otherwise, I won’t get regular blood work like before. I did speak with one of the triage nurses and she suggested that I go off hours, when stores are less busy. She suggested avoiding busy times.

Thankfully, I live in a state where masks are mandatory.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Jan 7, 2021 03:37PM morrigan_2575 wrote:

Im on Kadcyla, it still impacts my WBC/ANC, they're low but, not TCHP low. I go out food shopping and regular stuff. I've just learned to go off hours. My ShopRite is open 24 hours so I go at 6:30am (used to go at 4am). Mostly just me and employees.

I've learned that if you go some place first thing in the morning (as soon as they open) there's not much of an issue.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 7, 2021 04:52PM Nsbrown54 wrote:

Thank you for the input morrigan_2575. Pre BC diagnosis, I had been going Sunday mornings, which is usually a quieter time at our local store.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Jan 7, 2021 09:41PM Taco1946 wrote:

Nsbrown - many stores have senior hours - go then if you can. Or try ordering on line and just picking up. Harder to buy meat that way but we've done fine with everything else.






Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Jan 10, 2021 10:58AM - edited Jan 10, 2021 11:03AM by morrigan_2575

i sigged up to participate in this Phase 2 Clinical Trial. I really like the idea of using vaccines to train the immune system to recognize and attack cancer cells.

https://www.clinicaltrials.gov/ct2/show/NCT0338491...

It's a 2 ARM trial, no Placebo group, i will get a vaccine either way.

There are 2 outstanding questions, one pertains to travel vaccines (I'm supposed to go to Africa in August 🤞🏻), the other is if I can start Nerlynx during the trial or if I have to wait until all boosters are completed (12 months).

For those that have done Nerlynx or vaccine trials or both, what are your thoughts on delaying Nerlynx for 1 year? I looked and, I can start Nerlynx within 2 years of surgery which would be June 2022. So I'll have time since the vaccine portion of the trial should finish March/April 2022.

However, I am a little worried about the delay. Nerlynx has a known benefit, anywhere from 2-5% risk reduction. The Vaccine is unknown but, could have as good or maybe even better results.

Any thoughts or suggestions?

ETA: Per the Dr running the trial in NJ, these vaccines target HER2+ cells/expression because they believe that this is the primary driver even for Triple+. I know that's still a question as to what drives our cancer since we're a sub-category of HER2+ BC.


Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 10, 2021 11:26AM SpecialK wrote:

morrigan - I did a vaccine trial, but did not have Nerlynx as I was treated before it was approved. Your questions need to be directed at the study coordinator for your location since they are pretty specific. I am not sure how they will view Nerlynx or other vaccinations as both may muddy their waters as far as studying the affect on your immunity - my vaccine trial involved a lot of blood draws looking at t-cells. Do you have a date for exchange surgery, or have you already exchanged? There is also a surgical exclusion. I am wondering if another option is to do Nerlynx first and enroll int he trial afterward since it will be open to 2022. The potential issue is the very small number of participants they are recruiting, and they turning you away if they achieve a full trial and close recruitent before your year of Nerlynx is up. Was that your thought on your timing?

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Jan 10, 2021 11:46AM morrigan_2575 wrote:

Special K - I asked the Investigator about Nerlynx, they're waiting for direction from the Sponsor. I also asked about surgery as my Exchange is scheduled for May. I was told I can do the surgery as scheduled there's no restriction there.

I think my options are

1) do the Vaccine Trial and, delay Nerlynx by 1 year but, still do Nerlynx.

2) Don't do the trial and, go straight to Nerlynx in April/May after completing Kadcyla.

3) Start Nerlynx in May after finishing Kadcyla (April), but, only get about 6 months in before quitting to start the vaccine trial in October.

I'm also going to bring all of this up with my MO tomorrow when I go for treatment. My main worry is just the delay of Nerlynx since HER2+ tend to recurr in the first 2 years.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 12, 2021 01:34PM rozem wrote:

hi everyone!

such a long time since ive been on here, glad to see this thread is still going strong. It was invaluable when i was first diagnosed and for many many years after

i had a quick question re: Perjeta - is it now the standard of care treatment for all stages of Her2+ BC? it is added to the taxol/taxotere component of the chemo regime? is it an infusion same as H ? how many does? asking for a friend who was recently diagnosed

so great to see so many new treatments since i was diagnosed

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
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Jan 12, 2021 01:48PM Nsbrown54 wrote:

Hi rozem - My treatment plan has been TCHP for the first 6 chemo treatments, surgery letrozole (oral chemo), which I started after surgery, followed by Kanjinti (herceptin bio similar) and perjeta for 1 year. I have no node involvement, so no radiation.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Jan 12, 2021 02:18PM SpecialK wrote:

morrigan - there is a surgery guideline in the study, can't start within 4 weeks - but maybe this is mastectomy/lumpectomy rather than exhange?

rozem - hey you! I think the Perjeta guideline is 2cm or larger, or node positive. It is infused but there are some Herceptin Perjeta combinations that I believe are injectable - Phesgo is one? The initial standard was adjuvent administration of 6 infusions with the taxane, but now has been approved adjuvently for those with disease remaining at the time of surgery, or clinically high risk on a case by case basis. Some are doing a switch to Kadcyla after surgery if they do not achieve pCR.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Jan 12, 2021 03:19PM rozem wrote:

hey SK!!!! so nice to "see" you, were the old timers here !!! so much has changed since we were diagnosed, i cant believe it. So much more in targeted treatments which is amazing. I know its approved here in Canada for early stage but wasn't sure of the parameters - they may be different in the US but was curious what they are with you guys

thank you NSBrown for your treatment info

interesting as well is the bio similar Herceptin???? I am certainly not an expert but i guess the patent runs out then other companies can produce the drug - is this now being routinely used ?

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
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Jan 12, 2021 04:54PM MsMurphy wrote:

I have a question for those of you who have been around a while. Once, I finish my 6 rounds of chemo, I'll continue on herceptin for the rest of the year. Will the side effects remain similar or can I hope that once I'm off the chemo, things will improve? I'm really hoping to enjoy the summer and regain my life back some after all that 2020 dumped on me.

Thank you!

Dx 8/27/2020, DCIS/IDC, Left, 1cm, Stage IB, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 9/24/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/17/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Targeted Therapy 12/18/2020 Herceptin (trastuzumab) Hormonal Therapy
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Jan 12, 2021 05:42PM Nsbrown54 wrote:

rozem - here’s a link to FDA page about bio similars. https://www.fda.gov/drugs/therapeutic-biologics-applications-bla/biosimilars

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Jan 12, 2021 05:54PM - edited Jan 12, 2021 05:55PM by SpecialK

rozem - yes, oldies, but happy to be so, right? I think a number of centers here is the US are using biosimilars, but I have also read about some more intense side effects than peeps have experienced on Herceptin. Like with many generics, having the tried and true name brand available is helpful. I know there are many who have done better on Arimidex rather than generic anastrazole, and Femara rather than generic letrozole.

msmurphy - in general, yes, you should start to feel better the longer out you are from chemo on Herceptin only. Toward the end of the 12 months of Herceptin I often had a low grade headache, but that was about my only documented side effect. I found that about 6 weeks from last chemo I felt markedly better, and continued to improve from there. I did have some issues with infusion time for Herceptin though - I had received it over 90 mins with chemo, never had hip/leg/back pain. My first Herceptin only they ran in 30 mins - which is acceptable according to the dosing and administration instructions from Genentech - but I had very intense joint pain for a week afterward, I couldn't even sleep I was so uncomfortable. I requested a slower infusion, same as before at 90 mins, and had no further issues. This is anecdotal, but I have read about it too many times on this site over the last 10 years for it not be a credible side effect of fast infusion. Your oncologist should also continue to track your ejection fraction with echo-cardiograms or MUGA scans, and if your LVEF is low that may affect how you are feeling, so keep an eye on that. Some people on Herceptin only continue to have some depressed blood counts, track that as well.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Jan 12, 2021 05:56PM morrigan_2575 wrote:

hi SpecialK - The answer I got back on surgery was not during the initial vaccine (either first 6 weeks for DC-1 or first 9 weeks for WOKVAC. I can do it after that but not within 2 weeks of the booster shots. I can totally work around that, I'm not fixed on the exchange date.

I'm going tomorrow for an Echo and Bloodwork. That's the final screening step to see if I qualify for the study.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 12, 2021 10:28PM Taco1946 wrote:

MsMurphy - I had no SE's from Herceptin alone and was able to manage the 30 minute drip. Echos will be every 3 months though as one know SE of H is heart problems. The headaches I had I am certain were from the AI's, not the Herceptin. Every MO seems to have a favorite AI but ask for another if you have problems with the first one.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Jan 13, 2021 12:07PM MsMurphy wrote:

SpecialK and Taco, thank you so much for that reassurance! I can definitely face 3 months of feeling low better than a year. I will be starting hormone therapy once the chemo is done but not sure what that is yet. I'm a bit nervous as I have a history of not tolerating birth control well but I'll cross that bridge when it is time.

My first herceptin infusion was 90 minutes and the last one an hour. I'm going to be sure to ask the next time what their protocol is on just it. The oncology nurses have been such a wealth of information! I like the oncologist doctor and trust him but the nurses make it so much more understandable and easier to digest and are far less intimidating.

Dx 8/27/2020, DCIS/IDC, Left, 1cm, Stage IB, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 9/24/2020 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/17/2020 Carboplatin (Paraplatin), Taxol (paclitaxel) Targeted Therapy 12/18/2020 Herceptin (trastuzumab) Hormonal Therapy
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Jan 20, 2021 03:43PM Redcanoe wrote:

hi fellow triple positives. I started chemo 8 days ago and so far I am doing okay. I had a full body ct on Friday and I am still waiting on the results so I have lots of anxiety about that. I went into a pretty deep depression when my surgery pathology came back but I've been on an antidepressant for a few weeks now and it is helping a lot. To be honest, the mental battle has been way harder than the surgery or the chemo. To make matters harder, I have had to travel for treatment and isolate for 14 days when I return. I've missed 6 weeks of my kid's lives since November. I shouldn't need to travel again now for a few months hopefully. My kids are so little. My ex came by with our youngest to see me through a window and my poor baby was crying and begging to come in, he couldn't even look at me. He is only 3. I gave him a present of a paw patrol coloring book and then he cheered up but I dont think we can have another visit like that again :( I miss my kids so much. My girls are 11, 8 and 5. My oldest calls me every day and that has been so great. She is very scared and I really want to promise her everything is going to be okay. I at least want to get to a point where I believe i am going to be okay and I am hoping a clear CT will bring me that peace. The prognosis is really good as long as this stupid cancer hasn't spread yet.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/15/2020 Lumpectomy: Right Chemotherapy 1/12/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/12/2021 Herceptin (trastuzumab)
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Jan 20, 2021 05:26PM YesIamaDragon wrote:

Thank you for the update RedCanoe! You have been through a lot already! And with the travel and quarantine your path is extra hard. But I am fairly certain all of us here will agree that the emotional roller coaster is most steep and with the sharpest turns in the beginning. The chemo is rough, but we all got through it one day at a time and so will you! It sounds like now you will be able to get your infusions locally? Hang in there!

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Jan 21, 2021 11:59AM Redcanoe wrote:

My oncologist called this morning and said that the CT was clear of metastatic disease. He did say that there were a few 3 mm spots on my lungs that looked more like unexpelled mucous than malignancy but he wants to do another CT in 9 months. My understanding from obsessively reading posts on this site that spots on lungs are a fairly common finding and usually benign so I'm not going to worry about it and I am taking it as a win that at the end of all this treatment, I'll get another CT for my piece of mind.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/15/2020 Lumpectomy: Right Chemotherapy 1/12/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/12/2021 Herceptin (trastuzumab)
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Jan 21, 2021 12:11PM ElaineTherese wrote:

Good news, Redcanoe! Yes, spots on lungs can be anything. My husband has spots on his lungs and they're nothing. He's been scanned multiple times and they never grow; they're just "there." I'm sorry to hear about how much time you've lost with your kids. That sucks. Hope your chemo goes well, and that you don't have to keep traveling and quarantining, traveling, quarantining. ((Hugs))

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes

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