Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 16, 2012 01:32AM cypher wrote:

SpecialK, unfortunately from what I can tell it's low phosphorus that is potentially linked to anemia.

TonLee, I agree, it doesn't look too new....  There are a lot of numbers thrown around in there and it's hard ot make sense of them -- I imagine in the original article there are charts and such to help.  THe fact that there's an 81% disease free survival at 5 years and 74% at 10 years seems to suggest that, if you make it to 5 years without a recurrence, you have a greater than 90% chance of making it to 10 years without a recurrence.  I couldn't really figure out the death rates though becuase they used absolute numbers rather than percentages.  Also that isn't too meaningful without them breaking it down by stages for you.  Gosh I wish we could get past the abstracts in these articles!

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
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Dec 16, 2012 10:36AM fluffqueen01 wrote:

And at the end of the day, the numbers are like playing the lottery. Some win, some don't, no matter how many times they play. I have a hard time putting a lot of time into figuring out studies as very person is so different. For myself, I tend to think I either don't recur...0%, or I do recur.....100%. No inbetweens.

I am hoping the study I am in finds good results in disabling the her2 protein and its ability to travel. I could deal with a breast recurrence in the breast. It's those distant recurrences I don't like.

BMX 2/10 w/TE Taxol 12 wkly/herceptin- 1 yr/ Tamoxifen now. TE’s fail/TE’s back in.  Implants 11/11- perky!" tatoo touchup remains. Be kind, for everyone you meet is fighting a hard battle. Plato Targeted Therapy 3/13/2011 Herceptin (trastuzumab)
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Dec 16, 2012 11:58AM TonLee wrote:

Fluff,

I do look at the numbers because I'm stage 3.  I probably wouldn't if there wasn't such a big drop (in other studies) between Stage 2 and stage 3 with nodal involvement.  Some days, I need the peace of mind it gives me... some days I have to stay away from the data because it doesn't look so promising.

I'm not a big proponent of the antiquated staging process...certainly don't think ripping out nodes that aren't hot is a good way to do it.......but it is all we have right now and upon which most of the studies break down subgroups.

Mostly what the stats give me is a time frame of "likely" recurrence...and when I pass it, whether valid or not, its a "whew" moment.

Probably just sets us up for a double whammy when it comes back tho....double edged sword, that.

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 16, 2012 12:28PM rozem wrote:

so 7% still had recurrances after 6yrs?  i thought because  this was such an aggressive cancer that recurrances would show up before the 5 yr mark, such a sneaky ass b**tard disease

lee a port was the best thing i did, honestly.  I had to do my last H through IV and thought i was going to pass out.  The port was so easily accessible, not painful at all and made my life (and the nurse) so much easier

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Dec 16, 2012 02:07PM cypher wrote:

Fluff, you are 100% right but still, the numbers are basically on our side so it is some comfort when I’m in hypochondriac mode to remind myself that my odds are good --  not as good as I’d like, but good.  With you on the local v. distant recurrence.  That’s one reason I feel safer with a lumpectomy – totally irrational but I wanted to leave the cancer someplace to go where it’s not REALLY going to hurt me if it “wants” to come back. 

Rozem, I was bit confused by that as well. 

TonLee, IF, not when.  IF.

Hey anyone seen Lago recently?  Hopefully she’s busy with a brand new job.

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
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Dec 16, 2012 02:28PM specialk wrote:

cypher - saw lago on the TCH thread, she has some work and commute time constraints - I was starting to get worried about her, but then she posted!

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC
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Dec 16, 2012 03:02PM cypher wrote:

SpecialK, great!  I know she was looking for work so it sounds like she found something.  Whoever it is, they are luckky to have her.

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
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Dec 16, 2012 04:48PM ashla wrote:

Special K...
Sorry if I missed your post but how did the fat grafting go? Heard great stuff about the process and results.

Dx 10/13/2011, IDC, Left, 3cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Targeted Therapy 11/7/2011 Herceptin (trastuzumab) Chemotherapy 11/7/2011 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery 3/22/2012 Lumpectomy: Left Radiation Therapy 4/23/2012 Breast Hormonal Therapy 7/25/2012 Arimidex (anastrozole)
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Dec 16, 2012 05:18PM - edited Dec 16, 2012 07:13PM by specialk

ashla - very well - he took more than I thought he would, which is great - so far I am happy with the areas he filled, I am just hoping that it stays and is not reabsorbed.  Time will tell.  The recovery has been pretty easy - I am a little uncomfortable but not as bad as I thought it would be.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC
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Dec 16, 2012 06:33PM ashla wrote:

SpecialK....
Great news!

Dx 10/13/2011, IDC, Left, 3cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Targeted Therapy 11/7/2011 Herceptin (trastuzumab) Chemotherapy 11/7/2011 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery 3/22/2012 Lumpectomy: Left Radiation Therapy 4/23/2012 Breast Hormonal Therapy 7/25/2012 Arimidex (anastrozole)

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