Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 16, 2012 07:41PM TonLee wrote:

SpecialK,

Did they take fat from the belly?  Thighs?  Someone posted here that she had streaks in her belly where they sucked out the fat and they don't seem to be going away.....do you have that?

I think belly fat would be a good grafting choice because it is so DANG STUBBORN!

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 16, 2012 09:02PM cypher wrote:

TonLee, it does seem like using belly fat for fat grafting would be one of the very rare win-wins in this whole thing! 

SpecialK, glad it seems to be going well.

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
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Dec 16, 2012 09:22PM - edited Dec 16, 2012 09:22PM by LeeA

SpecialK - I'm excited about your fat grafting!  I had some fat grafting done when I had rhinoplasty several years ago.  Some was added to my lips and and a few other places (upper cheeks I think).  

Also, I bookmarked your bra suggestion that I saw on another thread.  I don't think there's anything I hate to shop for more than I do a bra (ugh).  Right now, bras seem like a distant purchase at the end of a long tunnel but I bookmarked it for the future. 

---

Everyone, thanks for the thumbs up on the port idea.  I think that's how it will all turn out and . . . happy day - the IV was removed today!  The latest one wasn't going to make it through two more doses so the home nurse removed it.  I feel so free to be IV-less for the first time in twelve days!    



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God is with you in all that you do. Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2+ Chemotherapy 1/2/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 7/30/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 10/10/2013 Arimidex (anastrozole)
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Dec 16, 2012 09:51PM specialk wrote:

tonlee - yes, the PS took the belly fat, he feels that it yields fat that is hard to lose when menopausal and gives a good aesthetic result - less likely to dimple.  He went all the way up to just below the implants, plus the hips and just above the butt cheeks on the back, which is the most sore right now.  Everything looks really flat right now but he stressed that I need to wear compression for a while.  He did not remove anything from the thighs - I think this is a place that he feels does not always give a good result, so I am going to have to work on them myself.  When I have made an extra effort in the past they usually firm up fairly well, so it is up to me to work harder. 

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC
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Dec 16, 2012 10:28PM fluffqueen01 wrote:

SpecialK, are you wearing the compression garment 24/7? Mine was like a 50's girdle all the way up to the foobs. It is by Veronique. They are $100 online. As crazy as it drove me, it became somewhat addicting. I had to wear it for 6 weeks.

And, whenever I wear anything fitted, I go back to it because it makes everything look pretty amazing!

Tonlee...just checked everything closely. No streaks. It looks really good. What I have is some looser skin where there used to be fat that I am trying to get toned up. It isn't excessive and isn't flabby. Not sure how to describe it, but it isn't tight.

I completely agree on the percentages, but here is what I was told, and it is why I just can't get past the feeling the numbers don't mean anything in my case.

1. Suspicious mammogram....oh don't worry, only 6 percent it is anything.
2. Surgical biopsy....only LCIS, advised to take tamoxifen
3. MRI ...suspicious...unlikely to be anything.
4. Ultrasound biopsy...results day 1, all clear, then call from surgeon that they think they missed what they needed. Need another surgical, but only 30percent it will be anything.
5. Surgical biopsy...IDC, probably just take tamoxifen as size didn't warrant chemo or radiation
6. Oops, FINALpath arrived later with the FISH. Her2....now we need chemo, herceptin, tamoxifen, etc.

The only thing that they were right about was that it wasnt in my nodes, and I fully expected to wake up hearing that oops, they were wrong. It was in my nodes. In fact, that is the first thing my husband whispered in my ear when I woke up, and he repeated it many times to make sure I got it. Thank heavens too, as I woke up to ten people in my room, lining the walls.

So....that is why I can't put my personal faith in numbers. I like to read them, but just feel Luck is not on my side. Maybe it is because I am coming up on the two year time frame.

I was never a glass half full person,and I am trying to focus on other things to take my mind off BC, but then...I worry that if I take my mind off of it, I won't notice a subtle change that could result in early detection.

Crazy, I know. Like a big circle.

BMX 2/10 w/TE Taxol 12 wkly/herceptin- 1 yr/ Tamoxifen now. TE’s fail/TE’s back in.  Implants 11/11- perky!" tatoo touchup remains. Be kind, for everyone you meet is fighting a hard battle. Plato Targeted Therapy 3/13/2011 Herceptin (trastuzumab)
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Dec 16, 2012 10:53PM beckstar18 wrote:

Pbrain, glad the 2nd and 3rd treatments are treating you better than that 1st.

LeeA, I think you'll be happy with your port decision.  Especially since you'll be getting Herceptin for a year.  The port is so easy.  I put some lidocaine and saran wrap over it about an hour before my appointment and I don't feel a thing when they access it.  Some poor older lady in the chemo chair next to me last Tues had FOUR sticks before they got a vein they could use!  I felt bad for her.  I couldn't imagine going through multiple sticks like that, I don't do well with IVs.

I'm Day 13 (on a 3 week TCH schedule) and feeling great!  Last week was good.  Other than the Big D earlier in the week I haven't had any major SE once I got past Day 5.  Thought my platelets were low last week because I was bleeding from everywhere (nose, gums, vag, rect) but platelets were fine and bleeding has since stopped.  It was weird it lasted for just a couple days, except the period part.  I have Herceptin again Tues, then next chemo Dec 26.

Question about Herceptin treatments, I've only had 2......did anyone get very tired during/right after your infusion?  I noticed a marked tiredness last week about halfway through my Herceptin infusion and the onco nurse said quite emphatically it wasn't the drug.  She said it was because I was sitting still in the chair and just feeling tired.  But I'm not buying it, I really think it was the Herceptin.  And with all the concern about it's effects on the heart I did get worried that I got so tired during the infusion.

Dx 10/18/12, IDC 1.5cm Stage I Grade 3 Triple+ 0/4 nodes *BMX w/TE 11/5/12 *Chemo/Herceptin (TCH) 12/4/12 *Tamoxifen 4/1/13 *Reconstruction (implants) 5/6/13 *Hysterectomy/ Oopherectomy 10/25/13 *Femara 2/1/15 *Craniotomy benign brain tumor 10/5/16
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Dec 16, 2012 11:08PM cypher wrote:

steiner, I didn't last time, which was my first herceptin only one, but I felt tired in the evening.  I've heard that it can make you tired though so I wouldn't worry just because of that.  Some women say that if you slow down the drip it's safer.

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
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Dec 16, 2012 11:12PM cypher wrote:

fluff, try not to worry too much about your 2 year anniversary.  There isn't anyone on this board, and hardly anyone on this website, who ended up on the right side of the statistics with respect to getting this diagnosis in the first place.  But most women with bc these days live so ...

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
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Dec 16, 2012 11:31PM fluffqueen01 wrote:

Thanks cypher....I'm working on it! I'll get there.

Steiner, I was definitely tired on herceptin. Mine started later in the evening also and continued into the next day. Then, ok.

BMX 2/10 w/TE Taxol 12 wkly/herceptin- 1 yr/ Tamoxifen now. TE’s fail/TE’s back in.  Implants 11/11- perky!" tatoo touchup remains. Be kind, for everyone you meet is fighting a hard battle. Plato Targeted Therapy 3/13/2011 Herceptin (trastuzumab)
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Dec 16, 2012 11:33PM - edited Dec 16, 2012 11:35PM by moonflwr912

Yep Herceptin made me tired. But check to make sure they aren't giving you benedryl. Some centers do, even just for Herceptin. Most use it only for the big one, but who knows. However, I got my Herceptin in 30 min and had a big drop in EF. I had to come off Herceptin, so it might be better go do Herceptin slowly. Good luck.
LeeA, glad you got the IV out. I had that in my arm the first time for 4 weeks. The second infection I had they used my port for four weeks, it orchestra, but was less annoying than the iv in my elbow. I am thinking of leaving my port in, because I needed only one tube for a potassium blood test and the first tube they took out, took too long to fill and they had to do it again to get a good result. They just couldn't get any blood out of my hand. This week I have to get a rainbow draw done, they will use my port! LOL. Much love.

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 1/17/2012 Reconstruction (Left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (Left) Surgery 8/14/2013 Reconstruction (Left): Tissue Expander Surgery 9/4/2013 Reconstruction (Left) Surgery 12/13/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant

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