Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 05:30AM - edited Dec 10, 2012 06:55AM by TonLee

Posted on: Jan 31, 2011 05:30AM - edited Dec 10, 2012 06:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 17, 2012 02:58PM bren58 wrote:

TonLee - thinking of you today and hoping you get good test results, and soon!. ((((hugs)))) to you.

Pbrain - you are heading to my neck of the woods. Hope you enjoy your time in Philly!

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/27/2000 Lymph node removal; Lymph node removal (Right): Sentinel Surgery 8/27/2000 Mastectomy; Mastectomy (Left); Mastectomy (Right) Surgery 12/4/2000 Reconstruction (Left); Reconstruction (Right) Surgery 12/1/2009 Reconstruction (Left): Nipple reconstruction; Reconstruction (Right): Nipple reconstruction Surgery 9/10/2012 Lymph node removal; Lymph node removal (Right) Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2- Targeted Therapy 11/29/2012 Herceptin (trastuzumab) Chemotherapy 11/29/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/24/2013 Lymph node removal; Lymph node removal (Right): Underarm/Axillary Hormonal Therapy 7/24/2013 Arimidex (anastrozole) Hormonal Therapy 7/31/2014 Aromasin (exemestane)
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Dec 17, 2012 03:30PM dancetrancer wrote:

Thinking of you TonLee and Jennt, too! 

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Dec 17, 2012 05:43PM moonflwr912 wrote:

(((((TonLee, Jennet))))))
Pbrain, if you are traveling, try taking the prescription stuff they gave you for the trip. I don't usually advocate premedicating, but traveling with the big D is HARD! And. Um, I took Depends with me one in my purse in case I didn't make it. Not fun, but better than smelling.... Good luck.

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/7/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 1/16/2012 Reconstruction (Left) Targeted Therapy 2/15/2012 Herceptin (trastuzumab) Chemotherapy 2/15/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/12/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/19/2012 Arimidex (anastrozole) Surgery 9/9/2012 Reconstruction (Left) Surgery 8/13/2013 Reconstruction (Left): Tissue Expander Surgery 9/3/2013 Reconstruction (Left) Surgery 12/12/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant
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Dec 17, 2012 06:01PM chachamom wrote:

(((ToniLee)))  ....just saying.......ask about an ultrasound of the gallbladder area....I don't think that shows on an X-ray or even an MRI. 

Jill. Age 59. "Life is a shipwreck, but we must not forget to sing in the lifeboats." - Voltaire. No chemo/herceptin and no radiation because the largest of multi focal tumors was 3mm Dx 3/12/2012, IDC, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2+ Hormonal Therapy 5/29/2012
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Dec 17, 2012 07:13PM ArleneA wrote:

Hey, we haven't seen Lago around for awhile.  She must have secured a job!  Hooray!

Dx 1/1/2011, IDC, 1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2+ Targeted Therapy 3/27/2011 Herceptin (trastuzumab) Hormonal Therapy 9/10/2011 Arimidex (anastrozole)
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Dec 17, 2012 07:46PM rozem wrote:

just thinking about lago...

jenn ((((hugs)))) i notice you were diagnosed last year dec, anniversaries are so difficult, especially around the holidays.  Tamox, diagnosis/anniversary dates, surgeries etc it's no wonder we are in a depressed state.  I had my last chemo dec 16 last year, was not a good day this year.  Im glad you are seeing someone, i hope it helps.  I saw 2 different psych's, i can't say they helped but i don't think i gave it enough of a try.  I gave up after the second one told me about a "friend" who had BC and didn't make it.  Yes, folks the psych decided that would be some good info to share with a patient

tonlee - i always get the new kid, i think the intern or maybe the guy who cleans the floors at the hospital did my surgery.  I swear instead of a expander someone decided to implant a tupperware bowl from lunch. 

keep us posted, sending prayers from your sistah in the great white north  

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Dec 17, 2012 08:34PM shanny0826 wrote:

Newbie here, just poking my head in to see what people in a similar situation to myself have to say.  Perhaps as I become more comfortable with what's been going on in my life recently I can add to the discussions somewhat.  It's good to see that I am definitely not alone out here, and that this group seems so positive an supportive.

Dx 10/2/2012, IDC, 4cm, Stage IIB, Grade 3, 0/5 nodes, ER+/PR+, HER2+ Surgery 10/4/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left Targeted Therapy 11/18/2012 Herceptin (trastuzumab) Chemotherapy 11/18/2012 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Dec 17, 2012 08:34PM Omaz wrote:

lago posted on another thread that she is working.

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Dec 17, 2012 08:58PM ArleneA wrote:

Welcome Shanny - we always have the love/hate thing going on welcoming new members but you will find great friends/resources/support here.

Thanks Omaz.  I know when she's working, she's absent from the blog.

Dx 1/1/2011, IDC, 1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2+ Targeted Therapy 3/27/2011 Herceptin (trastuzumab) Hormonal Therapy 9/10/2011 Arimidex (anastrozole)
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Dec 17, 2012 09:50PM fluffqueen01 wrote:

Jenn...you really gave me something to think about. I think you are right. Instead of trying to live my life in what I hope is with no evidence of disease, I am sadly anticipating the shoe dropping. I am going to try to really work on that.

This time of year is tough in general I think, and we are much more emotional when we are with our families.

Tonlee....you are like my 85 year old mom. She won't tell anyone about a problem and then suddenly the bomb drops. Makes me insane, lol. I swear I am going to receive a call one day where she says oh by the way, I won't be here next week. She has always been like that. Called me at work one day to say she drove herself to the hospital for chest pains and they thought she might be having a heart attack. Ok, let me just finish my paperwork and ill drop,by. Lol. Seriously, she drives me crazy.

SpecialK...we're you able to see the link to the garment I have. Mine did not have the thigh part because he never took anything from the thighs. Otherwise it would have been the longline one.

BMX 2/10 w/TE Taxol 12 wkly/herceptin- 1 yr/ Tamoxifen now. TE’s fail/TE’s back in.  Implants 11/11- perky!" tatoo touchup remains. Be kind, for everyone you meet is fighting a hard battle. Plato Targeted Therapy 3/12/2011 Herceptin (trastuzumab)

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