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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 07:30AM - edited Dec 10, 2012 08:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Oct 11, 2021 03:58PM AMG2 wrote:

Oh, one more thing on the sentinel: my sentinel node biopsy site has been completely numb until just this week, and my surgery was Aug 3. Sensation is finally starting to return. I also had what seemed like a pocket of fluid that would accumulate during the day, then drain overnight and be gone by the next morning, and that went on for about a month, maybe a month and a half. That seems to be fully resolved now. Just thought I should give you a heads up that this is another possible result of the biopsy. Probably everyone's experience is a little different.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/2/2021 Lumpectomy: Right Chemotherapy 8/31/2021 Taxol (paclitaxel) Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Oct 11, 2021 07:46PM morrigan_2575 wrote:

@gamzu - they don't inject anything, you have to lay on your side and they put some leads on you and they just use a wand to image your heart. You can actually watch on the screen if it's titled in the right direction.


Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 11, 2021 09:06PM gamzu710 wrote:

Excellent, laying there and doing nothing while they wave an ultrasound wand over my chest, I can do. Watching on the screen might be interesting. My mother, grandmother, and at least one aunt have mitral valve prolapse so it's crossed my mind that there could be an incidental finding.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 11, 2021 11:48PM 1982M wrote:

For me the echo felt like the least invasive test. Just a ultrasound of the heart. I had to move positions and the person doing it pressed on my lumpectomy site (left sided breast cancer) and that was uncomfortable, but other then that it was pretty neutral. I thought it was neat to see the images of my heart.

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Oct 12, 2021 12:11AM 1946Taco wrote:

An echo every 3 months is standard for Herceptin as heart problems is an infrequent but possible SE. Just one more important hassle as far as I was concerned. My recollection is similar to others. Lay on a table and breathe.

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Oct 12, 2021 01:34PM gamzu710 wrote:

Echo was indeed a piece of cake as you all told me it would be. The tech did not explain anything so I could only figure out when she was marking the atria and ventricles. Watching my tricuspid and mitral valves rhythmically snap open and closed was pretty cool. She did it with various colors and recordings of my heart sounds and I had to hold my breath a few times while she held the transducer right below my sternum and right under my thyroid. Not sure what that was about. I've been told the results will be sent to my oncologist's office and I should expect to hear from them, not the cardiologist. Gonna assume it was fine, I guess?

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 12, 2021 02:42PM SpecialK wrote:

gamzu - the ECHO (or MUGA for some) is two things - a baseline against which to compare subsequent exams, and a check initially to make sure your heart is healthy enough for Herceptin. In all of my time here I have never heard of anyone who was not able to initially proceed with HErceptin based on the results of their initial ECHO. What your oncologist will watch for is a 10 point drop in LVEF since last scan, or a 10% decrease in function. Either of those results is enough to cause a Herceptin pause, potentially a cardiologist work up, and possibly protective meds if/when Herceptin is restarted. I have seen a handful of people have to stop Herceptin due to a drop. It is normal to see a few points decrease - I definitely had that - this type of situation is reversible at the end of Herceptin, and most oncologists expect to see it. Also important to bear in mind that the measurements in an ECHO are subjective, i.e. - subject to human error or minute discrepancy because it is a human placing the cursor for measurement with a mouse - that can result in a different score by a few points depending on who does the exam.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Oct 12, 2021 03:30PM morrigan_2575 wrote:

@gamzu - I'm sorry your tech wasn't talkative, all of mine would start explaining what was on the screen when they saw me watching.

If I remember correctly the check up by the throat is so they can "look down" on the heart. I think it's just a different view.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 12, 2021 04:35PM gamzu710 wrote:

I wished she had been! I was a biology major in college and thought about medical school and like having this stuff shown and explained to me in detail. My oncologist immediately pegged me and hauled out the big binders with the literature. Oh, well. This won't be the first echo rodeo so maybe next time I'll push more.

I had my "chemo class" this afternoon and the theme seemed to be "your hair will fall out and you will be tired but most of this stuff probably won't happen to you." Here's hoping. They do an icing protocol with Taxol so I won't have to manage that myself, which is good. The nurse immediately identified my starting weight as an area for close monitoring and had some suggestions about using timers and being more mindful about my eating that I will try to follow. We are going to try to get through all this without a port. Theoretically I'm happy about that but I'm not sure how realistic it is. We'll see. My egg retrieval is on Thursday and the blood draws for that have bruised up the veins in both elbows already.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 12, 2021 10:16PM 1946Taco wrote:

I was glad I had a port but it certainly is yours and MO's personal preference. If you plan on a wig, shop for it now so the sales person can see your color and style. I missed my eyebrows more than my hair (used scarves and hats and actually thought I looked good bald). It's pricy, but if you can swing it, consider permanent make-up. My other problem with Taxol was the constipation/diaherra cycle. I found if I took a laxative the day before chemo, I did better.

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2021 02:06PM - edited Oct 13, 2021 02:07PM by morrigan_2575

my friend did 3 AC and 12 Taxol without a port. She had one put in but it got infected and had to be removed right after her first infusion.

Cool that your place does and icing protocol. Of the 3 places I looked at, none provided that service, not even ice chips. I had to bring a cooler with everything.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 14, 2021 10:16AM - edited Dec 16, 2021 04:48PM by 1982M

Gazmu- my tech wasn't talkative at all. I was really interested in what was going on but they wouldn't say a word. Literally- nothing. All I learnt was my EF was between 60-65 from one of the nurses before my infusion. I am happy and unhappy to have the port. They placed it on my arm so the scar is super hidden and it's easier to ice. I'm still healing and overall annoyed at more healing. It was so tender yesterday when they poked it for chemo. Hopefully it will be fully healed next time. I think I'm more annoyed they didn't get it in before chemo started and it could have healed. Oh well. If I didn't have petite veins to start with I prob would have opted out too.

I'm wondering if any triple positive women were offered a nipple and skin sparing mastectomy?


Anyways- thought I'd see if anyone here had a nipple sparing mastectomy or insight into if Her2+ makes it a no go????? Or any info to share 😊




Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Oct 14, 2021 10:54AM SpecialK wrote:

1982M - I had a skin and nipple sparing bi-lateral mastectomy in 2010, with an almost 3cm tumor, so not low risk. I had surgery first, then chemo as was the much more common practice at that time since Perjeta - which brought the advent of neoadjuvent chemo for tumors over 2cm to recommended order - was not yet used for early stage patients. My natural breasts were in the large B/small C range with no ptosis, and my plastic surgeon indicated at the time that you definitely needed to be a candidate for this type of surgery. Have you had a plastic surgery consult at this point? My understanding is that for nipple sparing to be used you generally need to be on the smaller breasted side to allow the nipple to be in the right place on the breast when the reconstruction is complete. There are some plastic surgeons that remove, or move, the nipple but those surgeons are potentially a little harder to find. Most make an incision in the IMF, place an expander or go direct to implant, and the nipple is close to the original position it was in prior to surgery. If you are larger breasted and wanting to go smaller the nipple will not end up on the front of the breast unless it is moved. Are you planning to reduce the other side?

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Oct 14, 2021 11:18AM - edited Dec 16, 2021 04:51PM by 1982M

Hi SpecialK,

It would have to be a two step procedure for me- so the breast surgeon would and the plastic surgeon would need to reduce my breast bilaterally to a large B/Small C. Then proceed in several weeks to skin/nipple sparing mastectomy. It's usually used for prophylactic mastectomy. They do the reduction and then wait a few week

I really feel like no one gave me many options so I'm planning my own care and then have to present my plan and see if it flies.

I have not seen a plastics Surgeon. I won't get to see one until Nov/Dec.

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Oct 14, 2021 12:36PM SpecialK wrote:

1982M - There are a number of members on this site with breast cancer who have had skin/nipple sparing surgeries, or do you mean the particular order you are considering, or do you mean in your location?

I was initially offered a lumpectomy - that is another thing that made me a candidate for this surgery - my tumor was well away from the nipple. That surgery would have been a disaster for me - I had a bunch of DCIS with cancerization of the lobules in addition to the IDC in the right breast, and a bunch of ALH and ADH in the left breast. Unbeknownst to anyone - even after mammo (which detected nothing), ultrasound which only saw the IDC, and MRI - I had positive nodes that met the size threshold and should have been seen prior to any surgery. I do not image well, and that is what made me opt for BMX over lumpectomy. In addition to having ALND surgery 5 weeks after my BMX, I have had a number of reconstruction issues that made me realize that if I had it to do over again, personally I would have opted for traditional mastectomy incisions, no nipple sparing, and 3D tattoos despite my initial result being beautiful. I do not have nipples now because of the complications I experienced. It is also important to note that almost everyone has no feeling in the nipple after this surgery - it becomes a decoration, and some experience either extreme flattening after the NAC is cored out, or the opposite and they always have to wear a bra. If you have a natural nipple and a relocated one they may not have symmetry or look alike. I am definitely not saying that SS/NS surgery is wrong for everyone, or anyone - and certainly the vast majority do not experience the complications I did - but I thought I should be 100% forthcoming with you. There are members, and people I know locally, who had a great result and look amazing. Unfortunately, this just ended up being the wrong surgery in hindsight for me due to a perfect storm of exceedingly thorough mastectomy, thin pectoral muscles, and thin skin.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Oct 14, 2021 03:18PM - edited Dec 16, 2021 04:52PM by 1982M

really my first choice would be oncoplastic breast reduction. The only reason I would seek a skin/nipple sparing is bc I want to combine the second lumpectomy with a oncoplastic breast reduction to decrease the amounts of surgery. There's a couple ways I've read about that they can do it, but pathology takes along time here (3-4 weeks).

One way would be a second lumpectomy, and wait for results of path. If results are clear (find out after 3-4 weeks) get the oncoplastic breast reduction. Wait several weeks and do radiation. If they aren't clear- go to masectomy and reconstruction.

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Oct 18, 2021 01:02PM LillyIsHere wrote:

Hi Ladies: I am writing for a friend of mine who is triple positive. She started Herceptin injections every 3 weeks on her leg and it is very painful for her. She also develops a huge bruises on the injection site. Do you have any recommendations on what she can use to make this injection less painful?

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
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Oct 18, 2021 01:56PM ElaineTherese wrote:

Lilly,

Many of us received Herceptin as an infusion, not an injection. So, many of us will have no useful advice. Best wishes to your friend!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Oct 18, 2021 01:57PM morrigan_2575 wrote:

sorry, mine was an infusion.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 18, 2021 02:05PM LillyIsHere wrote:

Is there any immunotheray for triple positive that is given as injection on the thighs? I may not remember the name of this injection but it is give under the skin for 10 min.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
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Oct 18, 2021 02:30PM Redkitty815 wrote:

i received my last few Herceptins as an injection. It’s a drug called Hylecta. The injection was about 3 minutes but it might feel like 10! It really does hurt. There is a material bound to the Herceptin that opens up your tissues to receive the drug and it feels like a really long bee sting while you get the injection. My nurses are experimented with using smaller needles and with where they did the injection-I think they learned that the side of thigh hurt less than the top. Good luck to your friend!

Dx 11/26/2019, IDC, Left, 3cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 12/19/2019 AC + T (Taxol) Targeted Therapy 7/12/2020 Herceptin (trastuzumab) Chemotherapy 7/12/2020 Navelbine (vinorelbine) Surgery Lymph node removal; Mastectomy; Reconstruction (left); Reconstruction (right)
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Oct 18, 2021 04:12PM Redcanoe wrote:

the injections are very new. I'm still receiving infusions here in Canada.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/14/2020 Lumpectomy: Right Targeted Therapy 1/11/2021 Herceptin (trastuzumab) Chemotherapy 1/11/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 6/8/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 18, 2021 08:42PM LillyIsHere wrote:

Redkitty815, thank you so much! I will tell her about the side of the thigh since she had hers on top.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
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Oct 19, 2021 02:41PM Bobina123 wrote:

Hi, did your neuropathy eventually get better? thank you!

Surgery 6/2/2020 Double MX; Lymph node removal: Sentinel Dx 6/2/2020, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 7/14/2020 Herceptin; Chemotherapy 7/14/2020 Taxol; HT: Tried Anastrozole but switched to Tamoxifen
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Oct 19, 2021 09:41PM 1946Taco wrote:

My neuropathy resolved very quickly after I finished Taxol.

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Oct 20, 2021 10:47PM gamzu710 wrote:

Well, marking tonight as the last night of my entire life that I will not have had chemo. Weird to think about. I think I'm most scared of some kind of anaphylactic reaction and that I won't recognize the sensations fast enough if it happens. I hate not knowing what to expect.

My close friend also went for her first screening mammogram a couple of weeks ago after her aunt was diagnosed with BC. She ended up being referred for a diagnostic and then a biopsy and is waiting on results. I am both happy that I'm able to return the support she's given me by answering her questions, and loathing the fact that I have the "expertise" to do so.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 21, 2021 08:41AM 1982M wrote:

Good luck today gamzu!

I found my first chemo the most difficult mentally and physically, but since then each of them seem to get easier! I just had round 5 of taxol and have had two rounds or Herceptin.

The thought of a transfusion reaction is scary, especially since your starting chemo and that all seems overwhelming too. Only 1% of people have an allergic reaction and 30% have what’s called a transfusion reaction- however, with the premeds it’s less! I was really nervous about it too the first couple of times- but so far nothing. The fast speed they run it now doesn’t bug me either so I’m happy.

The weekly taxol group had lots of info too if you pop in there!

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Oct 21, 2021 02:49PM Bobina123 wrote:

Hi all, I am finally posting after over a year since diagnosis. At first I could not even read anything about breast cancer, I even threw out the handbook the doctor gave me. It has been a very rough year, but made it through it all during COVID, with the help of my kids and family. I am feeling better physically (still have some neuropathy in feet), but psychologically I am having a hard time. I constantly think about cancer every day and it is hard to switch my dark thoughts "off".... I find myself combing through the internet, almost obsessively, trying to find some sort of "cure".

I was supposed to get a mammogram in March 2020 but it was cancelled due to COVID. The nurse asked me if I wanted to reschedule in 6 months later, but I just had a gut feeling that I needed to ask for the next available slot when they were starting back up (in early May). I had no family history of breast cancer, so I was not concerned at the time. When I went for my mammogram on May 12, I got called back but thought nothing of it. When I found out it was breast cancer, aggressive, triple positive, my life changed forever. I was able to get the double mastectomy by June 2nd, but I keep wondering what if I could have had the mammogram done when I was supposed to in March? Would it have been DCIS and no chemo necessary? And maybe I could have been "cured"? It is a thought that I constantly struggle with. Thank you for help.

Surgery 6/2/2020 Double MX; Lymph node removal: Sentinel Dx 6/2/2020, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 7/14/2020 Herceptin; Chemotherapy 7/14/2020 Taxol; HT: Tried Anastrozole but switched to Tamoxifen
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Oct 21, 2021 04:23PM gamzu710 wrote:

Taxol #1 in the books. It was mostly long, boring, and straightforward except for the waves of burning and cramping in my arm that started as soon as the Taxol infusion went in, followed pretty quickly by a line of red splotches and bumps traveling up my arm along the general vein line.

Things you don't want to hear during your first session from an oncology nurse: "Hmm, I don't like the look of that. And it's already spread all the way up there?" And then the other nurse comes over for a look and goes, "Oh, wow." I did not have any other symptoms, no itching, no distress. She stopped the infusion and put an IV in my other arm to see if that vein would handle it better and the exact same thing happened. But then the other side began to fade and they decided to put in an order for a port placement but to keep going with this infusion with close monitoring unless it got worse. I was able to complete the Taxol successfully at the regular rate but the nurses said it was a mild hypersensitivity reaction and that my veins are too small and don't like the Taxol, so a port should be put in both for my convenience and because the veins won't last 12 weeks otherwise. I'm extremely fair-skinned so even the mildest reactions are very obvious to see.

It's so hard to figure out what's normal. My whole hand and forearm with the IV felt really cold and were noticeably chilled compared to my other arm all morning and I asked to make sure there wasn't IV infiltration or extravasion or whatever and was told it was normal. So when the Taxol infusion was pretty uncomfortable I figured that was normal too, and I wasn't even sure about the spreading blotches. I'm used to my own extremely pale skin and blotches routinely appear and disappear for no apparent reason. I got a rash all over my torso with the second and third Moderna doses and it was a nothingburger. But I've been given clear instructions to watch for any further developing rashes and call immediately if they occur, so I'll follow orders.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 21, 2021 04:48PM Moderators wrote:

Dear Bobina123,

Welcome to the BCO community. We are so glad that you reached out to our members for support and helpful information. We are sure that others will come along to respond to you and offer their tips on how to manage obsessive and troubling thoughts. Keep us posted on how we can be a help to you in finding your way around the boards. You have come to the right place.

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