Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 08:30AM - edited Dec 10, 2012 09:55AM by TonLee

Posted on: Jan 31, 2011 08:30AM - edited Dec 10, 2012 09:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
Log in to post a reply

Page 1323 of 3,995 (39,941 results)

Log in to post a reply

Dec 18, 2012 12:55AM rozem wrote:

welcome shanny! fellow canadian here

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Dec 18, 2012 01:41AM cypher wrote:

TonLee, I am still so hoping it's the gall bladder thingy or ... whatever.  We're here for you but I hope you don't need us!

Jenn - I'm glad you're seeing someone, I hope you can get some relief soon.

Pbrain - good luck tomorrow!  

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
Log in to post a reply

Dec 18, 2012 02:11AM moonflwr912 wrote:

Welcome Shany, and sorry you have to be here.
To all much love.

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 1/17/2012 Reconstruction (Left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (Left) Surgery 8/14/2013 Reconstruction (Left): Tissue Expander Surgery 9/4/2013 Reconstruction (Left) Surgery 12/13/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant
Log in to post a reply

Dec 18, 2012 02:23AM cypher wrote:

steiner, I'm not sure if you're aware of it but TonLee ended up with a herceptin problem (ejection fraction).  I don't know if there's a trend here -- herceptin infusion makes you tired > greater likelihood of developing a problem.  I felt tired, but that basically meant going to bed at 11 pm rather than after midnight, so that doesn't sound too worrisome.  You might ask for them to slow down the drip.  I am probably getting a drip of saline at the same time because I am on a double blind clinical trial -- not sure but I think more likely than not I am in the placebo group. 

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/14/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/26/2012 Herceptin (trastuzumab) Chemotherapy 7/26/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/17/2012 Breast Hormonal Therapy 1/31/2013
Log in to post a reply

Dec 18, 2012 03:13AM Jennt28 wrote:

Sitting here in my 4th last herceptin. Had to "put my foot down" and say I wasn't going to let them run the herceptin without me having seen the Echo result from the test I did last week. They thought they had the most recent one and were telling me that my LVEF was the same as last time - but the copy they were looking at was from September!

Turns out my LVEF has gone down a few percent but still sitting at 63% so I am OK with that since we moved from MUGA to Echo this time and there was bound to be a slight difference.

I can't believe how casual they are about our hearts sometimes...

Jenn

Jennt28 jennt28.wordpress.com/ - 3 x FEC, 11x weekly Taxol, 12 months Herceptin (end March 2013), 12 days rads (quit), BMX with recon, Tamoxifen Dx 12/1/2011, IDC, 2cm, Stage IIA, Grade 3, 1/2 nodes, ER+/PR+, HER2+ Surgery 12/6/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 8/1/2012 Surgery 9/27/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Surgery 1/27/2014 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Hormonal Therapy 3/9/2014 Femara (letrozole)
Log in to post a reply

Dec 18, 2012 09:15AM Omaz wrote:

Jennt - Good for you for insisting!

Log in to post a reply

Dec 18, 2012 10:06AM camillegal wrote:

Wow I'm missing so much--TonLee I's sending hugs for good news ans Jenn too. I think gooing thru testing is so stressful just being in a hispital anymore is a pain--I have to o today and I icking it for no reason, just cuz I don't want o be bothered.And it's so true how young all these Drs. are that hod u'r life in their hands. The last time I asked to see his License--he pointed to the wsll and I said no u'r Drivers License.

Welcome shanny--just pop in when u;r ready, all the ladies here are very warm, caring and knowledgeable (not me) So ask away, rant away orshare u;r knowledge--we welcome all.

Of course my D came back but this time I didnt have it for 3 days--how nice--so I'm loaded up on my meds.every so often I get a few days brake from it.

rozem I hope u'r doing allright.

Dx 2007, Stage IV, 24/38 nodes, HER2+
Log in to post a reply

Dec 18, 2012 07:03PM Pbrain wrote:

Where is everyone today?  Wink  I know, it is Christmas.  I'm trying to decide on my immodium strategy for my trip home tomorrow.  Bren, I'm a Philly native, lived downtown for most of my life.  Where are you from in the area?



Ton Lee, we are hoping we hear bone spur from you in a day or two!

Jane~**~***~**~Put your head down and run like Walter Payton! And for those in treatment, this was my fight song www.youtube.com/watch?v=1q3LEa... Dx 9/26/2012, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+, Surgery 10/16/2012 Lumpectomy: Left Targeted Therapy 11/9/2012 Herceptin (trastuzumab) Chemotherapy 11/9/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 11/30/2012 Taxol (paclitaxel) Radiation Therapy 3/11/2013 Breast Hormonal Therapy 6/14/2013 Arimidex (anastrozole)
Log in to post a reply

Dec 18, 2012 07:20PM LeeA wrote:

I like your photo, PBrain.

Also, have a safe trip. 

God is with you in all that you do. Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2+ Chemotherapy 1/2/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 7/30/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 10/10/2013 Arimidex (anastrozole)
Log in to post a reply

Dec 18, 2012 07:42PM Pbrain wrote:

Ah thanks, that was last Spring when I had hair.  As much work as it is, I really miss having hair...sob, sniff...

Jane~**~***~**~Put your head down and run like Walter Payton! And for those in treatment, this was my fight song www.youtube.com/watch?v=1q3LEa... Dx 9/26/2012, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+, Surgery 10/16/2012 Lumpectomy: Left Targeted Therapy 11/9/2012 Herceptin (trastuzumab) Chemotherapy 11/9/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 11/30/2012 Taxol (paclitaxel) Radiation Therapy 3/11/2013 Breast Hormonal Therapy 6/14/2013 Arimidex (anastrozole)

Page 1323 of 3,995 (39,941 results)

Scroll to top button