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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 04:30AM - edited Dec 10, 2012 05:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Oct 22, 2021 09:31AM Olma61 wrote:

Bobina123, so sorry you are feeling this way. I have two comments I hope will be helpful.

First, outcomes for people with your profile with the HER2+ subtype are very good! I’ve seen some researchers say that the overwhelming majority of early stage HER2+ patients who undergo the recommended treatment DO NOT have recurrence. So it would make perfect sense to look forward to just healing and moving on and to not look back and worry about things you cannot change - like postponed mammogram appts.

Second - can you talk to your oncologist about emotional support services that might be available to you? There is no shame in having anxiety, acknowledging it and seeking some relief from it. Whether that’s therapy, support groups, medication or what have you- find out what support is available and make good use of it!

Good luck and get busy living! Doing things you enjoy also might help push away those unwanted thoughts. Be kind to yourself

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Oct 22, 2021 11:43AM hapa wrote:

Hi gamzu,

I had taxotere instead of taxol, but I got rashes from chemo all the time. Chemo definitely sucks but it's not as bad as the movies make it out to be. In a few months, you'll be walking out the door of your cancer center after your last infusion and you'll discover the joy of being done with chemo. I don't know about everyone else here, but that was one of the happiest days of my life.

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Oct 22, 2021 12:57PM Bobina123 wrote:

Olma61, thank you SO much for your good advice...means a lot.

Surgery 6/2/2020 Double MX; Lymph node removal: Sentinel Dx 6/2/2020, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 7/14/2020 Herceptin; Chemotherapy 7/14/2020 Taxol; HT: Tried Anastrozole but switched to Tamoxifen
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Oct 22, 2021 02:59PM Nsbrown54 wrote:

Hi Bobina123 - sorry you're feeling stressed. Getting a diagnosis is definitely a big stressor. As Olma61 suggested, see what resources your oncology center or hospital has available, whether it's one-on-one sessions or cancer support groups. I've found both can be very helpful. Your primary care doctor may also have recommendations.

Be cautious with internet information about breast cancer. Some sitesprey on cancer patients looking for cures. This site and reputable sites like Mayo, Johns Hopkins, or Cleveland clinic have great resources. Or reach out to your oncologist for info.

Have you seen a neurologist for treatment of your neuropathy? I’ve been working with a neurologist (for medication), getting acupuncture and walking 2 miles every day. It’s really helped to reduce my neuropathy pain.

There's also a thread for sharing positive survivor stories Breast Cancer Topic: Looking for Her2 Positive survivor stories. Check it out.

Take care.

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
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Oct 22, 2021 03:18PM AMG2 wrote:

Gamzu, I'm so sorry about your friend - not the expertise I wish any of us had - , and sorry it was rough today, but am really glad you're getting a port and being monitored. I can't say as I like mine, but I am really grateful for it, given the number of blood draws and infusions we're all having to deal with over the next year. I really hope it makes things more comfortable and less rashy for you. My infusion nurses told me the first taxol is usually the worst in terms of reactions, and I hope you don't have any more for the rest of them. Either taxol or herceptin gives me a rash, but it's mainly on my face and chest, and has gotten worse over time (# 8 was done on Wed). I kind of look like I have measles most of the week, and I cannot wait for that to go away.

I know a lot of people say to make sure you drink enough water, and I'm going to join anyone saying that: make sure you drink enough water, or tea or some liquid that is palatable, especially this weekend. I wish I could bring you some soup. Hang in there.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/2/2021 Lumpectomy: Right Chemotherapy 8/31/2021 Taxol (paclitaxel) Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Oct 22, 2021 06:49PM 1946Taco wrote:

Bobina - I'm sorry you didn't find us sooner as we might have been able to help you deal with some of your anxiety. Looking at your diagnosis, I'm guessing that if anything, a mammogram much earlier wouldn't have found your tumor so you would have been later, not sooner, at getting a diagnoses. Regardless of the size of your tumor, everyone who is TP gets chemo. Your tumor was small and prognosis should be very good. Don't look back - you can't change it. Just look forward.

Gamzu - I have never been sorry to have had a port. Not sorry to have it out either but with Herceptin it was the right choice for me. They can do your blood draws from your port too.

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Oct 24, 2021 11:37AM - edited Oct 24, 2021 11:38AM by gamzu710

Side effects from #1 so far not bad but I am freaking out. I just looked at the bloodwork results posted in my oncology portal and my liver enzymes are high. This was the pre-chemo blood draw. No one has reached out to me about this and I'm reading that lots of things can cause this transiently, particularly drugs, and I was on a lot of various things for my egg retrieval right before chemo started that could be culprits, but I'm very worried.

They're not just a little bit high. ALT and AST are both more than 4x the highest end of the normal range. Alk Phos is also somewhat high but at least within shouting distance of the reference range. I looked at the bloodwork my PCP did back in May and everything was normal. ALT has jumped from 10 to 229, and AST has gone from 15 to 160.

I sent a message to my oncologist and I'm pretty sure the answer is going to be to just see what the next bloodwork says, but has anyone had this and it turn out to be nothing? Obviously my mind is going straight to mets. The SNLB was negative so we didn't look but I know from reading on here that isn't always foolproof.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 24, 2021 07:33PM SmoothOperator78 wrote:

gamzu710 - mine went up above the normal range - x2 not x4, so my PCP ordered a hepatitis panel and an abdominal ultrasound. Both were normal. The LFTs went back down.

If it's high two or three tests in a row, give a call your PCP about it if your oncologist doesn't do anything.

Dx 7/20/2021, IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/5/2021 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/31/2021 Taxol (paclitaxel) Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Radiation Therapy 12/16/2021 Whole-breast: Breast
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Oct 25, 2021 06:57AM Bobina123 wrote:

Thank you all for your advice... I really appreciate it. Grateful to have this support group....

Surgery 6/2/2020 Double MX; Lymph node removal: Sentinel Dx 6/2/2020, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 7/14/2020 Herceptin; Chemotherapy 7/14/2020 Taxol; HT: Tried Anastrozole but switched to Tamoxifen
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Oct 25, 2021 08:02AM Redcanoe wrote:

My ALT and AST significantly increased after my first round and I had to have a reduced dose of docetaxol for the next four rounds. My liver numbers are great now 5 months post chemo.

Toni - age 34, mom to 4 kids ages 11, 8, 5 and 3 Dx 11/19/2020, DCIS/IDC, Right, 2cm, Stage IIB, Grade 3, 2/5 nodes, ER+/PR+, HER2+ (IHC) Surgery 12/14/2020 Lumpectomy: Right Targeted Therapy 1/11/2021 Herceptin (trastuzumab) Chemotherapy 1/11/2021 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 6/8/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 25, 2021 08:54AM gamzu710 wrote:

Got an initial response from the NP that elevated liver enzymes are normal on Taxol, which made me scream in frustration because my entire concern is that my enzymes are way high BEFORE Taxol even started. It was like they put me into a "Taxol patient" box without looking at when the labs were actually drawn. But I replied back pointing that out, and the NP called and discussed it with me.

The hypothesis right now is that all the medication for the egg freezing may have mildly inflamed my liver and that we should watch and wait and it will probably normalize. They don't want me to get concerned about underlying pathologies right now. The NP said I have been through a lot in the last month even without chemo. Which is true.

So, I'm going to try to take a deep breath. It has crossed my mind that if my numbers were that high before the first dose of Taxol, how bad are they going to be next time, but one step at a time, I guess. But I've basically stopped taking all OTC meds and supplements because I don't know what might be contributing, and I'll hope for the best pain-wise with the port placement on Wednesday because there is no way I'm taking anything with Tylenol in it right now if my liver is already mildly upset.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 27, 2021 04:37PM moodyblues wrote:

It's been a very long time since I have been on this site, a very long time. I recently changed over to Exemestane last week after being on Letrazole for almost 4 years and I'm having terrible issues with sleep now. I am hoping that someone can give me some tips on what they did to get some rest, maybe the magic time that worked for them to take this med. I've tried it right before I dropped in bed, I've tried it a half hour before bed. I am tired! When I do finally fall off to sleep, I wake up over and over; I do fall right back to sleep though, thankfully. I work and was afraid how it may affect me if I took it during the day. Anyone?

cross posted. Smile


Thanks!

Dx 2/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 3/31/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab)
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Oct 27, 2021 06:17PM 1946Taco wrote:

I always took my AI's in the morning. Maybe try that on a weekend.

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Oct 27, 2021 07:02PM AMG2 wrote:

Gamzu, do you have any recent (like within the last year) bloodwork from before the egg harvest protocol that included liver enzymes? I'm sorry you're having to point out the obvious to your team - very frustrating, and hope you get some actual answers soon, and that your enzymes revert to normal.

While I've had other issues with taxol, my liver enzymes have actually decreased, so while it is an established side effect, it doesn't necessarily happen.

For port pain, I don't know if it affects liver enzymes or not but if not, have to look that up, but cbd tincture worked very well for me.

Just finished number 9 today with a further dose reduction due to neuropathy. This is so gruelling at this point. I don't know why these last 4 seem so impossible to do. Usually by Tuesdays I'm back to normal, but not the last two weeks. Was still super tired and nauseated yesterday. And then comes radiation. :/


Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/2/2021 Lumpectomy: Right Chemotherapy 8/31/2021 Taxol (paclitaxel) Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Oct 27, 2021 07:47PM - edited Oct 27, 2021 07:50PM by gamzu710

AMG2--Yes, I had routine comprehensive bloodwork in May and had ALT 10 and AST 15. Now it's ALT 229 and AST 160. So not only is it 4x the upper end of the normal range, it's like 10-20x higher than my own baseline 5 months ago. I'm sitting here gritting through the port placement pain without taking anything because I know for a fact that Tylenol inflames the liver and I was on a lot of Advil prior to last week's bloodwork due to Covid booster side effects so I can't be sure that didn't exacerbate it either.

The more I think about it, the more upset I am. I was chatting to someone yesterday on another board who had her Taxol paused with liver numbers better than mine. Searching this board has also turned up several people who had pauses or dose reductions with lower numbers than I have. I'm suspecting that my labs weren't even reviewed before we started and it was just assumed that because it was baseline, it would be fine. If they were reviewed, I would have expected someone to speak to me and acknowledge that my liver enzymes were starting out very high but they were going to proceed anyway and why. I have #2 tomorrow and I will NOT be letting that happen again.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 27, 2021 08:39PM moodyblues wrote:

1946Taco

I thought about that but, was worried about the SE's during the day. I have off tomorrow and Friday and will give it a try, thanks for your response! I'll let you know!


Dx 2/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 3/31/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab)
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Oct 28, 2021 09:30AM Bobina123 wrote:

Hi,

my first oncologist he recommended that I stay on hormone therapy for 10 years (I am currently taking Tamoxifen) but my current oncologist told me that I only needed to stay on it for 5 years (I am triple positive, but estrogen 25%)....Not sure what to do? I still have plenty of time to figure this out, but thought I would ask the group? Thank you!

Surgery 6/2/2020 Double MX; Lymph node removal: Sentinel Dx 6/2/2020, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 7/14/2020 Herceptin; Chemotherapy 7/14/2020 Taxol; HT: Tried Anastrozole but switched to Tamoxifen
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Oct 28, 2021 02:38PM ElaineTherese wrote:

Bobina123,

My oncologist is having me do hormonal therapy for 7 years because a recent study said that 7 years was as good as 10. I should note that 95% of my cancer cells had estrogen receptors, not 25%. See:

https://www.breastcancer.org/research-news/2-more-years-of-arimidex-after-hormonal-treatment-offers-same-benefits-as-5

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Oct 28, 2021 02:51PM morrigan_2575 wrote:

hi Bobina. - ask your MO to order the BCI (Breast Cancer Index) test. It's used to determine if there's a benefit in staying on Tamoxifen or AI for longer than 5 years.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 28, 2021 03:38PM Bobina123 wrote:

Thank you, Morrigan_25, I appreciate your advice!

Surgery 6/2/2020 Double MX; Lymph node removal: Sentinel Dx 6/2/2020, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 7/14/2020 Herceptin; Chemotherapy 7/14/2020 Taxol; HT: Tried Anastrozole but switched to Tamoxifen
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Oct 28, 2021 03:49PM 1946Taco wrote:

Someone should be able to give you a link to do your own Index predictor about continuing on AI's. Sorry I can't. Maybe Special K?

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Oct 28, 2021 03:49PM gamzu710 wrote:

My complete bloodwork results just posted to my portal and clearly the egg freezing meds were making my liver angry because they have now dropped precipitously given some time off. ALT 39, AST 28. Not quite my personal baseline but normal range! And I can stop fretting that something more sinister is going on.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Oct 28, 2021 05:37PM 1982M wrote:

Glad to hear! Phew!

Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)
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Oct 31, 2021 06:50PM hnsquared wrote:

Lilly…..I’m late to the party but I just finished my year of Herceptin/Perjeta in injection form. It’s called phesgo and the injections take 5ish minutes to inject. So I’m wondering if the issue is with the nurse who is doing the injection? I have never had an issue. I feel the initial stick and then we chat and I’m done. I got a bruise once but it wasn’t my regular nurse and she pinched my thigh to do the injection. It was more uncomfortable that way and I did bruise. They alternate which thigh. I’m happy to answer any other questions if you/your friend have them. I was so happy not to have to do it through infusion.


198….I had skin sparing/nipple sparing direct to implant at the time of my bilateral mastectomy. It was my breast and plastic surgeon that offered me that option. I don’t think my her2 status had anything to do with it….I think it was related to my tumor location, tumor size and what I desired for results. Happy to answer any questions if I can.

Heathe

Dx 2/20/2020, IDC, Left, Stage IB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/21/2020 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 11/11/2020 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Herceptin (trastuzumab)
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Oct 31, 2021 08:38PM gamzu710 wrote:

Just shaved my head, a bit impulsively. I've only had 2 Taxol infusions and haven't even started shedding yet but have been completely fixated the last few days (including stressful dreams 3 nights in a row) on when it would start, so I decided to jump the gun and make my choice. The idea of waiting for it to fall out and stressing about how much would fall out and if it was time to buzz yet seemed worse to me than just going ahead. I actually don't hate it at all and I'm a bit surprised at how not-upset I am. I have an OK head shape for it. I will be wearing scarves and hats but in an alternate universe where I had more self-confidence, I think I could pull this bald look off. Maybe I'll be full of regret tomorrow but for now I'm certainly not cringing looking in the mirror. I've always harbored a curiosity about what it would be like and I guess now I know.

Surgery 7/28/2021 Lumpectomy: Right; Lymph node removal: Sentinel Dx 8/3/2021, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Chemotherapy 10/20/2021 Taxol (paclitaxel) Targeted Therapy 10/21/2021 Herceptin (trastuzumab)
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Nov 1, 2021 07:36AM ElaineTherese wrote:

gamzu,

I did the same thing. I had really long hair when I was diagnosed, and I dreaded the thought of it coming out in clumps. So, I got my hair buzzed to 1/4 inches. It was a relief.

Glad to hear that your head's a good shape! I never went out bald in public; just didn't want the pitying stares.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Nov 1, 2021 10:09AM Cowgirl13 wrote:

I had barely started to lose my hair and had a buzz cut as I just didn't want to find clumps of hair on my pillow. Doing that spared me a lot of pain.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Nov 1, 2021 06:00PM 1946Taco wrote:

I too liked the way I looked bald. It came back. But with the AIs I now have a bald spot on top that I hate. I do threaten to shave it all off again.

Dx 11/22/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Radiation Therapy 12/28/2016 Balloon-catheter Targeted Therapy 2/2/2017 Herceptin (trastuzumab) Chemotherapy 2/2/2017 Taxol (paclitaxel) Hormonal Therapy 12/3/2017 Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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Nov 1, 2021 06:31PM AMG2 wrote:

Gamzu I'm really glad things are looking better and that you gave yourself some control over your hair, AND that it's not a look you hate.

Have to say, I'm a little envious of all of you with nice shaped heads. Got a really bad haircut once, basically a buzz cut when I was in my 20s, and had to have a passport photo taken with it, and let's just say I do not have a nice shaped head. I was very glad to have my hair grow out after that one, and partly decided to cold cap because I'm not in my 20s anymore and having that passport for 10 years pounded it into my head that I look pretty bad when bald or nearly so. :-)

Hope everyone is doing alright this eve. I've got #10 taxol + herceptin coming up on Wed. Partly I want to just hurry up and get this over with, but the neuropathy is kind of getting to me. I'm having trouble writing by hand now. Also my nails are starting to bleed and ooze, not too bad, but still ... just ugggghhh. 3 more. Just 3 more.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/2/2021 Lumpectomy: Right Chemotherapy 8/31/2021 Taxol (paclitaxel) Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Nov 1, 2021 09:16PM - edited Dec 16, 2021 01:57PM by 1982M

gamzu - first of all, ignore my post on the weekly taxol chat since you shaved it. Second- good choice on the head shave!

I shaved my head on Friday and feel 100% better. I was genuinely curious with the hair falling out? But the anticipation and constant checking has quit now that it's gone. Also it hurt so bad it was waking me up at night so I'm glad it's gone, and I'm glad you skipped over that stage!

I also feel fairly confident with my bald head. My kids were more upset then I had hoped. My middle guy started crying. The social worker encouraged me to have them involved, but I actually think it would have been better to go to a salon, but bc they were all a little freaked out. We had take out, and carved pumpkins to make it a fun night, but they were still not happy about it. My youngest was ok but a little weirded out. My teenager was sad too. I think my husband was sad too shaving it. I was the only one who seemed ok. I prefer my bald head to my shedding hair.

AMG2: I'm sorry your having some rough side effects. 3 more is SO close to done. I find it really is flying by.

Thanks for Heather!

I've been wondering a bit about neratnib for triple positive patients after I finish Hercepti. I was reading that it's showing effectiveness in the patients with both HR and Her2. I'm wondering if any triple positive patients have gone on to have neratnib or want your oncologist say about it? I only get these brief phone calls and last time it was with an associate and not my MO so i didn't ask but its been on my mind.


Dx 7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel Dx 9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+ Targeted Therapy 9/22/2021 Herceptin (trastuzumab) Chemotherapy 9/22/2021 Taxol (paclitaxel)

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