Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 05:30AM - edited Dec 10, 2012 06:55AM by TonLee

Posted on: Jan 31, 2011 05:30AM - edited Dec 10, 2012 06:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 19, 2012 12:21PM bren58 wrote:

I don't go back to the BS until mid February and get another MRI. From the beginning all I have heard is chemo, ALND and rads. I am just not sure I want to do all that, especially since I fall into a category that there really is no standard protocol for. As all the doctors have said, I am not in the text books, not even in the back pages of special notes. They still can't decide if it is a recurrance or a new cancer even after taking a second look at the slides from 2000. Being "special" is not all it's cracked up to be! I also have an appt with my PS in February to find out what the implications of ALND and rads would be on the implants I already have. I would hate to loose them after all time, since I have come to accept them and made peace with them!

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/27/2000 Lymph node removal; Lymph node removal (Right): Sentinel Surgery 8/27/2000 Mastectomy; Mastectomy (Left); Mastectomy (Right) Surgery 12/4/2000 Reconstruction (Left); Reconstruction (Right) Surgery 12/1/2009 Reconstruction (Left): Nipple reconstruction; Reconstruction (Right): Nipple reconstruction Surgery 9/10/2012 Lymph node removal; Lymph node removal (Right) Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2- Targeted Therapy 11/29/2012 Herceptin (trastuzumab) Chemotherapy 11/29/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/24/2013 Lymph node removal; Lymph node removal (Right): Underarm/Axillary Hormonal Therapy 7/24/2013 Arimidex (anastrozole) Hormonal Therapy 7/31/2014 Aromasin (exemestane)
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Dec 19, 2012 02:04PM shore1 wrote:

Bren, so glad to read your news. I love to read good stuff like that!

PBrain, have a nice trip back to Philly. I know you have the Big D, and that sucks, but maybe it will stop & you can enjoy a cheese steak at Pat's or Gino's while you're home Wink

TonLee, catching up on all the posts - praying all turns out well. Sorry you're having to stress about this crap right before Christmas.

Cgesq, my center is in Philly, but there is a thread on here for NY/NJ/PA - not sure if you have seen it. You might get some good recommendations from some North Jersey or NY girls there.



Dx 6/6/2011, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/21/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/20/2011 AC + T (Taxol) Targeted Therapy 11/15/2011 Herceptin (trastuzumab) Hormonal Therapy 2/11/2012
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Dec 19, 2012 02:38PM - edited Dec 19, 2012 02:38PM by dechi

Bren, 

I was in the same boat as you, except you were further out than my 9 years when I had my 2nd diagnosis.  They couldn't decide what to call mine either, but finally settled on a local recurrence b/c it was the same type of cancer, in almost the same spot.  THis time I got Herceptin and rads, didn't the first time....Things change over the years, hopefully for the better!

2003 Stage 1 IDC, ER+, PR+, HER2+ with R MX, chemo w/CMF. Local recurrence 09/11, stage Ib, grade 2, ER+ 90%, PR+ 80%, HER2 + by FISH, 0/17 nodes, AC x 4, Taxol/Herceptin x 12, Hercpetin x 1 year, rads 33 Dx 9/15/2011, IDC, Right, 1cm, Stage IB, Grade 2, 0/17 nodes, ER+/PR+, HER2-
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Dec 19, 2012 03:05PM Mirmirpanda wrote:

Hello ladies. I just found out yesterday that I am triple positive. All the oncologist said about it was its better than triple negative. Gonna have my surgery in a few weeks and discuss treatment. Nervous but hopeful! You might even say positive ;)

It's snowing here today, I got to take my 4 month old out in the snow, she loved it!!! I hope everyone has a wonderful holiday!

I came here to kick ass and chew bubblegum.... and I'm all out of bubblegum!!! Dx 11/26/2012, IDC, 4cm, Stage IIIC, Grade 2, 17/17 nodes, ER+/PR+, HER2+ Surgery 1/8/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right; Reconstruction (right) Chemotherapy 2/25/2013 AC + T (Taxol) Radiation Therapy 8/26/2013 Lymph nodes Surgery Mastectomy: Left; Reconstruction (left)
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Dec 19, 2012 03:17PM Omaz wrote:

Welcome Mirmirpanda!  I like your avatar.

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Dec 19, 2012 03:26PM shore1 wrote:

I had nipple reconstruction today & port out. Kinda hurts a lot more than I was expecting. Love when doctors say it won't hurt but you might feel "some discomfort" - that's when it usually does hurt! ha ha. Wondering what those who've had this reconstruction wore the first few weeks after the procedure? My PS said no bra or compression. I'm thinking cami's without the buit in bra and loose fitting clothes? Hate not wearing a bra for 2 weeks.

Dx 6/6/2011, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 8/21/2011 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/20/2011 AC + T (Taxol) Targeted Therapy 11/15/2011 Herceptin (trastuzumab) Hormonal Therapy 2/11/2012
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Dec 19, 2012 03:37PM Omaz wrote:

shore1 - Congrats on the port out!

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Dec 19, 2012 03:47PM ArleneA wrote:

Welcome Mirmirpanda.  I'm guessing you'll end out with TCH as the treatment. 

Dx 1/1/2011, IDC, 1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2+ Targeted Therapy 3/27/2011 Herceptin (trastuzumab) Hormonal Therapy 9/10/2011 Arimidex (anastrozole)
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Dec 19, 2012 04:15PM - edited Mar 23, 2013 04:33PM by Waitingforthenextstep

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Dec 19, 2012 04:57PM camillegal wrote:

Welcome Mimirpanda--good avatar--but thst's not why u'r here. Well u've come to a great thread==these women are awesome with their knowledge.

Shire1 we know when they say some discomfort--get ready for pain and when they say u might have pain with this--u'r better off biting down on a bullet and let it explode in u'r mouth--that would be less painful,

Dx 2007, Stage IV, 24/38 nodes, HER2+

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