Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 04:30AM - edited Dec 10, 2012 05:55AM by TonLee

Posted on: Jan 31, 2011 04:30AM - edited Dec 10, 2012 05:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 20, 2012 06:47AM ashla wrote:

Great news Jenn....Just what was needed this am. Every am really. PM too.
Welcome Mimirpanda......

Dx 10/13/2011, IDC, Left, 3cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Targeted Therapy 11/6/2011 Herceptin (trastuzumab) Chemotherapy 11/6/2011 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery 3/21/2012 Lumpectomy: Left Radiation Therapy 4/22/2012 Breast Hormonal Therapy 7/24/2012 Arimidex (anastrozole)
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Dec 20, 2012 07:06AM rozem wrote:

yay jenn!!!! 

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
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Dec 20, 2012 07:15AM bren58 wrote:

Yay Jenn! Good news is always great to hear! Hope all heals quickly.

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/27/2000 Lymph node removal; Lymph node removal (Right): Sentinel Surgery 8/27/2000 Mastectomy; Mastectomy (Left); Mastectomy (Right) Surgery 12/4/2000 Reconstruction (Left); Reconstruction (Right) Surgery 12/1/2009 Reconstruction (Left): Nipple reconstruction; Reconstruction (Right): Nipple reconstruction Surgery 9/10/2012 Lymph node removal; Lymph node removal (Right) Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2- Targeted Therapy 11/29/2012 Herceptin (trastuzumab) Chemotherapy 11/29/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/24/2013 Lymph node removal; Lymph node removal (Right): Underarm/Axillary Hormonal Therapy 7/24/2013 Arimidex (anastrozole) Hormonal Therapy 7/31/2014 Aromasin (exemestane)
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Dec 20, 2012 09:55AM - edited Dec 20, 2012 09:56AM by Rhonda2

Hello Everyone,

I'm new to the board and love reading all the posts of support and truths about treatment for this awful disease.  I was fortunate to get four consults and chose a doctor that so far has been very supportive and informative about Lumpectomy versus Mastectomy and explain how the survival rates are the same.  I choose Lumpectomy but am hopeful that I will only have one surgery and not have another one to "clear the margins".  I have also met with my Oncologist who says he is giving me TCH and will treat me aggresively because I am premenapausal.  I'm a little scared of how I will be ill for so long with this treatment, but if it saves my life it will be worth it.  Surgery is scheduled in 8 days and I'm praying all goes well.  My prayers go out to everyone that has to deal with this cancer. 

Dx 11/16/2012, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 12/28/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 1/24/2013 Herceptin (trastuzumab) Chemotherapy 1/24/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 8/3/2013 Femara (letrozole)
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Dec 20, 2012 10:01AM beckstar18 wrote:

Welcome Mimirpanda and Rhonda! 

Bren, I didn't realize this is your 2nd go around with BC...how did I miss it in your siggy??  As others said though, treatments now are more advanced and targeted.  This time we'll get it for good!! :)

Jenn, glad to hear your surgery went well and the surgeon is optimistic about no cancer.  I've had a long history with ovarian cysts (had a big one rupture last month actually, right after my bmx).  Had surgery 2x to remove bigger ones, 9cm+.  And I've been on BCP for years to suppress them, makes me wonder if the extra estrogen/progesterone from the BCP contributed to my BC diagnosis.  I quit the pill earlier this year actually because of that reason, I heard it raised my risk for cancer then ended up getting it anyway. Go figure!  Anyway I hope you're up and at 'em soon!!

Dx 10/18/12, IDC 1.5cm Stage I Grade 3 Triple+ 0/4 nodes *BMX w/TE 11/5/12 *Chemo/Herceptin (TCH) 12/4/12 *Tamoxifen 4/1/13 *Reconstruction (implants) 5/6/13 *Hysterectomy/ Oopherectomy 10/25/13 *Femara 2/1/15 *Craniotomy benign brain tumor 10/5/16
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Dec 20, 2012 10:18AM Rhonda2 wrote:

I had a very large benign cyst that engulfed my ovary when I was only 22.  I was successful in having two beautiful children with one ovary left, but fear the ovary left behind has been a contributing factor to my bc because I'm still having regular periods and no signs of menapause.  I read that one woman who had bc was told to have her ovaries removed because they were producing too much estrogen which was feeding her cancer.  After ovary removal she responded to chemo right away and is now in remission.  I asked my dr about removing my own ovary but they were against it.

Dx 11/16/2012, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 12/28/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 1/24/2013 Herceptin (trastuzumab) Chemotherapy 1/24/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 8/3/2013 Femara (letrozole)
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Dec 20, 2012 11:06AM Eileenohio wrote:

TonLee...  My thoughts and prayers with you.

Dx 12/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2+
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Dec 20, 2012 11:06AM Jennt28 wrote:

My MO knew about the surgery and didn't feel that it was necessary to remove my ovaries and my gynae surgeon, after initially getting enthusiastic about whipping everything out, seemed to decide to take the easy route and leave "what ain't broke".

I need to go and find a good general gynae now to continue follow-up over the long term.

Jenn

Jennt28 jennt28.wordpress.com/ - 3 x FEC, 11x weekly Taxol, 12 months Herceptin (end March 2013), 12 days rads (quit), BMX with recon, Tamoxifen Dx 12/1/2011, IDC, 2cm, Stage IIA, Grade 3, 1/2 nodes, ER+/PR+, HER2+ Surgery 12/6/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 8/1/2012 Surgery 9/27/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Surgery 1/27/2014 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Hormonal Therapy 3/9/2014 Femara (letrozole)
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Dec 20, 2012 11:36AM cypher wrote:

Jenn, glad to hear the good news.

Rhonda, welcome and sorry you have to be here. I'm glad you're happy with your medical team.  Some of us don't have too bad SEs with TCH -- others, not so lucky, but you might be in the group that tolerates it fairly well.  Btw, you may not know about Penguin Cold Caps.  It's an expensive PITA, but I still have most of my hair and it made the whole chemo experience a lot more tolerable.  I didn't have to feel like a cancer patient all the time, and now that I'm done with chemo, I don't have to wait for my hair to regrow.  Anyway if you're interested there's a thread over there.

TonLee, I am thinking of you and hoping that you have good news, or at least not awful news, to report when you're ready to check back in.  I know you're not a hug kind of gal, but ((hugs)) anyway.

Pbrain, hope your tx is going as well as possible this week.

Mstori --you haven't posted in a while ... hope you're just busy with holiday stuff. 

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/13/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/25/2012 Herceptin (trastuzumab) Chemotherapy 7/25/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/16/2012 Breast Hormonal Therapy 1/30/2013
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Dec 20, 2012 02:02PM ang7894 wrote:

Yay Jenn!!    

How is Pbrain? 

True where is Mstori---

Anyway Doing ok my headaches are from stress not from tamox Yay I guess. Got  to figure out how to chill and stop worrying and arguing about everything ERRR holidays don't help .

All chemo done!! last one was April 30th 2012 radiation Done!! Last one was June 22nd 2012 tamox started on Sept 29th 2012 for 5 years!!! Herceptin until March 12th 2013 All Done!!! ER+ 68% PR+ 96% HER2NEU + 3 Angie Dx 12/1/2011, IDC, Left, 2cm, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 12/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/22/2012 AC + T (Taxol) Targeted Therapy 3/18/2012 Herceptin (trastuzumab) Radiation Therapy 5/7/2012 Breast, Lymph nodes Hormonal Therapy 9/28/2012

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