Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 06:30AM - edited Dec 10, 2012 07:55AM by TonLee

Posted on: Jan 31, 2011 06:30AM - edited Dec 10, 2012 07:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Dec 20, 2012 04:10PM Omaz wrote:

Welcome Rhonda!  I'm glad you found us and have joined our group.  You can talk about anything here.  Have you discussed getting a port with your mo?

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Dec 20, 2012 04:25PM cypher wrote:

ang, that's good re the headaches.  At least you won't have them for 5 straight years!

Dx 4/2012, IDC, 4cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/13/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 7/25/2012 Herceptin (trastuzumab) Chemotherapy 7/25/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/16/2012 Breast Hormonal Therapy 1/30/2013
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Dec 20, 2012 04:27PM - edited Dec 20, 2012 04:28PM by ashla

Welcome Rhonda.....
I went the lumpectomy route as well however I had neoadjuvant chemo so my surgery came later.
For me the surgeries..port placement, sentinel node, lumpectomy and port removal ..were no problem at all. I didn't even need a tylenol afterward. Only pain was the dye injection around the nipple prior to sentinel node biopsy .

Dx 10/13/2011, IDC, Left, 3cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Targeted Therapy 11/6/2011 Herceptin (trastuzumab) Chemotherapy 11/6/2011 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery 3/21/2012 Lumpectomy: Left Radiation Therapy 4/22/2012 Breast Hormonal Therapy 7/24/2012 Arimidex (anastrozole)
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Dec 20, 2012 04:42PM Pbrain wrote:

Cypher and Ang, I'm sprung this week.  No chemo!!  I'm in Philly hanging with my family and just loving the break.



Welcom to all the newbies!

Jane~**~***~**~Put your head down and run like Walter Payton! And for those in treatment, this was my fight song www.youtube.com/watch?v=1q3LEa... Dx 9/26/2012, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+, Surgery 10/15/2012 Lumpectomy: Left Targeted Therapy 11/8/2012 Herceptin (trastuzumab) Chemotherapy 11/8/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 11/29/2012 Taxol (paclitaxel) Radiation Therapy 3/10/2013 Breast Hormonal Therapy 6/13/2013 Arimidex (anastrozole)
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Dec 20, 2012 05:00PM Katharine2411 wrote:

Quick question ... Been waking up with a fever for 14 days now ... Usually 100.3 or so. Goes away With Tylenol. Did 12 weeks a/c and 9 of 12 weekly taxol and herceptin. 3 more to Go!!! Doc is checking me for TB of all things but he thinks its a menopause symptom. Anyone heard of that?

Dx 6/10/2012, DCIS, 6cm+, Stage IIIA, Grade 3, 3/6 nodes, ER+/PR+, HER2+ Surgery 6/15/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/1/2012 AC + T (Taxol) Targeted Therapy 9/30/2012 Herceptin (trastuzumab) Radiation Therapy 1/27/2013 Breast, Lymph nodes
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Dec 20, 2012 05:01PM cgesq wrote:

Glad everyone's surgeries seem to be going well.

Welcome to the newbies!  This really is a great thread.

Thanks for the oncologist suggestions.  I called the breast center at Sloane Kettering to get an appt there, and was told that I can't just make an appt.  I need to send them in all my paperwork, (including pathology reports and "recent scans") and then they would call me back as to when (or even if) they will see me!!!  When I told them the only scans I had were an MRI of my breasts, and my breasts no longer existed because I had a bmx this summer, the woman on the phone said I would have to get a more recent scan, because the summer was 5 months ago.  I kept trying to explain that there was nothing left to scan, and she just seemed very confused.  I then moved on to what type of breast cancer I had and what type of chemo I was on, and she just sounded very bored and repeated that I needed to send them in all my paperwork, and they would get back to me. I got the impression that unless I had some unique mutation, or some rare form of breast cancer that they could study and publish a paper on, they were not interested.

The whole experience left me very frustrated.  I think I will seek out a less prestigious hospital.  Perhaps they will be more willing to see me, and my non-exotic illness!!

Dx 6/14/2012, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 7/24/2012 Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Targeted Therapy 9/11/2012 Herceptin (trastuzumab) Chemotherapy 9/11/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/3/2013 Reconstruction (left); Reconstruction (right)
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Dec 20, 2012 05:16PM ashla wrote:

Cqesq
I've heard similar stories from many people re MSK and other research hospitals. I chose not to go that route.

Dx 10/13/2011, IDC, Left, 3cm, Stage IIA, Grade 2, 0/0 nodes, ER+/PR+, HER2+ Targeted Therapy 11/6/2011 Herceptin (trastuzumab) Chemotherapy 11/6/2011 Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery 3/21/2012 Lumpectomy: Left Radiation Therapy 4/22/2012 Breast Hormonal Therapy 7/24/2012 Arimidex (anastrozole)
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Dec 20, 2012 05:55PM moonflwr912 wrote:

Welcome Rhonda.

Sometimes life SUCKS! Sometimes it doesn't. I prefer when it doesn't! If you're ever bored, read my biography. Bring snacks..... LOL Monica Dx 11/11/2011, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 12/8/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 12/8/2011 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 1/17/2012 Reconstruction (Left) Targeted Therapy 2/16/2012 Herceptin (trastuzumab) Chemotherapy 2/16/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/13/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 8/20/2012 Arimidex (anastrozole) Surgery 9/10/2012 Reconstruction (Left) Surgery 8/14/2013 Reconstruction (Left): Tissue Expander Surgery 9/4/2013 Reconstruction (Left) Surgery 12/13/2013 Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant
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Dec 20, 2012 06:29PM Waitingforthenextstep wrote:

cqesq

         I had much the same frustrating experience trying to get an appt with a BS at Sloan.  I had to send EVERYTHING! Written reports, CD's of every mammo, sono, stereo, and reports.  Then I had to locate the lab that had my slides and arrange for samples to be sent to Sloan.  They won't take you without the slides.  Many call backs, and dealing with the same person, they finally gave me an appt with the BS of their choice.  I don't know how they decided to take me, but a big part of it is sending them all of the reports.  If you are missing something, they will call you back to send it. UPS and at your expense.  If you really want Sloan, just try to suck it up and give them what they want.  So much the better for your chances. 

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Dec 20, 2012 08:01PM LeeA wrote:

Welcome, Rhonda.  Best wishes with your upcoming surgery and ditto what cypher said - glad you're happy with your team.  

God is with you in all that you do. Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2+ Chemotherapy 1/1/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 7/29/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 10/9/2013 Arimidex (anastrozole)

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