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Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

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Posted on: Jan 31, 2011 06:30AM - edited Dec 10, 2012 07:55AM by TonLee

Posted on: Jan 31, 2011 06:30AM - edited Dec 10, 2012 07:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Jan 31, 2011 05:59PM TonLee wrote:

I dread driving in for Herceptin tomorrow morning on the ice!!!

Hope we don't lose power.  We're all electric here so it will mean no water (well) and no heat (except for gas logs)....so if I am not on for a few days....lol, I'm freezing and thirsty in Ohio!!

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Jan 31, 2011 06:06PM sheila888 wrote:

Hi to all my Triple+ Sisters.

I just stopped by to tell you I was one of the first patients Stage I to get Herceptin.

It was approved April 2005 and I had 4X A/C 4X Taxol with 52 weeks of Herceptin and radiation between.

In 2 months hopefully Ill be celebrating my 6 year anniversary.

HUGS

PS: Until to this day I dont know the difference between HER+ & HER+++

My oncologist said it was 2.2

♥

Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/13/2015 Mastectomy: Left; Prophylactic mastectomy: Right Dx 11/2018, IDC, Stage IV, metastasized to bone/liver/lungs, Grade 2, ER+/PR+, HER2-
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Jan 31, 2011 06:16PM Omaz wrote:

hillck - Congratualtions on your path report - WOW that's great!  I am interested in the crosstalk.
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Jan 31, 2011 06:17PM eandomom wrote:

Here is a link to a report that my radiation oncologist gave to me when I was flipping out about the HER2 - - - Nutshell being that as far as survival better HER2/ERPR+ than HER 2 negative ER/PR-It made me feel a little better. . .

Dx 6/15/2010, IDC, Stage IIB, Grade 3, 1/10 nodes, ER+/PR+, HER2+
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Jan 31, 2011 06:18PM lago wrote:

Seyla that's great! wow 6 years!!! Keep it going girl.

TonLee My onc told me everything at my 1st visit. What chemo, Anastrozole for 5 years (in writing with a graph showing the benefits) etc. She told me I would need a bone density test and we would be rescanning my liver. She told me Rads was still questionable and I'd have to discuss with the Rad onc. She was up front about everything. I think you need to let your onc know you want the entire picture.

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2-
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Jan 31, 2011 06:53PM sheila888 wrote:

Hi Cindy...I got Herceptin as part of my treatment. I'm pretty sure it was legally approved June 2005 and my chemo started July 2005.

Im so grateful for it and All the women who went under clinical trials to be approved in such a short time because they were saying its too good to hold the Herceptin for early stage BC..

Thanks for explaining the HER+

Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/13/2015 Mastectomy: Left; Prophylactic mastectomy: Right Dx 11/2018, IDC, Stage IV, metastasized to bone/liver/lungs, Grade 2, ER+/PR+, HER2-
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Jan 31, 2011 06:55PM sheila888 wrote:

Thanks lago. I'm still going .........Wink
Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/13/2015 Mastectomy: Left; Prophylactic mastectomy: Right Dx 11/2018, IDC, Stage IV, metastasized to bone/liver/lungs, Grade 2, ER+/PR+, HER2-
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Jan 31, 2011 07:04PM TonLee wrote:

Lots of good info!  I am gonna have so many questions for my Onc next week...lol

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Jan 31, 2011 07:53PM geewhiz wrote:

Cindy, I remember reading about the crosstalk issue awhile ago. I think the jury is still out. From what I remember, the tamoxifen in combination with herceptin is incredibly powerful. If there is reason to believe that there is a resistance developed (I guess this means a recurrance while in treatment), then the endocrine therapy can be changed. The signalling pathways do not necessarily remain resistant...so its reversible....which is a good thing.

The tides are constantly changing on this aren't they? I was talking to my onc about an AI. She remains steadfast that until its proven that tamoxifen is less effective in her2 women, it remains the gold standard. I try to stay on top of the studies....right now I am sticking with the tamoxifen, and tolerate it well.

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Jan 31, 2011 10:26PM kriskat wrote:

Add me to the growing list of triple positive (ER 90%. PR 70% and Her2 3).  I did have a lumpectomy today and will get results Thursday. Dr said all went well and thinks he got good margins( i am a dcup so he had alot work with) Took 4 nodes, Dr thought at least one might be positive since it was a little enlarged on the ultrasound.  On the other hand, the radiologist didn't see anything to be worried about on the mri that I had friday.  The key to the sentinel biopsy injection  is the emla creme and ice-I had ice for about 1 hour and felt nothing-much easier than I expected. At this point, I am looking forward to getting this show on the road with treatment.  My sisters and mom are driving me crazy, they just want to hove.  The coordinator at the the breat center expressed how lucky we were that so many drugs out now and in the pipeline for triple positives-even though it seems we are a small subset.  Anyway, looking forward to connecting with you gals going forward!

Dx:1/6/11; IDC Stage IIb 2.0 cm,1/11 nodes, ER/PR/Her2+

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