Posted on:
Jan 31, 2011 06:30AM
- edited
Dec 10, 2012 07:55AM
by
TonLee
T
Beavercreek, OH
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Posted on:
Jan 31, 2011 06:30AM
- edited
Dec 10, 2012 07:55AM
by
TonLee
TonLee
wrote:
This is primarily for people who find themselves with THREE +'s by their diagnosis.
If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment."
http://community.breastcancer.org/forum/6/topic/797454
IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads
Dx
9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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laughinggull
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Mar 16, 2023 03:25PM
laughinggull
wrote:
Hi tld,
I am so happy of hear of the encouraging news and reaction of your onco. I will be thinking of you tomorrow, since you will have the pelvic MRI and I myself will be going to the oncologist for a check up. Fingers crossed for you, sister! Let us know when you get your results. You are strong and you can do this. We are on your side! 
LaughingGull
ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation.
Dx
10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2-
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tld2017
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Mar 17, 2023 10:42AM
tld2017
wrote:
Laughinggull, thanks so much for thinking of me! I am leaving shortly for the pelvic MRI and trying not to be too afraid. I hope your appointment goes well today too! Also, thank you for the encouragement, reminding me that I am strong and that I have emotional support through this group - that is a treasure to me! My appointment to get the results is next week on the 23rd - the waiting is so hard. But I will try hard to distract myself and think positively! Happy St. Patrick's Day to all here!
Dx 1/5/18, IDC, 1.3 cm, Stg 1, Gr 1, 0/2 nodes, ER+/PR+/HER2+, Lump & SNB 1/18, Chemo finished 6/18, Treatment plan:12 wks Taxol/Herceptin/Perjeta, 6 wks of daily rads, 1 yr of Herceptin/Perjeta, Arimidex 10 yrs, Nerlynx stopped/acute kidney failure
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specialk
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Mar 17, 2023 10:52AM
specialk
wrote:
tld - I wanted to chime in and add my support - I know you're worried but also want you to know you have folks out in the world who are lifting you up and hoping for the best for you. In your pocket today, with fingers crossed.
BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018.
Dx
9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC
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tld2017
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Mar 17, 2023 02:10PM
tld2017
wrote:
Thanks, SpecialK! I remember you from five years ago when I first started this journey and hope you are doing well! I think there was another sweet lady that posted back then too, I want to say her name was coachvicky? I hope she is doing fine as well. I was so nervous today and with having to wear a mask in the MRI machine, the tech said I was breathing too deeply and she had to do one of the sequences twice but other than that and some difficulty with getting an IV started, it was all good. My results will be in mychart by Monday morning but I know I will be too nervous to look and will wait until the appointment on the 23rd. Thank you for the emotional support - it is appreciated!
Dx 1/5/18, IDC, 1.3 cm, Stg 1, Gr 1, 0/2 nodes, ER+/PR+/HER2+, Lump & SNB 1/18, Chemo finished 6/18, Treatment plan:12 wks Taxol/Herceptin/Perjeta, 6 wks of daily rads, 1 yr of Herceptin/Perjeta, Arimidex 10 yrs, Nerlynx stopped/acute kidney failure
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specialk
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Mar 17, 2023 03:03PM
specialk
wrote:
I remember you too, and I am sorry that you are facing this unknown situation at the moment! I am hanging in there! Coachvicky did indeed post here back then, I was fortunate enough to meet her in person when she came here to have a second opinion appt with my MO. She has not posted in a while, and I know her DH had some health issues, I am also hoping she is doing well. Glad the MRI is done, but I know the wait for results is hard - distract yourself, if possible, between now and your next appt. Sending you light...
BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018.
Dx
9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC
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emily_mh
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Mar 18, 2023 11:17AM
- edited
Mar 18, 2023 11:30AM
by
emily_mh
It's been awhile since I've been on here and I'm always so grateful to read everyone's thoughtful posts and advice. I am 5 years out from chemo, radiation, lumpectomy and am wondering why I never thought about having an oophorectomy? I am on arimidex and will be for another 5 years but am thinking I should just have this surgery. I don't have any problem with arimidex but my mother in law just passed from ovarian cancer and it got me thinking why not remove my ovaries? I am 51 and in menopause so from what I've read there aren't any negative side effects from the surgery. Has anyone here made this decision for themselves? I am going in for a yearly checkup next week and will ask about it but would love to hear feedback from this community. Thank you!
Dx 6/23/2017, Left, 4cm, Stage IIB, ER+/PR+, HER2+ Chemotherapy TCHP
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elainetherese
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Mar 18, 2023 06:29PM
elainetherese
wrote:
Hi!
Even if you removed your ovaries, your MO will still recommend Arimidex because your body will still make estrogen. An ooph is a substitute for estrogen suppression via Zoladex or Lupron. For example, I'm (still!) not menopausal at 55, so I'm doing Zoladex + Aromasin. I could skip the Zoladex by getting an ooph, but I haven't done that. My OB-GYN is just not a fan of removing healthy ovaries, even though she would if I insisted.
Is there a history of ovarian cancer in your family? There is in my husband's (two of his aunts passed from ovarian cancer).
DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year
Chemotherapy
7/23/2014 AC
Targeted Therapy
9/17/2014 Perjeta (pertuzumab)
Targeted Therapy
9/17/2014 Herceptin (trastuzumab)
Chemotherapy
9/17/2014 Taxol (paclitaxel)
Surgery
1/12/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Underarm/Axillary
Hormonal Therapy
2/25/2015 Aromasin (exemestane), Zoladex (goserelin)
Radiation Therapy
3/9/2015 Breast, Lymph nodes
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emily_mh
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Mar 19, 2023 06:05PM
- edited
Mar 19, 2023 06:07PM
by
emily_mh
Hi Elaine! thank you for your response. There is not a history of ovarian cancer in my family. My sister had breast cancer too. But don't we triple positives have an increased chance of ovarian cancer? I think my Dr. will be the same. She prob won't be a fan of removing healthy ovaries but she will if I would like to. I'm not a fan of unnecessary surgery either but I'm not reading about any downsides. I'll have to talk more with my doctor about this for sure. Thanks again, I greatly appreciate your info.
Oh I should add - I don't mind the Arimidex. It doesn't bother me at all. I just was thinking why not try to prevent ovarian cancer if I can.
Dx 6/23/2017, Left, 4cm, Stage IIB, ER+/PR+, HER2+ Chemotherapy TCHP
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tld2017
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Mar 23, 2023 10:31AM
tld2017
wrote:
I got the results of the pelvic MRI this morning and there is no convincing masslike quality in my sacrum. No convincing pathologic enhancement identified in the visualized pelvis to suggest metastatic disease. I still have a lot of pain and numbness so something is wrong and my oncologist faxed over the info to my ortho dr. to see what else can be done for me, BUT this 20+ mm "tumor" is not showing up at all now! Since it was first found six weeks ago, I have also had a CT scan and a whole body bone mri with and w/o contrast done and those two tests also did not see it. The oncologist said no more tests for now! I am pretty stunned and in shock.
Dx 1/5/18, IDC, 1.3 cm, Stg 1, Gr 1, 0/2 nodes, ER+/PR+/HER2+, Lump & SNB 1/18, Chemo finished 6/18, Treatment plan:12 wks Taxol/Herceptin/Perjeta, 6 wks of daily rads, 1 yr of Herceptin/Perjeta, Arimidex 10 yrs, Nerlynx stopped/acute kidney failure
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joules44
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Mar 23, 2023 02:12PM
joules44
wrote:
I am THRILLED for you! I've been following your journey with this and I am just over the moon with happiness for you. I, too, was diagnosed around 5 years ago with no lymph node activity and it was shocking to hear that this path we're on could change so suddenly. I mean, of course I know it can, but I don't typically spend much time thinking about that. Anyways, enjoy this amazing news with your family. This is the best thing I'll hear this week!
Dx
4/2018, DCIS/IDC, Right, 1cm, Stage IB, Grade 3, ER+/PR+, HER2+
Chemotherapy
10/15/2018 Taxol (paclitaxel)
Surgery
Lumpectomy (Right); Lymph node removal (Right): Sentinel
Hormonal Therapy
Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Femara (letrozole)