Topic: TRIPLE POSITIVE GROUP

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Jan 31, 2011 01:30AM - edited Dec 10, 2012 02:55AM by TonLee

Posted on: Jan 31, 2011 01:30AM - edited Dec 10, 2012 02:55AM by TonLee

TonLee wrote:

This is primarily for people who find themselves with THREE +'s by their diagnosis. 

If you are new to breast cancer, please click on the link below and read.  It is "What I Wish I Knew At the Beginning of Treatment."

http://community.breastcancer.org/forum/6/topic/797454



IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Feb 1, 2011 05:36AM libraylil wrote:

weight  groan. Since chemo stopped in November I have been making a concerted effort to eat better (fruits, veg), very limited sugar, no snacking unless fruit and smaller amounts.  My appetite is not like it was prechemo.  Went shopping and have gone down a pants size.  Lost some lbs, but I think since I stopped eating so much crap it has really helped.  If it would warm up here I would exercise more.

   This is a great thread.  Its nice to have support from other triple pos.  While I did have a scans before I still obsess about something getting out.  Since my response to neoadjuvant chemo was good the oncologist feels like the chemo took care of any wayward C.

   I've been seeing the surgeon so much for the last couple of months and am now getting a reprieve from him to start with the rad oncol and I'll see the oncologist during my hercepting treatments.  I asked the surgeon yesterday about my prognosis and all he said was "I can't give you a number".  I don't want a number, but how about a "it looks promising" or what ever.  Even though he does specialize in cancer surgery, I guess cutting is his thing.  He always mentions the 3 positive nodes and says "The cat was out of the bag from day one".  The oncologist tells me not to worry about the lymph nodes because of my response to chemo.  As you can tell I am back in lymph node obession mode. libray lil

Dx 7/15/2010, ILC, 3cm, Stage IIB, Grade 3, 3/14 nodes, ER+/PR+, HER2+ Chemotherapy 8/3/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/6/2010 Herceptin (trastuzumab) Surgery 1/3/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 4/5/2011 Breast, Lymph nodes Hormonal Therapy 7/4/2011 Arimidex (anastrozole)
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Feb 1, 2011 05:41AM lago wrote:

libraylil Your BS is not the person to get the statistical information on your prognosis. He is correct in not giving you a number. That is your oncs specialty. Your BS has a general idea but your onc will give you stats specific to your diagnosis. Ask your onc. Lost 1 pant size! Way to go.
DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2-
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Feb 1, 2011 05:45AM Fighter_34 wrote:

Just sending some love:

I read too fast and I thought this post belonged to my sub-group TN. However, we do have something in common we are all one sign.

Hang in there ladies and well wishes...

Dx 8/30/2010, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Feb 1, 2011 05:52AM TonLee wrote:

Crosstalk from what I understand so far (please correct me if this is wrong) is defined as:

Interactions and cross signaling from the HER2 receptor to other growth factor receptors (like ER) may potentially contribute to therapeutic resistance.

It seems very cell specific...certain cells react a certain way, while others in another...generally I'm finding things like this within the last 5 years:

the combination of Herceptin with tamoxifen can sensitize BT/HerR cells to Herceptin, suggesting that the combined therapy with Herceptin and tamoxifen might be a viable therapeutic strategy for ER-positive and Herceptin-resistant human breast cancer.

http://jme.endocrinology-journals.org/cgi/content/full/41/5/367

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Feb 1, 2011 06:36AM TonLee wrote:

I can't look at any more research today...it depresses me.

I'm off to work out!

IDC, 2cm, Stage IIIa, Grade 2, 4/4 nodes, ER+/PR+/HER2+, Skin Sparing uni-MX with TE, TCH, Rads Dx 9/14/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/4 nodes, ER+/PR+, HER2+
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Feb 1, 2011 08:21AM - edited Feb 1, 2011 09:52AM by libraylil

kim40  meet library lil the lymph node obsesser!! My oncologist keeps telling me not to obsess about my 3 positive nodes.  That he has ladies with 22 positive nodes that are doing great 7 years out. Since you had positive nodes I'd be interested in what your onco told you about the "node thing".  The rest of you that have lived through my earlier lymph node obsession, I apologize.  libray lil
Dx 7/15/2010, ILC, 3cm, Stage IIB, Grade 3, 3/14 nodes, ER+/PR+, HER2+ Chemotherapy 8/3/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/6/2010 Herceptin (trastuzumab) Surgery 1/3/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 4/5/2011 Breast, Lymph nodes Hormonal Therapy 7/4/2011 Arimidex (anastrozole)
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Feb 1, 2011 09:18AM - edited Feb 1, 2011 09:19AM by Margerie

Hi Everyone~

I am a 5 year triple + gal.  I also have a good friend who is triple+ and 4 years out Smile  I was 38 years old when I was diagnosed with three kids (ages 2,4 and 6)  That first year was REALLY tough.  Next year was reconstruction and more herceptin.  Last 3 years have been really, really great.

I did mastectomy, chemo, rads, bilateral DIEP reconstruction, had my ovaries removed and have been on Arimidex for almost 5 years.  My onc will probably recommend another 5 years of Arimidex.

I highly recommend the Her2 Support Board  

It is not affiliated with breastcancer.org but it is another fantastic website with TONS of information on their message boards.  Including discussion on Her2+/Tamoxifen.

Best to all of you!

Margerie

Are we there yet? Dx 10/4/2005, IDC, 2cm, Stage IIIA, Grade 3, 5/19 nodes, ER+/PR+, HER2+
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Feb 1, 2011 10:31AM kriskat wrote:

TonLee:

The BRCA test was the first thing my bs ordered since I was young(36) and no family history.  Fortunately, it was negative!!!  One good thing so far out of this ordeal.

Dx:1/6/11; IDC Stage IIb 2.0 cm,1/11 nodes, ER/PR/Her2+
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Feb 1, 2011 02:35PM Smile_On wrote:

My BRCA test was negative too.  Since it is so rare to get IDC in your 20's without BRCA+ they are considering sending me to a different genetic specialist on the other side of the state.  I'm not sure what they will be looking for there.  I guess I will find out at my follow up appt. with my breast surgeon's PA in March.  I've stumped quite a few doctors already, but it doesn't seem like it is that rare any more for younger people to have b.cancer.  I have met 1 other person BRCA- in their 20's and there are many people on the forum that are young too.

Dx 5/21/2010, IDC, 2cm, Stage IIB, Grade 3, 1/18 nodes, ER+/PR+, HER2+
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Feb 2, 2011 11:35AM pasmithx2 wrote:

Just found out that I'm +++ as well.

I was diagnosed 29/11/2010 but have been hung up with surgery since then. I FINALLY got some good news from the surgeon today that he has done all that he can do and it's now time to talk to the oncologist (this Fri) for the next steps. 

No doubt I will be back with questions for you all.

Dx 11/29/2010, IDC, 2cm, Stage IIA, 0/28 nodes, ER+/PR+, HER2+

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