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May 7, 2012 12:02PM
Hey vjm, I was just thinking of posting here to ask YOU how YOU are doing! I guess you are now day 3 post...hang in there sweetie...I know the ride can be pretty rough...but it will end. Just not soon enough, LOL! I wonder what is causing the aching knees? I hadn't heard of that as a side effect of TCH. Maybe it's the Herceptin? Or are you getting neupogen/neulasta? If so, that can cause bone pain, but taking Claritin can prevent the bone pain from being really bad.
I am now day 6 post my 2nd TCH. This 2nd round has been better for me so far - less severe diarrhea/constipation fluctuations. I really think that probiotic plus drinking prune juice/having prunes on my oatmeal daily is a big help. I've got thrush AGAIN, lovely. Doing the old magic mouthwash to keep it under control as best I can. I started a low-grade fever again as of yesterday; my counts are into "moderate" (Grade III) neutropenia today. Onc still wants to hold off on Neupogen. I assume he does not like to give it unless the counts go into Grade IV. I suspect I'll be there by tomorrow, since nadir for TCH is days 7 to 10. We'll see!
I've switched to Herceptin at the lower weekly dose, so I go in for my weekly Herceptin tomorrow.
My worst symptom this round has been again, severe indigestion. It presents as uncomfortable burping, burning/tightness/pain in my chest (yeah, doc knows...doesn't seem to think it is heart related...make sense...I feel relief when I burp), and nausea. This is despite taking the max allowable of every med given to me - Zofran, Protonix, magic mouthwash (has Maalox in it), Pepcid, and even a few TUMS when I was desperate and not due for any other med. I talked to them today, and they are going to double up my Protonix. Crazy. I'm not surprised, though, since I had severe reflux PRIOR to chemo. At one point I had to be on double Nexium and Reglan to stop breakthrough symptoms. So I am quite hopeful the double Protonix will help. Hate to do it, but the symptoms just aren't manageable, and I need some relief. This chemo/dex is doing a number on my GI system, for sure. I hope I'm not doing any permanent damage to my esophagus!
Ah well, guess I sound like a complainer. Can't help it...in the mood to vent! I feel a little better now just getting it out. I totally understand the being more emotional. This stuff takes its toll on ya.
I may curl up with a movie this afternoon. Let's try to enjoy our couch time!!! Thinking of you!!
Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.