Jan 28, 2012 12:14AM fluffqueen01 wrote:
Dancetrancer...before my her2 report came back, my BS said if it was negative, that I was in the gray area for chemo due to size (a smidge under 1cm and only a small part of that invasive,rest was lcis and dcis).
The positive her2 changed all that. I immediately needed herceptin. I interviewed 3 oncologists. All three said chemo with herceptin. I said why not just herceptin? They said that the herceptin studies were done with chemo, and there is not enough long term info on herceptin alone, so at the moment, they operate on the side of what they do know, and that is the two together work.
Concerning radiation...I am kind of surprised they encourage that. None of my docs recommended that. I insisted on meeting with a RO before Bmx, and even he said no, unless it was in my lymph
nodes. Im glad to have that in my back pocket for later in case it comes back.
The onc I settled on recommends herceptin for virtually everyone that is her2+, feeling that it is very sneaky and little cells like to hide. It is very expensive, however my insuance company aproved it immediately. I suspect that the the cost I was given anf the cost that actually transfers between the docs and insurance might be substantially different, otherwise it is about 70,000 I think.
I also take tamoxifen, although it annoys me as I was not that er/pr positive.
My chemo plan as a little different than many and I think beter tolerated. Very little nausea, tired a litle, some joint pain. I had taxol weekly for 12 weeks so it was never dose dense. If you go the chemo/H route, ask your docs. Two of the ones I interviewed recommended that. The other suggested 18 weeks of a trio that included adrymiacin. Ummm...no thanks.
Hope the other two know what they are talking about. Read all about side effects and preparation on this board. It is so helpful. Everyone reacts a little differently and as TLG mentioned, we now all have a masters (I think mine is a doctorate) in BC treatments. My doctor and his nurses were very thorough in telling me, but even so little thins slip their mind or they might happen to me and no one else. (for example, two kidney stones while I was on chemo that they dont know if they were trigged by chemo or just a freak coincidence).
Ask lots of questions here and of your docs. And find one you really like because you have to feel comfortable with them. Interview others if needed. In my case, I wanted someone that considered me part of the team and wasnt offended when I rolled in with two pages of questions and studies in my hands. I think he likes it know. Keeps him on his toes.