May 21, 2012 10:17PM Hindsfeet wrote:
You might find more interest in the HER2+ THREADS. Maybe the mods can move this thread to the her+ board.
I' chose herceptin without tamoxifen or chemo (both strongly recommended). I am sooo glad that I chose only herceptin. I've had enough problems in adjusting to the herceptin infusions and can't imagine what it would had been like doing more. My husband read in the paper this week that there is a study going on now for women doing herceptin only, without chemo.
Most don't have side effects with the herceptin infusions. I've have had several side effects. After the second infusion my EF went down 15 pts. Someone suggested Coq10 ...which has helped a lot. It brought my EF up to 55. I've developed strong palpitations from the herceptin. It's weird to hear your heart pounding. It's not as bad as it was after the first 2 infusions.
I've read somewhere that taking weekly herceptin is easier on the heart. For this reason, I'm trying the weekly infusions for the next 3 months.
The other side effects for me are fatigue, slower wound healing, eyes, and lower immunity (more mouth sores ... canker since starting herceptin).
Hope it goes well with you.