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Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

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Posted on: Nov 3, 2014 09:47AM

Posted on: Nov 3, 2014 09:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Nov 3, 2014 12:39PM Bad_At_Usernames wrote:

I'm with you. I usually feel pretty positive about the Her2 thing (since there have been so many advancements in such a short period of time) but lately I've been terrified. I'd love to hear some long term survivor stories!

"...to survive this disease, you had to be an eternal optimist and very aggressive..." -Vince DeVita Dx 12/23/2013, IDC, 6cm+, Stage IIIC, Grade 3, ER+/PR+, HER2+ Chemotherapy 1/16/2014 AC + T (Taxol) Targeted Therapy 3/16/2014 Perjeta (pertuzumab) Targeted Therapy 3/17/2014 Herceptin (trastuzumab) Surgery 7/11/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 8/28/2014 Breast, Lymph nodes Targeted Therapy 9/22/2014 Kadcyla (T-DM1, ado-trastuzumab) Hormonal Therapy 11/17/2014 Zoladex (goserelin) Hormonal Therapy 1/31/2015 Femara (letrozole) Dx 1/7/2016, IDC, Stage IV, metastasized to brain Targeted Therapy 1/15/2016 Verzenio Radiation Therapy 7/27/2016 External: Brain Targeted Therapy 11/15/2016 Tykerb (lapatinib) Dx 3/23/2017, IDC, Stage IV, metastasized to liver Chemotherapy 3/28/2017 Xeloda (capecitabine) Chemotherapy 8/30/2017 Taxotere (docetaxel) Radiation Therapy 2/27/2018 External: Brain
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Nov 3, 2014 02:22PM Lovemyboysandlabs wrote:

I will take any survivor stories for sure, but especially would love to hear from HER2 gals.

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Nov 3, 2014 04:11PM rebzamy wrote:

Hi ladies

Diagnosed June 2007 HER2+++   Now 7 years down the line.  Large lump, widespread DCIS as well, lymph node involvement .... still here!

Diagnosed June 2007, IDC, Grade 3, 4-5cm lump, several lymph nodes involved, HER2+++, 4 months of high strength chemo, mastectomy and lymph node removal, radiotherapy & a year of herceptin and recently had preventative surgery to other breast.
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Nov 3, 2014 04:40PM Lovemyboysandlabs wrote:

Thanks RebzAmy! So awesome to hear!!!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Nov 3, 2014 04:46PM Trisha-Anne wrote:

I'm four years out and doing well!

You are still undergoing tx and your fears are understandable. In time you'll find you think less and less about it coming back. It does take time though and everyone's different. I felt more comfortable and relaxed at around two years out.

I have made a long journey and been to a strange land and I've seen the dark man very close ... Thomas Wolfe Dx 9/17/2010, ILC, <1cm, Grade 1, ER+/PR+, HER2- Dx 9/17/2010, IDC, 2cm, Stage IIA, Grade 3, 1/6 nodes, ER+/PR+, HER2+ Dx 11/4/2015, IDC, Right, 2cm, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Nov 4, 2014 04:35PM lkc wrote:

here's my post from May 2014

I am writing this with enormous gratitude that I have reached this 9 Year BC anniversary. I've recently returned from my 6 mos check up, and finally had the nerve to ask my sweet Onc if he thought I would make it back then. He smiled and told me if anyone would, he thought it would be me. You see back then it was a recent development that an additional classification of C was added to the Stage 3 cases.There was only Stage III A. and B then. This meant for me that had I been diagnosed a few years earlier I would of been classified a stage 4 and would not have been a candidate for surgery, or the treatment I received.( My onc was part of the team at MD Anderson that pushed for this additional classification to provide an option of CURE for cases like myself) Anyway, to throw another ratchet in, I was also HER2 positive and when he told me that he looked really disturbed. I was actually happy since I knew I would probably get the newly approved Herceptin and just maybe it would work for me. He told me he had seen HER2 cases(BEFORE Herceptin) to be the worst BC prognosis and did not have any long term data for a case like mine. However, my dear Onc, held out his hand to me and said 'We're going for the Cure for you" I remember telling him then to throw everything he could at me. You see, I had just lost my Mom to Met BC and he was also her Onc. and we all had walked the long road of metastatic dx together.

That was 9 years ago and I am well. Living Large! I don't let a day pass without thanking God for my health and blessings I have in this life. I am blessed to share my life with a wonderful man who stood by me, while some members of my family ran for the hills. I have 2 beautiful girls and healthy happy grandchildren and a new baby boy coming in August! I am blessed to have my faith , and have truly long time dear friends. Upon my return home I went back to my career in research, but it would be Breast Cancer Research this time. How cool is that to be able to do that?! So many new treatments and lots of good outcomes.

Anyway. I am posting this to say hi to my old timer sisters on this board and also to let the newer sisters, know my story. There are lots of us out there.

I wish all a gentle road on a journey no one wants to go on.  

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Nov 4, 2014 04:38PM rozem wrote:

lkc - awesome story!  thanks for posting!!!!

im 3 years out myself :)

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Nov 4, 2014 09:09PM Girlstrong wrote:

lkc...your letter brought tears to my eyes. To know what you and your family went through and ultimately archived is nothing short of amazing. Praise God is right! Thank you for sharing.....

Now faith is the confidence in what we hope for and assurance about what we do not see..Hebrews 11:1 Subject in KATHRYN study. Dx 7/17/2013, IDC, 2cm, Stage IIB, Grade 3, ER-/PR-, HER2+ Chemotherapy 7/31/2013 AC Chemotherapy 10/30/2013 Taxotere (docetaxel) Targeted Therapy 10/31/2013 Perjeta (pertuzumab) Targeted Therapy 10/31/2013 Herceptin (trastuzumab) Surgery 1/29/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 3/10/2014 Breast, Lymph nodes Surgery 10/23/2014 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant Surgery 5/14/2015 Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery
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Nov 5, 2014 01:48PM sassa wrote:

In two weeks it will be 8 years since I was diagnosed.  I had bilateral mastectomies, AC chemo , a year of herceptin, and delayed reconstruction with implants.

I am in excellent health and physical condition.

Hang in there.

Dx 11/6/2006, IDC, 1cm, Stage IA, Grade 3, 0/9 nodes, ER-/PR-, HER2+
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Nov 5, 2014 01:50PM moderators wrote:

Hi All, 

Could we make a collection of these, and add them to the section on Acknowledging our Members?

http://www.breastcancer.org/community/acknowledgin...

Please send us a Private message if that is okay, and a photo of you, or something that represents you. Also, where you live (country, state). 

Thank you!!! 

To send a PM to the Mods: community.breastcancer.org/my/...

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