Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Nov 3, 2014 09:47AM

Posted on: Nov 3, 2014 09:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Dec 23, 2021 12:02PM - edited Dec 24, 2021 09:59AM by raleighgirl

Today marks seven years since since stage 3 Her2 + diagnosis for me! When diagnosed I had a 20 month old and seven month old. I worried I would never see them grow up. Now they are 7 and 8. After fearing that I may be unable to have more children because of the chemotherapy, I miraculously got pregnant and had another baby at age 41. She was born on Thanksgiving day in 2018. She is now three and a reminder that there literally can be life after cancer!
I am healthy and doing well and I hope that cancer is permanently in my rear view mirror. My husband and I have dedicated our philanthropic efforts to raising money for the American Cancer Society and have so far raised over $100k. We are doing this for all of you ladies!! Sending hugs and love toall of those currently undergoing treatment.

Dx 12/23/2014, IDC, 4cm, Grade 3, ER-, HER2- Targeted Therapy 1/15/2015 Perjeta (pertuzumab) Targeted Therapy 1/15/2015 Herceptin (trastuzumab) Chemotherapy 1/15/2015 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Dec 23, 2021 12:15PM aram wrote:

raleighgirl, congrats on your 7 years and your new baby! Thanks for sharing with us :)

Dx at 40, BRCA1 Dx 2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2- Dx 2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2- Chemotherapy 3/10/2021 AC + T (Taxol) Targeted Therapy 6/2/2021 Perjeta (pertuzumab) Targeted Therapy 6/2/2021 Herceptin (trastuzumab)
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Dec 23, 2021 02:18PM minustwo wrote:

Great post releigh - thanks for updating everyone.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 23, 2021 02:52PM racheldog wrote:

Raleighgirl, you give me hope. And others hope. Thank you for coming back on line to post. I had early stage but also the Grade 3, Her2+. It is hard to not think about this every day. I did everything in my plan this past year but not the AI drugs, yet.

You give hope that 7-10 years is possible for Her2+ women.

Dx 9/2020, IDC, Left, <1cm, Stage IA, Grade 3, ER+/PR+, HER2+ Radiation Therapy 6/1/2021 Whole breast Chemotherapy Other Surgery Lumpectomy; Lumpectomy (Left) Chemotherapy Chemotherapy Other
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Dec 23, 2021 07:54PM - edited Dec 23, 2021 09:06PM by margun

Raleighgirl- congrats for 7 years and wishing you and everyone here many healthy years to come.

Racheldog- I hope not only 7-10 are possible but even much more is possible.probably there are 20 or 30 year survivors we do not know off. II hope that still is possible to dye from being old. Am I too positive or unrealistic??

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Dec 23, 2021 09:15PM minustwo wrote:

Yup - it's possible. Like Raleigh, I'm 7 years out from a recurrence that was HER2+. My blood work in August was good & I just had my every-other-year ultrasound. No evidence of disease.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 23, 2021 11:43PM aram wrote:

MinusTwo, congrats on 7 years being NED and I hope for many many more years like that!

Dx at 40, BRCA1 Dx 2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2- Dx 2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2- Chemotherapy 3/10/2021 AC + T (Taxol) Targeted Therapy 6/2/2021 Perjeta (pertuzumab) Targeted Therapy 6/2/2021 Herceptin (trastuzumab)
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Dec 24, 2021 10:30PM margun wrote:

MinusTwo congrats for 7 years and I wish many more healthy years to come.

Good health to all of us ladies

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Dec 25, 2021 06:39AM - edited Dec 25, 2021 06:56AM by BarbTheBCBarbie

I pray to be able to post her on here in 10 years. I'm excited that the talk of restaging is being brought up again because I'll be considered 3C and not 4 if they do!

Congratulations everyone!

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Dec 27, 2021 11:37AM - edited Dec 27, 2021 12:26PM by raleighgirl

Margun,


I do think it's possible to now die of old age instead of the disease. I had a PCR after chemotherapy and had over ten tumors spanning 10cm. It was massive! Also had lymph node involvement. When I was diagnosed my oncologist told me that despite my staging and tumor size she thought I would be cured. I have chosen to believe her. Thinking otherwise takes away from my everyday joy. Sending positive thoughts and healing!!

Dx 12/23/2014, IDC, 4cm, Grade 3, ER-, HER2- Targeted Therapy 1/15/2015 Perjeta (pertuzumab) Targeted Therapy 1/15/2015 Herceptin (trastuzumab) Chemotherapy 1/15/2015 Carboplatin (Paraplatin), Taxotere (docetaxel)

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