Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Nov 3, 2014 06:47AM

Posted on: Nov 3, 2014 06:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/2/2014 Herceptin (trastuzumab) Chemotherapy 3/2/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/14/2014 Breast, Lymph nodes
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Sep 23, 2022 02:32PM loveofmyboys wrote:

Congrats on being cancer free & on the new baby!


I was just diagnosed Stage 3 in April. I cry everyday as I fear I won’t get to see my 6 & 2 year old grow. I don’t have my breast surgery til end of October. I hear HER2+ Hormone Negative (which I am is a very scary cancer to have especially because of the potential of brain mets. I am only 39 years old.

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Sep 23, 2022 03:47PM pipandor wrote:

Take heart! Herceptin is extremely effective against hormone negative HER2 breast cancer.

Dx 1/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ Surgery 2/4/2016 Lumpectomy; Lumpectomy (Left) Chemotherapy 3/10/2016 Taxol (paclitaxel) Targeted Therapy 3/10/2016 Herceptin (trastuzumab) Radiation Therapy 8/29/2016 Whole breast: Breast
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Sep 24, 2022 04:49AM denise-g wrote:

I am back to post that. I just had my 11 year cancer-free checkup. Diagnosed in Oct 2011. Triple positive, nine positive nodes, 6 cm tumor, had a heart attack during AC chemo. Then had to quit Herceptin after 3 months because of heart failure. My ejection fraction dropped from a normal 65 to 29.

Quitting Herceptin was terrifying. My oncologist held my hand in a doctorly fashion and said he believed I had enough Herceptin and God would take care of me.

That went through my head as a mantra All these years. Here I am at age 66 and thriving.

There have been a lot of tough patches (like needing a defibrillator ) but I'm still enjoying life and appreciating everyday.

Don't give up, go to the best cancer hospital preferably an NCI designated Cancer center for a second opinion.


www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2- Surgery 11/22/2011 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 12/26/2011 AC + T (Taxol) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Hormonal Therapy 10/10/2012 Arimidex (anastrozole)
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Sep 24, 2022 05:09AM - edited Sep 24, 2022 05:11AM by melbo

Loveofmyboys — hormone negative. HER2 positive is an aggressive cancer, but it's also considered very treatable. There was a study within the last few years that found that it is the *most* treatable version of breast cancer at this point because they know what is driving the growth of the cancer (over expression of the HER2 gene) and there are very effective ways of treating it (herceptin and Perjeta).

There is another thread on the site for this version of cancer — it's not super active because it's a fairly rare sub-type and so many of us get cured and move on; however, there are a few of us there who check in fairly often and you can find some of the previous links and articles if you go through some of the past discussions.

https://community.breastcancer.org/forum/80/topics/767013?page=229#idx_2284

Treatment will suck, but probably not as much as you think it will. The fear will be overwhelming some days. Every pinch and pain and headache will make you wonder if it wasn't caught before it spread. But just keep reminding yourself that this version is very treatable and the odds are in your favor. (95% chance of a cure if you have complete pathological response (PCR) after chemo and initial rounds of herceptin/Perjeta.) if the fear gets to be too much, ask your doctor for something to help — the physical side of treatment is hard enough that you shouldn't also tough out the mental and emotional side if it's too much.

Feel free to PM me if you like. I was diagnosed at 41 in July 2020

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/6/2020 Herceptin (trastuzumab) Targeted Therapy 8/6/2020 Perjeta (pertuzumab) Chemotherapy 8/6/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy; Lumpectomy (Left); Lymph node removal; Reconstruction (Left); Reconstruction (Right) Radiation Therapy 1/31/2021 Whole breast: Breast, Lymph nodes
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Sep 24, 2022 06:10AM - edited Sep 24, 2022 06:19AM by loveofmyboys

Thank you all for the responses! I am so happy to hear that HER2+ is so treatable & you all are doing so well!


I haven't had my surgery yet, but my breast mri showed no signs of tumor left and it is a lobular 8.5cm at its’largest section. I just finished TCHP chemo. I had 1 positive node that I know of so far presurgery.


I hope/pray it didn't spread & that's my fear is I heard this subtype is known for brain mets.

Melbo thanks for letting me PM you. I may do so in the future.

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Sep 24, 2022 10:40AM loveofmyboys wrote:

The year of treatment is so long. How long did it take you to feel well and more like yourself after Chemo? I just finished TCHP chemo about 2 weeks ago

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Sep 24, 2022 12:17PM mcbaker wrote:

I didn't feel like it was done with until Herceptin was finished. The last few infusions were at the local hospital which had just opened. I then waited several months, and got the port removed. I then got a nipple tattooed on my faux boob. It was then that I felt finished with it. The freedom was more of a psychological thing than a physical thing.

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 11/15/2018 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Dx 11/16/2018, IDC, Right, <1, Stage IA, Grade 1, ER-/PR-, HER2+, IHC Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Chemotherapy 12/24/2018 Taxol (paclitaxel) Targeted Therapy 12/28/2018 Herceptin (trastuzumab) Surgery 6/27/2019 Reconstruction (Right): Fat grafting, Saline implant Chemotherapy
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Sep 24, 2022 06:56PM olgah34 wrote:

Ladies please do not be discouraged. I am 11 years survivor...Unfortunately my son died by suicide this April and I forgot about cancer...Pain is too big...Please pray for me...And ask Lord to be with you every day...You will make it... one day at the time

Dx 7/12/2011, IDC, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+, HER2- Surgery 7/25/2011 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left) Surgery 8/10/2011 Lumpectomy; Lumpectomy (Left) Surgery 8/31/2011 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Targeted Therapy 9/18/2011 Herceptin (trastuzumab) Chemotherapy 9/18/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/8/2012 Reconstruction (Left): Tissue Expander Hormonal Therapy 2/15/2012 Surgery 3/20/2012 Reconstruction (Left): Tissue Expander Surgery 1/21/2013 Reconstruction (Left): Latissimus dorsi flap Surgery 4/17/2013 Reconstruction (Left); Reconstruction (Right)
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Sep 24, 2022 10:14PM mistyeyes wrote:

Olgah34 - So very sorry for your loss. I did say a prayer for you.

IDC right- Stage IIA, Grade 3,ER-,PR+,HER2+ Dx 11/15/2016, Right, PR+, HER2-
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Sep 25, 2022 11:11AM loveofmyboys wrote:

Prayers to you. So sorry to hear about your son

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