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Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Nov 3, 2014 09:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Oct 10, 2018 01:26PM AngelsGal57 wrote:

Hi my Her2 friends,

I have been very lucky with all of my treatments and insurance until hitting a brick wall yesterday. Because of the extream SI's and pain with Tamoxifen my Dr is switching me to a yet to be determined alternative medication. The next step in treatment has proven to be Aromasin which is an AI. I have found out that Aromasin and Letrozole and Arimedex are not in my insurance formulary. My doctor is going to have to fight them to let me have it...It may be due to expense. I will see what he says next week when I get my Scan results and we discuss what to do at my next infusion treatment.

What has been your experience? Anyone had the same problem and won?

AngelsGal

Dx 3/20/2017, Right, 4cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Chemotherapy 5/10/2017 Taxotere (docetaxel) Surgery 10/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 11/14/2017 Whole-breast: Breast Hormonal Therapy 7/5/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 7/26/2018 Kadcyla (T-DM1, ado-trastuzumab)
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Oct 13, 2018 09:17AM AliceS wrote:

4 years this week cancer free! Happy, grateful, loving life, and looking forward to many good years ahead!! 

Dx 10/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-/PR-, HER2+ (FISH) Dx 10/9/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-, HER2+ (FISH) Targeted Therapy 11/12/2014 Herceptin (trastuzumab) Chemotherapy 11/12/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy
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Oct 15, 2018 08:02AM zjrosenthal wrote:

I am also 4 yrs out. Had my 4th clear mamo this past August. Very grateful to be alve. I don’t think as much about recurrence these days and at 75 years young, each day is a gift from God. Love, Jean

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+ (FISH) Surgery 8/11/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 9/8/2014 AC Targeted Therapy 11/3/2014 Herceptin (trastuzumab) Targeted Therapy 11/3/2014 Perjeta (pertuzumab) Chemotherapy 11/3/2014 Taxol (paclitaxel) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/19/2015 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 3/16/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+
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Oct 15, 2018 08:53AM jo6359 wrote:

zjrosenthal- congratulations. Do you still experience anxiety waiting for results?

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Oct 16, 2018 05:58AM zjrosenthal wrote:

Jo, I have some anxiety but nothing like years ago. Just mild concern rather than panic. Love, Jean

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+ (FISH) Surgery 8/11/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 9/8/2014 AC Targeted Therapy 11/3/2014 Herceptin (trastuzumab) Targeted Therapy 11/3/2014 Perjeta (pertuzumab) Chemotherapy 11/3/2014 Taxol (paclitaxel) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/19/2015 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 3/16/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+
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Oct 16, 2018 08:34PM jo6359 wrote:

jean- mild anxiety beats the hell out of panic. Thursday I will have my first cervical screening since being diagnosed with breast cancer in December. I'm not anxious YET that could change very quickly.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)

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