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Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

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Posted on: Nov 3, 2014 02:47PM

Posted on: Nov 3, 2014 02:47PM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Sep 21, 2016 10:48PM - edited Sep 21, 2016 10:50PM by NeverForsaken

Hi, lala 1...

" I figure if someone can come up with Herceptin and change the lives of HER- people, then it gives me hope we will find a cure or at least a vaccine in my lifetime."

That would be so wonderful!

~Blessings & Love~ and remember, we are...~Never Forsaken~ Dx 12/17/2013, IDC, Right, 1cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2+, Surgery 12/26/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy 1/24/2014 Herceptin (trastuzumab) Chemotherapy 1/24/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 10/9/2017, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 3, ER+/PR+, HER2+ Chemotherapy 10/25/2017 AC + T (Taxol) Radiation Therapy 4/3/2018 Targeted Therapy Perjeta (pertuzumab)
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Sep 22, 2016 01:38AM Deaconlady wrote:

Thanks for sharing that lala1!

Diagnosed 3 days before turning 52 Dx 9/24/2015, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- Dx 11/24/2015, IDC, Right, <1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR-, HER2+ Surgery 11/24/2015 Lumpectomy Surgery 12/24/2015 Lymph node removal: Right, Sentinel Chemotherapy 2/16/2016 Taxol (paclitaxel) Targeted Therapy 2/16/2016 Herceptin (trastuzumab) Radiation Therapy 5/9/2016 Whole breast: Breast Hormonal Therapy 6/22/2016 Arimidex (anastrozole)
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Sep 22, 2016 12:09PM Cwhitney wrote:

La-la1, thank you so much for that info. I was having a "feel sorry for myself blues" yesterday and you brought me up by your post!

Dx 5/6/2016, DCIS/IDC, Right, <1cm, Stage IA, Grade 3, 0/16 nodes, ER+/PR+, HER2+, Surgery 5/18/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement Targeted Therapy 7/11/2016 Herceptin (trastuzumab) Chemotherapy 7/11/2016 Taxotere (docetaxel)
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Sep 22, 2016 02:18PM AliceS wrote:

Many thanks, Lala, for posting---your positive news that makes us all feel better. My doctor did say that getting past 3 years was important. I'll be 2 years next month. And of course now we have Perjeta for more hope.

Best wishes to all--love each day!

Stephanie

Dx 10/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-/PR-, HER2+, Dx 10/9/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-, HER2+, Targeted Therapy 11/12/2014 Herceptin (trastuzumab) Chemotherapy 11/12/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy
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Sep 22, 2016 08:21PM denise-g wrote:

NED - No evidence of disease!

lkc - cannot tell you the number of times you have given me encouragement along the way as I approach my 5 year mark!

CONGRATULATIONS, great pic, and THANK YOU!!! You have been a part of my life and survival!!

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2- Surgery 11/23/2011 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 12/27/2011 AC + T (Taxol) Targeted Therapy 2/28/2012 Herceptin (trastuzumab) Hormonal Therapy 10/11/2012 Arimidex (anastrozole)
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Sep 24, 2016 05:11AM HattieHouston wrote:

I'm 74 years old and diagnosed in May 2016. I complete my 12 cycles next week. I just wanted to share that when my markers turned out to be hormone receptor negative and HER2 +, My surgeon told me in a very excited voice that "we have the BEST medicine for that! After you finish your neoadjuvant, the cancer will be so small, we won't even be able to see it." She said I am very fortunate to live now when we have Herceptin and Perjeta. Im feeling really lucky to have HER2+.

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Sep 24, 2016 07:36AM MsBrompton wrote:

I agree Hattie. I was HER+ and ER-, and after chemo and the year of Herceptin I'm on no medication at all and clear of disease! I'm back at work full time, and jogging and swimming. Husband doesn't mind the fact that I have a fake breast on one side. Cancer already feels a long way away. We CAN move on.

Dx 7/5/2015, IDC, Left, <1cm, Stage IB, Grade 2, 0/1 nodes, ER-/PR-, HER2+ Surgery 7/23/2015 Mastectomy: Left; Reconstruction (left): Saline implant Chemotherapy 8/5/2015 Taxol (paclitaxel) Targeted Therapy 8/5/2015 Herceptin (trastuzumab) Surgery 11/26/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant
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Oct 2, 2016 08:58PM maryannecb wrote:

Back for my yearly update!

11 years from diagnosis of stage 3 er/pr -, her 2 pos disease. Glad to report continued good health, a fully normal life and little fear.

Do as much treatment as is offered and you can tolerate, get back to your normal routine as quickly as you can.

Put one foot in front of the other.

Some women don't ever recur!

Hoping and praying I continue to be one of them.

Fists up!

Fists up! Dx 9/20/2005, IDC, 6cm+, Stage IIIA, Grade 2, 2/14 nodes, ER-/PR-, HER2+
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Oct 3, 2016 03:38PM denise-g wrote:

FIVE YEARS OUT this month!  Celebrating every minute!  I had a 6 cm plus tumor, 9 positive nodes, Triple Positive - was only able to have 3 MONTHS of Herceptin instead of 12 because I had permanent heart valve damage from Herceptin, I had a heart attack during AC Chemo (no previous heart problems before BC), and lots of other fun stuff.  I NEVER thought I would survive it to FIVE YEARS, but here I am feeling better than I have the whole time!

Sending love, hope, encouragement, and courage to you all!! 

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2- Surgery 11/23/2011 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 12/27/2011 AC + T (Taxol) Targeted Therapy 2/28/2012 Herceptin (trastuzumab) Hormonal Therapy 10/11/2012 Arimidex (anastrozole)
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Oct 3, 2016 03:47PM Cwhitney wrote:

Congrats maryannecb and Denise. As I sit in the chair for my 5 oh of 6 treatments, you give me hope that I can hopefully put this past me.

Dx 5/6/2016, DCIS/IDC, Right, <1cm, Stage IA, Grade 3, 0/16 nodes, ER+/PR+, HER2+, Surgery 5/18/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement Targeted Therapy 7/11/2016 Herceptin (trastuzumab) Chemotherapy 7/11/2016 Taxotere (docetaxel)

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