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Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

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Posted on: Nov 3, 2014 06:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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May 8, 2021 07:00AM MCBaker wrote:

www.breastcancer.org/research-... No reason to panic over Herceptin. The heart heals itself after Herceptin is done.

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 11/15/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/27/2019 Reconstruction (right): Fat grafting, Saline implant
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Jun 5, 2021 01:18PM NWArtLady wrote:

I'm back!

I recall a post around the time I was diagnosed wherein a person asked why there were no long term survivors in this forum and a wise person answered that it was because they were off living their lives. A few did respond and seeing those survivors gave me great hope for my own survival. I decided then to come back every year that I can and let y'all know that I'm still alive and kicking! It's now been *10* years, here's to (hopefully) many more!

Hang in there, everyone. <3

Just keep swimming, just keep swimming... ~Dory
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Jun 5, 2021 02:00PM Aram wrote:

NWArtLady, congrats on 10 years! And thanks for your encouraging post

Dx at 40 Dx 2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2+ (IHC) Dx 2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2+ (IHC) Chemotherapy 3/9/2021 AC + T (Taxol) Targeted Therapy 6/1/2021 Herceptin (trastuzumab) Targeted Therapy 6/2/2021 Perjeta (pertuzumab)
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Jun 8, 2021 07:52PM Racheldog wrote:

Oh yes, thank you for the encouraging post.

Dx 9/2020, IDC, Left, <1cm, Stage IB, Grade 3, ER+/PR+, HER2+ (IHC) Radiation Therapy Whole-breast Chemotherapy Other Surgery Lumpectomy: Left
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Jun 9, 2021 03:00AM DogMomRunner wrote:

NWArtLady - Congratulations on the 10 years!

I am now one year out from end of treatment. yay! Smile

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/16/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Jun 9, 2021 09:54AM zjrosenthal wrote:

6 yrs out from all treatment except tamoxifin.

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+ (FISH) Surgery 8/11/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 9/8/2014 AC Targeted Therapy 11/3/2014 Herceptin (trastuzumab) Targeted Therapy 11/3/2014 Perjeta (pertuzumab) Chemotherapy 11/3/2014 Taxol (paclitaxel) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/19/2015 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 3/16/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+
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Jun 9, 2021 10:41AM RebzAmy wrote:

14 years out this month, woo hoo!

I always try to come back to post something positive.

Diagnosed June 2007, IDC, Grade 3, 4-5cm lump, several lymph nodes involved, HER2+++, 4 months of high strength chemo, mastectomy and lymph node removal, radiotherapy & a year of herceptin and recently had preventative surgery to other breast.
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Jun 10, 2021 06:13AM mistyeyes wrote:

Thankyou for all the posts

IDC right- Stage IIA, Grade 3,ER-,PR+,HER2+ Dx 11/15/2016, Right, PR+, HER2+
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Jun 10, 2021 08:13AM AngieB92 wrote:

I love seeing these survivors come back to reassure us that all is well!! I know in my darkest days, I hung on to those stories as a beacon of light

Dx 8/8/2019, IDC, Left, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 9/16/2019 Perjeta (pertuzumab) Targeted Therapy 9/16/2019 Herceptin (trastuzumab) Surgery 3/3/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 4/9/2020 Kadcyla (T-DM1, ado-trastuzumab)
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Jun 10, 2021 09:21AM - edited Jun 10, 2021 09:25AM by MCBaker

I am embarrassed to report, because mine was just barely clinical. But 2 1/2 years post surgery. Rarely think about it anymore. I thought consciousness of the numbness in my breast would last forever. Even the numbness of my feet doesn't bother me any more.

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 11/15/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/27/2019 Reconstruction (right): Fat grafting, Saline implant
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Jun 11, 2021 02:40AM DogMomRunner wrote:

MCBaker - you went through more surgery than I did and more chemical treatment than others without HER+ so congrats to you. Your posts of encouragement and many others helped me get through my surgery and treatment. I haven't gotten to the point yet where the armpit numbness is not noticeable but at some point it will be almost (almost :) ) like it never happened.

Congratulations to everyone here who has made it any number of weeks, months or years

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/16/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Jun 12, 2021 06:28PM - edited Jun 12, 2021 06:30PM by lkc

16 yrs out from a stage IIIc her2 pos bc alive , well and grateful everyday !

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Jun 13, 2021 06:33AM MCBaker wrote:

IKC, you are genuine blessed!!

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 11/15/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 12/18/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/27/2019 Reconstruction (right): Fat grafting, Saline implant
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Jun 13, 2021 07:42AM Margun wrote:

IKC and all of you ladies who are coming back to give hope.

IKC. I think you are the front runner on this site that made so long cancer free and going strong. I hope you and all of us live many many years healthy. Because of you I believe that I have a chance t see my kid graduate, get married and my grand kids.

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Jun 13, 2021 07:51AM Melbo wrote:

I am coming up on a year from diagnosis. I still have three more treatments of kanjinti and Perjeta. In the past year I have had a brain Mets scare (clean MRI) and a liver Mets scare (fatty liver probably caused by chemo). Since finding out about the fatty liver I have mostly stopped drinking (4-6 oz every two or three weeks) and I have cleaned up my diet, which has finally made me start feeling better.

I started looking at statistics yesterday and realized everything is drastically in my favor. The recurrence rates for hormone negative, Her2 positive cancers treated with herceptin/kanjinti as well as perjeta both pre and post surgery, combined with a pCR at surgery is something like 6-8%. Those are pretty damned good odds.

Now I just need to get used to the idea that this should just be a small chapter of my life and I should be able to start planning for the future again. Just typing those words kind of scares me though and makes me want to knock on wood and do any other good luck voodoo I can think of. I’m sure it will get easier as time goes on, especially once I’m completely done with treatment, but right now it still feels like a big, scary idea that I have to wrap my head around.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes
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Jun 13, 2021 08:31AM Pipandor wrote:

Hello Melbo. I was hormone negative and strongly HER2 positive too . I also had a couple of scares during in the years following treatment and I still think of cancer when my bones or joints ache but I think of it less than I used to and luckily, most side effects of the treatment resolved in a couple of years. You have all the reasons to be optimistic. If you don't see many posts from HER2 hormone negatives it's just because they represent only 5% of breast cancers. All the best in your recovery.

Dx 1/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 2/4/2016 Lumpectomy: Left Chemotherapy 3/10/2016 Taxol (paclitaxel) Targeted Therapy 3/10/2016 Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast

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