Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Nov 3, 2014 06:47AM

Posted on: Nov 3, 2014 06:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.


Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/2/2014 Herceptin (trastuzumab) Chemotherapy 3/2/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/14/2014 Breast, Lymph nodes
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Oct 3, 2016 07:56AM specialk wrote:

I am a week past 6 years from diagnosis - those currently in the trenches of treatment - you can do this! Thanks to those even further out who return and post and offer hope to those more newly diagnosed. We all remember how scary this diagnosis can be, but know we are all here to pull each other forward and offer support.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+, IHC
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Oct 3, 2016 03:56PM Girlstrong wrote:

lala1...I LOVE the good news you are sharing. Much needed and always welcomed. I am 3 years and 3 months out from diagnosis. 🙏🏻 I am so grateful because each is a gift. One foot in front of the other; keep going girls! 😘❤️😘❤️

Now faith is the confidence in what we hope for and assurance about what we do not see..Hebrews 11:1 Subject in KATHRYN study. Dx 7/17/2013, IDC, 2cm, Stage IIB, Grade 3, ER-/PR-, HER2+ Chemotherapy 7/30/2013 AC Chemotherapy 10/29/2013 Taxotere (docetaxel) Targeted Therapy 10/30/2013 Perjeta (pertuzumab) Targeted Therapy 10/30/2013 Herceptin (trastuzumab) Surgery 1/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 3/9/2014 Breast, Lymph nodes Surgery 10/23/2014 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant Surgery 5/13/2015 Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery
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Oct 3, 2016 06:47PM zjrosenthal wrote:

Diagnosed July of '15. Finished treatment last October. Clear mamos in July of '15 and '16. God is good. Love, Jean

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2- Surgery 8/10/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Chemotherapy 9/7/2014 AC Targeted Therapy 11/2/2014 Herceptin (trastuzumab) Targeted Therapy 11/2/2014 Perjeta (pertuzumab) Chemotherapy 11/2/2014 Taxol (paclitaxel) Hormonal Therapy 1/26/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/18/2015 Lymph node removal; Lymph node removal (Left): Underarm/Axillary Radiation Therapy 3/15/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2- Immunotherapy Immunotherapy
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Oct 5, 2016 11:31AM WarriorCheryl wrote:

I just had my first mammogram after being diagnosed one year ago. I was HER2+, stage 1, and had a lumpectomy November 1st followed by 12 weeks of taxol/herceptin. I am continuing Herceptin through the end of the year. I also had accelerated radiation for 4 weeks.

I just met with my surgeon who was ecstatic over my image results. Even though my radiologist wanted me to wait longer for an image to have the breast tissue settle down, and to have some of the radiation leave my body I went for the tomogram as scheduled by my surgeon. I had very little scar tissue, which looked quite healthy. My scar is minimal. I did feel effects of the radiation and was totally wiped out that night. But it is comforting to know all is looking good.

I think I have been having more pain and tightness on my tumor side following radiation than from the surgery scar tissue. Exercise is important…yoga and stretching and light weight work. Also, a loving cousin told me early on to love my breasts. I kept them both. I massage every day with essential oils and organic moisturizers which keeps the breast tissue healthy. Also a good diet is important and drinking lots of water is key to healthy tissue.

Dx 9/30/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2+, Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 12/17/2015 Herceptin (trastuzumab)
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Oct 8, 2016 10:12AM CassieCat wrote:

Congrats to all, and thank you for continuing to update here. It is helpful to read your stories!

43 years old at dx. 6 rounds of TCHP (DONE 12/15/14), MX on left side (DONE 1/9/15), radiation (DONE 4/1/15), Herceptin (DONE 8/19/15) and Tamoxifen (3.5 years), AI (currently) Dx 8/19/2014, IDC, Left, 2cm, Grade 2, 1/2 nodes, ER+/PR+, HER2+,
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Oct 9, 2016 07:11AM lago wrote:

October 5th was 6 years from my first of 6 chemos. I had surgery first. Still NED!

DONE!! • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2-
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Oct 10, 2016 06:04PM kimm992 wrote:

I will be a ONE year survivor this Friday!! I never would have thought a year ago that I would be in the place I am today...I am so thankful.

So appreciate all of the survivors who come back to give us all hope!

Dx 10/14/2015, IDC, Right, 1cm, Grade 3, ER-/PR-, HER2+, ISH Chemotherapy 11/3/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Targeted Therapy 1/6/2016 Herceptin (trastuzumab) Chemotherapy 1/7/2016 Taxotere (docetaxel) Surgery 3/24/2016 Mastectomy; Mastectomy (Right) Radiation Therapy 4/30/2016 Lymph nodes, Chest wall
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Oct 11, 2016 01:59AM jellybean59 wrote:

Hi everyone,

I am stage 2b breast cancer Her2 positive. 3 nodes removed, all clear!  I have had 3 rounds of Fec chemo.  I expect to have radiotherapy also soon.  Anyone out there having refused all their chemo treatment?  Still living?  I am 57.  Be nice to have some positive stories please, thanks x

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Oct 13, 2016 07:00AM AliceS wrote:

Hi Jellybean59--I wouldn't refuse any treatment, but that just me--in my experience it wasn't as bad as I had anticipated and every side effect I had, I thought--I can deal with this and it's just temporary. If your nodes were clear the stats are in your favor and you should be fine. Best of luck to you!

Dx 10/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-/PR-, HER2+, Dx 10/9/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-, HER2+, Targeted Therapy 11/11/2014 Herceptin (trastuzumab) Chemotherapy 11/11/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy
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Dec 18, 2016 07:01PM GAP wrote:

Hi, just wanted to share my story with you. Diagnosed 2009 with invasive lobular and ductal multifocal, er+, pr+, her2+, 2 tumours totalling 4cm. Node negative but evidence of vascular invasion. Underwent double mastectomy with reconstruction. Chemotherapy with Herceptin and 5 years of Femara. I remember only too well the initial fear of recurrence. I still have it but it goes underground for lengthy periods of time. Usual pops up if I'm under the weather and at stressful times but initially I thought I would live with it on a daily basis forever ! Not so 😃 I am 7 years (Nov) cancer free and counting so hope this is an encouragement to you, hang in there, it will get easier with time. Warm regards.

Dx 11/9/2009, ILC, 4cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 11/19/2009 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): Nipple reconstruction, Tissue expander placement; Reconstruction (right): Nipple reconstruction, Tissue expander placement Hormonal Therapy 7/29/2010 Femara (letrozole)

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